garyd
05-15-2003, 07:06 PM
I dealt with severe pain in my tailbone for 7 years. took medicine after medicine. oxycodone, oxycontin,
NSAIDS, and used lidocaine patches. The lidocaine patches actually helped a great especially at nite time trying to sleep. My pain doc introduced me to a
"Spinal Cord Stimulator". I had the temp put in to see if results were good, and they were. I had the perm. implant about 3 weeks later. It has saved my life in regards to pain and has given me back a sense of living again. anybody who might like additional info. I will be more than glad to provide. Hope everybodys day is good and with less pain...Gary
NSAIDS, and used lidocaine patches. The lidocaine patches actually helped a great especially at nite time trying to sleep. My pain doc introduced me to a
"Spinal Cord Stimulator". I had the temp put in to see if results were good, and they were. I had the perm. implant about 3 weeks later. It has saved my life in regards to pain and has given me back a sense of living again. anybody who might like additional info. I will be more than glad to provide. Hope everybodys day is good and with less pain...Gary
Sponsor
BAXTER
05-15-2003, 07:36 PM
Hi Gary, :wave:
I'm so glad the SCS is working for you http://www.healthboards.com/ubb/t_up.gif
One of our members on the back boards here,(W Baker) just had the trial implant done on Wednesday, so I started a thread to send him over here to see if you maybe can assist him.
Keep up the good work http://www.healthboards.com/ubb/t_up.gif
Take Care,
Baxter http://www.healthboards.com/ubb/heart.gif
------------------
Two level laminectomy fusion L5-S1 & L2-3 done on 12/6/02.
Fifteen inch scar from the very top of butt crack (sorry), to the bra line.
BAK cages, rods & screws.(Titanium)
My pelvic bone was used for grafting.
Praying that the other two discs in between, won't have to be fused later, as I was told it was a possibility, due to the other two discs in between, not being in that great of shape.
Doc didn't want to fuse four levels, unless it is really necessary.
I would hate to repeat the surgery, as the recovery period, is so very painful.
I also have a free fragment in my T11-12 area, that I'm still refusing surgery for, at this point in time.
That surgery is way too dangerous for me to consider, until if affects my being able to walk.
I'm so glad the SCS is working for you http://www.healthboards.com/ubb/t_up.gif
One of our members on the back boards here,(W Baker) just had the trial implant done on Wednesday, so I started a thread to send him over here to see if you maybe can assist him.
Keep up the good work http://www.healthboards.com/ubb/t_up.gif
Take Care,
Baxter http://www.healthboards.com/ubb/heart.gif
------------------
Two level laminectomy fusion L5-S1 & L2-3 done on 12/6/02.
Fifteen inch scar from the very top of butt crack (sorry), to the bra line.
BAK cages, rods & screws.(Titanium)
My pelvic bone was used for grafting.
Praying that the other two discs in between, won't have to be fused later, as I was told it was a possibility, due to the other two discs in between, not being in that great of shape.
Doc didn't want to fuse four levels, unless it is really necessary.
I would hate to repeat the surgery, as the recovery period, is so very painful.
I also have a free fragment in my T11-12 area, that I'm still refusing surgery for, at this point in time.
That surgery is way too dangerous for me to consider, until if affects my being able to walk.
HERMIT
05-15-2003, 08:09 PM
I don't want to discourage anyone, but I have a friend who has had this recently installed and he is worse of than he was before--he says it works at times but mainly he is couch or bedridden. I guess you have to inform yourself ask lots of questions. Good Luck whatever road you take.
BAXTER
05-15-2003, 08:18 PM
Hi Hermit, :wave:
I almost had one implanted myself, but I was never able to find a single success story, including my own doctors patients, so I decided against it.
I was amazed to see Gary's posting, when it said he found relief, that really caught my attention.
Hopefully W Baker will be along soon, I did finally get the posting in the correct spot at least, I'm losing my my mind lately http://www.healthboards.com/ubb/dizzy.gif
Have a super evening :bouncing:
Be Well,
Baxter http://www.healthboards.com/ubb/love2.gif
------------------
Two level laminectomy fusion L5-S1 & L2-3 done on 12/6/02.
Fifteen inch scar from the very top of butt crack (sorry), to the bra line.
BAK cages, rods & screws.(Titanium)
My pelvic bone was used for grafting.
Praying that the other two discs in between, won't have to be fused later, as I was told it was a possibility, due to the other two discs in between, not being in that great of shape.
Doc didn't want to fuse four levels, unless it is really necessary.
I would hate to repeat the surgery, as the recovery period, is so very painful.
I also have a free fragment in my T11-12 area, that I'm still refusing surgery for, at this point in time.
That surgery is way too dangerous for me to consider, until if affects my being able to walk.
I almost had one implanted myself, but I was never able to find a single success story, including my own doctors patients, so I decided against it.
I was amazed to see Gary's posting, when it said he found relief, that really caught my attention.
Hopefully W Baker will be along soon, I did finally get the posting in the correct spot at least, I'm losing my my mind lately http://www.healthboards.com/ubb/dizzy.gif
Have a super evening :bouncing:
Be Well,
Baxter http://www.healthboards.com/ubb/love2.gif
------------------
Two level laminectomy fusion L5-S1 & L2-3 done on 12/6/02.
Fifteen inch scar from the very top of butt crack (sorry), to the bra line.
BAK cages, rods & screws.(Titanium)
My pelvic bone was used for grafting.
Praying that the other two discs in between, won't have to be fused later, as I was told it was a possibility, due to the other two discs in between, not being in that great of shape.
Doc didn't want to fuse four levels, unless it is really necessary.
I would hate to repeat the surgery, as the recovery period, is so very painful.
I also have a free fragment in my T11-12 area, that I'm still refusing surgery for, at this point in time.
That surgery is way too dangerous for me to consider, until if affects my being able to walk.
cattys
05-15-2003, 08:33 PM
Hi, I have a spinal cord stimulator and it has giving me my life back. I have lived a life of pain for years and finally I have relief. Don't get me wrong it does not take away all the pain but it is so much better.
Everyone is different what might work for one person might not work for another. That is why they give the trial first, so you can try it out ,if it works well then you can go ahead and have the full implant.
It took me alot of time to come to the decision to have the scs but I was at my ropes end and would of tried anything.
Cattys
Everyone is different what might work for one person might not work for another. That is why they give the trial first, so you can try it out ,if it works well then you can go ahead and have the full implant.
It took me alot of time to come to the decision to have the scs but I was at my ropes end and would of tried anything.
Cattys
BAXTER
05-15-2003, 08:49 PM
Hi Cattys, :wave:
Great news http://www.healthboards.com/ubb/t_up.gif thank you so much for posting your story, I think this will greatly help W Baker http://www.healthboards.com/ubb/t_up.gif
I pray that you all have continued success with the SCS :angel:
Have a peaceful evening http://www.healthboards.com/ubb/yawn.gif
Be Well,
Baxter http://www.healthboards.com/ubb/heart.gif
------------------
Two level laminectomy fusion L5-S1 & L2-3 done on 12/6/02.
Fifteen inch scar from the very top of butt crack (sorry), to the bra line.
BAK cages, rods & screws.(Titanium)
My pelvic bone was used for grafting.
Praying that the other two discs in between, won't have to be fused later, as I was told it was a possibility, due to the other two discs in between, not being in that great of shape.
Doc didn't want to fuse four levels, unless it is really necessary.
I would hate to repeat the surgery, as the recovery period, is so very painful.
I also have a free fragment in my T11-12 area, that I'm still refusing surgery for, at this point in time.
That surgery is way too dangerous for me to consider, until if affects my being able to walk.
[This message has been edited by BAXTER (edited 05-15-2003).]
[This message has been edited by BAXTER (edited 05-15-2003).]
Great news http://www.healthboards.com/ubb/t_up.gif thank you so much for posting your story, I think this will greatly help W Baker http://www.healthboards.com/ubb/t_up.gif
I pray that you all have continued success with the SCS :angel:
Have a peaceful evening http://www.healthboards.com/ubb/yawn.gif
Be Well,
Baxter http://www.healthboards.com/ubb/heart.gif
------------------
Two level laminectomy fusion L5-S1 & L2-3 done on 12/6/02.
Fifteen inch scar from the very top of butt crack (sorry), to the bra line.
BAK cages, rods & screws.(Titanium)
My pelvic bone was used for grafting.
Praying that the other two discs in between, won't have to be fused later, as I was told it was a possibility, due to the other two discs in between, not being in that great of shape.
Doc didn't want to fuse four levels, unless it is really necessary.
I would hate to repeat the surgery, as the recovery period, is so very painful.
I also have a free fragment in my T11-12 area, that I'm still refusing surgery for, at this point in time.
That surgery is way too dangerous for me to consider, until if affects my being able to walk.
[This message has been edited by BAXTER (edited 05-15-2003).]
[This message has been edited by BAXTER (edited 05-15-2003).]
emc
05-16-2003, 07:51 AM
HI,
I have had a SCS for 5 years with wonderful results. I had about a 75 - 80% reduction in pain at first but that dropped to about 50% recently probably because my multiple problems have worsened over time. I'll still take it! The stim allowed me to return to work as a Kindergarten teacher that I wasn't able to do before the implant. Can't work with kids while on opiates.
Gary and Cattys, one word of caution. I fell on the ice taking kids out to the bus in Dec. and fractured one lead and totally broke the other one. I have been in limbo since then trying to find a doctor to relace the stim and getting W/C to approve the procedure. Needless to say I am out of work on a medical leave and am back to taking a menagerie of meds...lots of pretty colors!!! I did not realize that something like this could happen. I know that you can't live your lives as if you are walking on eggs, but just try to be cautious.
I have written about the benefits of a stim before and felt as if I was the only one who received any help from it. I think that sometimes if you receive help from a procedure you tend not to keep coming to a "support" group like this. A SCS is an invasive procedure and should be used as a last resort and it certainly is not for everyone. It helps my pain in my leg as a result of nerve damage but is not as effective on my back pain. People need to do their research before coming to the decision of having this done.
Gary and Cattys, I hope that you have continued success with your stims.
Susan
I have had a SCS for 5 years with wonderful results. I had about a 75 - 80% reduction in pain at first but that dropped to about 50% recently probably because my multiple problems have worsened over time. I'll still take it! The stim allowed me to return to work as a Kindergarten teacher that I wasn't able to do before the implant. Can't work with kids while on opiates.
Gary and Cattys, one word of caution. I fell on the ice taking kids out to the bus in Dec. and fractured one lead and totally broke the other one. I have been in limbo since then trying to find a doctor to relace the stim and getting W/C to approve the procedure. Needless to say I am out of work on a medical leave and am back to taking a menagerie of meds...lots of pretty colors!!! I did not realize that something like this could happen. I know that you can't live your lives as if you are walking on eggs, but just try to be cautious.
I have written about the benefits of a stim before and felt as if I was the only one who received any help from it. I think that sometimes if you receive help from a procedure you tend not to keep coming to a "support" group like this. A SCS is an invasive procedure and should be used as a last resort and it certainly is not for everyone. It helps my pain in my leg as a result of nerve damage but is not as effective on my back pain. People need to do their research before coming to the decision of having this done.
Gary and Cattys, I hope that you have continued success with your stims.
Susan
cattys
05-16-2003, 10:20 AM
Hi Susan,
Thanks for your post. wow that is scary to think all the damage it did from your fall. I also learned the other day to make sure I am on antibiotics before dental work or any procedure in case of infection because the infection can migrate to any foreign body that is implanted in the body.
I wonder if someday I will loose some of the pain relief I get from the stimulator, I hope not.
It does take alot of thinking before making the decision to have this done. I still don't like to think of the idea os having somthing implanted in my spinal canal but this system has become my best friend and helps me get through my days.
I hope you can get yours fixed so you can get some kind of relief.
Thanks again for your post. I hope you have a good day.
Cattys
[This message has been edited by cattys (edited 05-16-2003).]
Thanks for your post. wow that is scary to think all the damage it did from your fall. I also learned the other day to make sure I am on antibiotics before dental work or any procedure in case of infection because the infection can migrate to any foreign body that is implanted in the body.
I wonder if someday I will loose some of the pain relief I get from the stimulator, I hope not.
It does take alot of thinking before making the decision to have this done. I still don't like to think of the idea os having somthing implanted in my spinal canal but this system has become my best friend and helps me get through my days.
I hope you can get yours fixed so you can get some kind of relief.
Thanks again for your post. I hope you have a good day.
Cattys
[This message has been edited by cattys (edited 05-16-2003).]
wbaker68
05-16-2003, 12:24 PM
I am now in my 2nd full day of trial, boy its a tough thing to get used to. Seems like I am constantly adjusting the machine and kind of making me feel sick to stomach. NOt sure if its machine or antibiotic. Something is doing it though as I have had feeling two days in a row.
Not sure of those others that did the trial of how sensitive the thing was as you move around but this is very sensitive. Move my head this way or that and thing has no feeling.
That is my big worry about the implant, that if I think this works how much will it have be adjusted when implanted. I assume once leads get stuck to you from scar tissue it would be more easily set and not much more adjusting.
Am I correct?
Thanks.
Not sure of those others that did the trial of how sensitive the thing was as you move around but this is very sensitive. Move my head this way or that and thing has no feeling.
That is my big worry about the implant, that if I think this works how much will it have be adjusted when implanted. I assume once leads get stuck to you from scar tissue it would be more easily set and not much more adjusting.
Am I correct?
Thanks.
cattys
05-16-2003, 01:35 PM
Hi there! yes mine was the same and still kinda is. I can be laying down and once I get up or move a certain direction I would need to adjust the settings. The lead presses against your spinal cord while laying down and moves away when are in certain positions. after my permanent one was implanted it only needed reprogramed 3 times to get it right. Your antibiotics are proboly making you sick to your stomach that happened to me also.
I am now 12 weeks into having mine and it is much better. I had the dr. office adjust my settings so I have the smooth tingling sensation instead of the hard pounding that it was on.
I hope you have a good outcome with your scs. Keep us updated on your progress.
Take care
Cattys
I am now 12 weeks into having mine and it is much better. I had the dr. office adjust my settings so I have the smooth tingling sensation instead of the hard pounding that it was on.
I hope you have a good outcome with your scs. Keep us updated on your progress.
Take care
Cattys
wbaker68
05-16-2003, 03:34 PM
Cattys,
Thanks for the response. I have been switching back and forth between smooth and thump, can't figure out which is better for me yet. Medtronic lady told me to change voltage and try it to and showed me how in the box before I left, just change it and it seems to do a little better.
I hope it works and I just want to buy some more time before making any decisions on ADR right now.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--scheduled for trial stimulator implant
Hopefully to hold on for Prodisc for all 3 discs
Thanks for the response. I have been switching back and forth between smooth and thump, can't figure out which is better for me yet. Medtronic lady told me to change voltage and try it to and showed me how in the box before I left, just change it and it seems to do a little better.
I hope it works and I just want to buy some more time before making any decisions on ADR right now.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--scheduled for trial stimulator implant
Hopefully to hold on for Prodisc for all 3 discs
garyd
05-16-2003, 07:18 PM
Can't begin to say how much I enjoyed reading the responses on the SCS. Every comment you guys made was correct and worthy of full attention. I suppose I was very fortunate as other of u I see. My pain actually was reduced OHHH about 80 %. I understand it has done somewhat less for failed back surgeries, but I still often pray that people who are plagued with pain find a way to lessen it. It controlled me, and after so many years, I started to wonder even myself if it really hurt as bad as I thought. YES !! it did..I also have a medtronic device. I often forget that I have it, but also have become somewhat deliberate at how I do things like bending, walking, jogging. I truely hope that others will read all of your comments and that great things will occur for EVERYBODY. I realize I sound awful optomistic, I guess because I was blessed with great results. Have a great weekend guys and I hope to be a part of your dialogue...Gary
chumbo
05-16-2003, 11:49 PM
Garyd,, I have DDD, herniated disk L4-5, and one bulged disk. I currently take kadian 200mg day, vioxx, and percocet for breakthrough pain. My Dr gave me lidoderm patches a few months back, They were like a lifesaver to me! I go through 3 boxes per month. I am getting ready to have my 2nd epidural on the 20th, I am going to ask my Dr about the stimulator. I have not really heard much about it.
Thanks for sharing your story and info with us!!!
Chumbo
Thanks for sharing your story and info with us!!!
Chumbo
wbaker68
05-17-2003, 11:56 AM
Chumbo,
Where is the majority of your pain located? Legs or back. I am mostly in back and I can tell you that they have a hard time placing the lead in the correct place and it seems pretty simple for them to get the legs.
If your a leg pain person, you may find it great, if your a back pain person, well, it may work and it may not. I think so far for me it is working pretty well.
I am planning on turning things up a notch this weekend and see how I feel. Problem is that you know the pain is there but this thing just distracts your mind to feel the tingling rather the pain.
Good luck with doctor visit. I think its a great option for last resort when meds aren't working and surgery isn't possible.
Bill
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--scheduled for trial stimulator implant
Hopefully to hold on for Prodisc for all 3 discs
Where is the majority of your pain located? Legs or back. I am mostly in back and I can tell you that they have a hard time placing the lead in the correct place and it seems pretty simple for them to get the legs.
If your a leg pain person, you may find it great, if your a back pain person, well, it may work and it may not. I think so far for me it is working pretty well.
I am planning on turning things up a notch this weekend and see how I feel. Problem is that you know the pain is there but this thing just distracts your mind to feel the tingling rather the pain.
Good luck with doctor visit. I think its a great option for last resort when meds aren't working and surgery isn't possible.
Bill
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--scheduled for trial stimulator implant
Hopefully to hold on for Prodisc for all 3 discs
wbaker68
05-21-2003, 10:13 AM
I will be going in for the full implant on 6/11. Just wanted all to know that I thought the trial was a success. Now that it has been out for almost a day, it was more of a success than I initially thought.
Thanks for comments and I will update once I get the full one implanted.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
Thanks for comments and I will update once I get the full one implanted.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
MaryT
05-21-2003, 02:39 PM
Hi, Bill (wbaker68),
I'm happy you got a good result with the temporary SCS. However, I've heard several stories lately about people, like you, who had the SCS implanted to hold off on future ADR or fusion.
Unfortunately, these people were later unable to have further surgery because the SCS became so firmly implanted it couldn't be removed, or because they developed excess scar tissue.
Please check with your docs about this - especially whoever may be doing your future ADR surgery - not just the doc that's implanting the SCS. It would be terrible to find out later that you are no longer a candidate for further surgery.
Best wishes.
I'm happy you got a good result with the temporary SCS. However, I've heard several stories lately about people, like you, who had the SCS implanted to hold off on future ADR or fusion.
Unfortunately, these people were later unable to have further surgery because the SCS became so firmly implanted it couldn't be removed, or because they developed excess scar tissue.
Please check with your docs about this - especially whoever may be doing your future ADR surgery - not just the doc that's implanting the SCS. It would be terrible to find out later that you are no longer a candidate for further surgery.
Best wishes.
wbaker68
05-22-2003, 02:48 PM
Thanks for concern. Doc doing the implant is in same practice with doc who would do implant if I had the Prodisc done in US. Went over with both docs the options I had and this option was best for now to hold off until ADR is available.
I to have many concerns about how my condition will progress and whether other factors may later prove to be my demise in getting ADR. For now, this is what I must do. We'll see.
Thanks again.
I to have many concerns about how my condition will progress and whether other factors may later prove to be my demise in getting ADR. For now, this is what I must do. We'll see.
Thanks again.
Soxy
05-22-2003, 04:22 PM
Hi Everyone! Just happened to stop by and was happy to read all of your post on the SCS. I may be headed that way soon so all of your input is helpful when it comes to my waying the pros and the cons.
Thanks!
Soxy
------------------
Believe in Miracles!!
Thanks!
Soxy
------------------
Believe in Miracles!!
emc
05-31-2003, 01:53 PM
Hi KaOnno,
I'm sorry that you are in so much pain and that your medical situation seems to have been mishandled. I came to this board looking for someone who has had a SCS replaced as mine is broken as a result of a fall at work. When mine was put in 5 years ago I had to stay overnight mainly for observation. I was sore but not really in surgical pain. It helped my nerve pain in my leg tremendously but wasn't that effective for my back pain. But the result was good enough that I am still trying to get mine replaced. I still have a few issues to deal with but hopefully I'll have the surgery in July.
Do you have a long drive to the hospitral where you will have the surgery? If so , I would advise that you bring pain meds, something to eat and lots to drink for the ride home. I always experience nausea after anesthesia and I find that drinking lots of fluids is helpful. No medical reason ~ just my own experience.
I'm sure you have been told no bending, lifting, stretching or twisting after the procedure. It is hard but try your best to follow directions as you want the leads to stay in place for maximum relief. I did not find the recouperation period painful, just boring. Good luck and let us know how you make out. If you have any more questions feel free to ask.
Anyone out there that has had a replacement??? Still looking for info/support. Thanks.
Susan
I'm sorry that you are in so much pain and that your medical situation seems to have been mishandled. I came to this board looking for someone who has had a SCS replaced as mine is broken as a result of a fall at work. When mine was put in 5 years ago I had to stay overnight mainly for observation. I was sore but not really in surgical pain. It helped my nerve pain in my leg tremendously but wasn't that effective for my back pain. But the result was good enough that I am still trying to get mine replaced. I still have a few issues to deal with but hopefully I'll have the surgery in July.
Do you have a long drive to the hospitral where you will have the surgery? If so , I would advise that you bring pain meds, something to eat and lots to drink for the ride home. I always experience nausea after anesthesia and I find that drinking lots of fluids is helpful. No medical reason ~ just my own experience.
I'm sure you have been told no bending, lifting, stretching or twisting after the procedure. It is hard but try your best to follow directions as you want the leads to stay in place for maximum relief. I did not find the recouperation period painful, just boring. Good luck and let us know how you make out. If you have any more questions feel free to ask.
Anyone out there that has had a replacement??? Still looking for info/support. Thanks.
Susan
emc
06-01-2003, 08:23 PM
Hi Lisa,
I don't know if you will see this before you leave tomorrow. Good luck amd I hope that all goes well. Be careful on the ride home...the first few day will be especially difficult as you won't want to do anything to disturb the leads. Are they going to try to program the unit before you leave for home or will you be going back and forth? I think I had a couple of appointments before it was programmed properly.
My unit is no longer made which is why the surgery will be so difficult. My unit now is by ANS and my new one will be a Medtronics. The difficult part will be cutting away the scar tissue to remove the old leads and then trying to get the new leads by any residual scar tissue. Plus the old receivr needs to be replaced with a new one...yes, those are just under the skin. The doctor figures he is looking at a 7 - 8 hour surgery that I will be awake for. So...word to the wise, DON'T FALL! <grin>
Please post when you feel up to it... I will be interested in how you make out. Plus I think WBaker is having his put in in a few weeks. I'll be thinking of you.
Susan
I don't know if you will see this before you leave tomorrow. Good luck amd I hope that all goes well. Be careful on the ride home...the first few day will be especially difficult as you won't want to do anything to disturb the leads. Are they going to try to program the unit before you leave for home or will you be going back and forth? I think I had a couple of appointments before it was programmed properly.
My unit is no longer made which is why the surgery will be so difficult. My unit now is by ANS and my new one will be a Medtronics. The difficult part will be cutting away the scar tissue to remove the old leads and then trying to get the new leads by any residual scar tissue. Plus the old receivr needs to be replaced with a new one...yes, those are just under the skin. The doctor figures he is looking at a 7 - 8 hour surgery that I will be awake for. So...word to the wise, DON'T FALL! <grin>
Please post when you feel up to it... I will be interested in how you make out. Plus I think WBaker is having his put in in a few weeks. I'll be thinking of you.
Susan
wbaker68
06-02-2003, 04:16 PM
Just a little update to all. Going in next Wednesday, 6/11/03 for the stimulator as of now. Problem is I have been having a lot of leg problems coming on again. Had been releived for the most part by epidural in past. By mid-morning right leg starts tightening up and the foot and leg kind of go numb. I know I need another epidural and hope I can get one shortly after implant, otherwise they may have to put off implant and do the epidural first. I think the pain will be relieved, for the most part from the stimulator as the doc is now going to put in 2 leads. But I am worried about the numbness and possibly falling, hasn't happened but sometimes I feel unsteady and that is last thing I want to do once the unit is in.
I have a call into the doc now and hopefully will figure out tomorrow if the same game plan is on. I hope so as I would like to just move on and get rid of some of this pain.
I hope your surgery went well Lisa, I will be waiting to hear back from you on the board. I hope you return to keep all of us informed of your recovery and possibly what I should expect next week.
Thanks again Susan for all your information, has been great to hear from someone who has been there.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
I have a call into the doc now and hopefully will figure out tomorrow if the same game plan is on. I hope so as I would like to just move on and get rid of some of this pain.
I hope your surgery went well Lisa, I will be waiting to hear back from you on the board. I hope you return to keep all of us informed of your recovery and possibly what I should expect next week.
Thanks again Susan for all your information, has been great to hear from someone who has been there.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
Lisall
06-06-2003, 02:16 PM
Hello everyone,
I wanted to bring everyone up to date on my implant. Let me start off from the beginning, hope not to make too long. 1st off Susan, I am sorry about the mix up on yours not being a Medtronic. I had asked about you when the lady from Medtronic was there to do my implant. Maybe my experience will give you some insight. 1st when you get home, if you don't have someone there all the time, a hand reacher is a must and for the ladies something like Nair for your legs and arms. And yes the two hour drive back home was rough, too uncomfortable to lie down.
Now my main pain was throughout both legs and so intense my entire legs muscles etc would ache to the point of tears quite often, and pain at T12. Now Tuesday, I went in and was told I be awake up until the leads were placed, but I sure don't remember being awake, not like the trial, I can remember ever minute of the two hours I was in there. My neurosurgeon started at T9 with the leads and placed the generator on my right hip. I have three stables at T9 and two at L3 and 5 at the generator site. When I woke up in recovery, the lady from Medtronic was there and we programmed the unit for comfort. I have the radio unit due to the extensive area covered and I can change the programming as needed. I have two leads with all the parts of it activated. Susan, this may help you, I had so much scar tissue he had a time clearing it and placing the leads. So I would image yours will be like mine with the clean out and a complete new placement.
I have my unit set so I get the tingling all the way down to my feet, up to today I have had no NERVE pain or Pain at T12 and my rib cage pain has also disappeared. I sleep with my unit on, some say you can turn it off, but I have not tried it. Now yesterday was rough, allot of pain at the incision site and uncomfortable to site or lye down. But the last two nights, I have been able to sleep all night. I wake up once and take a pain pill. I would say the site where the generator is the worse of it. I have cut myself down in pain meds from Percocett to Vicodin and only take it for incision pain. After so many years with nerve pain and not sleeping more then 2 hours at a time, I don't know how much relief this has given me. I am just not sure how much relief I will have in the L5-S2 area, but I don't notice that terrible pain across that area in the morning when I get up, WBaker, I don't know your name, but you will have tremendous relief to the leg pain, believe me I would rather feel the tingling in my legs compare to the pain!!! I have found out that I have to make the changes on the unit stronger when I am up or sitting compare to in bed. Today is better then yesterday, I am starting to wean off the Neurontin, I am on a strong dose, so the doctor told me it will take a few months to see how much I can rid of it. That about covers it, if I messed anything let me know. Talk to you all later.
Lisa
I wanted to bring everyone up to date on my implant. Let me start off from the beginning, hope not to make too long. 1st off Susan, I am sorry about the mix up on yours not being a Medtronic. I had asked about you when the lady from Medtronic was there to do my implant. Maybe my experience will give you some insight. 1st when you get home, if you don't have someone there all the time, a hand reacher is a must and for the ladies something like Nair for your legs and arms. And yes the two hour drive back home was rough, too uncomfortable to lie down.
Now my main pain was throughout both legs and so intense my entire legs muscles etc would ache to the point of tears quite often, and pain at T12. Now Tuesday, I went in and was told I be awake up until the leads were placed, but I sure don't remember being awake, not like the trial, I can remember ever minute of the two hours I was in there. My neurosurgeon started at T9 with the leads and placed the generator on my right hip. I have three stables at T9 and two at L3 and 5 at the generator site. When I woke up in recovery, the lady from Medtronic was there and we programmed the unit for comfort. I have the radio unit due to the extensive area covered and I can change the programming as needed. I have two leads with all the parts of it activated. Susan, this may help you, I had so much scar tissue he had a time clearing it and placing the leads. So I would image yours will be like mine with the clean out and a complete new placement.
I have my unit set so I get the tingling all the way down to my feet, up to today I have had no NERVE pain or Pain at T12 and my rib cage pain has also disappeared. I sleep with my unit on, some say you can turn it off, but I have not tried it. Now yesterday was rough, allot of pain at the incision site and uncomfortable to site or lye down. But the last two nights, I have been able to sleep all night. I wake up once and take a pain pill. I would say the site where the generator is the worse of it. I have cut myself down in pain meds from Percocett to Vicodin and only take it for incision pain. After so many years with nerve pain and not sleeping more then 2 hours at a time, I don't know how much relief this has given me. I am just not sure how much relief I will have in the L5-S2 area, but I don't notice that terrible pain across that area in the morning when I get up, WBaker, I don't know your name, but you will have tremendous relief to the leg pain, believe me I would rather feel the tingling in my legs compare to the pain!!! I have found out that I have to make the changes on the unit stronger when I am up or sitting compare to in bed. Today is better then yesterday, I am starting to wean off the Neurontin, I am on a strong dose, so the doctor told me it will take a few months to see how much I can rid of it. That about covers it, if I messed anything let me know. Talk to you all later.
Lisa
emc
06-07-2003, 10:31 AM
Hi Lisa,
YEAH!!! I'm so glad that the surgery is behind you and that your pain has been reduced. Thank you for giving me the info especially about the scar tissue. This has been a major concern. Saw the PM doc (actually saw him everyday for 5 days because of so many issues) this past week and have a surgical date...July 17. He was vey upfront and gives me only a 50/50 chance of pain control (at least he isn't acting like GOD) because of the old stim. He is supposed to be the best guy for replacement issues in the Boston area so I have to put my faith in him. My brother is giving me such a hard time for going ahead with the because of the added risks...and yes dear brother, I'm not stupid ~ I know them all. I'm now on 7 different pain related meds that pose as much of a risk if you ask me.
I had to laugh at your list of needed things...a reacher and Nair!!! Who says we don't have our priorities straight!!! Of course I will have my hair cut (ok and colored) before I go in to maintain my natural beauty. LOL I can remember two things that left me at a lose the first day alone. I have a small bathroom on my first floor and store towels etc. in a low built in cabinet. Went in to wash up and no...couldn't get myself a clean towel. Splashed and air-dried!!! made sure they were on the vanity after that. Also went to get a drink and couldn't reach for the ice cubes ~ mmmmm warm soda. After that hubby would pack a small cooler before he left for work with the essentials and left it right next to me. This time around it will be done during his vacation (poor guy works all year and this is what he gets!) so I will be alot better off.
Well, I pray for continued pain relief and that the insision site calms down. BTW, how much neurontin are you on. Even with the stim I continued to take 900 mgs a day. Am back to 2100 mgs now and hope to be able to reduce it. I was awake ( and remember all 5 hours) for my first stim. Doctor did tell me I would be asleep for some of this one which is comforting. I know I'm grasping at straws here but "whatever floats the boat", right??? Good luck with your recouperation and keep us posted. Positive news gives us all hope for relief.
Susan
YEAH!!! I'm so glad that the surgery is behind you and that your pain has been reduced. Thank you for giving me the info especially about the scar tissue. This has been a major concern. Saw the PM doc (actually saw him everyday for 5 days because of so many issues) this past week and have a surgical date...July 17. He was vey upfront and gives me only a 50/50 chance of pain control (at least he isn't acting like GOD) because of the old stim. He is supposed to be the best guy for replacement issues in the Boston area so I have to put my faith in him. My brother is giving me such a hard time for going ahead with the because of the added risks...and yes dear brother, I'm not stupid ~ I know them all. I'm now on 7 different pain related meds that pose as much of a risk if you ask me.
I had to laugh at your list of needed things...a reacher and Nair!!! Who says we don't have our priorities straight!!! Of course I will have my hair cut (ok and colored) before I go in to maintain my natural beauty. LOL I can remember two things that left me at a lose the first day alone. I have a small bathroom on my first floor and store towels etc. in a low built in cabinet. Went in to wash up and no...couldn't get myself a clean towel. Splashed and air-dried!!! made sure they were on the vanity after that. Also went to get a drink and couldn't reach for the ice cubes ~ mmmmm warm soda. After that hubby would pack a small cooler before he left for work with the essentials and left it right next to me. This time around it will be done during his vacation (poor guy works all year and this is what he gets!) so I will be alot better off.
Well, I pray for continued pain relief and that the insision site calms down. BTW, how much neurontin are you on. Even with the stim I continued to take 900 mgs a day. Am back to 2100 mgs now and hope to be able to reduce it. I was awake ( and remember all 5 hours) for my first stim. Doctor did tell me I would be asleep for some of this one which is comforting. I know I'm grasping at straws here but "whatever floats the boat", right??? Good luck with your recouperation and keep us posted. Positive news gives us all hope for relief.
Susan
Lisall
06-08-2003, 04:17 PM
Susan,
Definitely each day is better. I was able to get out yesterday and walked about 800 feet. I didn't think that was too bad at all. The incision site is better also and I average about 4 vicodins a day for the incision pain. Now for the dreaded Neurontin, I was taking 600mg TID and now I am on 400mg in the morning and afternoon and take the 600mg at night. I going to do this for two weeks and then 400mg-300mg. See how it goes. You are right on the Shower, drip dry!!! The day before I went to have the surgery, I cut my hair to just above the shoulder and I use Perk all in one hair shampoo and conditioner. It works pretty good.
I read somewhere about turning the unit off at night and that sometimes the residual will last all night. Tried it the last two nights and about 4-6 hours the pain starts to come back in the legs, so I will just keep it on all night. I was very surprised after hearing about all the scar tissue problems I had I thought I would be in terrific pain, but I am not, this was the best thing I have ever done. The part that will take getting use to is sleeping, last night I slept for 9 hours!! I just dread when the battery dies and I have to wait to get the generator replaced. I hope when that happens I don't have to wait.
Hope all goes well for WBaker, so far I can say it has taken 100% of my leg pain away, lower back pain, will not know until I am healed up, I have felt no pain around T12-L1 where my tumor was. All I know I am not having to eat the pain pills like candy, so I would say it has helped in the lower back. I am so glad I did it. Talk to you later.
Lisa
:) :) :)
Definitely each day is better. I was able to get out yesterday and walked about 800 feet. I didn't think that was too bad at all. The incision site is better also and I average about 4 vicodins a day for the incision pain. Now for the dreaded Neurontin, I was taking 600mg TID and now I am on 400mg in the morning and afternoon and take the 600mg at night. I going to do this for two weeks and then 400mg-300mg. See how it goes. You are right on the Shower, drip dry!!! The day before I went to have the surgery, I cut my hair to just above the shoulder and I use Perk all in one hair shampoo and conditioner. It works pretty good.
I read somewhere about turning the unit off at night and that sometimes the residual will last all night. Tried it the last two nights and about 4-6 hours the pain starts to come back in the legs, so I will just keep it on all night. I was very surprised after hearing about all the scar tissue problems I had I thought I would be in terrific pain, but I am not, this was the best thing I have ever done. The part that will take getting use to is sleeping, last night I slept for 9 hours!! I just dread when the battery dies and I have to wait to get the generator replaced. I hope when that happens I don't have to wait.
Hope all goes well for WBaker, so far I can say it has taken 100% of my leg pain away, lower back pain, will not know until I am healed up, I have felt no pain around T12-L1 where my tumor was. All I know I am not having to eat the pain pills like candy, so I would say it has helped in the lower back. I am so glad I did it. Talk to you later.
Lisa
:) :) :)
emc
06-09-2003, 01:22 AM
Hi Lisa,
I am so happy for you...it just gives us all hope when we hear about someone's success story. I hope that you continue to get the maximum relief from the stim.
I always left my stim on, day and night, and really got to the point that I forgot that I had it. I could change the pulse width or intensity with the programmer on my waistband and did not even have to look at it. With the ANS i had an external battery pack so I never had to worry about losing "power" when the batter ran out. I can't remember if I told you that I got a surgery date of Jul. 17th. Doctor still gives me only a 50/50 chance of getting the new one in. I'm not a betting person but I'm taking my chances on this one. The most positive thing going for me is that I love my doctor. He has been so kind and compassionate. He has taken the time to explain everything, always asks me how the pain is and lets me describe things from head to toe. Then he always looks for the positive when I whine about the pain. Before I leave he goes over all my meds, makes sure all refills are straight and if he gives me a new med he will be very specific as to when to take it, and with what, and what to look for as far as problems. When I leave he takes my hand in both of his, looks me in the eye and says that together we will get through this. What more can I ask for.
Please keep us posted on your recovery. And remember (using my best mother voice) TAKE IT EASY. No bending, twistig, lifting, stretching etc. Takes all the fun out of life but once those leads scar in ...You Go Girl! Have a good night's sleep.
Susan
I am so happy for you...it just gives us all hope when we hear about someone's success story. I hope that you continue to get the maximum relief from the stim.
I always left my stim on, day and night, and really got to the point that I forgot that I had it. I could change the pulse width or intensity with the programmer on my waistband and did not even have to look at it. With the ANS i had an external battery pack so I never had to worry about losing "power" when the batter ran out. I can't remember if I told you that I got a surgery date of Jul. 17th. Doctor still gives me only a 50/50 chance of getting the new one in. I'm not a betting person but I'm taking my chances on this one. The most positive thing going for me is that I love my doctor. He has been so kind and compassionate. He has taken the time to explain everything, always asks me how the pain is and lets me describe things from head to toe. Then he always looks for the positive when I whine about the pain. Before I leave he goes over all my meds, makes sure all refills are straight and if he gives me a new med he will be very specific as to when to take it, and with what, and what to look for as far as problems. When I leave he takes my hand in both of his, looks me in the eye and says that together we will get through this. What more can I ask for.
Please keep us posted on your recovery. And remember (using my best mother voice) TAKE IT EASY. No bending, twistig, lifting, stretching etc. Takes all the fun out of life but once those leads scar in ...You Go Girl! Have a good night's sleep.
Susan
wbaker68
06-10-2003, 10:17 AM
Just wanted to chime back in and say its sure is good to see some good stories about the stimulator. Having mine implanted tomorrow up at the Univ. of Penn. Overnight stay, so I should be home Thursday.
Hopefully will be back on line by weekend. Not really sure what to expect as far as recovery as it seems everyone is so different. I have heard of people having a lot of problems to some saying it wasn't bad at all. I will have my fiance with me for Thurs thru the weekend and I would imagine I will be fine on my own by Monday. I hope I will be fine on my own before then but don't know.
Good luck to all of you and will check back after surgery to update.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
Hopefully will be back on line by weekend. Not really sure what to expect as far as recovery as it seems everyone is so different. I have heard of people having a lot of problems to some saying it wasn't bad at all. I will have my fiance with me for Thurs thru the weekend and I would imagine I will be fine on my own by Monday. I hope I will be fine on my own before then but don't know.
Good luck to all of you and will check back after surgery to update.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
emc
06-10-2003, 04:12 PM
Hi WBaker,
Just want to wish you the best tomorrow. I hope the stimulator gives you the pain relief that you deserve. I know the decision was a hard one but at least the trial must have helped you come to this conclusion. Eat a nice dinner, get a good night's sleep and you'll be off and running. I will be thinking of you in the morning.
Susan
Just want to wish you the best tomorrow. I hope the stimulator gives you the pain relief that you deserve. I know the decision was a hard one but at least the trial must have helped you come to this conclusion. Eat a nice dinner, get a good night's sleep and you'll be off and running. I will be thinking of you in the morning.
Susan
wbaker68
06-10-2003, 06:40 PM
Thanks Susan, scheduled to be there at 9:30 tomorrow. Hoping for speedy recovery. But have taken care of so much of my work over the past few days that I feel comfortable not being there for a couple weeks. Hopefully only a couple weeks.
Don't recall what doc said about returning to work, thought he said I couldn't until I had a follow up with him which would be scheduled about 2 weeks after surgery. Hopefully that is case as if I am at all able to return I pretty much have to.
Again, thanks and I will be back on here once I get home and situated.
Don't recall what doc said about returning to work, thought he said I couldn't until I had a follow up with him which would be scheduled about 2 weeks after surgery. Hopefully that is case as if I am at all able to return I pretty much have to.
Again, thanks and I will be back on here once I get home and situated.
Lisall
06-13-2003, 03:21 PM
Susan,
I hope all went well for Wbaker, I wish I had a name. I went yesterday and had the staples removed, much better! They were pulling on the generator site and now it feels much better. I have been averaging about 1/4 mile the two days altogether. I take multiple short walks.
I am on Medicare and I am glad they are paying for it. I just got my bill for the two day trial $22,000.00 OUCH!!! I am waiting to see what the implant is.
Lisa
I hope all went well for Wbaker, I wish I had a name. I went yesterday and had the staples removed, much better! They were pulling on the generator site and now it feels much better. I have been averaging about 1/4 mile the two days altogether. I take multiple short walks.
I am on Medicare and I am glad they are paying for it. I just got my bill for the two day trial $22,000.00 OUCH!!! I am waiting to see what the implant is.
Lisa
emc
06-14-2003, 12:34 AM
Hi Lisa,
It sounds like you are right on target. I'm glad that you are more comfortable sinse the staples out. How quickly we forget...I don't even remember getting mine out. It must feel good to get out and start moving around. I was actually back to work 10 days post-op. Probably wasn't wise but I never had to have my leads repositioned. I don't remember even using pain meds once I got home. I think of myself as being a wimp but I must have a high pain threshold. Yhe doctor even commented recently after my facet injections and the occipital nerve block that I am an easy patient. They just don't bother me.
I told you that I have a date for mine...Jul.17. Well, I spoke too soon. Odds are still 50/50 that the doctor will get inthe new stim because of sar tissue. So the latest is that WC is refusing to pay on those odds. So my nurse manager is off to arbitration to see what she can do. I was sooo upset by that news. So I am back in limbo. Oh well...hurry up to wait.
I hope that you have continued success. With the ANS I went back in 2 weeks to have it programmed. You mentioned that with medtronics they do it in the hospital...good to know. I hope that your pain levels remain low and you spirits high. Take care.
Susan
It sounds like you are right on target. I'm glad that you are more comfortable sinse the staples out. How quickly we forget...I don't even remember getting mine out. It must feel good to get out and start moving around. I was actually back to work 10 days post-op. Probably wasn't wise but I never had to have my leads repositioned. I don't remember even using pain meds once I got home. I think of myself as being a wimp but I must have a high pain threshold. Yhe doctor even commented recently after my facet injections and the occipital nerve block that I am an easy patient. They just don't bother me.
I told you that I have a date for mine...Jul.17. Well, I spoke too soon. Odds are still 50/50 that the doctor will get inthe new stim because of sar tissue. So the latest is that WC is refusing to pay on those odds. So my nurse manager is off to arbitration to see what she can do. I was sooo upset by that news. So I am back in limbo. Oh well...hurry up to wait.
I hope that you have continued success. With the ANS I went back in 2 weeks to have it programmed. You mentioned that with medtronics they do it in the hospital...good to know. I hope that your pain levels remain low and you spirits high. Take care.
Susan
wbaker68
06-14-2003, 10:11 AM
I posted this on Back board on Friday, Below this will be update from today, much better now!!
I am home now. Implant is in and on. Had no clue it was going to be as difficult as it is to get around. No clue. Almost impossible to get out of bed without help.
Hospital staff was plain horrible. I was sick yesterday from the morphine giving me a killer headache as well as throwing up. A fun thing to do as you all know with back problems, let alone new incisions.
Then they finally had be ready to leave hospital about 7 o'clock last night and another problem arose. Turned on stimulator to see if it would help me stand up. Nope. THing was set so damn high that fromt he sitting position my right leg shot straight out and I panicked and dropped remote and by the time I got it back up and shut off I was soaking wet. Seems that I had a pretty strong pain blocker for lower body and it hadn't worn off when unit was programed. Lady from Medtronics got with me on phone and we reset it and I was on my way. Ride home 1 1/2 hours in heavy rain and lots of bumps, always hit them bumps when you have problems.
Anyway, I think I am getting better and hope to move a little more today. Just didn't think I would need any assistance walking and getting up, so its been quite difficult. Well, its a bit difficult typing so I am not sure how much I will be on next few days. I have laptop on a swinging desk table at my bed but I wasn't able to get myself over toward it close enough to type.
Take care.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
[This message has been edited by wbaker68 (edited 06-14-2003).]
I am home now. Implant is in and on. Had no clue it was going to be as difficult as it is to get around. No clue. Almost impossible to get out of bed without help.
Hospital staff was plain horrible. I was sick yesterday from the morphine giving me a killer headache as well as throwing up. A fun thing to do as you all know with back problems, let alone new incisions.
Then they finally had be ready to leave hospital about 7 o'clock last night and another problem arose. Turned on stimulator to see if it would help me stand up. Nope. THing was set so damn high that fromt he sitting position my right leg shot straight out and I panicked and dropped remote and by the time I got it back up and shut off I was soaking wet. Seems that I had a pretty strong pain blocker for lower body and it hadn't worn off when unit was programed. Lady from Medtronics got with me on phone and we reset it and I was on my way. Ride home 1 1/2 hours in heavy rain and lots of bumps, always hit them bumps when you have problems.
Anyway, I think I am getting better and hope to move a little more today. Just didn't think I would need any assistance walking and getting up, so its been quite difficult. Well, its a bit difficult typing so I am not sure how much I will be on next few days. I have laptop on a swinging desk table at my bed but I wasn't able to get myself over toward it close enough to type.
Take care.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
[This message has been edited by wbaker68 (edited 06-14-2003).]
wbaker68
06-14-2003, 10:14 AM
This is today, Sat. update
Hi All:
Things are a little better each day as far as getting up and walking. Takes quite some time to get up from chair and out of bed, but it seems to be faster each time i do it and less painful. Have my percocets now and they are prob. helping things. I only will be taking likely in morning when I get up and then at bed time. Took first one last night and then another at bed time and since taking them I am staning up straight finally. Usually walk holding on to someone but today did some walking on my own. Trying to make myself get up every hour or two and walk around the length of house. Really poops me out but I think the more I walk the better it will be for me. As well as not trying to keep form tightening up so much.
Anyway, just wanted to touch in with all. Also adjustable bed is best thing I did although I still feel sick about the price I paid, I will get over it. Tempurpedic on the other hand is great as I don't put any pressure on incisions when laying down, however, its difficult to negotiate any movement as you don't have much to push off on as it sinks as you push down. But I have managed to do pretty well. Reg. bed would be better for getting in and out of but I think the tempurpedic is def. better for the incisions.
Take care and thanks for all comments and help getting through this. You are all great!!!
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
Hi All:
Things are a little better each day as far as getting up and walking. Takes quite some time to get up from chair and out of bed, but it seems to be faster each time i do it and less painful. Have my percocets now and they are prob. helping things. I only will be taking likely in morning when I get up and then at bed time. Took first one last night and then another at bed time and since taking them I am staning up straight finally. Usually walk holding on to someone but today did some walking on my own. Trying to make myself get up every hour or two and walk around the length of house. Really poops me out but I think the more I walk the better it will be for me. As well as not trying to keep form tightening up so much.
Anyway, just wanted to touch in with all. Also adjustable bed is best thing I did although I still feel sick about the price I paid, I will get over it. Tempurpedic on the other hand is great as I don't put any pressure on incisions when laying down, however, its difficult to negotiate any movement as you don't have much to push off on as it sinks as you push down. But I have managed to do pretty well. Reg. bed would be better for getting in and out of but I think the tempurpedic is def. better for the incisions.
Take care and thanks for all comments and help getting through this. You are all great!!!
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
wbaker68
06-14-2003, 10:17 AM
Now that I am feeling better i will start looking into both boards. Great to here that getting staples removed made a big difference. I feel like I am getting better moving, especially since I finally feel as though I am standing straight up.
Anyway, take care all and hope all have a good weekend. My follow up is on 6/24 for removal of my staples and stiches.
Anyway, take care all and hope all have a good weekend. My follow up is on 6/24 for removal of my staples and stiches.
emc
06-14-2003, 05:06 PM
Hey WBaker,
Glad to hear that you are home and that you are feeling a bit more comfortable. If you are already looking forward to having the staples/stitches out, then they must be pulling already. I think this usually means that you are beginning to heal. I don't know if the procedure between ANS and Medtronics is different of if my first doctor just did things differently. I was awake all 5 hours for the ANS implant but will be put out for part of this one. Like you, I will probably have problems with nausea as anesthesia always makes me sick...will ask for something before I go under. Also, I did not get programmed for two weeks with the ANS. I'm sorry about the jolt you got when you turned yours on. I guess I'll need to be retrained because before, I upped the voltage each time I turned the unit on. Would be impossible to have a jolt happen. Will you need to have the Medtronics rep re-set it again or is that it?
As I said to Lisa, I was done on a Fri. and went to work a week from that Monday. New PM was horrified when I told him, especially as I am a Kindergarten teacher and the activity that the job involves. This doctor keeps you out of work for a six week minimum period. Not because of pain but because he really wants the leads to cement in place.
All this talk might be for naught for me as WC doesn't want me to have this done now because the doctor has in his notes that I only have a 50/50 chance of this working. I don't know what I will do...PM mentioned the morphine pump. Just not ready psychologically for that.
Interesting info on your new bed. I find myself sleeping in my daughter's bed (she is away at school) because it is only 4 years old and much firmmer than our mattress. I can imagine getting out of your new one is difficult if there is nothing to "push off" on. There are so many things that the average person never has to think about!
I'm glad that you are up walking around a bit as it is so helpful to get those muscles back working again. You figure so many haven't been used properly in a very long time. Well, I hope that you continue on the road to less painful days. Keep us posted.
Susan
Glad to hear that you are home and that you are feeling a bit more comfortable. If you are already looking forward to having the staples/stitches out, then they must be pulling already. I think this usually means that you are beginning to heal. I don't know if the procedure between ANS and Medtronics is different of if my first doctor just did things differently. I was awake all 5 hours for the ANS implant but will be put out for part of this one. Like you, I will probably have problems with nausea as anesthesia always makes me sick...will ask for something before I go under. Also, I did not get programmed for two weeks with the ANS. I'm sorry about the jolt you got when you turned yours on. I guess I'll need to be retrained because before, I upped the voltage each time I turned the unit on. Would be impossible to have a jolt happen. Will you need to have the Medtronics rep re-set it again or is that it?
As I said to Lisa, I was done on a Fri. and went to work a week from that Monday. New PM was horrified when I told him, especially as I am a Kindergarten teacher and the activity that the job involves. This doctor keeps you out of work for a six week minimum period. Not because of pain but because he really wants the leads to cement in place.
All this talk might be for naught for me as WC doesn't want me to have this done now because the doctor has in his notes that I only have a 50/50 chance of this working. I don't know what I will do...PM mentioned the morphine pump. Just not ready psychologically for that.
Interesting info on your new bed. I find myself sleeping in my daughter's bed (she is away at school) because it is only 4 years old and much firmmer than our mattress. I can imagine getting out of your new one is difficult if there is nothing to "push off" on. There are so many things that the average person never has to think about!
I'm glad that you are up walking around a bit as it is so helpful to get those muscles back working again. You figure so many haven't been used properly in a very long time. Well, I hope that you continue on the road to less painful days. Keep us posted.
Susan
garyd
06-14-2003, 07:37 PM
FOR WBAKER68: Howdy Bud.. I'm thrilled that the stim seems to be doing you good things. Since I got mine in Sep 02 Life has changed dramatically. I'm back at real life and committed to be patient and compassionate to others dealing with pain. It is not a pretty picture to be in pain all day everyday. Initially it caused me BAD sleep deprivation. Got thru that one with the help of the military docs while on active duty. Retired shortly afterwards after 20 years. The results of pain relief with my stim I recognize was extremely high. I am only assuming that not all, (I wish they were) get the great results I did. I am still thankful that they went for whatever could be done to aid them in their quest for pain relief. Again, Big Guy...I am so glad you are doing great. Drop a line when you can...Gary
wbaker68
06-15-2003, 04:20 PM
thanks susan and garyd:
Things are feeling pretty decent. Was tough starting in afternoon last couple days. Staying in the bed is more comfortable then a recliner, because of the staples. The bed, although difficult the first day or so is now pretty simple. I don't think I could lie on a reg. bed as the pressure on the stimulator would prob. just be too much. The tempurpedic is def. best purchase I have made and so thankful I did so last week before surgery. Between it and the adjustable part of bed its been great.
As for the unit being re-done by Medtronics, I am thinking of having her meet me at Dr. at follow up as I think it can be programmed better now that I can feel my lower half. It seems to cover areas that I need but I just wonder if it could be possible to do better.
Anyway, how much did you guys find that you tried to walk and do things after implant? I tried to get up every hour or so the first day and 1/2 but by yesterday afternoon I was exhausted and now I just have harder time walking.
Work for me, I hope to return after my follow up appt on 6/24. That would be 2 weeks after surgery. Hopefully won't be a problem.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
Things are feeling pretty decent. Was tough starting in afternoon last couple days. Staying in the bed is more comfortable then a recliner, because of the staples. The bed, although difficult the first day or so is now pretty simple. I don't think I could lie on a reg. bed as the pressure on the stimulator would prob. just be too much. The tempurpedic is def. best purchase I have made and so thankful I did so last week before surgery. Between it and the adjustable part of bed its been great.
As for the unit being re-done by Medtronics, I am thinking of having her meet me at Dr. at follow up as I think it can be programmed better now that I can feel my lower half. It seems to cover areas that I need but I just wonder if it could be possible to do better.
Anyway, how much did you guys find that you tried to walk and do things after implant? I tried to get up every hour or so the first day and 1/2 but by yesterday afternoon I was exhausted and now I just have harder time walking.
Work for me, I hope to return after my follow up appt on 6/24. That would be 2 weeks after surgery. Hopefully won't be a problem.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
cattys
06-15-2003, 09:41 PM
Wbaker,
I am glad you are doing well. In time you will be doing even better. One day at a time.
They should be able to program it better for you.. Mine took 3 times to get it where I was comfortable.
I hope you continue to do well.
keep us updated.
Take care
Cattys
I am glad you are doing well. In time you will be doing even better. One day at a time.
They should be able to program it better for you.. Mine took 3 times to get it where I was comfortable.
I hope you continue to do well.
keep us updated.
Take care
Cattys
emc
06-15-2003, 09:42 PM
Hi WBaker
When I first had my stim put (5 years ago) in I did not have internet access and had nobody to talk with about the procedure and also thought it was such a big undertaking that I would remember every detail. Well, I'll be honest with you, I have no recollection of when or how much walking I did. I can honestly say that I don't remember being in that much pain afterwards but I also had an external battery system and just an implanted receiver. Don't know if there is more pain associated with the implanted battery pack. That is also why my system wasn't programmed in the hospital...I had a round receiver, about three inches in diameter, that hung off of my programmer. Everyday after I showered I had to clean the area with a special solution then I placed the disk on the skin over the receiver. Naturally I had to wait for that to surgically heal before I placed the disk on the skin. It is all coming back to me in bits abd pieces.
I think if you are uncomfortable or exhausted it is your body's way of telling you to take it easy. Not only have you had the surgery but you are tired from being in pain for so long. Have you talked with your doctor about meds to take for breakthrough pain down the road. Even if the stim gives you 75 -80% relief, there will be days that you over-do or you hit a rainy spell etc. and that percentage will be reduced. Just something to add to your list of questions for the 24th. Do you have the number of a contact person from Medtronics? Again, with ANS I was able to contact them directly without having to go through the PM clinic.
I hope that you continue to improve each day. I know that this system is not for everyone, but am so glad that there are people that it helps. Let us know how you are.
Susan
P.S. I have not done that much research on ADR. When do they expect it to be approved in the US. Are there clinical trials being done here yet? Did you consider being part of a trial? My problems are all in the same areas as yours....L3-S1...with DDD, nerve damage, bulges and a herniation. My L3-L4 herniation was repaired. Just curious.
When I first had my stim put (5 years ago) in I did not have internet access and had nobody to talk with about the procedure and also thought it was such a big undertaking that I would remember every detail. Well, I'll be honest with you, I have no recollection of when or how much walking I did. I can honestly say that I don't remember being in that much pain afterwards but I also had an external battery system and just an implanted receiver. Don't know if there is more pain associated with the implanted battery pack. That is also why my system wasn't programmed in the hospital...I had a round receiver, about three inches in diameter, that hung off of my programmer. Everyday after I showered I had to clean the area with a special solution then I placed the disk on the skin over the receiver. Naturally I had to wait for that to surgically heal before I placed the disk on the skin. It is all coming back to me in bits abd pieces.
I think if you are uncomfortable or exhausted it is your body's way of telling you to take it easy. Not only have you had the surgery but you are tired from being in pain for so long. Have you talked with your doctor about meds to take for breakthrough pain down the road. Even if the stim gives you 75 -80% relief, there will be days that you over-do or you hit a rainy spell etc. and that percentage will be reduced. Just something to add to your list of questions for the 24th. Do you have the number of a contact person from Medtronics? Again, with ANS I was able to contact them directly without having to go through the PM clinic.
I hope that you continue to improve each day. I know that this system is not for everyone, but am so glad that there are people that it helps. Let us know how you are.
Susan
P.S. I have not done that much research on ADR. When do they expect it to be approved in the US. Are there clinical trials being done here yet? Did you consider being part of a trial? My problems are all in the same areas as yours....L3-S1...with DDD, nerve damage, bulges and a herniation. My L3-L4 herniation was repaired. Just curious.
wbaker68
06-16-2003, 07:02 PM
Susan:
Just going to give you response to ADR question. Trials are going on now in US. However, only 1 level can be done now without a problem. If you need two levels done you are put in a control group and 2 out of 3 get disc and the other person gets fusion.
I need 3 according to my doctor who is a doctor doing the trials at Univ. of Pa. As for time for having full ADR in US, looks possible that one disc, the Charite will be up for review at beg. of 2004 and Prodisc(my doc does) won't be until end of 2004 or sometime in 2005.
Depending on my ability to cope with stimulator, if I can wait and continue to treat with my doc that would be great. If not I will go to clinic if possible that does the Charite since it looks like its a quicker release.
If the stimulator just doesn't work, Germany may be the place I end up. A lot of unknowns right now. There are several things that can exclude someone from ADR but my doc tells me I am currently a good candidate just can't do the 3 level.
As for stim. today, doing better than other days so far. Go thru the sweats though which stinks, b/c I actually sat in shower today all taped up in plastic and felt great. At least I am cleaner!! LOL
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
Just going to give you response to ADR question. Trials are going on now in US. However, only 1 level can be done now without a problem. If you need two levels done you are put in a control group and 2 out of 3 get disc and the other person gets fusion.
I need 3 according to my doctor who is a doctor doing the trials at Univ. of Pa. As for time for having full ADR in US, looks possible that one disc, the Charite will be up for review at beg. of 2004 and Prodisc(my doc does) won't be until end of 2004 or sometime in 2005.
Depending on my ability to cope with stimulator, if I can wait and continue to treat with my doc that would be great. If not I will go to clinic if possible that does the Charite since it looks like its a quicker release.
If the stimulator just doesn't work, Germany may be the place I end up. A lot of unknowns right now. There are several things that can exclude someone from ADR but my doc tells me I am currently a good candidate just can't do the 3 level.
As for stim. today, doing better than other days so far. Go thru the sweats though which stinks, b/c I actually sat in shower today all taped up in plastic and felt great. At least I am cleaner!! LOL
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
Lisall
06-17-2003, 04:02 PM
Hello everyone,
My computer crashed and had to format the hard drive. Well, I am on day 14 after the implant and thought I would let everyone know how I was doing. WBaker, don't feel bad about no energy; I am in the same vote. I have been taking small walks through out the day and I go out for my longer walk in the afternoon. I have been able to go up our drive and down the street a short ways, approx 800 feet. Then I am done for!!! I am exhausted, I have been taking a short nap in the afternoon for about an hour and then I sleep all night 8-9 hours. That is the best part Sleep all night. My incision pain is gone, but I still have periods of back pain around L4-L5. No nerve pain, it feels wonderful.
WBaker, it is a shame they didn't get it programmed correctly the 1st time, I told The Doctor I didn't want a block, even though that made the discomfort immediately, at least I was able to get the stimulator programmed where I needed it. Hope you get yours programmed correctly. Also something to think about; I have been wondering about replacement of the programmer if it was stolen, fire? And I called Medtronic, the unit is $1,000.00 and they told me to call my homeowners insurance. I have added it my personal property on our homeowners.
I had my husband turn off the jets on one seat of our spa and got into it yesterday, it was felt good just to sit and enjoy it for the first time without pain! I am just waiting to see what happens after 8 weeks and how much I will be able to do.
Lisa
My computer crashed and had to format the hard drive. Well, I am on day 14 after the implant and thought I would let everyone know how I was doing. WBaker, don't feel bad about no energy; I am in the same vote. I have been taking small walks through out the day and I go out for my longer walk in the afternoon. I have been able to go up our drive and down the street a short ways, approx 800 feet. Then I am done for!!! I am exhausted, I have been taking a short nap in the afternoon for about an hour and then I sleep all night 8-9 hours. That is the best part Sleep all night. My incision pain is gone, but I still have periods of back pain around L4-L5. No nerve pain, it feels wonderful.
WBaker, it is a shame they didn't get it programmed correctly the 1st time, I told The Doctor I didn't want a block, even though that made the discomfort immediately, at least I was able to get the stimulator programmed where I needed it. Hope you get yours programmed correctly. Also something to think about; I have been wondering about replacement of the programmer if it was stolen, fire? And I called Medtronic, the unit is $1,000.00 and they told me to call my homeowners insurance. I have added it my personal property on our homeowners.
I had my husband turn off the jets on one seat of our spa and got into it yesterday, it was felt good just to sit and enjoy it for the first time without pain! I am just waiting to see what happens after 8 weeks and how much I will be able to do.
Lisa
wbaker68
06-17-2003, 06:51 PM
Lisa:
How soon before you felt capable of doing that walk. I have about 15 stairs to down to get out of house and just doing them may do me in. Of course, I haven't been down them since getting home day after surgery. Getting up them to here was chore itself. But I am getting urge to do so but don't want to do too much that kills the back.
As for block, didn't know he was doing it and prob. wouldn't have cared. Didn't really matter to me. Just didn't realize that I wasn't ready to have the thing programmed as that was just horrible experience the next day.
I have basically been getting up about every hour and walking around. But staying in bed for most part as its more comfortable as sitting in recliner just isn't that comfortable as it pushes in the area where implant is. Bed doesn't do that as I bought a tempurpedic adjustable bed 3 days before surgery.
Anyway, glad to see something to look forward to in week or two. Except I had hoped to be further along than your indicating as I hope to start working next week at least a few hours again. We'll see.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
How soon before you felt capable of doing that walk. I have about 15 stairs to down to get out of house and just doing them may do me in. Of course, I haven't been down them since getting home day after surgery. Getting up them to here was chore itself. But I am getting urge to do so but don't want to do too much that kills the back.
As for block, didn't know he was doing it and prob. wouldn't have cared. Didn't really matter to me. Just didn't realize that I wasn't ready to have the thing programmed as that was just horrible experience the next day.
I have basically been getting up about every hour and walking around. But staying in bed for most part as its more comfortable as sitting in recliner just isn't that comfortable as it pushes in the area where implant is. Bed doesn't do that as I bought a tempurpedic adjustable bed 3 days before surgery.
Anyway, glad to see something to look forward to in week or two. Except I had hoped to be further along than your indicating as I hope to start working next week at least a few hours again. We'll see.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--scheduled for full implant(medtronic)
Hopefully to hold on for ADR
emc
06-18-2003, 07:24 PM
Hi Lisa and WBaker,
Lisa, I never gave a thought about insuring my transmitter. I did have a problem with mine about 14 months after I started using it (warranty was for 1 year). PM doc pushed and was able to get me a new one without a cost to me. Will insure this one, if I ever get it done.
I hope that you are both doing better and feeling stronger. Lisa, you are sleeping 8 straight hours??? I'm so glad to hear it. I never slept eight hours before back issues so I doubt I ever will. WBaker , are you able to move around any better. It is too bad that you have so many stairs because I'm sure some fresh air and a little walk would do you wonders. Keep those positive reports coming...I think that they give us all hope that one day there will be relief from the daily pain we endure.
Have a good night and WBaker i hope that you get some sleep.
Susan
Lisa, I never gave a thought about insuring my transmitter. I did have a problem with mine about 14 months after I started using it (warranty was for 1 year). PM doc pushed and was able to get me a new one without a cost to me. Will insure this one, if I ever get it done.
I hope that you are both doing better and feeling stronger. Lisa, you are sleeping 8 straight hours??? I'm so glad to hear it. I never slept eight hours before back issues so I doubt I ever will. WBaker , are you able to move around any better. It is too bad that you have so many stairs because I'm sure some fresh air and a little walk would do you wonders. Keep those positive reports coming...I think that they give us all hope that one day there will be relief from the daily pain we endure.
Have a good night and WBaker i hope that you get some sleep.
Susan
emc
06-18-2003, 07:25 PM
Hi Lisa and WBaker,
Lisa, I never gave a thought about insuring my transmitter. I did have a problem with mine about 14 months after I started using it (warranty was for 1 year). PM doc pushed and was able to get me a new one without a cost to me. Will insure this one, if I ever get it done.
I hope that you are both doing better and feeling stronger. Lisa, you are sleeping 8 straight hours??? I'm so glad to hear it. I never slept eight hours before back issues so I doubt I ever will. WBaker , are you able to move around any better. It is too bad that you have so many stairs because I'm sure some fresh air and a little walk would do you wonders. Keep those positive reports coming...I think that they give us all hope that one day there will be relief from the daily pain we endure.
Have a good night and WBaker i hope that you get some sleep.
Susan
Lisa, I never gave a thought about insuring my transmitter. I did have a problem with mine about 14 months after I started using it (warranty was for 1 year). PM doc pushed and was able to get me a new one without a cost to me. Will insure this one, if I ever get it done.
I hope that you are both doing better and feeling stronger. Lisa, you are sleeping 8 straight hours??? I'm so glad to hear it. I never slept eight hours before back issues so I doubt I ever will. WBaker , are you able to move around any better. It is too bad that you have so many stairs because I'm sure some fresh air and a little walk would do you wonders. Keep those positive reports coming...I think that they give us all hope that one day there will be relief from the daily pain we endure.
Have a good night and WBaker i hope that you get some sleep.
Susan
wbaker68
06-19-2003, 01:42 PM
Hello again everyone, Day 8 and doing much better. Think I could do the steps and may just give it a whirl today when fiance gets home.
I have a question for those with the stimulators. Are you wearing medical ID bracelets? Dr. information packet I got upon release of hospital said I should get one. Just wondering if you all have them.
If I could just get over the damn w/d symptoms from not taking the pain meds as often I would be doing much better. But the headaches and cold sweats just plain stink!!
I am just trying to take the percocets at night time or at min. twice a day. Whereas I was taking the ultracet along with vicodin when real bad on a every four hour basis. So this really stinks. While I rest at home, my back problems don't really bother me to bad, its just normal activities at work with sittign upright and standing that drive me crazy. When I lie in recliner(before implant) and lie in bed now it relieves the pressure I get and I do ok. I can at least deal with it.
Well, anyway, I am heading back to bed for awhile, will check in later. Just let me know if anyone is wearing the bracelets.
thanks
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
I have a question for those with the stimulators. Are you wearing medical ID bracelets? Dr. information packet I got upon release of hospital said I should get one. Just wondering if you all have them.
If I could just get over the damn w/d symptoms from not taking the pain meds as often I would be doing much better. But the headaches and cold sweats just plain stink!!
I am just trying to take the percocets at night time or at min. twice a day. Whereas I was taking the ultracet along with vicodin when real bad on a every four hour basis. So this really stinks. While I rest at home, my back problems don't really bother me to bad, its just normal activities at work with sittign upright and standing that drive me crazy. When I lie in recliner(before implant) and lie in bed now it relieves the pressure I get and I do ok. I can at least deal with it.
Well, anyway, I am heading back to bed for awhile, will check in later. Just let me know if anyone is wearing the bracelets.
thanks
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
Lisall
06-19-2003, 08:30 PM
WBaker and Susan,
I feel so good that the last 8 years seem like a bad dream. Just the fact of sleeping like a normal human and not being so doped up and lathargic. I hate the Neurontin. WBaker, I agree with the W/D, I have to go slow with the Neurontin and I have been taking the Percocet and cutting them in half; like you I end up with 1 1/2 or 2 a day. The Vicodin is like aspirin, doesn't cut it. I have been walking every day and pushed myself the 1st 5 days to get out. Today I made it around the block and 3 smaller walks. I think what has helped, when I had the tumor for so long and being missed on the MRI it caused damage and I am numb from my hips to the top of my legs on the left and only about 1/4 feeling on the right, so I don't have the full soreness from the incision on the generator.
I have been wondering about a bracelet also.
Susan, I could not believe the replacement cost of the unit if anything happened to it. I would hate to be without it, I am adjusting mine all the time.
Lisa
I feel so good that the last 8 years seem like a bad dream. Just the fact of sleeping like a normal human and not being so doped up and lathargic. I hate the Neurontin. WBaker, I agree with the W/D, I have to go slow with the Neurontin and I have been taking the Percocet and cutting them in half; like you I end up with 1 1/2 or 2 a day. The Vicodin is like aspirin, doesn't cut it. I have been walking every day and pushed myself the 1st 5 days to get out. Today I made it around the block and 3 smaller walks. I think what has helped, when I had the tumor for so long and being missed on the MRI it caused damage and I am numb from my hips to the top of my legs on the left and only about 1/4 feeling on the right, so I don't have the full soreness from the incision on the generator.
I have been wondering about a bracelet also.
Susan, I could not believe the replacement cost of the unit if anything happened to it. I would hate to be without it, I am adjusting mine all the time.
Lisa
emc
06-20-2003, 09:06 AM
Hi,
I tried to post twice last night but my message would not post. I know that it is because of my server. Lisa, it is so wonderful that the stimulator was so successful for you. I really does give you your life back. Never 100% I'm sure, but in my case I could go back to work... and I LOVE my job. So I will keep fighting W/C to get back there again. My reciver 4 years ago was almost $1400 because I had the external battery pack. So ins. is such a good idea.
WBaker, I did not have a bracelet but have a card for my wallet. The actual card is tucked in a flap but I taped a note on the area of my license in case of an accident. Airport security is an issue but after showing the card I've beeen fine. Noone has ever called the company to check on it. Did set off secuity once in a supermarket, of all places, but again showed the card and it was ok.
Both of you can relate to this. My class (Kindergartners) had their end of the year party yesterday. The parents knew I had hurt myself (I fell in front of most of them) but the issue of the strim never came up. So, I got a chance to talk with all of them at the picnic and when I described the stimulator their eyes all but popped out. It sounds so wacky to people but to me it had become just a way of life.
Well be well my friends. I'm sending well wishes out to both of you (and anyone else who is here because of pain).
Susan
I tried to post twice last night but my message would not post. I know that it is because of my server. Lisa, it is so wonderful that the stimulator was so successful for you. I really does give you your life back. Never 100% I'm sure, but in my case I could go back to work... and I LOVE my job. So I will keep fighting W/C to get back there again. My reciver 4 years ago was almost $1400 because I had the external battery pack. So ins. is such a good idea.
WBaker, I did not have a bracelet but have a card for my wallet. The actual card is tucked in a flap but I taped a note on the area of my license in case of an accident. Airport security is an issue but after showing the card I've beeen fine. Noone has ever called the company to check on it. Did set off secuity once in a supermarket, of all places, but again showed the card and it was ok.
Both of you can relate to this. My class (Kindergartners) had their end of the year party yesterday. The parents knew I had hurt myself (I fell in front of most of them) but the issue of the strim never came up. So, I got a chance to talk with all of them at the picnic and when I described the stimulator their eyes all but popped out. It sounds so wacky to people but to me it had become just a way of life.
Well be well my friends. I'm sending well wishes out to both of you (and anyone else who is here because of pain).
Susan
wbaker68
06-23-2003, 12:39 PM
Hi All, well I finally got out of here a couple times this past weekend. Sat morning went for ride to get coffee and Sat. night went for 1 hour round trip ride for some take out food, I live out in boonies, nothing close. Sunday morning woke up stiff as a board, but hobbled out and went to Super Walmart with fiance and walked until I about collapsed. Last night I slept quite good, granted I was heavily medicated, but still slept all night for most part. Was very beat up when I went to bed and was expecting bad things today and actually feel better. Much better than I did yesterday morning.
Anyway, today is a new day and I am going to try and rest for most part, not doing too much. Short walk but that will be extent of it.
Take care and hope all have a good day.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
Anyway, today is a new day and I am going to try and rest for most part, not doing too much. Short walk but that will be extent of it.
Take care and hope all have a good day.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
emc
06-23-2003, 01:01 PM
Hi WBaker,
Boy, I bet it felt great to get out. Do take it easy as you don't want to undo all the improvement you have made.
Does EVERYONE go to Wal-Mart? Might take what is left of my dwindling "retirement" investment and buy Wal-Mart stock! LOL I have two of them near me, each only 12 minutes away, and get all my houseware, cleaning supplies and pet food there. Can actually talk hubby into taking me because of the fishing supplies.
Take care and keep walking...it will start getting those muscles back in shape.
Susan
Boy, I bet it felt great to get out. Do take it easy as you don't want to undo all the improvement you have made.
Does EVERYONE go to Wal-Mart? Might take what is left of my dwindling "retirement" investment and buy Wal-Mart stock! LOL I have two of them near me, each only 12 minutes away, and get all my houseware, cleaning supplies and pet food there. Can actually talk hubby into taking me because of the fishing supplies.
Take care and keep walking...it will start getting those muscles back in shape.
Susan
panthrvamp
06-24-2003, 04:08 PM
I also have the spinal cord stimulator and until was in a car accident, was great, now just have to wait for the idiot that hit me's insurance to be will ing to take care of my lost wages while out to have it done. My insurance will take care of the cost of the implant, but have 2 teenagers ( one jsut graduated from hight school) and no child support, so have to work,I mean after the first implant I pushed myself back 12 days after implant back to work, trust me Dr was not thrilled but knew that supporting my kids was most important and disability doesnt cover that!
Until the accident I loved my stimulator. I was almost completly off the time released morphine from taking almost 160 mg a day plus break through at 45 mg every 3-4 hrs like clock work, as well as zanaflex,, elivil, neuontin, phenagran, ( can't remember them all). ONce we put the stimulator in, it was great, the time released was down to 2 a day, and breakthrough on a bad day was 4 times. good was maybe once.
Since the accident, however the stimulator is still patient, but to use at level that helps me over stimulates the spoinal cord and causes pain so can't run it, now using the Duragesic, zanaflex, zonegran, hydroxazine, OXYIR, Effexor XR. were doing ok, but wnat my stim back, so being patient.
Everyone is different, I went to a support group prior to having the implant placed as a requirement, and ouyt of the 6 people that had stimulators 4 loverd it 2 hated it. Everyone is different, the best advise I can give, is do the trial, worst it doesnt work, best, you find something that is great for you.
Good luck, if have any questions dont hesitate to ask.
Blessed Be
Deb
------------------
Once upon a Midnight Dreary,
For the ravin' stole my heart,
Nevermore to belong to another.
For the Ravin shall always be a part of me,
But I am the Ravins' Nevermore.
Until the accident I loved my stimulator. I was almost completly off the time released morphine from taking almost 160 mg a day plus break through at 45 mg every 3-4 hrs like clock work, as well as zanaflex,, elivil, neuontin, phenagran, ( can't remember them all). ONce we put the stimulator in, it was great, the time released was down to 2 a day, and breakthrough on a bad day was 4 times. good was maybe once.
Since the accident, however the stimulator is still patient, but to use at level that helps me over stimulates the spoinal cord and causes pain so can't run it, now using the Duragesic, zanaflex, zonegran, hydroxazine, OXYIR, Effexor XR. were doing ok, but wnat my stim back, so being patient.
Everyone is different, I went to a support group prior to having the implant placed as a requirement, and ouyt of the 6 people that had stimulators 4 loverd it 2 hated it. Everyone is different, the best advise I can give, is do the trial, worst it doesnt work, best, you find something that is great for you.
Good luck, if have any questions dont hesitate to ask.
Blessed Be
Deb
------------------
Once upon a Midnight Dreary,
For the ravin' stole my heart,
Nevermore to belong to another.
For the Ravin shall always be a part of me,
But I am the Ravins' Nevermore.
wbaker68
06-24-2003, 07:59 PM
Well you learn something new everyday. Even your own docs assistant learns something.
Went to doc today for stiches and staples(NOT) removed. Anyway, took stitches out of spine first and then assistant removed bandages and tape and said, oh you don't have staples here. I kind of was hoping I had them and had been looking forward to a great relief over the next few days w/o them. Unfort. the pain I have is here to stay a little longer and the uncomfortableness is too. Assistant had never came across a patient without staples and said he must have had another surgeon in room with him when he did surgery and they just stiched me up instead with disovable stiches at implant site. They were pretty happy with its healing although there was some drainage that they want me to keep an eye on. I think it was actually not drainage but just the bandage got wet with ice pack on Sunday. I hadn't had any drainage for the first 10 days until I used a different ice pack that seems to sweat a lot. Anyway, time will tell on that.
Again, just kind of was looking for some relief and was hoping that removing the stitches and staples would be a new feeling, but since no staples I just had a long long day. 3 hour round trip to office. 3 hours at office for x-rays, hour wait for doc and then hour with Medtronics for reprogramming.
Did a lot today and we'll see what tomorrow brings. Another thing, Doc wanted me to stay out of work 4 more weeks, although he said he would accept it if I could just stay out all next week. We'll see. I don't have a physical job so not too sure what I will do. I def. won't over do it but I am not sure I can sit here thru next week.
Have a good nite and I will keep all posted of my recovery. Adjustments went well on the unit.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
Went to doc today for stiches and staples(NOT) removed. Anyway, took stitches out of spine first and then assistant removed bandages and tape and said, oh you don't have staples here. I kind of was hoping I had them and had been looking forward to a great relief over the next few days w/o them. Unfort. the pain I have is here to stay a little longer and the uncomfortableness is too. Assistant had never came across a patient without staples and said he must have had another surgeon in room with him when he did surgery and they just stiched me up instead with disovable stiches at implant site. They were pretty happy with its healing although there was some drainage that they want me to keep an eye on. I think it was actually not drainage but just the bandage got wet with ice pack on Sunday. I hadn't had any drainage for the first 10 days until I used a different ice pack that seems to sweat a lot. Anyway, time will tell on that.
Again, just kind of was looking for some relief and was hoping that removing the stitches and staples would be a new feeling, but since no staples I just had a long long day. 3 hour round trip to office. 3 hours at office for x-rays, hour wait for doc and then hour with Medtronics for reprogramming.
Did a lot today and we'll see what tomorrow brings. Another thing, Doc wanted me to stay out of work 4 more weeks, although he said he would accept it if I could just stay out all next week. We'll see. I don't have a physical job so not too sure what I will do. I def. won't over do it but I am not sure I can sit here thru next week.
Have a good nite and I will keep all posted of my recovery. Adjustments went well on the unit.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
emc
06-25-2003, 11:36 PM
Panthrvamp,
I have had a SCS for 5 years and mine too is broken as the result of a fall at work. Came to this message board looking for someone who has had theirs replaced. You are the first person I have heard of looking at a replacement. My original SCS is an ANS but will be replaced by a Medtronics. Does your entire unit need to be replaced or just the broken parts. I am supposed to have the surgery on Jul. 17th but W/C has denied the replacement so will go to arbitration next week. Sounds as if the Medtronics is a more complicated procedure with a longer recouperation period. Last time I was back to work in 10 days but I think I will be more restricted this time.
WBaker, always a surprise right around the corner! No staples. Well, at least you didn't have to have them out. It sounds like you are finally making some progress. Either that or being stuck in the house is making you crazy! I have been home for 7 months now and have just about reached my limit. Did you drive yet? Doing more walking? It is HOT here in Boston but so much better than the cold and rain on the bones. Keep up the good work and hope to hear that you will soon be back working.
Susan
I have had a SCS for 5 years and mine too is broken as the result of a fall at work. Came to this message board looking for someone who has had theirs replaced. You are the first person I have heard of looking at a replacement. My original SCS is an ANS but will be replaced by a Medtronics. Does your entire unit need to be replaced or just the broken parts. I am supposed to have the surgery on Jul. 17th but W/C has denied the replacement so will go to arbitration next week. Sounds as if the Medtronics is a more complicated procedure with a longer recouperation period. Last time I was back to work in 10 days but I think I will be more restricted this time.
WBaker, always a surprise right around the corner! No staples. Well, at least you didn't have to have them out. It sounds like you are finally making some progress. Either that or being stuck in the house is making you crazy! I have been home for 7 months now and have just about reached my limit. Did you drive yet? Doing more walking? It is HOT here in Boston but so much better than the cold and rain on the bones. Keep up the good work and hope to hear that you will soon be back working.
Susan
wbaker68
06-26-2003, 11:37 AM
Susan:
Went for drive yesterday and this a.m. for coffee, a lot more difficult than I expected. Tough looking around since I can't twist or turn. Plus just sore sitting upright still. Implant site is still pretty sore as is the spinal incision area by the end of day its killing me. I will prob. hang out of work for most of next week, prob. work a few hours here and there next week and try returning more the following week after 4th of July. We'll see.
Recovery is just much slower than I expected and I am just now learning to accept it and keep going. It is hot as #*$& down here also and I have went for a couple short walks each day. So hot today I prob. will go for ride later to Lowes or something just to walk around inside.
As for staples, it was a good bad thing. I just was happy didn't have to go through having them taken out, but was looking for the relief it would have been to have had somethign like that not now in me. Hard to explain but just thinking they were there and being told they were there and how much of a relief it was going to be to have out and then not have them just made things feel like they are going slow.
Have a good day and stay cool!!
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
Went for drive yesterday and this a.m. for coffee, a lot more difficult than I expected. Tough looking around since I can't twist or turn. Plus just sore sitting upright still. Implant site is still pretty sore as is the spinal incision area by the end of day its killing me. I will prob. hang out of work for most of next week, prob. work a few hours here and there next week and try returning more the following week after 4th of July. We'll see.
Recovery is just much slower than I expected and I am just now learning to accept it and keep going. It is hot as #*$& down here also and I have went for a couple short walks each day. So hot today I prob. will go for ride later to Lowes or something just to walk around inside.
As for staples, it was a good bad thing. I just was happy didn't have to go through having them taken out, but was looking for the relief it would have been to have had somethign like that not now in me. Hard to explain but just thinking they were there and being told they were there and how much of a relief it was going to be to have out and then not have them just made things feel like they are going slow.
Have a good day and stay cool!!
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
wbaker68
06-30-2003, 02:39 PM
well, another weekend and lots of walking done. Prob. a little too much as I was having some increased leg pain in bed last night and had to turn on stimulator. Been trying to sleep without it but may not be able to do so. Good thing is it does seem to help the leg pain as well as help the back pain as I am walking much more than I ever would have dared before the implant and without nearly as many complaints.
I still think I will not know the truth about its benefit or lack thereof until I go back to work. I am planning on making a trip into the office tomorrow for a short stint, no more than 2 hours, prob. more like an hour. Will follow docs instructions and at least wait thru 4th of July weekend before going back on a more regular basis.
As for meds, I am now taking just 1 percocet at bed time usually. I have tried to skip taking it the last 2 nights but just can't seem to do so. Not sure if its a dependent thing in head or whether I really need. Will keep trying to get rid of taking it though.
I am now to return to see doc at U of PA on 8/5 at which time PT will start. Not really sure what kind of PT will be instituted, anyone know whether its stimulator specific PT or just PT specific for back itself?
Take care and hope to have a success story for you all shortly. I am hopefull and looking forward to getting some of my life back
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
I still think I will not know the truth about its benefit or lack thereof until I go back to work. I am planning on making a trip into the office tomorrow for a short stint, no more than 2 hours, prob. more like an hour. Will follow docs instructions and at least wait thru 4th of July weekend before going back on a more regular basis.
As for meds, I am now taking just 1 percocet at bed time usually. I have tried to skip taking it the last 2 nights but just can't seem to do so. Not sure if its a dependent thing in head or whether I really need. Will keep trying to get rid of taking it though.
I am now to return to see doc at U of PA on 8/5 at which time PT will start. Not really sure what kind of PT will be instituted, anyone know whether its stimulator specific PT or just PT specific for back itself?
Take care and hope to have a success story for you all shortly. I am hopefull and looking forward to getting some of my life back
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
emc
06-30-2003, 09:35 PM
Hi WBaker,
Glad to hear that you are getting out and walking. Our weather was so nice this past week-end for the first time in awhile. Is there a reason that you turn the stim off at night? I know that some people can't sleep with it on because it keeps them awake. I always slept with it on but with the implanted battery system it would cause the battery to wear out faster. I did have physical therapy after a few weeks but it was mainly to help the muscles in the leg with the nerve damage that had begun to atrophy. But, again, I didn't have the implanted battery pack so there might be a reason for therapy because of that.
Did you get to go into a work for awhile? Will that be the true test because of sitting for long periods of time? I hope that it is helpful there as well.
As far as the percoset goes how about trying to take a half a one for a few days. Even with the stim I was never off pain meds altogrther. I know that you would like not to have to take anything, but I assume 1 percoset a day would be a lot better than what you were taking pre-stim days.
You sound like your spirits have improved...hope things continue to improve.
Susan
Glad to hear that you are getting out and walking. Our weather was so nice this past week-end for the first time in awhile. Is there a reason that you turn the stim off at night? I know that some people can't sleep with it on because it keeps them awake. I always slept with it on but with the implanted battery system it would cause the battery to wear out faster. I did have physical therapy after a few weeks but it was mainly to help the muscles in the leg with the nerve damage that had begun to atrophy. But, again, I didn't have the implanted battery pack so there might be a reason for therapy because of that.
Did you get to go into a work for awhile? Will that be the true test because of sitting for long periods of time? I hope that it is helpful there as well.
As far as the percoset goes how about trying to take a half a one for a few days. Even with the stim I was never off pain meds altogrther. I know that you would like not to have to take anything, but I assume 1 percoset a day would be a lot better than what you were taking pre-stim days.
You sound like your spirits have improved...hope things continue to improve.
Susan
wbaker68
06-30-2003, 10:47 PM
Susan:
No work yet, actually one hour on Sat. but I am going to attempt to go in for a hour or two tomorrow. And yes, work will be true test as all I do is sit all day. Will have to make sure to get up as much as possible to see if I can handle it.
Turning the stimulator off at night was mainly as a precaution to keep the battery life as long as possible as I run all other hours of the day. So 24/7 may not be a good idea. I will talk to medtroncis again about it, but doc initially thought I would be better off not using it at night if possible. However, that may not work. Medication is def. down since getting stimulator as is my sitting upright. So until that starts I really don't know what my medication intake will be. My goal is only to take at night time if necessary as I cannot stand taking the meds. The w/d period after coming off the pills from date of surgery for the next week was just crappy.
I might just try the half pill deal with percocets tonight. Never thought about it, did with every other meds but so much on mind right now, so thanks for advice as it may come to be of help for now to at least cut back somewhat.
Take care and thanks for checking in on me.
No work yet, actually one hour on Sat. but I am going to attempt to go in for a hour or two tomorrow. And yes, work will be true test as all I do is sit all day. Will have to make sure to get up as much as possible to see if I can handle it.
Turning the stimulator off at night was mainly as a precaution to keep the battery life as long as possible as I run all other hours of the day. So 24/7 may not be a good idea. I will talk to medtroncis again about it, but doc initially thought I would be better off not using it at night if possible. However, that may not work. Medication is def. down since getting stimulator as is my sitting upright. So until that starts I really don't know what my medication intake will be. My goal is only to take at night time if necessary as I cannot stand taking the meds. The w/d period after coming off the pills from date of surgery for the next week was just crappy.
I might just try the half pill deal with percocets tonight. Never thought about it, did with every other meds but so much on mind right now, so thanks for advice as it may come to be of help for now to at least cut back somewhat.
Take care and thanks for checking in on me.
Lisall
07-06-2003, 04:57 PM
Hello WBaker and Susan,
I know I just disappeared!! Well, out of the blue we sold the house and getting ready for the move down to Florida. I am going for my 5 week appointment tomorrow to the neurosurgeon. You mentioned the night time problems, well, I have to leave mine on, what I do though is turn it way down to where I hardly feel it, that controls the leg pain at night. I have tried to leave it off, forget it. Now pain problems, 99% my lower back, between the last incision for the implant and some from the old injury. I do not have the radiating pain from the lower back across to my hips like I use to. I am trying my best to keep the pain meds down to 1-2 percocett, some days are worse then others.
I will be seeing a new pain doctor after the move and still might look at the morphine pump if this continues, but I can say my nerve pain is gone as long as I have it on. The residual only last me 1-2 hours so turning off at night will not work. My poor husband is having to do all the packing; but he is finished now. I decided instead of having a yard sale I had it on Ebay, 79 items worth. We are moving into a golf community, 6 miles from the beach. But the 1st thing is to get another spa, I live in this one twice a day. I have turned off direct jets to my spine, but it still feels good to get into it. I also have managed to decrease my Neurontin from 600mg TID to 300mg and hope to 100mg soon, 5 weeks lost 15LB just from decreasing the Neurontin. I have tried so many muscle relaxants, I went back Soma, I know not the best, but I don't get that drugged out feeling with it. Talk to later after my appointment.
PS: has anyone found a chat page? It would be nice.
If you find one decent and what to set a schedule, email me at:
lisa@lowellnet.net
Lisa
I know I just disappeared!! Well, out of the blue we sold the house and getting ready for the move down to Florida. I am going for my 5 week appointment tomorrow to the neurosurgeon. You mentioned the night time problems, well, I have to leave mine on, what I do though is turn it way down to where I hardly feel it, that controls the leg pain at night. I have tried to leave it off, forget it. Now pain problems, 99% my lower back, between the last incision for the implant and some from the old injury. I do not have the radiating pain from the lower back across to my hips like I use to. I am trying my best to keep the pain meds down to 1-2 percocett, some days are worse then others.
I will be seeing a new pain doctor after the move and still might look at the morphine pump if this continues, but I can say my nerve pain is gone as long as I have it on. The residual only last me 1-2 hours so turning off at night will not work. My poor husband is having to do all the packing; but he is finished now. I decided instead of having a yard sale I had it on Ebay, 79 items worth. We are moving into a golf community, 6 miles from the beach. But the 1st thing is to get another spa, I live in this one twice a day. I have turned off direct jets to my spine, but it still feels good to get into it. I also have managed to decrease my Neurontin from 600mg TID to 300mg and hope to 100mg soon, 5 weeks lost 15LB just from decreasing the Neurontin. I have tried so many muscle relaxants, I went back Soma, I know not the best, but I don't get that drugged out feeling with it. Talk to later after my appointment.
PS: has anyone found a chat page? It would be nice.
If you find one decent and what to set a schedule, email me at:
lisa@lowellnet.net
Lisa
jane2
07-06-2003, 05:54 PM
A friend of mine had relief with it, but it caused her terrible shoulder problems later. Scar tissure developed and it was in the long run a very bad decision for you.
I don't want to discourage you. So just be careful.
I don't want to discourage you. So just be careful.
wbaker68
07-07-2003, 02:56 PM
Originally posted by jane2:
A friend of mine had relief with it, but it caused her terrible shoulder problems later. Scar tissure developed and it was in the long run a very bad decision for you.
I don't want to discourage you. So just be careful.
Boy that is amazing, telling us we made a very bad decision. I can only say that I am not a doc but very well educated and would like to try and understand how one can develop shoulder problems from a stimulator implant on spine? Scar tissue would not develop in area that could cause problems with shoulder from what I know.
In addition, each one of us is in a different situation. I for one, am not planning on having this for too long, my intention as well as my docs, is to have disc replacement surgery by him once more than 1 level is approved without randomization.
Anyway, comments are always appreciated, but should be comments and not something that tells someone that they made a very bad decision.
A friend of mine had relief with it, but it caused her terrible shoulder problems later. Scar tissure developed and it was in the long run a very bad decision for you.
I don't want to discourage you. So just be careful.
Boy that is amazing, telling us we made a very bad decision. I can only say that I am not a doc but very well educated and would like to try and understand how one can develop shoulder problems from a stimulator implant on spine? Scar tissue would not develop in area that could cause problems with shoulder from what I know.
In addition, each one of us is in a different situation. I for one, am not planning on having this for too long, my intention as well as my docs, is to have disc replacement surgery by him once more than 1 level is approved without randomization.
Anyway, comments are always appreciated, but should be comments and not something that tells someone that they made a very bad decision.
wbaker68
07-07-2003, 03:03 PM
Lisa:
Glad to hear your doing better. Good luck with the move it must be exciting. I finally went back to work today, have been going in a few hours over the last few days but went in today for about 4 1/2 and did pretty good. Sitting in chair and then going to standing position is still quite stiff and sore like before but once standing the stimulator kicks back in and I am ok. Seems to be helping me more than I could have imagined. Going to take a bit to get used to working again though, just really tired now.
I also found that although I didn't have staples at implant site, there is a stitch there that is driving me crazy, messed with it yesterday and ended up with it about 1 inch long or more, it was only a nub. So called doc today and not sure but may have to run up to get the stitch removed as body is starting to heal quite well.
My doc wouldn't see me until 6 weeks post op besides my 2 week post op appt. Initially he had me 8 weeks post op and I begged to change that as I can't imagine waiting that long before trying therapy again. They say 6 weeks should be enough for the scar tissue to keep the leads in place.
Not too sure about the comments from the previous post, a little forward I thought. Anyway, good luck with appt and keep us up to date.
Have a good day and good luck with your move.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
Glad to hear your doing better. Good luck with the move it must be exciting. I finally went back to work today, have been going in a few hours over the last few days but went in today for about 4 1/2 and did pretty good. Sitting in chair and then going to standing position is still quite stiff and sore like before but once standing the stimulator kicks back in and I am ok. Seems to be helping me more than I could have imagined. Going to take a bit to get used to working again though, just really tired now.
I also found that although I didn't have staples at implant site, there is a stitch there that is driving me crazy, messed with it yesterday and ended up with it about 1 inch long or more, it was only a nub. So called doc today and not sure but may have to run up to get the stitch removed as body is starting to heal quite well.
My doc wouldn't see me until 6 weeks post op besides my 2 week post op appt. Initially he had me 8 weeks post op and I begged to change that as I can't imagine waiting that long before trying therapy again. They say 6 weeks should be enough for the scar tissue to keep the leads in place.
Not too sure about the comments from the previous post, a little forward I thought. Anyway, good luck with appt and keep us up to date.
Have a good day and good luck with your move.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
emc
07-08-2003, 08:05 AM
Hi Lisa and WBaker,
It is good to hear from both of you. Lisa, good luck with the move and the transfer to a new PM doc. It is tough trying to find someone you trust. I was a bit confused by your post. Do you mean that you still have 99% of your back pain? That must be discouraging. I'm glad that your nerve pain in your leg is better. How I wish I could cut back on the neurontin but, for me, it does help so much that I am willing to put up with the side effects. I can't remember if in the past posts I mentioned that I do know someone with a stim and morphine pump. Even with both there are times she needs to take b/t meds. I also left mine on all night because I never had the residual effects that some people have. Hope that the move goes smoothly. Look forward to hearing from you again.
WBaker, glad to hear that you are back to work. In time you will relearn how to do a lot of things so as not to interrupt the parathesia feeling. When I would stand up I would scoot to the edge of the chair and use my hands to push myself up, keeping my back as straight as possible. It is the bending forward that causes the interuption. I know it would be difficult, depending on your job, getting up and down but, for me, ten minutes sitting is max and I get up. But my job allowed me to do that. Hope you are able to start therapy soon to get those muscles working. I think that it should help. If you go with the artificial disc in the future will they remove the stim? I think I would want it out if possible just for the sake of having an MRI if needed.
I had my hearing with the W/C judge last week and he over-ruled my comp carrier. In fact was annoyed that they were wasting his time. So, I have pre-op tomorrow and will have the surgery on July 17. If all goes according to plans I will be in the hospital for two nights and then on very limited activity for 6 weeks. The big concern is still the scar tissue. Doc feels that if he gets the leads placed the smallest shift could hit residual scar tissue and riun everything. I can't sit still for 6 hours no less 6 weeks!
Good to hear from you both and hope that you both continue to have success with your implants.
Susan
It is good to hear from both of you. Lisa, good luck with the move and the transfer to a new PM doc. It is tough trying to find someone you trust. I was a bit confused by your post. Do you mean that you still have 99% of your back pain? That must be discouraging. I'm glad that your nerve pain in your leg is better. How I wish I could cut back on the neurontin but, for me, it does help so much that I am willing to put up with the side effects. I can't remember if in the past posts I mentioned that I do know someone with a stim and morphine pump. Even with both there are times she needs to take b/t meds. I also left mine on all night because I never had the residual effects that some people have. Hope that the move goes smoothly. Look forward to hearing from you again.
WBaker, glad to hear that you are back to work. In time you will relearn how to do a lot of things so as not to interrupt the parathesia feeling. When I would stand up I would scoot to the edge of the chair and use my hands to push myself up, keeping my back as straight as possible. It is the bending forward that causes the interuption. I know it would be difficult, depending on your job, getting up and down but, for me, ten minutes sitting is max and I get up. But my job allowed me to do that. Hope you are able to start therapy soon to get those muscles working. I think that it should help. If you go with the artificial disc in the future will they remove the stim? I think I would want it out if possible just for the sake of having an MRI if needed.
I had my hearing with the W/C judge last week and he over-ruled my comp carrier. In fact was annoyed that they were wasting his time. So, I have pre-op tomorrow and will have the surgery on July 17. If all goes according to plans I will be in the hospital for two nights and then on very limited activity for 6 weeks. The big concern is still the scar tissue. Doc feels that if he gets the leads placed the smallest shift could hit residual scar tissue and riun everything. I can't sit still for 6 hours no less 6 weeks!
Good to hear from you both and hope that you both continue to have success with your implants.
Susan
Lisall
07-08-2003, 12:37 PM
Wbaker,
Glad to hear you are back to work, take it slow and don't overdue it!
Susan, I guess I didn't make myself clear, but it is 99% pain relief, just the pain in the pit of my back. I went yesterday and my doctor said I have had the best results so far on the ones he has done. My pain where the tumor was, my rib pain and nerve pain in my legs are gone. It has been wonderful.I have really thought about a chat page, I can put one up on my server just for the implant plant patients, any thoughts???
Also Susan good luck with WC!! I will tell my short story, I was a nurse, worked for a Catholic Hospital, paid for disability, well after 5 years in Federal Court I won, and my Policy number is #001. This is from a big Catholic Org. That is as far as I will go in public, but fight for what is due to you, it is well worth it.
Let me know if anyone wants to do a chat, we can set different times up or??
Lisa
Glad to hear you are back to work, take it slow and don't overdue it!
Susan, I guess I didn't make myself clear, but it is 99% pain relief, just the pain in the pit of my back. I went yesterday and my doctor said I have had the best results so far on the ones he has done. My pain where the tumor was, my rib pain and nerve pain in my legs are gone. It has been wonderful.I have really thought about a chat page, I can put one up on my server just for the implant plant patients, any thoughts???
Also Susan good luck with WC!! I will tell my short story, I was a nurse, worked for a Catholic Hospital, paid for disability, well after 5 years in Federal Court I won, and my Policy number is #001. This is from a big Catholic Org. That is as far as I will go in public, but fight for what is due to you, it is well worth it.
Let me know if anyone wants to do a chat, we can set different times up or??
Lisa
wbaker68
07-08-2003, 06:33 PM
Hi Susan and Lisa, it sure is good to have someone to chat with let alone two people dealing with same issues, and having same contraption in them!! Work for me is something difficult to ease back into as once I show my face its tough not to dive into it. I was able to get in and out yesterday but today I ended up working all day, short lunch break and I am pooped!! More tired than anything. I can tell you this, I am thinking I am over 80% pain free right now as I couldn't have dreamed of working this long before the implant. I was suffering just trying to make it to 11:00 or 12:00. So we'll see. Big thing is I sit all day as I have said and I have to keep reminding myself to get up and walk. I find myself on phone at times for 20 minute or longer periods and I try to get up and stand during those times.
Anyway, not much I can do about it, the good thing is that I am my own boss for most part so I really don't have to explain or ask for permission with regard to any of my restrictions. I can come and go as I please.
Susan--so glad to hear you had some success with WC. I am a attorney and my practice is WC and auto accidents so I know what you had to deal with as I do so on a daily basis. Good luck with your surgery, I will be thinking of you and hoping that it is a success.
Lisa I would be interested in a chat, but not sure of times or what to tell you at this point. Let me get settled back into work and for now keep in touch though here. Right now I am so tired from work that I don't feel like doing anything when I get home except crash and burn.
===I am still trying to walk a mile or so a day. Kind of at turtle speed but at least walking, another thing I wasn't able to do for past 6 months or so.
[This message has been edited by wbaker68 (edited 07-08-2003).]
Anyway, not much I can do about it, the good thing is that I am my own boss for most part so I really don't have to explain or ask for permission with regard to any of my restrictions. I can come and go as I please.
Susan--so glad to hear you had some success with WC. I am a attorney and my practice is WC and auto accidents so I know what you had to deal with as I do so on a daily basis. Good luck with your surgery, I will be thinking of you and hoping that it is a success.
Lisa I would be interested in a chat, but not sure of times or what to tell you at this point. Let me get settled back into work and for now keep in touch though here. Right now I am so tired from work that I don't feel like doing anything when I get home except crash and burn.
===I am still trying to walk a mile or so a day. Kind of at turtle speed but at least walking, another thing I wasn't able to do for past 6 months or so.
[This message has been edited by wbaker68 (edited 07-08-2003).]
wbaker68
07-09-2003, 08:38 PM
Just got first round of statements from BCBS showing what doc and hospital charged for stimulator implant. First round which they usually come in for about a week or two, at least it took that long to gather them for discogram which was about 12,000. Well the stimulator bill from todays statement is 42,000 and some change. I will keep running tab as I am curious as to what they actually charge comp. carriers and auto carriers which is where they make the most money as BCBS only paid 12,000 of the 42,000 billed.
Anyway, didn't work but half day today, too darn tired. But still doing much better than I had been.
Talk to you all later, hope all is going well.
Anyway, didn't work but half day today, too darn tired. But still doing much better than I had been.
Talk to you all later, hope all is going well.
wbaker68
07-10-2003, 06:03 PM
Susan, Linda, anyone? What restrictions are we going to be under with implant? any lifting restrictions, no twisting at all? how about exercise? I am just wondering now as to what I am going to be able and try to do now that pain level is down so far that I want to try and do things. Of course I am only 4 weeks post op and I have f/u appt. 8/5 and will then begin therapy and find out all this, just wondering what restrictions any of you guys were told would be permanent as a result of the implant, if any.
Thanks, hope all had a good day.
Thanks, hope all had a good day.
emc
07-11-2003, 09:14 AM
Hi,
Lisa' I'm glad for once that I misread a post...99% improvement ~ YIPPPEEE No wonder your doctor is pleased...know that you are too. Be careful not to overdo with your move. Unpacking can cause as many problems as pcking! LOL It is that "just one more box" syndrome.
WBaker $42,000 and counting. Million dollar man has nothing on us!!! Glad that you are back to work but know what you mean about being exhausted. I remember those days!!! Chasing 20 five year olds for 6 hours can exhaust anyone. <grin> Hard to believe that I'm working so hard to get back there in the fall. I love those babies.
You need to be so careful about overdoing for awhile. The walking is great but I would wait until PT to do anything more. I had pre-op om Wed. and new PM doc still can't believe that I was back to my type of job in 10 days. Then he started on all the warnings. He said for the first week...nothing. Doesn't want me to even put my hands over shoulder height. This is really because of the scar tissue issue. He feels that if he finally gets the leads in any slight movement of them might hit a piece of residual material and undo the whole thing!
His biggest no no is bending over...for 6 months! Also would like that his pts never lift more than 10 lbs. There have been times that I have had to lift one of my students, so that will be a problem. But, if I am able to go back in the fall, I will do it with the assumption that I will NEVER put a student's wellbeing in jeopardy.
Mind you, I worked for five years and never once had to have a lead repositioned. I never was back to 100% as far as lifestyle goes. Sitting ALWAYS was a problem...haven't been to a movie since 1996! Also long trips in the car (even with frequent breaks) would leave me in added pain for days.
So even with the SCS my life was never the same...just the pain was relieved without all the drugs. I guess we need to remember that the source of the pain is still there...just being masked by the stim. All said, I still consider myself lucky that this modality worked for me. I really forgot that I had it at times. BIG no no...I would forget and would drive with it on.
No more rambling. Just be really careful for awhile, both of you. Easy for me to say. I am slated for next Thursday. Ask me how carefully I'm following my own warnings a month from now! LOL Take care. I'm pulling for both of you to have continued success.
Susan
Lisa' I'm glad for once that I misread a post...99% improvement ~ YIPPPEEE No wonder your doctor is pleased...know that you are too. Be careful not to overdo with your move. Unpacking can cause as many problems as pcking! LOL It is that "just one more box" syndrome.
WBaker $42,000 and counting. Million dollar man has nothing on us!!! Glad that you are back to work but know what you mean about being exhausted. I remember those days!!! Chasing 20 five year olds for 6 hours can exhaust anyone. <grin> Hard to believe that I'm working so hard to get back there in the fall. I love those babies.
You need to be so careful about overdoing for awhile. The walking is great but I would wait until PT to do anything more. I had pre-op om Wed. and new PM doc still can't believe that I was back to my type of job in 10 days. Then he started on all the warnings. He said for the first week...nothing. Doesn't want me to even put my hands over shoulder height. This is really because of the scar tissue issue. He feels that if he finally gets the leads in any slight movement of them might hit a piece of residual material and undo the whole thing!
His biggest no no is bending over...for 6 months! Also would like that his pts never lift more than 10 lbs. There have been times that I have had to lift one of my students, so that will be a problem. But, if I am able to go back in the fall, I will do it with the assumption that I will NEVER put a student's wellbeing in jeopardy.
Mind you, I worked for five years and never once had to have a lead repositioned. I never was back to 100% as far as lifestyle goes. Sitting ALWAYS was a problem...haven't been to a movie since 1996! Also long trips in the car (even with frequent breaks) would leave me in added pain for days.
So even with the SCS my life was never the same...just the pain was relieved without all the drugs. I guess we need to remember that the source of the pain is still there...just being masked by the stim. All said, I still consider myself lucky that this modality worked for me. I really forgot that I had it at times. BIG no no...I would forget and would drive with it on.
No more rambling. Just be really careful for awhile, both of you. Easy for me to say. I am slated for next Thursday. Ask me how carefully I'm following my own warnings a month from now! LOL Take care. I'm pulling for both of you to have continued success.
Susan
wbaker68
07-15-2003, 10:58 PM
Susan:
In case I am not on tomorrow I wanted to stop bye and wish you luck on Thursday. I hope everything works out for you and you have a successful implant.
Will be thinking of you.
Bill
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
In case I am not on tomorrow I wanted to stop bye and wish you luck on Thursday. I hope everything works out for you and you have a successful implant.
Will be thinking of you.
Bill
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
wbaker68
07-22-2003, 11:32 AM
Susan, I hope all went well and will keep checking in for your response to how the surgery went.
Lisa, how are things going? What kind of things are you able to do now?
Take care and have a good day.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
Lisa, how are things going? What kind of things are you able to do now?
Take care and have a good day.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
kblou
07-23-2003, 11:04 AM
Hi, everybody! My husband is in similar situations with you all. He has 5 deteriorating discs, a compressed vertebra, arthritis of the spine, and a muscle spasm on the left side of his spine--and he's only 31 years old! Nothing at all worked for him until one night an ER dr. gave him a prescription for a TENS unit. It's a little pack that he can hook to his jeans (for while he's working--forklift operator) and it has these little sticky-pads that hook to it that you stick on the place where you're having the pain. What is does is send little electrical impulses to your brain that disable the nerves that send the messages of pain to your brain. It's GREAT! He can use it all the time and feels barely any pain if any at all. Unfortunately it doesn't prevent him from doing more damage to his back, but there is nothing that will prevent that--not even long-term rest. He'd tried everything from physical therapy to epidurals and nothing worked. He was so tired of the pain meds because they worked for awhile, but then the dosage had to be increased, and he was afraid of what they were doing to his liver. This has been an absolute blessing. Maybe some of you who have been a little wary of the SCS could ask your drs. about this! Just a suggestion! :)
wbaker68
07-29-2003, 10:34 PM
BUMP
grizzk62
07-29-2003, 11:31 PM
Hello All,
I have been useing something very simular to a tens unit only better. Its call a RS-4i stimulator. Its has a couple of features that a tens unit doesn't have. One instead of 4 pads like a TENS unit has, it has 8 pads. And two, it has a couple of different cycles that it goes threw. One cycle is for pain only and the other cycle is for muscle spasms. I have been useing this now for about a year now. It is truly a great tool. It also kooks onto any belt. Fairly small. I use it at least two times a day. It doesn"t kill all the pain but along with everything else that i do like stretches and ice and heat and of couse the meds that I"m on work very well together. I just thought that I would add my two cents worth. Take care all....
Matt
I have been useing something very simular to a tens unit only better. Its call a RS-4i stimulator. Its has a couple of features that a tens unit doesn't have. One instead of 4 pads like a TENS unit has, it has 8 pads. And two, it has a couple of different cycles that it goes threw. One cycle is for pain only and the other cycle is for muscle spasms. I have been useing this now for about a year now. It is truly a great tool. It also kooks onto any belt. Fairly small. I use it at least two times a day. It doesn"t kill all the pain but along with everything else that i do like stretches and ice and heat and of couse the meds that I"m on work very well together. I just thought that I would add my two cents worth. Take care all....
Matt
wbaker68
08-07-2003, 11:06 PM
Susan and Lisa:
How are you two making out? Curious how you are both doing and hoping both are doing well with your new implants.
Will check back in.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR
How are you two making out? Curious how you are both doing and hoping both are doing well with your new implants.
Will check back in.
------------------
Auto Accident Aug 1988
L3-4 disectomy 1989
L3-4 now re-herniated
L4-5 DDD
L5-S1 herniated
5/14--trial stimulator implant(went well enough for full implant)
6/11/03--full implant(medtronic)
Hopefully to hold on for ADR