Karine
08-26-2003, 02:43 PM
Can anyone help me see the light or get a grip on what is going on in my head about cp, the pills and or patch that helps control the pain? I keep going to the addition & recovery board. Why is that I know that going into getting help for my cp is that getting hooked on the meds was going to happen but I need to keep myself in check on controling the intake of the breakthrough pain meds and how I am to do this. My first doc that would ever listen and help me, all others was thinking I was seeking meds, but anyone who has had the same thing knows how docs are. I did put a question on the add & rec boardHere is what I wrote and can you help me with this?
"I am on 75 patch change every 72 hours and it scares me the pain scares me and the meds scare me. I know that it is very additive but yet I can not handle the pain and what happens when the pain meds don't work & they have to be stronger. I was on oxy one 100mg 2 x a day and oxy for break through, the 100 did not work then went to pm doc and got put on the 75 patch and rox for breakthrough, doc said I do not need stronger breakthrough meds, its from the oxy that I am getting withdrowl from. This was last week and I still have break through.
I have to say I am so luck I found this board by accident, I have been looking for help since 1999.
Ok now I am rambling. Can anyone give me insight on this?"
Thanks and sorry it is so long.
Kari
"I am on 75 patch change every 72 hours and it scares me the pain scares me and the meds scare me. I know that it is very additive but yet I can not handle the pain and what happens when the pain meds don't work & they have to be stronger. I was on oxy one 100mg 2 x a day and oxy for break through, the 100 did not work then went to pm doc and got put on the 75 patch and rox for breakthrough, doc said I do not need stronger breakthrough meds, its from the oxy that I am getting withdrowl from. This was last week and I still have break through.
I have to say I am so luck I found this board by accident, I have been looking for help since 1999.
Ok now I am rambling. Can anyone give me insight on this?"
Thanks and sorry it is so long.
Kari
Sponsor
Autumn Angel
08-26-2003, 09:45 PM
You wereon 100mg Oxy? at once? Sorry Imight have read it wrong. Then he put you on that patch and Roxi for BT?
Roxi is the exact same med as oxycontin except it is instant release. Anyway people dont get addicted to thier pain meds unless they exceed the prescribed dosage or take them for the "buzz" thats my way of looking at it.
Your body does develop a tolerance to the medication though that is inevidable I am sorry to say. Some people develop a tolerance way slower than others and can be on the same dosage without it being increased for years. Yet some develop a tolerance in a few months or even weeks. Anyone that knows me knows how I handle that problem and so far it has worked keeping my tolerance level in check. I also take other steps to make sure my pain stays at a pretty manageable level. Since my main CP problem is jaw and head related there are a few things I do. I stopped chewing gum, I went on a soft diet which sucks at times I had to give up steak, candy, anything you have to chew alot like peanuts. I have cut down on my smoking because even taking a drag off a smoke uses the mandible joint. I try my best to avoid stress, use heat and ice and wear a splint most times at night.
For my 2nd CP condition it flares up about twice a week my pelvic adhesions..heating pad and hot baths. I have IBS too most people with CP have it. I knew I had it for about 8 years but I didnt have a clue till my PM doc told me that it was linked to my CP and its very common in Cp patients. My third is my Siatic nerve thats a killer too. All I can do for that is heat cold and massage. Most of these other measures work if I dont let the pain get full blown before I do something about it.
What is it you would like to do here? Control your tolerance? Get off pain meds altogether? Or find other meds that arent narcotic? Any help I can be just ask ok? I know how scary the word addiction is but it doesnt have to be if you take steps to prevent it and know the difference between it and tolerance. God bless.
Autumn.
Roxi is the exact same med as oxycontin except it is instant release. Anyway people dont get addicted to thier pain meds unless they exceed the prescribed dosage or take them for the "buzz" thats my way of looking at it.
Your body does develop a tolerance to the medication though that is inevidable I am sorry to say. Some people develop a tolerance way slower than others and can be on the same dosage without it being increased for years. Yet some develop a tolerance in a few months or even weeks. Anyone that knows me knows how I handle that problem and so far it has worked keeping my tolerance level in check. I also take other steps to make sure my pain stays at a pretty manageable level. Since my main CP problem is jaw and head related there are a few things I do. I stopped chewing gum, I went on a soft diet which sucks at times I had to give up steak, candy, anything you have to chew alot like peanuts. I have cut down on my smoking because even taking a drag off a smoke uses the mandible joint. I try my best to avoid stress, use heat and ice and wear a splint most times at night.
For my 2nd CP condition it flares up about twice a week my pelvic adhesions..heating pad and hot baths. I have IBS too most people with CP have it. I knew I had it for about 8 years but I didnt have a clue till my PM doc told me that it was linked to my CP and its very common in Cp patients. My third is my Siatic nerve thats a killer too. All I can do for that is heat cold and massage. Most of these other measures work if I dont let the pain get full blown before I do something about it.
What is it you would like to do here? Control your tolerance? Get off pain meds altogether? Or find other meds that arent narcotic? Any help I can be just ask ok? I know how scary the word addiction is but it doesnt have to be if you take steps to prevent it and know the difference between it and tolerance. God bless.
Autumn.
Karine
08-27-2003, 11:04 AM
I do not want to be additied to my pain meds, I was taking oxy, now I am on the patch and take rox for breakthrough. What is IBS? However the rox does not help with the breakthrough. I do not know why.
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Cronic pain from tendonitous in right elbow 1996, left elbow 1998, shoulder pain within that time, neck pain the hole time. Docs would not give pain meds because of cronic pain and would not help. Could not take tha pain anymore 2003. Until I went to welfare and ran up $$ for med covarage.
Have a good day.
Kari
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Cronic pain from tendonitous in right elbow 1996, left elbow 1998, shoulder pain within that time, neck pain the hole time. Docs would not give pain meds because of cronic pain and would not help. Could not take tha pain anymore 2003. Until I went to welfare and ran up $$ for med covarage.
Have a good day.
Kari
Autumn Angel
08-27-2003, 11:18 AM
IBS is Irratible Bowel Syndrome...Alot of CP patients have it or you can just have it without being a CP patient. It causes constipation/runs intestinal pain, bloating etc. Mine flares up about once every 2 weeks for a couple days. With me I start bloating a few days before it hits so I always know when its coming. There is a message board for IBS here too. Take care.
Autumn.
Autumn.