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HockeyCrystal
10-27-2003, 08:37 PM
Last Monday (The 20th of October) I had an SI procedure done, where they injected several different meds including numbing, steroids, and some other into my SI joint. I was wondering if anyone else had ever had this done before, and if they were still in as much pain a week later. I've been hurting quite a bit still. I talked to the receptionist at my pm doc's office today and she said that it's normal to still be tender, but I'm not sure if she means as sore as I am. I'm still limping from the pain...I was just wondering if anyone had experienced this, and if so, can you share with me please? I really wish it would just quit hurting...

I've been in so much pain this past week, it almost doesn't seem worth trying the injection.....

Much http://www.healthboards.com/ubb/heart.gif
Crystal

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avogadro
10-27-2003, 10:45 PM
Crystal,

I had my 2 week check-up this morning from my injections. It was REALLY bad for the first week to 10 days. But, this weekend, I noticed a HUGE improvement. That was about 12 days post-procedure.

She told me it was very normal. She has actually had patients that end up going to the ER within the first week because they think somehting is horribly wrong!

So, next Tuesday, I am going back for my 3rd ESI on the left and then the same steroid, nerve block, numbing but on the right side. She only did the left side the first time.

She gave me a new prescription - for Percocet 10/325. I have never taken this med before but I guess it is stronger than the Norco 10/325 which I have been taking. She said to get the prescription filled and save it. It is specifically for the pain following the procedure.

I hope that you start to feel better in a few days!

Let us know how you are doing....

AV

HockeyCrystal
10-27-2003, 11:30 PM
Av,
Hey hun thanks for replying. I'm glad to hear you're feeling better... I'm in so much pain, I just want to sleep constantly. And because of the first couple days, I took extra of my meds from the pain, but now since I'm low, I've gotta go easy on the meds. I can't even take what I'm allowed in a day... Not until Wed or Thurs... I'm just hoping this pain goes soon. I'm about to die from this stupid pain. I'm really beginning to think this procedure wasn't worth the time and effort and especially the pain! I really hope it helped SOMETHING!

Anyway, I know it's not like me to have a negative attitude, I'm just so tired of the regular pain, and now I've got post-procedure pain on top of it, with the same meds that barely work for my regular pain... I'm sorry for my negativity, but I'm really glad you are doing better. Hopefully I will be too. Thanks again for your sweet and caring reply. I appreciate your time that you took to reply and share your experiences w/ me. You're too sweet.

Much http://www.healthboards.com/ubb/heart.gif
Crystal

avogadro
10-27-2003, 11:41 PM
Crystal,

I really think you will start to feel better in a few days. When do you have your follow-up appointment?

When my doctor asked me today how I was feeling, I went over how bad it was for the first 10 days. She told me that was normal. Then, I told her that this weekend I was MUCH better. I actually did all sorts of things this weekend with my son and did not even think about the pain (WOW - that is a miracle to me!). So, she asked me where I was having pain. I warned her that she might think I was crazy. But, I told her I was having pain in my lower back but on the RIGHT side. My pain has ALWAYS been on the left. I thought I was going nuts. It was amazing... she said she was totally not at all surprised. She said that a lot of times, people have so much pain focused on one side that they don't realize it hurts somewhere else too. So, once the injections helped on the left, I started to notice the right. Which is why next Tuesday, I will be doing it all over again but on the other side!

Keep us informed on how you are doing. Have you thought about calling and talking to the doctor or trying to get your follow-up appointment moved up? At least if it is not better within 10-14 days?

AV

lgriffincsa
10-28-2003, 12:36 AM
Crystal and all,
How about that, I had my ESI, (cadual) on the 20th also! I could barely walk out of the Dr.s office (thats where I had the shot). I spent 4-5 days in bed. I have had a total of 4 ESI's this year so far. I hope this was it for a long while. I have not gotten any releif from any of the previous shots, but I must admit that I have a 20% reduction in my pain from this last one. I had an area as big as my hand is wide and long in my lower back that has been killing me. I still have pain in the whole area, but in the lower part of that section my hand covers, it is somewhat better. I hope I dont have to have any more shots any time soon. I think I read that you should only have 3 per year, is this correct? If so, I have gone over my limit as I have had 4 since January. What do you think my doc will do, wait till I can have more shots, give me more now, or insist that I have the neucleoplasty now? I want to wait on the shots, and avoid the neucleoplasty altogether. I have 1 torn disc,(so says the discogram, but my body tells me I have 2) which the neucleoplasty should help, but I also have a bad case of DDD and spondyloysis (whatever that is). From what I read, the neucleoplasty will only be a temporary fix because the DDD will get worse in a few years and I will require fusion. Thanks for listening and any advice, and Crystal I hope that your pain goes away from the injection. Good luck and thanks.

------------------
1998-Major rear-end colision
1998-mid2000-Chiropractic care
2000-mid2002-Pain level increased drasticly. No insurance, took a combo of every OTC painreleiver imaginable.
2002-MRI/ L3/L4 and L4/L5 annular bulging; DDD L4-5 and L5-S1
2003 February- Orthopeadic Spinal Surgeon said not a candidate for surgery,Percocet 5/325 every 6 hrs.
2003 June-1 month at PM clinic, Percocet 7.5/325 every 4 hrs.
08JULY2003-Had Discogram, comfirmed ********ming from L4-L5 disc.Followup confirms tear at L4/L5, pushing on a nerve.
JULY2003-Duragesic patch, had allergic reaction, switched to Norco. Norco provides no releif. Dr. wants me to have IDET. NOPE!!
14AUG2003- New PM Dr. switched me to Oxycontin, 20mg/2x a day.
Lorocet+ 2x per day, no releif. Need 3x/day Oxycontin, or ESI's to start to help.
EMG says severe nerve irritation in lower back. Shows legs ok.
06SEPT03-Severe butt/leg/foot pain, suddenly while driveing, feels like constant electrial shock, I am worried about symptom change.
Sept.12,2003-ESI, no releif.
Oct.6,2003-ESI, no releif.
Oct.20,2003-Caudal epidural scheduled. Last one in series. Scared as heck,as I hear they are painful. Decompression considered if Caudal fails. (Non-invasive/fast recovery time)
Surgery is NOT an option at this time, do to meds working great, long recovery time, possible failure and need to have surgery again.

HockeyCrystal
10-28-2003, 02:24 AM
Av,
Hey I went to my doc's office today to get more of my Zoloft and Gabitril, since they supply me with samples due to my lack of coverage on prescriptions. I talked to the receptionist and she told me it was normal to still be in pain from the injection. She asked when my follow-up was, and it's next Monday. She said we should just leave it that way, because I could probably not get in sooner than that. I agreed, and we left things the way the were. But I also left a message for my refill tonight which is due Wed or Thurs, and mentioned I was still in quite a bit of pain and wondered if it was possible to maybe be upped on my dosage for the time being. I don't know what they'll do, but at least the doctor will then at least find out I'm still in quite a large amount of pain.

Thanks for all your help guys, I appreciate everything!

griff, Thanks for your reply also, you're very kind with your well wishes. I also wish you the best with feeling better from your caudal, and hope you have no more for quite some time!

Much http://www.healthboards.com/ubb/heart.gif
Crystal XOXOXOXOXO

avogadro
10-29-2003, 09:23 AM
Crystal,

How are you feeling? Any better yet?

AV

NeedANewJaw
10-29-2003, 01:20 PM
Crystal, I had really hoped the injections would give you more relief!!
I will pray that they do kick in soon and give you some great relief.

Your friend, lisa (from KC)

HockeyCrystal
10-29-2003, 08:41 PM
Av, Not much better, but I suppose i'm getting there. I'm still in some pretty bad pain, but I'm slowly getting there. As I sit here, my hip is really throbbing. And as you said, I'm now starting to feel a lot of pain in my right side as well...Anyway, let me tell you a story...

I just got home from 6 hours of trying to get some major possible fraudulent holds on my checking account due to someone running my card 8 times the other night when I took my bf out to eat. I spent $25 which went through but I had 7 other holds of $20.46 a piece against me on my account, that were holding and would've dropped tonight, but I had other debits that went through and therefore, I got $29 fees for each one. Luckily the woman at my bank was super helpful and quickly realized this was not my doing and I wasn't just trying to get out of some overdraft fees. She found out that the restaurant I'd eaten out at Saturday night ran up over $140 of holds on my account. Since I didn't have enough to cover them I guess they only matched 1, and the other 6 were still being held against me... $122... Sheesh. 6 hours I'll never get back. The restaurant's owner refunded me my overdraft fees, and I'm afraid someone may be losing their job over it.. The guy who was my server that night is the one who went and got the owner for me.. I bet he recognized me, and he almost acted as if he wanted to listen in.... I think he may have done that and then taken cash from the drawer for that.. Who knows what's going on, but I finally got it all straightened out and I was compensated for all the stress I was caused today. I bet the guy who is responsible for what happened will not only lose his job, but he will also have to recompensate the owner for what he had to pay me out of pocket for my overdraft fees which was NOT the owners fault NOR his responsibility. He was very nice though, and I feel sorry for the guy if he loses his job, but this was just super uncalled for. I even gave him a nice tip! My amount was only $17.05 and I left him a $7.95 tip ($25 total)... I thought I was being nice and in return I got screwed over but thank God I got it taken care of. And I have a renewed sense of assurance that my bank took such good care of me....I now know that I will not be changing banks anytime soon.

Anyway I know I totally went off on a total tangent, but I had to get that stuff off my chest.

I now will be up all night late writing my paper that is due tomorrow and also studying for my exam that I have tomorrow morning. I planned on beginning that stuff 6 hours ago...Until I got that letter informing me my account was so extremely overdrawn.

Lisa, I'm so glad that you're back sweetie! I missed you! Thanks for you sweet well wishes. They mean a lot.

Av, Again, thanks for caring so much and asking how I'm doing. You're such a sweet person!

Much http://www.healthboards.com/ubb/heart.gif to you both,
Crystal

P.S. Again, sorry for the tangent. Oh and on top of all that BS i went through today, I went to pick up my refill, but my pharmy was outta my Dilaudid...Wouldn't have it in til next week sometime. So I had to go clear to my doc's office and fill out another medication agreement so that I could go to walgreens instead. Walgreens was cheaper though....So I'll be going there from now on.

NeedANewJaw
10-30-2003, 03:08 AM
Crystal, I typed a REAL long response then lost it due to another banned message. Lets see if I get one now. If I dont...I will post it again tomorrow. Hope you are doing better!

HockeyCrystal
10-30-2003, 07:25 AM
K Sweetie. I'll be looking for your message then :) Have a good day!

Much http://www.healthboards.com/ubb/heart.gif
Crystal

NeedANewJaw
10-30-2003, 10:52 AM
Ok it seems I have to be on AOL and on a specific SN in order to post...but as long as I can..thats cool!!

I dont remember most of what I said originally but wanted to know how you were..and if you doc responded to your request for a stronger med. If not, did he just ignore it? I hate when they do that!! I would rather be told no than ignored yanno?!

Also was going to drop you a quick note about me and ask for prayers. Im going thru a nasty 3 day flare. This is new for me so that scares me. Since I am dealing with the possible lymphoma anything new scares me. And they are DRAGGING their feet with this lymphoma thing....and that scares me cuz what if its spreading now??? Its been over 6 months since I first started having the fevers...and just in the last month I have all kinds of new symptoms. I am NOT scared of having lymphoma. I am scared of the treatment and what will happen to my kids while im in it.
Just say a few prayers for me if you feel up to it...and let me know how you are!!!

much love, lisa

oh PS I really wish I could send you those links for the free meds. The best I can do is suggest you do a goggle search and type in free meds. ALL of the companies that make the meds we take have programs for people like us that cant afford our meds. You shouldnt have to get samples...at least not after the paperwork gets filled out and sent in. Sometimes you can do it yourself, other ones the doc has to do. Please look into it when you have some free time and feel up to it.

PPS I went to the ER last night against my better judgement and it was a complete waste of my time. They said they couldnt give me anything more than what I was already taking. It was really upsetting. At least they didnt treat me as a drug seeker!!

[This message has been edited by NeedANewJaw (edited 10-30-2003).]

[This message has been edited by NeedANewJaw (edited 10-30-2003).]

HockeyCrystal
10-30-2003, 04:15 PM
Lisa,
Hey sweetheart. I'm glad you found how you can post!

Anyway, my doc wants to wait before he changes anything until my follow-up appointment on Monday. The pain from the injection is getting better, but I'm having other pain now on my right side now. But no, he didn't ignore my request :)

Let me tell you something, you will always have my prayers if you need them. If it is the best I can do, I will do it. I will be praying for you most definitely. I pray your docs quit dragging their feet over this... I will pray for you every day until I hear you're doing better. Whether I feel up to it or not, you don't have to worry about that, because I'll pray no matter what. I'll also pray for your kids...

I will look at websites for free meds as soon as I can sit at my computer for a decent amount of time to do it... I've been so busy with school I hardly have time to think about anything else! Especially when my pain distracts the rest of my thoughts.

I'm sorry the ER didn't help you, but hopefully your docs will figure something out ASAP. And yes, at least they didn't treat you like a drug seeker, but I'm sorry they couldn't give you anything more, and that you wasted your time even going there... Isn't that so frustrating?!

Well, I gotta go, I'm going to relax for an hour before I gotta be back at school. I just took a test this morning, and I have another tomorrow, and 3 more on Tuesday...so I may not be on too much between now and then, but I'll try to check up here at least a couple times a day.

Much http://www.healthboards.com/ubb/heart.gif sweetheart,
Crystal

P.S. I'm praying for you :angel:

NeedANewJaw
11-03-2003, 02:27 PM
Crystal, thanks so much for the prayers...cant tell you how much that means to me. You are a real sweetheart to think of others when your pain is so great.
Please let me know how your dr appt goes today. I have one for Friday with my surgeon to see what the next step is. Im also hoping to see my PCP on Wednesday about this latest flare. I was told hes now only seeing patients on Wednesdays. Its SO hard to get into see him..and to get messages to him. He gave me his email addy for that reason...but he isnt very good about answering me. Im sure hes very busy and all but its still frustrating.
Good luck today sweetie and im praying for you also!!

much love,
lisa

Tiddgys
11-03-2003, 05:30 PM
[COLOR=DarkOrange]HIya crystal..

Sorry i am late in answering this post of yours but been busy as of late due to the pump working good..

I do hope that your pain as now subsided, I remember most of the Injections i had for back pain were always tender for at least aweek afterwards..

I wish you loads of luck with your exams, please lets us know how you do honny..

Love Tiddgys xx

HockeyCrystal
11-03-2003, 07:42 PM
Well everyone, I just got home about an hour ago from the doctor's office. I saw the P.A. again today, and I was also given 4 TPI's while I was there. My left hip is still hurting some, but the pain from the block has subsided quite a bit. They are wanting to do it again for the left SI joint, and they also are going to set me up to have my right side done.

About my prescriptions, my insurance offers a mail-order prescription thing, and even though I agreed to use just one prescription, Rita (The P.A.) agreed to call in all of my medications to them excluding my Dilaudid. I again, was not upped on the Dilaudid, but whatever. Anyway, now my prescriptions will only cost me $5 a piece which is tons better... She's calling in the Lidoderm patches, Gabitril (which I was upped to 12mg today instead of 8mg), Zoloft, Axert, and Zanaflex... Those were all pretty expensive, but now for a 3-month supply, I'm only having to pay $5 each.

Anyways, I need to go put more ice on my 4 TPI sites...Then put heat on it...

Then I have to study for my 3 exams that I have tomorrow.

Thanks everyone for checking up on me.

Love you guys much!
Crystal

avogadro
11-03-2003, 08:38 PM
Crystal,

I am glad to hear that you are doing better! I am going to the hospital at 8am tomorrow morning for my second set of ESI and nerve block (on the right side).

I tried taking the new medication (Percocet 10/325). I don't like them at all. They certanly help with the pain but they make me VERY sleepy. I think I will ask to stick with the Norco.

Anyway, I just got my home PC working. I usually am on my work laptop but discovered this morning that computers and diet Pepsi do not go well together! Opps!! I had to overnight it to our headquarters in Ohio to be reapired. So, I figured I'd better get my home PC working since I will not be doing much after coming home from the hospital tomorrow morning.

I will let ya know how it goes!

AV

HockeyCrystal
11-04-2003, 05:10 AM
Av,
I hope all goes well with the second esi and block. I'm also going to have another block done soon, but I haven't been notified of the time as of yet. I will be called sometime soon, probably in the next couple of days to find out when I'll be going in. She said (The P.A., Rita) that if my right side feels better soon, and I don't feel I need the second, that I should cancel. But in the meantime, I'm going to get it scheduled in case it doesn't get better...

Anyway, I have been extremely dizzy today, and I don't know why. I don't know why the TPI's would cause dizziness, but I can't think of anything else that would cause it besides my meds, but they have NEVER done that to me before.

I'm so dizzy...It's driving me crazy.... It's not just dizzy though, it's drowsy too. I feel like I can hardly keep my eyes open, but on top of that, when I close my eyes, everything spins like crazy. It did it so bad earlier, it made me throw up.

Well, I need to get some sleep so I can get up and go to class in the morning, then study before my 3 exams.... Hope things go wonderful, I'll be praying for you, sweetie!

Good night hunny!

Much love,
Crystal Rose...

HockeyCrystal
11-07-2003, 12:24 AM
Well, I called about my refill today, and they called me back shortly and said that I would be allowed to begin taking up to 2 of my 2mg tabs, and then if I do okay on the 2, they will up my dosage to the 4mg tabs next time. So hopefully more relief is on the way! :) Well, I just wanted to update you guys! And I know I'll do fine taking 2 pills, because after I spoke with the nurse, I took 2 of my pills and I actually got some more relief than normal...So yay for me :)

Much love guys,
Crystal

avogadro
11-07-2003, 12:30 AM
Crystal,

Glad to hear you are doing better!!

I made a mistake today. Wednesday night was BAD. The local anesthetic from the injections wore off and I could not even walk. But, I woke up this morning and felt really good. So, I cleaned house today. Got on a MAJOR roll. Picked up, organized, folded clothes, did dishes.... now, 6 hours later, I am PAYING FOR IT. Bad mistake. I should know better. I feel worse right now than I did Wednesday night. But, I just took 2 Norcos so hopefully they will kick in. I actually felt so good earlier today that I did not need ANYTHING!!! Is that amazing or what? So then I go and over-extend myself just to mess it all up again. What an idiot! :p

AV

HockeyCrystal
11-07-2003, 03:13 PM
Av,
Don't feel bad for wanting to feel normal and get things done when you feel good. I'm sorry you're suffering now, but I'm glad to hear you were feeling so good!! Maybe it's a sign you'll start doing much better! Hope you're feeling better today, I hope, I hope, I hope.

Did I mention that a couple weeks ago, I got a new car? Well, it's not brand new, but it's 7 years newer than my old car! It's a 2001 Saturn SC2. Same thing as my old one, only my old one was a 1994. Anyway, I just got dropped off from the Saturn dealership here because I had to take my car in to have some warranty work done on it. Hopefully this isn't a sign of things to come. But luckily I *DID* get a 4 year/48,000 mile warranty on the car.

Anyways, they're so nice there at the dealership, not only did they give me a free ride home, and will later pick me up when the car is done, also, they do a free car wash and wax and vacuum the car out when you have your car into the service department. It's so cool. Well, I'm so hungry, so I better get some food... That's why I didn't wait at the dealership for my car to get done!!! I'm starving! Plus I need to take more pills... Hope you're feeling better sweetheart!

Much love,
Crystal Rose...





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