dbiker2
11-16-2000, 07:00 PM
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[This message has been edited by dbiker2 (edited 11-23-2000).]
[This message has been edited by dbiker2 (edited 11-23-2000).]
Sponsor
Carole
11-16-2000, 11:38 PM
Darrell-
This posting saddens me. You were having a lot of fun and I was sure enjoying getting to know you online, especially as the transition was made between formats. Please feel free to be yourself here. As I read through your synopsis of your last days at work and your acceptance of what is life now, I was really moved. It reminds us all to remember what blessings we DO have. I agree with Bruce when he said that you get over the trauma of resigning. I always thought I"d be prepared for it, but when it came down to it, I had tears in my eyes when I told my principal. We decided I wouldn't have a retirement party, because I just couldn't have taken it at that time. Since then I wish I had taken time to say goodbye after 21 years, but realistically know I'd have been a blubbering fool. I wasn't quitting because I could, but because I had to. Now I realize it was because I could. Life is sweeter than ever, with treasures that may have remained buried had I not taken that step into the unknown of disability. God knows what he's doing; we only need to trust Him more. I'd also say, don't be afraid to use that parking sticker. You gotta have SOME perks out of PD! It's the one thing I've never been questioned about (I doubt we hide our condition as well as we think.)
Bike on, DB.
Carole :)
This posting saddens me. You were having a lot of fun and I was sure enjoying getting to know you online, especially as the transition was made between formats. Please feel free to be yourself here. As I read through your synopsis of your last days at work and your acceptance of what is life now, I was really moved. It reminds us all to remember what blessings we DO have. I agree with Bruce when he said that you get over the trauma of resigning. I always thought I"d be prepared for it, but when it came down to it, I had tears in my eyes when I told my principal. We decided I wouldn't have a retirement party, because I just couldn't have taken it at that time. Since then I wish I had taken time to say goodbye after 21 years, but realistically know I'd have been a blubbering fool. I wasn't quitting because I could, but because I had to. Now I realize it was because I could. Life is sweeter than ever, with treasures that may have remained buried had I not taken that step into the unknown of disability. God knows what he's doing; we only need to trust Him more. I'd also say, don't be afraid to use that parking sticker. You gotta have SOME perks out of PD! It's the one thing I've never been questioned about (I doubt we hide our condition as well as we think.)
Bike on, DB.
Carole :)
Bruce
11-17-2000, 12:04 PM
Darrell. I enjoyed exchanging our experiences with you. This board has many nice, caring people and they have made my life much easier to cope with PD. It feels like a family on this board and your opinion is just as important as anyone else's. Bruce
dbiker2
11-17-2000, 01:50 PM
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Bruce
11-17-2000, 03:22 PM
Darrell, that is great news!
Bruce
Bruce
Pelicangirl
11-17-2000, 03:34 PM
.
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[This message has been edited by Pelicangirl (edited 01-12-2001).]
Googy
11-17-2000, 06:26 PM
Darrell,
Why do you think I make a fool of myself trying to go through the maze of this board.It is because I care about you and the many who have PD.I cannot share anyones pain.You know when Bill had to go through similar times ,and the place he worked for "Put Him Out To Pasture",he worked for Garrett he was very depressed.We had to go to this horrible place so they could see if he really had PD so he could get Soc.Sec.disablity. There were ants crawling around the bathroom.He had to be off his meds.I helped him in this little night shirt.This young woman Dr came him and told me to get out.She spent 2mins. with him and left.I got him dressed.Found out 3months later it was approved.We both cried together.Now if this saga will post!!!!
Much Love,
Googy
Why do you think I make a fool of myself trying to go through the maze of this board.It is because I care about you and the many who have PD.I cannot share anyones pain.You know when Bill had to go through similar times ,and the place he worked for "Put Him Out To Pasture",he worked for Garrett he was very depressed.We had to go to this horrible place so they could see if he really had PD so he could get Soc.Sec.disablity. There were ants crawling around the bathroom.He had to be off his meds.I helped him in this little night shirt.This young woman Dr came him and told me to get out.She spent 2mins. with him and left.I got him dressed.Found out 3months later it was approved.We both cried together.Now if this saga will post!!!!
Much Love,
Googy
Carole
11-17-2000, 07:26 PM
Darrell-
Amen to wanting to talk to someone who really knows what these trappings are like first-hand. Keep posting - I like what you have to say!!
Ruth-
I could ID with you when you said people thought you were using your PD as as excuse. I have felt like this; when most people see me, it's when I'm "on" (otherwise, I'm not making myself visible.) It seems as if our bodies change minute to minute. I went shopping today and my foot was pretty dystonic, so I limped in, very slowly. I couldn't find a handicapped space, so it took extra long to make the trip to the front door and it was blustery cold. I got a little extra fresh air and exercise, I guess!
By the time I came out, my foot was about back to normal, and the trip back out to the car wasn't so bad. You just never know sometimes, and I've even had DBS. I don't think twice about using my handicapped parking placcard anymore because you may not be operating at either end of your trip (your way in or your way out.)
Bruce-
I agree with you that the people here feel like family; comfortable as old shoes!
Googy-
What a story about your trip to the SSDI doctor. I didn't have to go thru quite the same experience (with the ants and undressing), but they insisted I come in to see this special SSDI Doctor ON meds. The YOUNG dr. who put me thru the paces, saw my obvious tremor and said, "You must not have taken your meds this morning," just as my pill timer went off!! What great timing. It gave me a chance to demonstrate just how unpredictable on-off times could be, or how being in stressful situations made medicine negligible!! It still took 6 full months for my SSDI to come through.
Carole
Amen to wanting to talk to someone who really knows what these trappings are like first-hand. Keep posting - I like what you have to say!!
Ruth-
I could ID with you when you said people thought you were using your PD as as excuse. I have felt like this; when most people see me, it's when I'm "on" (otherwise, I'm not making myself visible.) It seems as if our bodies change minute to minute. I went shopping today and my foot was pretty dystonic, so I limped in, very slowly. I couldn't find a handicapped space, so it took extra long to make the trip to the front door and it was blustery cold. I got a little extra fresh air and exercise, I guess!
By the time I came out, my foot was about back to normal, and the trip back out to the car wasn't so bad. You just never know sometimes, and I've even had DBS. I don't think twice about using my handicapped parking placcard anymore because you may not be operating at either end of your trip (your way in or your way out.)
Bruce-
I agree with you that the people here feel like family; comfortable as old shoes!
Googy-
What a story about your trip to the SSDI doctor. I didn't have to go thru quite the same experience (with the ants and undressing), but they insisted I come in to see this special SSDI Doctor ON meds. The YOUNG dr. who put me thru the paces, saw my obvious tremor and said, "You must not have taken your meds this morning," just as my pill timer went off!! What great timing. It gave me a chance to demonstrate just how unpredictable on-off times could be, or how being in stressful situations made medicine negligible!! It still took 6 full months for my SSDI to come through.
Carole
Pelicangirl
11-17-2000, 07:59 PM
.
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[This message has been edited by Pelicangirl (edited 01-12-2001).]
Carole
11-18-2000, 12:02 AM
LOL, Ruth!!
I always think that when I see someone in sweats!!
Carole
I always think that when I see someone in sweats!!
Carole
Bruce
11-18-2000, 04:46 AM
This must be true confessions week. These kind of topics are more meaningful and maybe make people understand us a little better.
Now I will tell my latest adventure. I was moving around the grocery store and occasionally my brain must get disconnected, because I ran straight into the dairy case making a loud noise. For some reason, I can see what is going to happen, but I can't make myself stop the scooter. A nice black lady came over and offered to help me shop, but I told her I was allright. I have become used to it, so I just ignore it. I was lucky that I didn't knock anything off the shelf. It is interesting how people react to me wheeling around on the scooter.Many people assume I am completely hellpless, but that doesn't bother me.It does seem to bring out the good side of people who I meeet at the store.
Now I will tell my latest adventure. I was moving around the grocery store and occasionally my brain must get disconnected, because I ran straight into the dairy case making a loud noise. For some reason, I can see what is going to happen, but I can't make myself stop the scooter. A nice black lady came over and offered to help me shop, but I told her I was allright. I have become used to it, so I just ignore it. I was lucky that I didn't knock anything off the shelf. It is interesting how people react to me wheeling around on the scooter.Many people assume I am completely hellpless, but that doesn't bother me.It does seem to bring out the good side of people who I meeet at the store.
Carole
11-18-2000, 10:25 AM
Bruce-
Interesting how one just becomes "used to" our bodies NOT reacting the way they used to. I used to want to demand a recount of my brain cells, and now I'm just happy to have some left!!
Carole
Interesting how one just becomes "used to" our bodies NOT reacting the way they used to. I used to want to demand a recount of my brain cells, and now I'm just happy to have some left!!
Carole
dbiker2
11-18-2000, 03:42 PM
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Pelicangirl
11-18-2000, 05:58 PM
!
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Bruce
11-18-2000, 08:04 PM
Darrell, That was an interesting event, but I have one close to that. I parked my walker in front of the barn, started up the mower, and guess what I did next. I now have a three leg walker. The walker still works and is a great conversation piece. I just tell everyone I wanted a bigger challenge.
Googy
11-19-2000, 02:09 AM
You guys have such a sense of humor.I cannot begin to top that,as you know.I have to tell you this,last Sunday we went out for breakfast.We were leaving and I helped Bill get in the wheelchair.But I wasnt looking at the booth behind and wondered why the wheelchair wouldn't move,I was pulling it backward.There was a man with his leg out.The chair was hitting his leg,he also had a cane.I got really upset at my carelessness.He looked at me and laughed.
Googy
Googy
Googy
11-19-2000, 02:09 AM
You guys have such a sense of humor.I cannot begin to top that,as you know.I have to tell you this,last Sunday we went out for breakfast.We were leaving and I helped Bill get in the wheelchair.But I wasnt looking at the booth behind and wondered why the wheelchair wouldn't move,I was pulling it backward.There was a man with his leg out.The chair was hitting his leg,he also had a cane.I got really upset at my carelessness.He looked at me and laughed.
Googy
Googy
Carole
11-19-2000, 02:20 AM
As long as it's true confession time.......
I was getting ready for bed the other night, and was in the bathroom. I reached down and shut the lid on the wastebasket, and my brain processed the wrong information. I sat down to take off my socks and fell into the toilet. I had not closed the "correct" lid I imagined I had. Nothing was hurt but my pride. My husband wonder what the whooping was all about!!
I was getting ready for bed the other night, and was in the bathroom. I reached down and shut the lid on the wastebasket, and my brain processed the wrong information. I sat down to take off my socks and fell into the toilet. I had not closed the "correct" lid I imagined I had. Nothing was hurt but my pride. My husband wonder what the whooping was all about!!
dbiker2
11-19-2000, 07:06 AM
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[This message has been edited by dbiker2 (edited 11-22-2000).]
[This message has been edited by dbiker2 (edited 11-22-2000).]
Lory
11-19-2000, 10:23 AM
Originally posted by Carole:
Darrell-
This posting saddens me. You were having a lot of fun and I was sure enjoying getting to know you online, especially as the transition was made between formats. Please feel free to be yourself here. As I read through your synopsis of your last days at work and your acceptance of what is life now, I was really moved. It reminds us all to remember what blessings we DO have. I agree with Bruce when he said that you get over the trauma of resigning. I always thought I"d be prepared for it, but when it came down to it, I had tears in my eyes when I told my principal. We decided I wouldn't have a retirement party, because I just couldn't have taken it at that time. Since then I wish I had taken time to say goodbye after 21 years, but realistically know I'd have been a blubbering fool. I wasn't quitting because I could, but because I had to. Now I realize it was because I could. Life is sweeter than ever, with treasures that may have remained buried had I not taken that step into the unknown of disability. God knows what he's doing; we only need to trust Him more. I'd also say, don't be afraid to use that parking sticker. You gotta have SOME perks out of PD! It's the one thing I've never been questioned about (I doubt we hide our condition as well as we think.)
Bike on, DB.
Carole :)
Carole - I'm not sur if this will get through, it's my first attempt at responding on this new board. I enjoyed reading of your last days -- my last day will be 1-1-01 at my current job. My two positions are being terminated and will be absorbed by two people who are working full time already. I put in 20-24 hours week, don't know how they'll do it. THAT part makes my leaving easier. But daily, people come up to me to tell me they'll miss me, and I beocme a "blubbering fool". I'm getting better, though. I will look for work again, but hope to get re-trained on Word and Excel, and do something a bit different. Still part time, that's all this body and PD will allow. Thnks for sharing. Lory
Darrell-
This posting saddens me. You were having a lot of fun and I was sure enjoying getting to know you online, especially as the transition was made between formats. Please feel free to be yourself here. As I read through your synopsis of your last days at work and your acceptance of what is life now, I was really moved. It reminds us all to remember what blessings we DO have. I agree with Bruce when he said that you get over the trauma of resigning. I always thought I"d be prepared for it, but when it came down to it, I had tears in my eyes when I told my principal. We decided I wouldn't have a retirement party, because I just couldn't have taken it at that time. Since then I wish I had taken time to say goodbye after 21 years, but realistically know I'd have been a blubbering fool. I wasn't quitting because I could, but because I had to. Now I realize it was because I could. Life is sweeter than ever, with treasures that may have remained buried had I not taken that step into the unknown of disability. God knows what he's doing; we only need to trust Him more. I'd also say, don't be afraid to use that parking sticker. You gotta have SOME perks out of PD! It's the one thing I've never been questioned about (I doubt we hide our condition as well as we think.)
Bike on, DB.
Carole :)
Carole - I'm not sur if this will get through, it's my first attempt at responding on this new board. I enjoyed reading of your last days -- my last day will be 1-1-01 at my current job. My two positions are being terminated and will be absorbed by two people who are working full time already. I put in 20-24 hours week, don't know how they'll do it. THAT part makes my leaving easier. But daily, people come up to me to tell me they'll miss me, and I beocme a "blubbering fool". I'm getting better, though. I will look for work again, but hope to get re-trained on Word and Excel, and do something a bit different. Still part time, that's all this body and PD will allow. Thnks for sharing. Lory
Bruce
11-19-2000, 02:24 PM
Lory, I am sure this is a diffcult time for you. All these postings have brought back somw paunful memmories, but also remember some of the nice people. I requested not to have a party, knowing my good friend Kris would organize one anyway. It was a low key affair, because she knew it would make me uncomfortable. Since I was in the habit of trying to cover up my symptoms, people kept asking me to cut the cake and I had to make excuses not to do it. Of course, now I really don't care if people see rocking and rolling. Carole, you are not the only one thst was a "crybaby", because it was about the time I realized I had depression. Crying in public is devastating to a man, because society tends to look down on a man who does that. But that is history and I did "get even"with my friend Kris. I bought a birthday cake and sneaked into the hospital so she wouldn't see me. I was a little concerned I would drop the cake, but I made it okay. What was so funny was she didn't have a clue about the party. Her supervisor called her and told her to come to the conferance room. She thought she was in trouble and when she opened the door, I thought she was going to faint. Lory, their is one thing I wanted to tell you, is keep in mind your Social Security/disability is affected by your average salary, and I can't remember how many years it includes to determine your benefit. Hang in there.
dbiker2
11-19-2000, 05:06 PM
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[This message has been edited by dbiker2 (edited 11-22-2000).]
[This message has been edited by dbiker2 (edited 11-22-2000).]
Carole
11-20-2000, 01:06 AM
Lory-
Welcome to the board - the new and improved one????? I am getting used to it and really have no complaints!!
My husband quit his job and went into his own business a little over 2 years ago. I think we're both been going thru midlife crisis or something similar! It's scarey and a lot of work but he can't imagine going back to working for someone (and there are days he'd rather do that than face the unknown!) I do video editing on the computer and some photo restoration, so I feel like I can work a little, when I can manage or have the energy. He needs help at the studio, but that wears me out. We make it; both a day at a time, along with raising our kids - 19 and 17.
Carole
Welcome to the board - the new and improved one????? I am getting used to it and really have no complaints!!
My husband quit his job and went into his own business a little over 2 years ago. I think we're both been going thru midlife crisis or something similar! It's scarey and a lot of work but he can't imagine going back to working for someone (and there are days he'd rather do that than face the unknown!) I do video editing on the computer and some photo restoration, so I feel like I can work a little, when I can manage or have the energy. He needs help at the studio, but that wears me out. We make it; both a day at a time, along with raising our kids - 19 and 17.
Carole
Betty H
11-20-2000, 03:37 AM
Originally posted by dbiker2:
I would like to make the following statement.
I am relatively new to this forum. If any comment I have made in my past posts, either in general or directly to someone has offended, I apologize.
It certainly was not intentional. In considering the fact that I may have offended I have made a decision.
All future post's that I make will be in reference to information about Parkinson's Disease only, and will made general not directed to anyone. I will reply only to questions directed to me and only if they pertain to PD. I will direct any other comments I may have to different sources other than this forum.
Darrell, I just finished reading all these posting and I am so glad you are back. You or any of the others have never offended me. You are right, no one and I mean NO ONE, knows what PD is really like, except those of us unfortunate enough to have it. My husband/caregiver has been wonderful and does all he can to help me, but sometimes I feel like even he doesn't believe me, when one minute I can do just about anything and the next I'm almost helpless. I must admit I might feel the same way, when one minute my spouse is climbing up getting something off a higher shelf and the next, needing to be pulled up off the toilet when we are somewhere other than home.
I received my SSDI on the first try last May, after a very short time. My first knowledge of it passing was my bank statement showing a healthy deposit, but later the letter came.
I too, was forced to retire because of PD and was very angry that it hadn't been MY choice. It's been several years now and I'm beginning to get over that and enjoy the freedom of doing what I want, when I want.
I am a beginner for sure to this new healthboard & fairly new to the old one, but I feel like my friends are here who truely understand and I can come talk to them any time I choose, which is usually the middle of the night.
So--- keep the mail coming. I appreciate your contributions in the past and look forward to hearing from folks who "have been there, done that".
Betty H
I would like to make the following statement.
I am relatively new to this forum. If any comment I have made in my past posts, either in general or directly to someone has offended, I apologize.
It certainly was not intentional. In considering the fact that I may have offended I have made a decision.
All future post's that I make will be in reference to information about Parkinson's Disease only, and will made general not directed to anyone. I will reply only to questions directed to me and only if they pertain to PD. I will direct any other comments I may have to different sources other than this forum.
Darrell, I just finished reading all these posting and I am so glad you are back. You or any of the others have never offended me. You are right, no one and I mean NO ONE, knows what PD is really like, except those of us unfortunate enough to have it. My husband/caregiver has been wonderful and does all he can to help me, but sometimes I feel like even he doesn't believe me, when one minute I can do just about anything and the next I'm almost helpless. I must admit I might feel the same way, when one minute my spouse is climbing up getting something off a higher shelf and the next, needing to be pulled up off the toilet when we are somewhere other than home.
I received my SSDI on the first try last May, after a very short time. My first knowledge of it passing was my bank statement showing a healthy deposit, but later the letter came.
I too, was forced to retire because of PD and was very angry that it hadn't been MY choice. It's been several years now and I'm beginning to get over that and enjoy the freedom of doing what I want, when I want.
I am a beginner for sure to this new healthboard & fairly new to the old one, but I feel like my friends are here who truely understand and I can come talk to them any time I choose, which is usually the middle of the night.
So--- keep the mail coming. I appreciate your contributions in the past and look forward to hearing from folks who "have been there, done that".
Betty H