dbiker2
11-21-2000, 12:09 AM
deleted
[This message has been edited by dbiker2 (edited 11-22-2000).]
[This message has been edited by dbiker2 (edited 11-22-2000).]
Sponsor
Bruce
11-21-2000, 12:53 AM
deleted
[This message has been edited by Bruce (edited 11-22-2000).]
[This message has been edited by Bruce (edited 11-22-2000).]
Carole
11-21-2000, 02:31 AM
That dyskinesia is the WORST!! or at least I thought so until my dystonic foot won't go away; I'm working on that. I go in for another adjustment Monday. No,I would STILL vote dyskinesia as the worst! I remember driving my family nuts-so with it: I was the manic momma!! Wiggly, too - a "permanent" 7-year old when it came to wiggles!!
Carole
Carole
Googy
11-21-2000, 02:50 AM
Originally posted by Bruce:
It must be contagous, I have a little of that
Yes it isn't funny.I'm glad you all cannot take it as such.From me a C.G
It must be contagous, I have a little of that
Yes it isn't funny.I'm glad you all cannot take it as such.From me a C.G
Carole
11-21-2000, 03:02 AM
Originally posted by Googy:
Yes it isn't funny.I'm glad you all cannot take it as such.From me a C.G
Oh, no, never funny when it comes to that! a very BAAAAD thing!!! I hardly ever say hate about anything, but I can say that I HATE dyskinesia!!
CC
Yes it isn't funny.I'm glad you all cannot take it as such.From me a C.G
Oh, no, never funny when it comes to that! a very BAAAAD thing!!! I hardly ever say hate about anything, but I can say that I HATE dyskinesia!!
CC
pete
11-21-2000, 05:14 PM
Hello to all wwho put dyskinesia in its place,
For most of us who have pd dyskinesia is not one of our favorite words. It is a movement. most of the time brought on by one of our meds(frequently, sinemet) that can be a movement which can be desacribed in the way that it affects us, anywhere from mildly irritating to very close to totally disabling
Those who responded that episodes of dyskinesia can just wear a body out have described it exactly how it affe0cts me sometimes.
But this TGWHI(thank God we have it medicine) is one i sing praises every day that i live--
At this point in my pilgrimage with pd if sinemet were not available for me, movement
of most part of my body would be brought to a screeching halt.
And of vital importance to me is sinemet which is at present my only med that does anythinhg at all for my dreaded bradykinesic episodes(extreme slow time -off time.
I have definite difficulties with dysk and all of the extra movements it throws my way..,
But , sinemet, with all of its shortcomings to the point of even being described as a curse, has brought too many blessings into my life to ever be forgotten as certainly one of the true "wonder drugs of this century.
best wishes to all--pete
For most of us who have pd dyskinesia is not one of our favorite words. It is a movement. most of the time brought on by one of our meds(frequently, sinemet) that can be a movement which can be desacribed in the way that it affects us, anywhere from mildly irritating to very close to totally disabling
Those who responded that episodes of dyskinesia can just wear a body out have described it exactly how it affe0cts me sometimes.
But this TGWHI(thank God we have it medicine) is one i sing praises every day that i live--
At this point in my pilgrimage with pd if sinemet were not available for me, movement
of most part of my body would be brought to a screeching halt.
And of vital importance to me is sinemet which is at present my only med that does anythinhg at all for my dreaded bradykinesic episodes(extreme slow time -off time.
I have definite difficulties with dysk and all of the extra movements it throws my way..,
But , sinemet, with all of its shortcomings to the point of even being described as a curse, has brought too many blessings into my life to ever be forgotten as certainly one of the true "wonder drugs of this century.
best wishes to all--pete
dbiker2
11-21-2000, 05:22 PM
deleted
[This message has been edited by dbiker2 (edited 11-22-2000).]
[This message has been edited by dbiker2 (edited 11-22-2000).]
Pelicangirl
11-21-2000, 07:29 PM
.
[This message has been edited by Pelicangirl (edited 01-12-2001).]
[This message has been edited by Pelicangirl (edited 01-12-2001).]
dbiker2
11-21-2000, 09:21 PM
deleted
[This message has been edited by dbiker2 (edited 11-22-2000).]
[This message has been edited by dbiker2 (edited 11-22-2000).]
Googy
11-21-2000, 11:52 PM
Cute smilies Darrell !!! A good choice.
Googy
Googy
Carole
11-22-2000, 02:08 AM
I was just corresponding with a PD friend (who doesn't post here; too bad) about the days pre-el dopa. My grandfather had PD in the 60s and his solution to his tremor was my grandmother reaching over and holding his hand still on the table; then you'd hear thumping from under the table because his foot would start tapping. He was in his 80s then. It's funny how diagnosis was made then. My parents were told he had "hardening of the artieries," yet my aunt said the doctor told her it was "old-age Parkinson's."
I remember Dr. Koller had a good laugh at that one! He said it was because he was 85! Anyway, the book to make you appreciate just how far we've come in treating this disease is Parkinson's, A Patient's View, by Sydney Dorros. I read that book early on in my disease journey, and like Pete, would call Sinemet a wonder-drug. It's the disease which is the enemy, in that your body builds up a resistance to the synthetic leva-dopa after a while. Some doctors put off giving sinemet in early onset because they know the eventual outcome will be dyskinesia; when the honeymoon's over. You would be amazed at the dosages they USED to start people on when they first developed this drug. It should be a must for everyone to read. We owe those souls who have suffered this disease and been guinea pigs for a lot of drugs we use today to great benefit such a huge amount of gratitude. My hats are off to them.
:D
Now for the lighter side, ITA with Darrell in that we MUST keep a sense of humor, all of us, in approaching each day. There is sure enough working against us as it is. Keep it coming, everyone. I'm sure enjoying the lively discussions!
(p.s. - check out the PD # of posts compared to the other boards - :eek:
Carole
I remember Dr. Koller had a good laugh at that one! He said it was because he was 85! Anyway, the book to make you appreciate just how far we've come in treating this disease is Parkinson's, A Patient's View, by Sydney Dorros. I read that book early on in my disease journey, and like Pete, would call Sinemet a wonder-drug. It's the disease which is the enemy, in that your body builds up a resistance to the synthetic leva-dopa after a while. Some doctors put off giving sinemet in early onset because they know the eventual outcome will be dyskinesia; when the honeymoon's over. You would be amazed at the dosages they USED to start people on when they first developed this drug. It should be a must for everyone to read. We owe those souls who have suffered this disease and been guinea pigs for a lot of drugs we use today to great benefit such a huge amount of gratitude. My hats are off to them.
:D
Now for the lighter side, ITA with Darrell in that we MUST keep a sense of humor, all of us, in approaching each day. There is sure enough working against us as it is. Keep it coming, everyone. I'm sure enjoying the lively discussions!
(p.s. - check out the PD # of posts compared to the other boards - :eek:
Carole
dbiker2
11-22-2000, 08:06 PM
deleted
[This message has been edited by dbiker2 (edited 11-22-2000).]
[This message has been edited by dbiker2 (edited 11-22-2000).]
Pelicangirl
11-22-2000, 08:07 PM
.
[This message has been edited by Pelicangirl (edited 01-12-2001).]
[This message has been edited by Pelicangirl (edited 01-12-2001).]