Leathan
11-30-2000, 09:43 PM
Hi people ,
hope you are all as well a s can be expected. I want to ask you about your sleep patterns please!
It is currently 1.40 a.m and I am unable to sleep because I slept - was forced to sleep , i felt as if i was weighted down internally to sleep , felt so drowsy , that I slept between 7-10pm!
what will happen is I will fall asleep at 4.30am! then i will get up at 9am for the day and then the pattern will just keep repeating itself - the thing is , i get into this dreadul pattern because even when my sleep is normal , this crops in randonmly - i feel helpless.
i loathe that drowsy feeling that comes on - it's awful..
i also get sleep paralysis from time to time..
i do have other symptoms as a Googy,Bruce,Carole know , but I want to focus on the sleep problem, and wonder if anyone has this problem..
i see the neurologist in January
thanks
[This message has been edited by Leathan (edited 11-30-2000).]
hope you are all as well a s can be expected. I want to ask you about your sleep patterns please!
It is currently 1.40 a.m and I am unable to sleep because I slept - was forced to sleep , i felt as if i was weighted down internally to sleep , felt so drowsy , that I slept between 7-10pm!
what will happen is I will fall asleep at 4.30am! then i will get up at 9am for the day and then the pattern will just keep repeating itself - the thing is , i get into this dreadul pattern because even when my sleep is normal , this crops in randonmly - i feel helpless.
i loathe that drowsy feeling that comes on - it's awful..
i also get sleep paralysis from time to time..
i do have other symptoms as a Googy,Bruce,Carole know , but I want to focus on the sleep problem, and wonder if anyone has this problem..
i see the neurologist in January
thanks
[This message has been edited by Leathan (edited 11-30-2000).]
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Bruce
12-01-2000, 12:05 AM
Hi Leathan, Are you taking any medication?About all I can tell you is insomnia is fairly common with us PD people, rather then having symptoms like yours.
Their is a lot of info about sleep, when you go to the health channel and look for it. You can find a list of some of the good habits that you can follow to get a good sleep cycle. Bruce
Their is a lot of info about sleep, when you go to the health channel and look for it. You can find a list of some of the good habits that you can follow to get a good sleep cycle. Bruce
Carole
12-01-2000, 07:09 PM
Sleep!!
That's a topic of "sore" discussion in my household. My husband is bothered by the fact that I can't seem to sleep at the "Right" times!
My sleep-pattern sounds very much like yours. There are times I get so tired so fast, that I just crawl on the floor and sleep where ever I happen to be (for about 30-45 min). Years ago when I was still working, I would sleep (head just fall over) as soon as I sat down on the couch at home. It didn't matter if someone was talking to me or if I was eating, I would just fall asleep! One day my dh said, "You act like you're on drugs," at which point, I looked at him sweetly and said, "Why dear. I AM on drugs, and lots of them, too!" That can contribute to the problem, but fatigue and insomnia has been with me for about as long as I can remember. I think I must have used UP my supply of dopamine, because for years I could get by on 2-4 hrs. of sleep and be so perky the next day and not nap (pre- PD dx). My teacher friends would get so irritated at that one
"quality" I seemed to possess. Even though my DR shakes his head and doubts it, I've always wondered if my burning the candle at both ends for so long (no sleep) was some sort of pre-curser to my PD or if it led to the PD. Since we don't really know the cause of PD and it manifests itself so differently in people, we can just add that to the list of "I wonders?"
Both of my children are also night owls. I am very fortunate that Ambien works for me, no bad side-effects, around 1:30 or so, and keeps me asleep for more hours in a row than I could ever accomplish on my own. I think I have read every sleep-book, or listened to white noise or ocean waves to sleep; I feel like I have tried everything (even writing lists of the day's troubles and throwing them away, to empty your mind, to earplugs to drown out my dh's snores, to special pillows, etc. etc). I don't always get the sudden drowsiness now that I can stay asleep, but it's the getting to that stage I still struggle with. It's no wonder that the older I get, the worse the bags under my eyes look!!
CC
That's a topic of "sore" discussion in my household. My husband is bothered by the fact that I can't seem to sleep at the "Right" times!
My sleep-pattern sounds very much like yours. There are times I get so tired so fast, that I just crawl on the floor and sleep where ever I happen to be (for about 30-45 min). Years ago when I was still working, I would sleep (head just fall over) as soon as I sat down on the couch at home. It didn't matter if someone was talking to me or if I was eating, I would just fall asleep! One day my dh said, "You act like you're on drugs," at which point, I looked at him sweetly and said, "Why dear. I AM on drugs, and lots of them, too!" That can contribute to the problem, but fatigue and insomnia has been with me for about as long as I can remember. I think I must have used UP my supply of dopamine, because for years I could get by on 2-4 hrs. of sleep and be so perky the next day and not nap (pre- PD dx). My teacher friends would get so irritated at that one
"quality" I seemed to possess. Even though my DR shakes his head and doubts it, I've always wondered if my burning the candle at both ends for so long (no sleep) was some sort of pre-curser to my PD or if it led to the PD. Since we don't really know the cause of PD and it manifests itself so differently in people, we can just add that to the list of "I wonders?"
Both of my children are also night owls. I am very fortunate that Ambien works for me, no bad side-effects, around 1:30 or so, and keeps me asleep for more hours in a row than I could ever accomplish on my own. I think I have read every sleep-book, or listened to white noise or ocean waves to sleep; I feel like I have tried everything (even writing lists of the day's troubles and throwing them away, to empty your mind, to earplugs to drown out my dh's snores, to special pillows, etc. etc). I don't always get the sudden drowsiness now that I can stay asleep, but it's the getting to that stage I still struggle with. It's no wonder that the older I get, the worse the bags under my eyes look!!
CC
desi26
12-14-2000, 01:38 AM
Hi i felt just like you, until just recentaly my new doc. put me on anti anxiety drug. I take a high dose at night and about and hour later I am off to bed for a min. of 6 hrs.I dont seem to get the daytime sleep attacks as much with it either.(unless i have been x-tra active that day)I hope this helps some. BY the way for some it helps with the PD.
dbiker2
12-14-2000, 02:55 AM
My sleep pattern is whacked out! Up until 1:30-2:00, go to bed, get up at 5:00-6:00. I do get drowsy during the day occasionally. But for the most part I feel pretty good (as far as sleep goes). I do see my Doc tomorrow, and I am going to ask her about the sleeping pattern.
I'm also going to inquire about DBS.
------------------
Darrell
I'm also going to inquire about DBS.
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Darrell
Pelicangirl
12-14-2000, 03:43 AM
.
[This message has been edited by Pelicangirl (edited 01-14-2001).]
[This message has been edited by Pelicangirl (edited 01-14-2001).]
Bruce
12-14-2000, 08:20 PM
I have noticed a lot of the messages are posted late at night, and thought not able to sleep was the problem. This might look a little strange, but when I was still working, I felt like I was in a fog, because I rarely got a good nights sleep. Now I sleep much better since the stress factor is long gone.
Some of the things that help me sleep is I don't go to bed until I am tired and ready for it. Occasionally, if I have trouble sleeping I get out of bed and stay up until I am tired again. Going to bed at about the same time each night helps me, but if I start to follow an erratic schedule, it makes it harder to sleep. Bruce
Some of the things that help me sleep is I don't go to bed until I am tired and ready for it. Occasionally, if I have trouble sleeping I get out of bed and stay up until I am tired again. Going to bed at about the same time each night helps me, but if I start to follow an erratic schedule, it makes it harder to sleep. Bruce
Googy
12-14-2000, 11:49 PM
Leathan,You don't have to have PD for sleep problems.I've had them for twenty years at that time Bill did to.The Dr had put him on Ambein.It helped for awhile.I also took it but this new Dr denied the refill.I sleep about 4/5hrs .Go to bed late.I was only getting 4hrs also on Ambein. Can you have coffee at 7pm it may help.Then try to get into a routine at that time.Coffee is Ok for PWP. Or have soda.Try it let us know.Can you believe that Bill now goes to bed at 7:30 and sleeps all night accept for a nightly bathroom trip.For the past 6yrs no other meds accept Sinemet.
I do hope something works out.There are sleep specialist if not. Talk to the neuro about this.
,Googy
I do hope something works out.There are sleep specialist if not. Talk to the neuro about this.
,Googy
brub
12-19-2000, 05:39 AM
No need to overstate, but I've got two cents, and I just don't know what to with them???
It's called fragmented sleep. Bottom Line for me; I sleep when I can 'cause it all seems to balance-out. Even after nights when I hardly sleep at all.
For those of us who encounter problems with protein consumption: me, pelican girl,,,
I avoid protein throughout the day (hard as that is) and have a small but high protein meal just before going to sleep and take my prescribed sedative just before my first bite. Result" 4, some times 6 hours uninterrupted-UNREAL but true.
Best of experimenting and be patient.
------------------
Phil of AZ
It's called fragmented sleep. Bottom Line for me; I sleep when I can 'cause it all seems to balance-out. Even after nights when I hardly sleep at all.
For those of us who encounter problems with protein consumption: me, pelican girl,,,
I avoid protein throughout the day (hard as that is) and have a small but high protein meal just before going to sleep and take my prescribed sedative just before my first bite. Result" 4, some times 6 hours uninterrupted-UNREAL but true.
Best of experimenting and be patient.
------------------
Phil of AZ