Mike TTF
08-08-2001, 11:53 AM
My neurologist has "given up" and sent me to a MDS.
That's good news, I guess.
The bad news is that he suspects "striatal nigra degeneration" - which he says is basically untreatable Parkinson's Disease.
The MDS is in a large University research hospital, about 3 1/2 hours round trip.
Really not looking forward to it, at all.
10 months of Requip - Mirapex and Sinemet. Nothing. A big waste of time and money.......
Mike
That's good news, I guess.
The bad news is that he suspects "striatal nigra degeneration" - which he says is basically untreatable Parkinson's Disease.
The MDS is in a large University research hospital, about 3 1/2 hours round trip.
Really not looking forward to it, at all.
10 months of Requip - Mirapex and Sinemet. Nothing. A big waste of time and money.......
Mike
Sponsor
sarvin
08-08-2001, 05:19 PM
Mike:
Sorry to hear about your dr. "giving up." I don't have Parkinson's Disease, but am problems with infertility.
Just wanted to let you know someone is listening out here and not to give up.
Good luck at your new "expert" doctor!
Sara
Sorry to hear about your dr. "giving up." I don't have Parkinson's Disease, but am problems with infertility.
Just wanted to let you know someone is listening out here and not to give up.
Good luck at your new "expert" doctor!
Sara
Googy
08-08-2001, 06:48 PM
Mike this is something that now can be addressed.The MDS will give you the answers and the meds you need.We always stress seeing a movement Disorder Specialist.You will be on your way.
Will be looking for you with much improvements.Keep in touch.
Googy
Will be looking for you with much improvements.Keep in touch.
Googy
Pelicangirl
08-08-2001, 09:13 PM
Hi Mike,
Isn't that a kick, at first you don't want PD, then you wish it was only PD LOL. But see a movement disorder specialist. They know what they are doing and he/she may just say it's Parkinson's. They are more familiar with all the little nuances of the disease. And if it's something worse, he'll/she'll know how to treat you. There are so many good and new things coming up in the PD world, I don't think I'd say it was "untreatable" or give up just yet.
Please keep us informed.
Pelicangirl (aka Ruth)
Isn't that a kick, at first you don't want PD, then you wish it was only PD LOL. But see a movement disorder specialist. They know what they are doing and he/she may just say it's Parkinson's. They are more familiar with all the little nuances of the disease. And if it's something worse, he'll/she'll know how to treat you. There are so many good and new things coming up in the PD world, I don't think I'd say it was "untreatable" or give up just yet.
Please keep us informed.
Pelicangirl (aka Ruth)
Caring
08-09-2001, 08:26 PM
Mike, some doctors just have no tact. How dare he say something like that to a patient. Hey Mike, you can do it!!! It's your body and your life, and darn it, don't let any doctor tell you not to live your life to the fullest.
A long time ago, when my grandmother was about 35 years old, she was told by a doctor that she had a condition where she could just drop dead at any time. Well, several years later, she attended the funeral of the doctor who told her that.
I'm not trying to be morbid. Just making a point. She lived to be 83. Remember, no matter what anyone says to you, even if you are having hard times, LIVE your life. Have faith. I will pray for you too.
Sincerely,
Caring
A long time ago, when my grandmother was about 35 years old, she was told by a doctor that she had a condition where she could just drop dead at any time. Well, several years later, she attended the funeral of the doctor who told her that.
I'm not trying to be morbid. Just making a point. She lived to be 83. Remember, no matter what anyone says to you, even if you are having hard times, LIVE your life. Have faith. I will pray for you too.
Sincerely,
Caring
Bruce
08-22-2001, 10:58 AM
Caring, I can appreciate what you said and here is an example. When doctors give a patient an opinion, the always appear to be sure their statement is correct and probably would get upset if a patient is a little skeptical about the doctor's opinion.
I had a serious car accidenr about 4 years ago and my right foot was much larger then the left (swollen). They also saw a lot of bone chips on the x-ray and I was told by two orthopedic surgeons (one worked at a trauma center)that if I didn't have surgery on the foot, I would be in constant pain the rest of my life. I was even fitted with a special shoe. The shoe is in the closet and I am still waitting for that pain to show up. Doctors can be wrong, but many of them can't admit it.
Bruce
I had a serious car accidenr about 4 years ago and my right foot was much larger then the left (swollen). They also saw a lot of bone chips on the x-ray and I was told by two orthopedic surgeons (one worked at a trauma center)that if I didn't have surgery on the foot, I would be in constant pain the rest of my life. I was even fitted with a special shoe. The shoe is in the closet and I am still waitting for that pain to show up. Doctors can be wrong, but many of them can't admit it.
Bruce