ziggy
10-29-2001, 01:20 AM
I always here of PD patients dying from complications associated with PD. Anyone know what these "complications" are...heart, liver, vibrating to death or what?
Sponsor
Pelicangirl
10-29-2001, 03:56 AM
Hi Ziggy,
I don't think one of the complications is vibrating to death LOL. But some of those that are associated is pneumonia and not being able to cough up the phlegm and dying from that. One other one is getting so weak that you just can't go on. Some people literally choke to death if they can't get liquids down or food down. Others starve because of rigidity.
I don't know if I've covered them all or even explained them right, but that's a few of the answers to your question. Maybe our doctor friend can help us out here.
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Pelicangirl (aka Ruth)
I don't think one of the complications is vibrating to death LOL. But some of those that are associated is pneumonia and not being able to cough up the phlegm and dying from that. One other one is getting so weak that you just can't go on. Some people literally choke to death if they can't get liquids down or food down. Others starve because of rigidity.
I don't know if I've covered them all or even explained them right, but that's a few of the answers to your question. Maybe our doctor friend can help us out here.
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Pelicangirl (aka Ruth)
SANDY SUE
10-29-2001, 11:39 AM
Ruth,
http://www.healthboards.com/ubb/t_up.gif You did a good job on a difficult subject. I get so angry :mad: when I read that someone "died of Parkinson's Disease". Maybe they died from an affect of PD but not from the disease itself. Another possibily you could add to your list is constipation.
Here's to good days for all of us! http://www.healthboards.com/ubb/bang.gif
Sandy
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[This message has been edited by SANDY SUE (edited 10-29-2001).]
[This message has been edited by SANDY SUE (edited 10-29-2001).]
http://www.healthboards.com/ubb/t_up.gif You did a good job on a difficult subject. I get so angry :mad: when I read that someone "died of Parkinson's Disease". Maybe they died from an affect of PD but not from the disease itself. Another possibily you could add to your list is constipation.
Here's to good days for all of us! http://www.healthboards.com/ubb/bang.gif
Sandy
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[This message has been edited by SANDY SUE (edited 10-29-2001).]
[This message has been edited by SANDY SUE (edited 10-29-2001).]
Googy
10-29-2001, 06:36 PM
Sydney Dorros the PD author,Died from complications of bowel back up.Two of my old friends from our PD group we use to be in had a fall.Went in the hospital and developed Pneumonia.Both Sandy and Ruth are right.You dont die from PD.Basically Bill who will be 80 next year is in better health than I.But of course he has PD.I think he will out live me.Now if I could spell!
Love,
Googy!!
Love,
Googy!!
md1817
10-30-2001, 12:28 AM
Elderly people with advanced (severe) Parkinson's disease are debilitated, not just from Parkinson's but also from all the other things that go along with being of a certain age, such as heart disease, strokes, cancers, etc. People who are older and are chronically ill are less able to rally against infections. In this situation, recurrent infections, such as aspiration pneumonia (saliva, food or drink going into the lung instead of the stomach) can ultimately be fatal. Hip fracture in people 80 and above carries a significant risk of death, not from the fracture, but because of the possibilities for infection during the hospitalization and recovery.
I think it is important to remember that people with Parkinson's disease who are treated (as nearly everyone is these days) have life expectancies that are about the same as people the same age who do not have Parkinson's disease.
I am not aware of demise by vibration.
I think it is important to remember that people with Parkinson's disease who are treated (as nearly everyone is these days) have life expectancies that are about the same as people the same age who do not have Parkinson's disease.
I am not aware of demise by vibration.
Pelicangirl
10-30-2001, 12:29 AM
Hi Sandy,
I used to get angry too when people said that someone "died from Parkinson's Disease." Then my support group leader told me that the reason is that they want everyone to know how many PD patients there are out there and that's one way of doing it. I still think it would be better to say they "died of complications of Parkinson's."
Three messages all the same. I kept pushing the wrong button. That's why I edited the others.
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Pelicangirl (aka Ruth)
[This message has been edited by Pelicangirl (edited 10-29-2001).]
I used to get angry too when people said that someone "died from Parkinson's Disease." Then my support group leader told me that the reason is that they want everyone to know how many PD patients there are out there and that's one way of doing it. I still think it would be better to say they "died of complications of Parkinson's."
Three messages all the same. I kept pushing the wrong button. That's why I edited the others.
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Pelicangirl (aka Ruth)
[This message has been edited by Pelicangirl (edited 10-29-2001).]
Googy
10-30-2001, 05:31 PM
Well said Doctor.I know that but have a hard time typing all that info.Thanks so much.You have added so much to this BB.
Googy
Googy
Bruce
11-01-2001, 10:08 PM
Based on my own symptoms, such as vomitting right after eating, aspiration pneumonia could be a cause of death. You aspirate all the bacteria usually found in the mouth into the lungs. It is important to keep that in mind when chewing and swallowing food. I vomitted everything I ate or drank for 24 hr. recently. No big deal and I felt fine. Bruce
SANDY SUE
11-02-2001, 08:02 AM
I think this post adds a star under my name. Reminds me of my kids getting stars each time they went on the potty. LOL!
Bruce, you sure have been thru the mill. When do you go to KU? I sure hope they can fix you up. If they can't, keep trying. Cincinnati has a wonderful neurosurgeon with a VERY high success rate and he's almost in your back yard. Cleveland Clinic also has a wonderful reputation. I mention these 2 only because they both have excellent reputations for DBS/STN. Let us know the outcome please.
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Bruce, you sure have been thru the mill. When do you go to KU? I sure hope they can fix you up. If they can't, keep trying. Cincinnati has a wonderful neurosurgeon with a VERY high success rate and he's almost in your back yard. Cleveland Clinic also has a wonderful reputation. I mention these 2 only because they both have excellent reputations for DBS/STN. Let us know the outcome please.
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Lory
11-04-2001, 10:04 AM
Originally posted by ziggy:
I always here of PD patients dying from complications associated with PD. Anyone know what these "complications" are...heart, liver, vibrating to death or what?
Good answers, all. The obits here in Eugene, OR are getting better, encouraging families to state "from complications of" for a variety of diseases, conditions. Modern day can be better than the past, let's hope the trend continues. Lory
I always here of PD patients dying from complications associated with PD. Anyone know what these "complications" are...heart, liver, vibrating to death or what?
Good answers, all. The obits here in Eugene, OR are getting better, encouraging families to state "from complications of" for a variety of diseases, conditions. Modern day can be better than the past, let's hope the trend continues. Lory
Bruce
11-07-2001, 03:34 AM
Sandy, I havn't ignored you, but lately I get tired easily and just don't visitas often.
I visit KU med center Nov 19 and will be there 3-4 days for an evaluation.
It is interesting you mentioned the Cleveland Clinic, because someone directed me to the Clinic's website. They describe their DBS/STN surgical procedure including information about the adjustments.
I kind of stirred up a debate about whether the surgeon/hospital uses an expensive piece of equipment to locate the target and it is called the microelectrode recording system. When they hit the abnormal neurons, their is an audible noise or signal that tells the surgeon he has located the target. My surgeon did not use the equipment and told me it was "contraversial." The Cleveland Clinic and KU med center, who have excellant reputations and have performed a lot of the DBS surgeries, do use the microelectrode system. Since one of the possibilitys why I have had no benefit from the surgery is the surgeon missed the target, maybe I should ask the question, which procedure/surgeon and hospital would you choose?
Without the system, the surgeon told me their would be no probing. At the time, that sounded impressive. Using the microelectrode system, I have learned that their is some probing.
If KU med. center discovers the implants have been mislocated, I would have to think the hospital not using the system, is not up to date in not having this equipment.
By the way, my local neurologist was trained to perform the adjustments at the Cleveland Clinic.
Bruce
I visit KU med center Nov 19 and will be there 3-4 days for an evaluation.
It is interesting you mentioned the Cleveland Clinic, because someone directed me to the Clinic's website. They describe their DBS/STN surgical procedure including information about the adjustments.
I kind of stirred up a debate about whether the surgeon/hospital uses an expensive piece of equipment to locate the target and it is called the microelectrode recording system. When they hit the abnormal neurons, their is an audible noise or signal that tells the surgeon he has located the target. My surgeon did not use the equipment and told me it was "contraversial." The Cleveland Clinic and KU med center, who have excellant reputations and have performed a lot of the DBS surgeries, do use the microelectrode system. Since one of the possibilitys why I have had no benefit from the surgery is the surgeon missed the target, maybe I should ask the question, which procedure/surgeon and hospital would you choose?
Without the system, the surgeon told me their would be no probing. At the time, that sounded impressive. Using the microelectrode system, I have learned that their is some probing.
If KU med. center discovers the implants have been mislocated, I would have to think the hospital not using the system, is not up to date in not having this equipment.
By the way, my local neurologist was trained to perform the adjustments at the Cleveland Clinic.
Bruce
SANDY SUE
11-09-2001, 07:30 AM
Hi Bruce,
You know you'll be in all of our thoughts and prayers on Nov. 19. I feel good about you going to KU. Their reputation is one of the tops. You're right about the microelectrode recording system. When he reaches the right spot on your brain it sounds like a bug hitting a bug zapper. In fact, I asked the surgeon if there was a bug zapper in the operating room. He laughed so hard, he had to stop the surgery for a minute. Each time I have seen him since, he lets me know that he remembers me saying that!
First make sure your wires are placed right, get your meds adjusted and then work on the programming. It's possible to help your walking with a different program. There's many on that little computer. One will be just right for you.
Be well.
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Sandy
You know you'll be in all of our thoughts and prayers on Nov. 19. I feel good about you going to KU. Their reputation is one of the tops. You're right about the microelectrode recording system. When he reaches the right spot on your brain it sounds like a bug hitting a bug zapper. In fact, I asked the surgeon if there was a bug zapper in the operating room. He laughed so hard, he had to stop the surgery for a minute. Each time I have seen him since, he lets me know that he remembers me saying that!
First make sure your wires are placed right, get your meds adjusted and then work on the programming. It's possible to help your walking with a different program. There's many on that little computer. One will be just right for you.
Be well.
------------------
Sandy
Bruce
11-09-2001, 09:44 AM
Sandy, it's looking like my trip to KU med center is about my last hope. The local neurologist really cranked up the voltage, and all I got was an increase in the double vision. He apparenly was sure it would work, becuse he reduced the prescription of Requip from 0.5 mg to 0.25 mg without discussing it with me. The problem is when I take two pills of the 0.5 mg pills, it isn't enough Requip. I had the same reaction at the same time, two days in a row. I told him about how I felt the first day I took the drug, but he apparently wasn't listening to me. That's another story.
Bruce
Bruce
Shaky John
11-14-2001, 05:33 PM
I have always been told that I will die with Parkinson disease not from it.
Hang in there Ziggy, we are going to beat this thing yet.
Hang in there Ziggy, we are going to beat this thing yet.