imconcerned
11-16-2001, 06:30 PM
Thanks to those of you who have responsed to my message "Any Helpful Information Would Be Greatly Appreciated".
It sounds like my next step would be to see a MDS. Whatever it is that I have, it is subtle (when I'm not on Wellbutrin or Ritalin). Since it seems to be an odd set of nuerological symptoms, it does not appear to point to anything in particular (as near as I can tell). However, perhaps the MDS will be able to shed more light on it.
Does anyone know of how I might get in contact with a MDS? I would like to send an initial email and get their thoughts on what would make the most sense for me to do.
I will also be trying to find a knowledgeable psyciatrist as well since most (or part) or my symptoms are drug induced.
Does anyone have an email address or know of a web-site where I could post a question that would be answered by an MDS?
Thanks in advance for any responses. ;-)
It sounds like my next step would be to see a MDS. Whatever it is that I have, it is subtle (when I'm not on Wellbutrin or Ritalin). Since it seems to be an odd set of nuerological symptoms, it does not appear to point to anything in particular (as near as I can tell). However, perhaps the MDS will be able to shed more light on it.
Does anyone know of how I might get in contact with a MDS? I would like to send an initial email and get their thoughts on what would make the most sense for me to do.
I will also be trying to find a knowledgeable psyciatrist as well since most (or part) or my symptoms are drug induced.
Does anyone have an email address or know of a web-site where I could post a question that would be answered by an MDS?
Thanks in advance for any responses. ;-)
Sponsor
Bruce
11-16-2001, 10:36 PM
I don't know if he is an MDS physician, but he is the director of the NPF, is an expert on parkinsons and has connections all over the country. If he can't answer your questions, he will direct you to some one who can. Go to www.parkinson.org (http://www.parkinson.org) and sign up for "ask the doctor" and Dr. Leiberman will answer via e-mail.
Bruce
Bruce
Pelicangirl
11-17-2001, 09:10 AM
Another place to get answers to questions is www.pdf.org. (http://www.pdf.org.) That is the Parkinson's Disease Foundation, soon to merge with the NPF. They have a section called "Ask the Expert" and it's much the same to the program Bruce mentioned, you can ask questins and get answers. I don't know how fast they answer, but they cover all form of Parkinson's Disease.
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Pelicangirl (aka Ruth)
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Pelicangirl (aka Ruth)
Googy
11-17-2001, 05:15 PM
Ruth,
I went to the PDF site.I have sent an email to them regarding Bill.It is good site.i'm pleased they will now join together with the NPF.
We are looking into the veterans Dr
s for Bill for the long term.It would be better for the children to know they have place for him.If I go before him, such as a nursing home.
I learn so much from you and Bruce and others,as we all do.
Googy
I went to the PDF site.I have sent an email to them regarding Bill.It is good site.i'm pleased they will now join together with the NPF.
We are looking into the veterans Dr
s for Bill for the long term.It would be better for the children to know they have place for him.If I go before him, such as a nursing home.
I learn so much from you and Bruce and others,as we all do.
Googy
Bruce
11-17-2001, 08:48 PM
Googy, Your children should be thankful that you have planned everything for Bill in the future. I also noticed you plan on taking care of him in the future. I don't know if you realize this, but I am sure you are an inspiration to many people, including me. Any time I get discouraged and am tempted to give up, I think of you and your situation, and I am encouraged to keep fighting this "beast", pd.
Bruce
Bruce
Googy
11-17-2001, 11:07 PM
Bruce I've know you some time on this and the other board.Never give up is from your own words,sometime ago.You know how this dementia has bothered me with Bill early in the evening. I have found I have no control on this,and let him just be.I've found a simple way to deal with him at this time.I just go into my bedroom and put the radio on and rest.
I'm glad that you have found taking more Sinemet helps the weakness.I wanted to tell you that but knew you were concened about the dyskinesia.It is hard to find the right amount for each person, without adding to the Dyskinesia.
Blessings,
Googy
[This message has been edited by Googy (edited 11-17-2001).]
I'm glad that you have found taking more Sinemet helps the weakness.I wanted to tell you that but knew you were concened about the dyskinesia.It is hard to find the right amount for each person, without adding to the Dyskinesia.
Blessings,
Googy
[This message has been edited by Googy (edited 11-17-2001).]