Southernlady007
08-31-2003, 10:27 AM
I'm looking for information from those who have Parkinson's
Disease, are taking Parkinson's medications and also have
taken chemotherapy for cancer.
I'm looking for tips, recommendations, cautions and "lessons
learned" that you would be willing to share with me.
Thankyou,
Southernlady007
wbanksX@erols.com [please remove the "X" from the middle of my address]
Disease, are taking Parkinson's medications and also have
taken chemotherapy for cancer.
I'm looking for tips, recommendations, cautions and "lessons
learned" that you would be willing to share with me.
Thankyou,
Southernlady007
wbanksX@erols.com [please remove the "X" from the middle of my address]
Sponsor
Bruce
08-31-2003, 11:31 AM
Dr. Lieberman, the director of the NPF (National Parkinsons Foundation), says their is no information available about drug interactions between chemotherapy drugs and pd drugs. The reason is their are not enough patients who have cancer and pd to do a study.
He also said that the chemotherapy takes presedence over the pd, because cancer is life threatening and pd is not.
Bruce
He also said that the chemotherapy takes presedence over the pd, because cancer is life threatening and pd is not.
Bruce
Southernlady007
08-31-2003, 12:29 PM
Thank you Bruce but I'm aware there are no studies that's why I posted on this list.
I'm looking for information from * those who have * Parkinson's
Disease, are taking Parkinson's medications and also have
taken chemotherapy for cancer.
Those who have "been there and done that" are the ones I'm trying to reach.
Southernlady007
I'm looking for information from * those who have * Parkinson's
Disease, are taking Parkinson's medications and also have
taken chemotherapy for cancer.
Those who have "been there and done that" are the ones I'm trying to reach.
Southernlady007
Bruce
08-31-2003, 02:35 PM
You can go to the NPF website, aign up for "ask the doctor" and use "chemotherapy" for a search word. Their will be many messages like yours. I am not certain if you can contact them, but it would be worth trying it. You could post your question.
Bruce
Bruce
susan6708
09-01-2003, 01:21 AM
I've been trying to research the same thing since July when my mom was dx. with inflammatory breast cancer (very agressive form of breast cancer). She's 75 and has had Parkinsons for at least 5 years.
Here is what I know so far:
1) Compazine, commonly given for chemo-induced nausea, should not be used with Parkinson's patients since it increases rigidity. There are other newer (more expensive!) drugs can can be used, Kytril for example
2) The chemo drug taxol can cause lots of neurological symptions even in people without neurological diseases - avoid it! My mom is on the A-C regimen, a common chemo regimen, and is not having problems with the chemo per se.
3) the biggest problem is not the chemo drug interacting with the parkinson's drugs - it is the chemo causing extreme weakness, which aggravates the Parkinson's. Mom had to increase her Parkinson's med dosage to try to compensate a little.
That's all I know for know.
Here is what I know so far:
1) Compazine, commonly given for chemo-induced nausea, should not be used with Parkinson's patients since it increases rigidity. There are other newer (more expensive!) drugs can can be used, Kytril for example
2) The chemo drug taxol can cause lots of neurological symptions even in people without neurological diseases - avoid it! My mom is on the A-C regimen, a common chemo regimen, and is not having problems with the chemo per se.
3) the biggest problem is not the chemo drug interacting with the parkinson's drugs - it is the chemo causing extreme weakness, which aggravates the Parkinson's. Mom had to increase her Parkinson's med dosage to try to compensate a little.
That's all I know for know.
susan6708
09-01-2003, 01:23 AM
Oops I meant to say "that's all I know for NOW".
Southernlady007
09-01-2003, 01:00 PM
Hi Susan,
First, I'm sorry about your Mom fighting such a difficult battle.
Yes Susan... --> NO Compazine.... Zofran is very effective for
chemo-induced nausea and safe for Parkinson's people.
* taxol - avoid it! THANKS...will do !
*3)" the biggest problem is not the chemo drug interacting with the parkinson's drugs - it is the chemo
causing extreme weakness, which aggravates the Parkinson's. Mom had to increase her Parkinson's
med dosage to try to compensate a little."
I have heard this from others...some had to stop chemo completely because their Parkinson's got completely out of control and they were suffering more from the PD than the cancer.
Susan you might find this web page of help. It's written by Murray Charters who also has PD and cancer. He's documenting his journey for others to learn from. http://www.geocities.com/murraycharters/040.html
Keep the info comin',
SouthernLady
PS. Thanks again Bruce but I've been to the web sites and Dr Lieberman's "ask the doctor".
First, I'm sorry about your Mom fighting such a difficult battle.
Yes Susan... --> NO Compazine.... Zofran is very effective for
chemo-induced nausea and safe for Parkinson's people.
* taxol - avoid it! THANKS...will do !
*3)" the biggest problem is not the chemo drug interacting with the parkinson's drugs - it is the chemo
causing extreme weakness, which aggravates the Parkinson's. Mom had to increase her Parkinson's
med dosage to try to compensate a little."
I have heard this from others...some had to stop chemo completely because their Parkinson's got completely out of control and they were suffering more from the PD than the cancer.
Susan you might find this web page of help. It's written by Murray Charters who also has PD and cancer. He's documenting his journey for others to learn from. http://www.geocities.com/murraycharters/040.html
Keep the info comin',
SouthernLady
PS. Thanks again Bruce but I've been to the web sites and Dr Lieberman's "ask the doctor".