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StarCat
09-11-2002, 11:49 AM
Hello all,

I'm just looking for some insight from anyone who has dealt with a paranoid schizophrenic loved one....

How do you respond to the paranoia? My b/f became paranoid last night (we think he's Bipolar w/ Schizo-Affective disorder - he's been extremely paranoid). I've learned that there is no telling what can set it off, and I try not to take it personally. I mentioned something about how we should learn to play card games, and he freaked out and started giving me that look like "Oh no, you're part of the conspiracy." I don't know whether to say "it's ok, you can trust me" or to just leave him alone....

Last week he was very lucid and insightful to realizing how he was paranoid and psychotic for his first month in the hospital, and even before... But of course there's nothing we can do when he's in the midst of paranoia.

Any thoughts would be extremely helpful.
Thank you,
StarCat

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Kokopelli
09-11-2002, 03:12 PM
Hi StarCat,

This has got to be a very difficult time for you. It's never easy hon. The best I can advise you is allways keep up chin and try to be patient. Remember, what your loved one is going through and that he does not mean to be this way. Since schitzophrenia is so hard to understand even today. You must deal with everyday differently. Some days are going to be great and the some days will be awfull. Just be patient and when you need support or need to talk please don't be afraid to ask anything. I have opened up here because I could learn so much from someone else who might be going through the same thing. hugs

Koko

StarCat
09-11-2002, 06:45 PM
Oh Koko, I'm so glad you're here!

I'm crying so hard I called my mom and she's going to pick me up at work and bring me back to my parents' house for a few hours. He flipped out at the hospital again because he was manic - calling his parents at 4 AM and me at 6 AM. And then he got violent and they had to restrain him and sedate him. And he's back to being completely paranoid...he's made comments about how he doesn't know what meds their giving him...the staff is all out to kill him and their keeping him doped up to prevent him from escaping. This is where we were in the beginning. I think he's schizophrenic, not bipolar. He was so insightful and realized so much about the psychosis and paranoia....that he'd been paranoid for years, thinking the FBI & cops were out to get him...his computer had been hacked into, etc. But he said he never wanted to be like that again and he would do anything in his power to prevent it...taking antipsychotics for the rest of his life - anything. But now it's too late (for the time being) and he's swung back to being psychotic again.

How do you do this? I've been so strong, and I'll continue to be strong, but I need to know:

IS THERE A CHANCE of succeeding over this illness IF the victim at least RECOGNIZES that he has the disease?

My b/f doesn't committ crimes, or do drugs, but he'll drink a pinch socially, and I figure he'd drive drunk if he was manic, etc.

Oh god, I have to go, but I'll be back here on this board tomorrow that's for sure.

My boyfriend told me (and it made my heart swell) that I was his hero because I survived my Bipolar, and it made him think he could too. KOKO YOU ARE MY HERO, because you've been going through what I'm going through for years. Any advice would be appreciated.

StarCat

Kokopelli
09-12-2002, 01:31 AM
Hi Starcat,

First this is probably going to be long LOL.. but hopefully it will help a tiny bit. First of all I don't deal allways to well ask anyone that knows me on this bb. I certainly have my ups and downs. But you know what hon we are human.

Let me start by saying I came to Williams 2 1/2 years ago with absolutly no idea of what was ahead. Police coming to the house safeway calling saying David had stollen from them the list goes on. Finally he ended up in jail after pulling a knife on Danny (my brother) and myself. Now mind you I had not lived with my family for over 15 years I didn't know a thing. But I did know that David really had gotten worse. to this day know one understands how this truely happens to such a kind and loving person, which david really is. My brother was an artist at one time with certificates to go to special schools for the arts and one day it was like his life just changed. This is probably what you are seeing with your b/f and it's frustrating to you. I can imagine you have had the feelings of guilt, then wanting to leave then just wanting to help however you can. Star we all go through these emotions. I think that when things get tough the best thing to do is to take a step back and if he is out of control and angry then you need to be strong and allow the nurses and docs to help him. Go home and write and get it off your mind. I journal alot because I can look back at those rough days. This is not being mean hon because you need to take care of yourself as well as your boyfriend. You need to balance this out if you are so depressed how can you help someone else? let alone Star. You need to stay healthy minded for you.
So those days of roughness are easier on you, no I am not saying it gets easier it's a hard thing to watch period.

Star allways remember the mind is like the universe we don't truelly understand it because it's constantly creating new worlds so to say. I have learned that no matter what never give up and keep reading. The more you read about this awfull illness the more you can release and also the more you can see this is not his fault. I beleive strongly that we were all put here for a reason, and that we have certain challenges we are supposed to meet in our life time. This is only but one challenge for you understand your challenge.

Also go for your own goals as well.. I don't allways practice what I preach I tend to fall back and give into the dark. But right now I feel like I am flying high. And I felt so good when you said KOKO YOUR MY HERO.. you have no idea what that did. I thank you for that wonderfull comment Star you are my hero, because I see not only someone coping with an awfull illness put on a loved one.. but because you are just you and that is so special, I can see a bright future for you.. meeting goals, you standing by your boyfriend god bless you for being there for him. Some people will turn their cheek on someone like him. Stay tough sweetheart and keep writing me I am here everyday :)

Hugs
Koko

StarCat
09-12-2002, 12:13 PM
Thanks so much Koko (((((((((((KOKO))))))))))

I posted on the depression board about yesterday's events. He is just manic at the moment...he seems to become paranoid in the mid to late afternoon, continuing to evening, and then bouncing back to mania. I hope the hospital is giving him more antipsychotics. The problem (one of many) is that the hospital doesn't know the extent of the paranoia/psychosis. And my b/f's parents refuse to get involved and tell the doctor any info. It's like they're still in denial. It is killing me to watch them NOT DEAL with this, when I feel like there are so many URGENT steps that need to be taken to fill the hospital in.

I am dreading that because of the parents' inaction, the hospital will release my b/f. I am also dreading my b/f's reaction to the proposal that he is transferred to a long term facility (which is what will hopefully happen when the regular doc comes back from vacation and evaluates him). It would be safe to say that I am filled with dread. But I am going to continue to stand by my boyfriend, even though he may really not be sane for some time yet.

PLEASE TELL ME that there is hope if he recognizes that he has this condition, that he will be able to maintain his sanity once he comes back to himself again.

Thanks for all your support Koko. I feel like such a failure right now. I've been reading as much as I can. I read that people w/ schizophrenia often deteriorate over a period of 6 months to 2 years before having a complete psychotic episode....which would perfectly explain my b/f's growing paranoia. I know it's not his fault at all, but I still feel so horrible....

StarCat

Kokopelli
09-13-2002, 04:30 AM
Hi StarCat,

Had a hard time getting some time to post today on the boards LOL. I feel bad you are having to go this alone it must be hard. I hear alot of times that parents deny anything wrong with their kids. It's sad and I feel for your b/f as it must REALLY hurt not having his parents there. But he is also so very lucky to have someone to stand by his side. Sometimes it may seem like he doesn't appreciate it but trust me hon he does. Did they actually diagnose him as manic?
let me know :)

hugs
koko

StarCat
09-13-2002, 10:33 AM
Hi Koko,

Yes, they've diagnosed him as Manic-Depressive (Bipolar type 1). He came into the hospital in a major paranoid psychotic state & severely depressed, and the parents refused to tell the staff for 2 weeks that there had been a previously documented Manic Episode!!! So the doc was going to just diagnose Clinical Depression!!!! Well, last night he was really doped up, and looking like he was going to flip between manic and paranoid. He was hallucinating and about ready to pass out from exhaustion. By the end of the visiting hour I felt I had to tell the staff that I thought they'd better keep an eye on him, as he was about to go ballistic if they took his guitar away from him again. (He's incredibly creative, an extraordinary musician).

He asked me if there was a CONSPIRACY, and I said no, and tried to reassure him that no one in the hospital or among his family was "out to get him." He also asked me to take him home that night, and I told him I couldn't because the hospital wouldn't let me. And then he asked me how he could get out of there sooner. I didn't want to tell him to be calm, since I didn't want him to "act" normal and get released too soon...so I told him to just be himself and do what came naturally. For him, lately that's meant running through the halls screaming at 3 AM.

His parents ARE visiting him, at least one of them each day. They are in complete denial though. AND none of the hospital staff knows the extent of my boyfriend's paranoia, because the parents refuse to tell them. His mom told me the paranoia was just his "coping mechanism" and I wanted to slap her so badly! I can't stand how poorly they are handling this situation. They are thinking only of themselves. And they're not just screwing my boyfriend's future up, it's mine too.

I'm so angry! I wish he just had Bipolar, but it's so obvious that he doesn't. I'm very very scared of having him ever come back and live with me, because what if he gets paranoid again, or becomes manic and acts like a jerk - then there's no reasoning with him. I want to marry this man, I'm that committed to him, but I'm very scared.

Hugs,
StarCat

Kokopelli
09-13-2002, 07:46 PM
Hi Star,

Can I say one thing hon .. you have to do whats in your heart hon. If you feel that marrying him would be scarey then you need to take a step back and figure out if this is what you want for sure or not. As it's going to be rough. I can only be honest with you. No one is going to make you feel guilty for what is truely needed. Course you love him but he may not be able to handle this for a while remember the old saying committment should be forever? well sometimes you need to realize whats down the road and think about this long and hard. He needs to be ok first.. with marriage as you know is the great possibility of children. Only you as his partner right now really knows if he should a partner. I am not saying tell him yes or no I am just saying you need to think about it for both of you :).

Hopefully this made sense hon :) my thinking is sorta well on the blink as I have not been feeling too great LOL ....

Take care and talk to you soon hon
Hugs
Koko

Fuzzy Bear
09-14-2002, 12:47 AM
Hey!

I'm glad you two found each other, Koko and Star. (As you know, a lot of us are a bit clueless about this, although we try...)

((((((((HUGS))))))))



[This message has been edited by Fuzzy Bear (edited 09-14-2002).]

StarCat
09-16-2002, 05:45 PM
Hi Fuzzy,

Thanks for stopping by to distribute your Fuzzy Hugs!

Koko,

Well, as far as children go, I refuse to have any because I don't want to pass my illness on - and with my b/f I CERTAINLY wouldn't want to pass his illness on. So rest assured that there will be no StarCat Juniors (except for the kitties). As far as my committment to my b/f, I need to see him being committed to his health for a good long while, through some more ups and downs, before I can make a life decision like that. I love him very much, and I hope he will prove to me that he WANTS to take care of his health, that he CAN take care of his health ON HIS OWN (without pushing from me I mean), and be a loving partner. Then in a while we can rethink the whole proposal thing, but I've gotta see results from him in the meantime.

But that said, I do want to be with him forever, but only if he will be safe for himself & me with his health.

And I'm sorry you're not feeling too hot either!

Take care, and thanks as always for the words of wisdom!
StarCat

Kokopelli
09-17-2002, 11:37 AM
Thanks chrys and Fuzzy,

Fuzzy, it's not that your clueless on this subject :) it's that you have not had to experience this. And honestly people have to experience it first before they know the emotional hardship and the constant rollercoaster. David is exceptionally bad with schitzophrenia and some people are diagnosed with a miled case. Right now Starcats b/f is on a constant teater totter because it's new to both of them and the doctors have not had a chance to study just how bad he is. Hopefully her b/f doesn't have this at all and more signs are showing that he is manic. But with her talking about stuff thats happening I still see the signs of schitzophrenia like I see with my brother.


hugs
koko

StarCat
09-17-2002, 12:08 PM
Well, I need to thank everyone again for being so honest with me. I wouldn't have it any other way, no matter how harsh the truth is. As Simby says, "the truth is out there" and better I learn it now than later (because Fox Mulder isn't around anymore to protect me).

Chrys, you have not offended me at all....and I may well need a shoulder to cry on again before this is settled. I hope I am exhibiting the rational strength to prove that if I need to dump my b/f I will. That sounds so harsh, but I hope everyone here knows what I mean. I WILL NOT put up with him not taking care of himself. As for my condition, I am BiPolar, but although I am very difficult to treat medically (I'm very med-sensitive, and my body doesn't respond well to much of anything), my condition really mimics "normal" clinical depression. I never (and I really mean never) get manic or out of control. I only get slightly above-average "happy" if I take the wrong meds. I just occaisionally get miserable. However, for the time-being, I've found my miracle pill, and I've been stable for some time now.

The hospital, for some unknown reason, is releasing my b/f (tentatively) this week. I told his mom point blank that I think it's too soon, and given that, I'm not comfortable having him come home to me until I've seen signs of stability for more than a short time. I have a meeting with my b/f & the social worker this afternoon at 3:00 EDT (prayers please?) at which time I will voice any and all concerns I have....because I have to be honest with everyone about how I feel and how serious I think my b/f's condition is.

By the way, my b/f was sane enough last night for us to take the Proposal back (YEA!!!!). But I will be on my guard for a very long time. And I will constantly be on the look-out for evidence of him spinning out of control. I also confirmed with his parents last night that if he needed to be hospitalized again, they would do WHATEVER (meaning call the police if necessary) to take care of the situation. I know I would - I am not a doctor, and my apartment is a poor substitute for a hospital, if that's what's needed.

Do I sound strong and on top of things? Or do I sound wishy-washy, like I haven't given things enough thought, or I'm taking something too lightly? I really want an honest answer to that question. Please be harsh.

Thanks again,
StarCat

Kokopelli
09-18-2002, 05:58 PM
StarCat,

You sound like you are trying to figure it out as well.. when stuff like this happens to someone we care about and it comes on so sudden no one is expected to know the first thing about it.. right? your the one thats having to learn the changes and it's not that easy.. after all we are only human. It's why we ask the questions. :)

Hugs
Koko





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