White Lighter
01-22-2001, 06:54 AM
If anyone out there has "Cronkhite Canada Syndrome" I will be interesting in talking to them. I have been told by my doctor that this is what I have and that he doesn't really know that much about it all himself.
I have search the net, but unable to find all that much information. No one seems to know all that much.
I've been told that approx 300 people in the world have this syndrowe (that's how rare it is) so I'd been interesting in hearing from anyone who may know something about it or from someone else who may have it......
Thanks
I have search the net, but unable to find all that much information. No one seems to know all that much.
I've been told that approx 300 people in the world have this syndrowe (that's how rare it is) so I'd been interesting in hearing from anyone who may know something about it or from someone else who may have it......
Thanks
Sponsor
BWG
01-28-2001, 07:58 AM
Come on everyone. Someone must have some sort of reply? I need something.
lewisms
09-11-2004, 08:01 PM
I know a little about Cronkhite Canada from reading the research literature. I might, or might not be able to answer some questions -- if you are still looking for information.
lewisms
09-14-2004, 05:10 PM
TM, You might be interested in looking at Aging Research Reviews 2(2003)95-105
butterflytrans
09-16-2004, 03:14 AM
If anyone out there has "Cronkhite Canada Syndrome" I will be interesting in talking to them. I have been told by my doctor that this is what I have and that he doesn't really know that much about it all himself.
I have search the net, but unable to find all that much information. No one seems to know all that much.
I've been told that approx 300 people in the world have this syndrowe (that's how rare it is) so I'd been interesting in hearing from anyone who may know something about it or from someone else who may have it......
Thanks
All I know about the syndrome is that it is rare as hen's teeth and is characterized by:
intestinal polyps
hair loss
brown spots on the skin
diarrhea
excessive protein loss through the GI tract
Does this describe you?
I have search the net, but unable to find all that much information. No one seems to know all that much.
I've been told that approx 300 people in the world have this syndrowe (that's how rare it is) so I'd been interesting in hearing from anyone who may know something about it or from someone else who may have it......
Thanks
All I know about the syndrome is that it is rare as hen's teeth and is characterized by:
intestinal polyps
hair loss
brown spots on the skin
diarrhea
excessive protein loss through the GI tract
Does this describe you?
lewisms
09-16-2004, 10:26 AM
Almost always there are nail-growth problems as well. The loss of nails begins at the fingertips, but often proceed to complete loss. A common first symptom is loss of taste which is sometimes, but not always, reported in conjunction with dry mouth. Other symptoms occur with less frequency.