its a mutation of the p10 gene. it is autoousal dominant, which means your children have a 50% of having it. the biggest risk from it is an increased risk of breast cancer. you should have frequent mamograms. there is also a slightly higher risk of thyroid cancer. it's very rare,hard to diagnose as it can cause a wide variety of symptons.although most doctors feel there are many undiagnosed cases of this walking around