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tolern
03-05-2001, 06:51 PM
I am new to these boards and also to CAH. I am a 42yr.o married mom, with two children, who was recently diagnosed with (late onset) Congenital Adrenal Hyperplasia. A missing gene disorder? Since this is a new medical finding, there is not much information out there about it, but it has been 'out there' for a long time. It is not life threatening, but very life altering, and I am interested in learning more.

If anyone knows any sites that might be helpful, or anyone that may have this rare congenital anomaly, I would greatly appreciate the info. You can email me at starcat41@yahoo.com, or post on the boards here.

Thanks for taking the time to read my post.

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