shokrokmom
01-01-2001, 12:35 AM
I have excrutiating pain in my arms and legs. I was recently diagnosed with Restless Leg Syndrome. I have done some reading on it and the pain that I have is extremely rare. I don't have the "crawling out of my skin" sensation, and at night I don't feel better when I get up and move around. The pain originally started 2 years ago, it lasted for about 4 months then died down to a bare minimum, never went away but became tolerable. Then it got really bad about 6 months ago, this time going into my arms also. My legs don't cramp or tingle, they don't go numb or have jerky movements, it feels more like someone is hitting them constantly with a sledgehammer. They get weak and give out at times. My arms, on the other hand, from my elbow to my wrist has like a constant really bad aching with sharp shooting pains once in a while. Then my hands and fingers feel like they are being pinched with a vice. All I know is that whatever is wrong with me is very painful and quite crippling at times. If anyone out there has the same symptoms as me, please reply and let me know, I can't go on like this much longer.
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Administrator
01-08-2001, 04:56 AM
Someone on the Thyroid Board experienced a great deal of pain similar to yours, due to hypothyroidism.
Try asking there.
Try asking there.
skulli
06-24-2005, 11:45 PM
YES! I have symptoms like this.
I had RLS - it was just annoying - never would have complained about it - dad has it too - just thought it was the heeby jeebies. Got really bad coming off nurtrasweet once.
Well, I broke my ankle and dev. a severe osteochondral defect in it. The RLS cont. to just be annoying. Had stretched the nerves, got Tarsal tunnel syndrome - and the nerves got VERY bad with that. I didn't get tx for that for years b/c no insurance. Well, after 8 years COULD NOT WALK.
During this time, the RLS would act up bad - usually alongside the TTS when it got very bad. I don't know why that is.
Then, after a tts exam in which the doc hit my tibial nerve WAY too hard, I could not walk for 3 weeks. During that time, my legs started killing me. My right hip too. All the way down to my foot. I thought I had sciatica. It would kill me at night and during the late afternoon. I thought it was sciatica from the altered gait on days that I did a bit too much.
No no no no....then the left hand and forearm went crazy. OH MY GOD it is hurting tonight - I've been organizing books today and exercise makes mine so much worse. I can't quit stretching it - typing actually helps though.
Walking didn't make mine better - I thought too when my nuerologist pinned this dx on me that it could not possibly be RLS - but after a month on MIRAPEX - man, I have my LIFE back.
I still have problems when I do too much, but nothing like I did. I would wake up crying at night. I wanted to kill my husband b/c he would not rub my calves and feet.
For me, rubbing and stretching help much more than just moving. Also, working doing graphics and hard stuff at the computer and stringing beads helps - anything that keeps my TOTAL concentration. But when I stop for just a minute, I start stretching and bouncing because it will hurt.
I suggest you really give the drugs a chance. I am so glad I did. I was JUST like you - and I am so totally pissed off that all these websites make RLS look like a annoyance - like a lightening bug and not the nest of wasps that I experience.
My neurologist says that sometimes RLS mutates and gets very severe and that is what happened to me.
My dad has it too, and I suspect strongly that my son has it. I watched him sleep the other night and he was jerking some, and he hates to go to bed until 4 am. He says he can't be still late at night.
I had RLS - it was just annoying - never would have complained about it - dad has it too - just thought it was the heeby jeebies. Got really bad coming off nurtrasweet once.
Well, I broke my ankle and dev. a severe osteochondral defect in it. The RLS cont. to just be annoying. Had stretched the nerves, got Tarsal tunnel syndrome - and the nerves got VERY bad with that. I didn't get tx for that for years b/c no insurance. Well, after 8 years COULD NOT WALK.
During this time, the RLS would act up bad - usually alongside the TTS when it got very bad. I don't know why that is.
Then, after a tts exam in which the doc hit my tibial nerve WAY too hard, I could not walk for 3 weeks. During that time, my legs started killing me. My right hip too. All the way down to my foot. I thought I had sciatica. It would kill me at night and during the late afternoon. I thought it was sciatica from the altered gait on days that I did a bit too much.
No no no no....then the left hand and forearm went crazy. OH MY GOD it is hurting tonight - I've been organizing books today and exercise makes mine so much worse. I can't quit stretching it - typing actually helps though.
Walking didn't make mine better - I thought too when my nuerologist pinned this dx on me that it could not possibly be RLS - but after a month on MIRAPEX - man, I have my LIFE back.
I still have problems when I do too much, but nothing like I did. I would wake up crying at night. I wanted to kill my husband b/c he would not rub my calves and feet.
For me, rubbing and stretching help much more than just moving. Also, working doing graphics and hard stuff at the computer and stringing beads helps - anything that keeps my TOTAL concentration. But when I stop for just a minute, I start stretching and bouncing because it will hurt.
I suggest you really give the drugs a chance. I am so glad I did. I was JUST like you - and I am so totally pissed off that all these websites make RLS look like a annoyance - like a lightening bug and not the nest of wasps that I experience.
My neurologist says that sometimes RLS mutates and gets very severe and that is what happened to me.
My dad has it too, and I suspect strongly that my son has it. I watched him sleep the other night and he was jerking some, and he hates to go to bed until 4 am. He says he can't be still late at night.
skulli
06-24-2005, 11:48 PM
I really, really REALLY wish that they would make a difference on the info boards between RLS and SEVERE RLS. The pain is disabling. No one seems to want to talk about that - my neurologist knew about it though.
skulli
06-24-2005, 11:50 PM
I actually had numbness too with mine. OF course one foot and leg has severe nerve damage from the accident and the tarsal tunnel syndrome. The other foot is ok - I did have nerve conduction tests - all ok except the one foot and leg - the others were just all a tad on the slow side, but still within normal limits.
I have pain that radiates, sometimes I get weird buzzing and sometimes I feel an internal jerking that is like an electric cable that has been cut. It hurts so bad and feels so WRONG that it has made me throw up.
I have pain that radiates, sometimes I get weird buzzing and sometimes I feel an internal jerking that is like an electric cable that has been cut. It hurts so bad and feels so WRONG that it has made me throw up.
Trashley
08-01-2005, 09:26 AM
Well all I can say is I know exacly what your talking about the sludgehammer thing! I go completely weak in my legs and sometimes have to kneel to the ground. It's only when I try to carry things though. I am not at all a 'physically weak' person, I have average muscle mass so it has nothing to do with that. I think it has to do with nerves or something I don't know but it's sometimes annoying when your trying to get a job done.