PDA

View Full Version : Lungs and hiatial herina


Daisy Mae jo
05-20-2013, 02:22 PM
Hello, This is my first posting, and i've got a massive hiatial hernia that is schedlued to be repaired for the 2nd time , after 20 years. I oringnally had the nissen fundoplication 20 yrs ago, along with a partial hepatectomiy and have been doing good until the last 9 yrs. I've had alot of trouble with my lungs as well., So in about 6 weeks I'm going to have it done again! I was a volunteer for this procedure 20 yrs. ago. It was new at the time. in 1994. The repair was done by an ecellent surgeon by the name of Dr. Lee Swanstrom, in Portland , Oregon and Dr John Pennings, at the Holliday Park hospital. I'm blessed enough to have here Dr. Pennings, in Cda, Idaho to do it again. I'm very hopeful to hear that others have had the lung trouble as well as me. I was feeling all alone in this and thinking my lungs were failing me at a raoid rate. But I've learned that others are having the same issues, so I truly feel that this surgery is going to be tough, but very well can help the acid reflux in my lings . I've had to give up most of my life do to this problem/ and I hpoe now for a better future. So if any of you are having as much ,serious trouble as I am, the nissen fundoplication , surgery is well worth it, especially if you are having trouble with your lungs. That means that the stomach is so far up inside the esophagus hole in the diaphram, that you are leaking stomach fluid into your body as well as your lungs. I , right now, cannot lay down and sleep at night so i've had to make a wedge out of pillows and it REALLY, helps keep the fluid out of my lungs, Looking forward to the surgery soon. Hope this helps give hope to someone else!

thanks,
Daisy Mae Jo

MountainReader
05-20-2013, 06:47 PM
Hi Daisy,

I had a laproscopic Nissen Fundoplication in 2008. My breathing problems had literally become life threatening, despite intense treatments. I had acid reflux coming up and irritating my lungs and throat and I had some aspiration of acid into the lungs.

While I still have some issues with gaseous reflux and have to be vigilent in my treatments, the surgery literally saved my life.

I wish you well with your surgery. :)

catkaru
05-21-2013, 08:44 AM
Hello Ladies! I am usually on the Fibro Board but visit here often. I too have been having some aspiration for years. I have had Reflux for over 35 yrs and now have Barret's Esophagus. I am due for my next endoscopy as soon as I make an appointment. I have had the Barret's for a few years now. I have my bed raised 6 inches and sleep with 2 pillows. I am currently taking Domperidone (Not yet FDA approved), Prevacid and Nexium for my reflux. Since I started the Domperidone, 3 months ago, things are a bit better and luckely I have no breathing problems so far as I am a smoker as well. My Doc says he wanted to start me on it to avoid the surgery. I hope my next endoscope turns out ok. I have had many (12) surgeries for different reasons other than this but I am deathly afraid of the post surgery recovery period as I have heard so many horror stories. Can you possibly give me an idea of how your recovery period turned out as you both seem very possitive about the surgery?

Low Acid All,

MountainReader
05-21-2013, 07:08 PM
With the procedure being laproscopic now, I think that makes the healing period much easier. I think the toughest thing was the liquid and soft foods diet that I was on for about a month. My surgeon was pretty conservative about re-introducing the solid foods though.

I had some difficulty with movements involving my core for the first week. Getting in and out of bed by myself was tough. It got better though.

Some people have trouble with gas bloat in the beginning, but it usually doesn't last long. I had some nausea in the beginning, but my surgeon gave me some Zofran which really helped.

I had some belching in the beginning, but I later found out it was because the air wasn't making it past my wrap. It went a way after a bit of healing.

After surgery, it is harder to vomit. I've had some nausea occassionally, but usually can't vomit. I did have a horrible gastro bug once though and the force of vomit did allow it to come up then. (A bit TMI, but lots of people ask.)

My GI doc said it usually takes about 8 weeks for the swelling to completely subside in the stomach. My surgeon had me on a lifting restriction for about 6 weeks too.

Honestly, if I'm remembering things, I actually had more pain from some wrist surgery that I had last year than with the fundoplication. With the fundoplication, I was slower for a couple weeks though. Actually, flew to stay with family to recoup the day after I was released from the hospital after the fundoplication. No problems flying. I just got door to door service with a wheelchair.


I was back at work after 2 weeks. I did fine. Looking back, I realize I could have used a bit longer just because the days were really long at first.

If you do choose to go with the surgery down the road, I'd recommend having your current meds compounded into liquid ahead of time.

I completely agree that surgery is a last resort to be considered. In my case, I had an incident where I needed emergency treatment because I almost stopped breathing. This was while I was on 4 asthma meds and several reflux meds. I hit the point that all of my specialists agreed that they had exhausted the other medical options. (I was working with an ENT due to the throat irritation from the acid, a Gastroenterologist, and a Pulmonologist, in addition to my primary care doc.) My Pulmonologist later told me he wasn't actually sure I was going to be able to pull through because of the severity of my issues and that if I hadn't been so aggressive in seeking treatment, I probably wouldn't have survived. I knew I was bad when I chose surgery, but hadn't realized quite how bad.

I wish you well with your next endoscopy. Barretts is certainly something to watch closely.

Daisy Mae jo
05-22-2013, 04:04 PM
Hello Mountainreader,
I'm really happy you are doing better! I'm at the same point, with this disease, my lungs have been so bad that my lung doc wanted to recommend me for a transplant, I know that after i have this surgery repair, it is going to be tough getting thru it at my age, but I'm determined to get better,and I know that my lungs are so bad ,because of the fluid leaking into them. So thankyou for your encouragement and you are an inspiration to me! I was ready to throw in the towel, and after hearing your journey, i feel like i have to continue to to try!

Big Hugs to You,
take good care, and also I recommend trying Ensure for nutrition, it is the only thing that has helped me improve my health,
Love Ya,
Daisy Mae Jo

Daisy Mae jo
05-22-2013, 04:08 PM
Hello Ladies! I am usually on the Fibro Board but visit here often. I too have been having some aspiration for years. I have had Reflux for over 35 yrs and now have Barret's Esophagus. I am due for my next endoscopy as soon as I make an appointment. I have had the Barret's for a few years now. I have my bed raised 6 inches and sleep with 2 pillows. I am currently taking Domperidone (Not yet FDA approved), Prevacid and Nexium for my reflux. Since I started the Domperidone, 3 months ago, things are a bit better and luckely I have no breathing problems so far as I am a smoker as well. My Doc says he wanted to start me on it to avoid the surgery. I hope my next endoscope turns out ok. I have had many (12) surgeries for different reasons other than this but I am deathly afraid of the post surgery recovery period as I have heard so many horror stories. Can you possibly give me an idea of how your recovery period turned out as you both seem very possitive about the surgery?

Low Acid All,

Daisy Mae jo
05-22-2013, 04:22 PM
Hello Catkaru,
I don't know how you have lived with this so long, but I feel the surgery is good, if you are at that point where everything else hasn't helped you. The only way I have been able to survive the last 9 yrs is with the medicine called Lyrica for the nerves in the stomach, it helps with the nausea and helps me to eat. also i have drank alot of Ensure for nutritriton, because I'm only able to get down 1 meal at night. i think the reason mine hurts so bad is from the raw nerves inside from where the stitches are being pulled out of place , from the hernia, and because I've already had the surgery once. So , mountainreader is correct,about the healing time being minimal, but tough. And they have made alot of progress over the last 20 yrs, so it is well worth it , depending on where you are at now. I'm really scared because my lungs are so bad, but they are putting me through Pulmonary Rehab, and gave me a Flutter Valve, to use and gave me 8 weeks to repair my lungs as much as possible.
I also am a smoker, and have started using the TarBar filters, to help, and wow!! what a difference they have made on my lungs. so hang in there, and Ihope you get better soon! the surgery is not so bad.

MountainReader
05-22-2013, 07:20 PM
Hello Mountainreader,
I'm really happy you are doing better! I'm at the same point, with this disease, my lungs have been so bad that my lung doc wanted to recommend me for a transplant, I know that after i have this surgery repair, it is going to be tough getting thru it at my age, but I'm determined to get better,and I know that my lungs are so bad ,because of the fluid leaking into them. So thankyou for your encouragement and you are an inspiration to me! I was ready to throw in the towel, and after hearing your journey, i feel like i have to continue to to try!

Big Hugs to You,
take good care, and also I recommend trying Ensure for nutrition, it is the only thing that has helped me improve my health,
Love Ya,
Daisy Mae Jo

Hi Daisy Mae Jo,

Your posting brought me to tears. It reminded me how incredibly worn down physically, mentally and emotionally I was before I had my surgery. It is especially hard when others around you don't understand how severe the acid reflux can be when it impacts the lungs. It is different than just having occasional "heartburn".

Please keep us posted on how you are doing.

Wishing you well. :wave:
MountainReader

MountainReader
05-22-2013, 07:29 PM
Hi again,

I just read your next posting. It sounds like the surgery may be necessary just to address your hernia issue, if not the lung issues as well. As far as I know, no medicine will fix one and if it is that bad it probably needs to be addressed.

Most of the time, I'd ask if you had a manometry recently. It is important to have good esophageal motility in order for the fundoplication to be a good option. I'm not sure how it works since you've already had the surgery once. I do know I had a Manometry and pH test earlier this year even though I've had the surgery. I was having asthma issues again and they wanted to rule out acid reflux as a trigger. While the testing came back 'normal' they still said "we all know you have acid reflux issues".

I will advise anyone else out there who is considering the surgery to make sure they have a Manometry prior to making the decision though.