linedoz
10-11-2003, 11:38 AM
I did a 2nd sleep test yesterday, this time at home but if I slept 3 hours is was good. The hospital told me they would look at the data and will call me if I need to do it again.
If I need to do the test again should I take some sleeping pills. They told me that after I passed the test...dah!
I am very discouraged because it is so long that I do not feel good I hope something will come out of this test.
Line
[This message has been edited by linedoz (edited 10-11-2003).]
[This message has been edited by linedoz (edited 10-11-2003).]
If I need to do the test again should I take some sleeping pills. They told me that after I passed the test...dah!
I am very discouraged because it is so long that I do not feel good I hope something will come out of this test.
Line
[This message has been edited by linedoz (edited 10-11-2003).]
[This message has been edited by linedoz (edited 10-11-2003).]
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Corinna_H
10-11-2003, 03:30 PM
I knew how it would be and requested a home study but with all that junk attached I knew I would still find it hard to sleep so i took a (secret!) Vallium and it was truly brilliant, I slept like a log.
But when I went in to the sleep lab for my titration, I took the valium I had smuggled in and still hardly slept.
If like me, you find it particularly hard to sleep in strange places, you could need something pretty strong for the titration, though maybe something less strong for the home study.
I am going to need some sort of home titration maybe with a smart CPAP or whatever it's called, that uses some sort of feedback that raises the pressure until you are having no desaturations. I don't know if I will get it though, this is the UK and the National
Health Service, LOL!
Anyway, good luck!
But when I went in to the sleep lab for my titration, I took the valium I had smuggled in and still hardly slept.
If like me, you find it particularly hard to sleep in strange places, you could need something pretty strong for the titration, though maybe something less strong for the home study.
I am going to need some sort of home titration maybe with a smart CPAP or whatever it's called, that uses some sort of feedback that raises the pressure until you are having no desaturations. I don't know if I will get it though, this is the UK and the National
Health Service, LOL!
Anyway, good luck!
ControlFreak
10-18-2003, 02:33 AM
I have a lot of trouble sleeping in studies (I've had 4 and probably totalled under 6 hours of sleep between them). I asked my sleep doctor about taking something and he said that I can take NOTHING .. not even Nyquil .. to get to sleep at night. Any sort of depressant will make the apnea worse.
That could be just me, but I'll trust him on that (good thing I wasn't much of a drinker).
ControlFreak
That could be just me, but I'll trust him on that (good thing I wasn't much of a drinker).
ControlFreak
ken1967
10-18-2003, 03:59 AM
well im going for my 2nd sleep study in a month i had my first in 6/00 and was diagnosed with severe sleep apnea, i had a bipap machine and it worked great for a long time but i had put on some weight and not having health insurance until now ive suffered long enough i dont recommend u taking a sleeping pill or any meds sleep apnea is a serious health issue which if undetected can kill you, or give u a stroke,heart attack etc, whats the point of going for a sleep study if your going to cheat, i had a good friend die because he didnt take his apnea serious
Corinna_H
10-18-2003, 07:29 PM
Ken1967 I really can't see how taking a Vallium is cheating, it may possibly exaggerate apneas in a sensitive person but wouldn't suppress them. I can't see it as taking a risk. At the very worst it could lead to overtreatment, but never to under treatment!
I can assure you I take it VERY seriously, I know darn well I have apneas as i wake panting for breath and with all the other symptoms of apnea. if I don't sleep I run the very real chance of getting no treatment for this serious condition. People who have been assessed by automatic titration over a week have found their apnea varies anyway. If a med causes you a bit more apnea than you might otherwise have had that night, it could well cover you for more relaxed nights when you aren't trussed up with all that testing equipment?
My husband didn't sleep at his third sleep study (after a years wait from his previous study as there was such a long waiting list) and he just got no more sleep studies, no treatment and he is being made to suffer the ultimate risk, and all because he didn't sleep. Now that IS serious!
Here in the UK you don't keep getting sleep studies if you don't sleep, so it is a pretty sensible thing to try to get some, and since you still get to sleep lighter than if you were taking the med without all that stuff attached to you, you may not actually have worse apnea with meds, and you certainly won't get LESS apnea!!! So where is the risk? Maybe your doc said no meds, but some others posting on these boards have been told it is OK to take meds if you can't sleep.
[This message has been edited by Corinna_H (edited 10-18-2003).]
I can assure you I take it VERY seriously, I know darn well I have apneas as i wake panting for breath and with all the other symptoms of apnea. if I don't sleep I run the very real chance of getting no treatment for this serious condition. People who have been assessed by automatic titration over a week have found their apnea varies anyway. If a med causes you a bit more apnea than you might otherwise have had that night, it could well cover you for more relaxed nights when you aren't trussed up with all that testing equipment?
My husband didn't sleep at his third sleep study (after a years wait from his previous study as there was such a long waiting list) and he just got no more sleep studies, no treatment and he is being made to suffer the ultimate risk, and all because he didn't sleep. Now that IS serious!
Here in the UK you don't keep getting sleep studies if you don't sleep, so it is a pretty sensible thing to try to get some, and since you still get to sleep lighter than if you were taking the med without all that stuff attached to you, you may not actually have worse apnea with meds, and you certainly won't get LESS apnea!!! So where is the risk? Maybe your doc said no meds, but some others posting on these boards have been told it is OK to take meds if you can't sleep.
[This message has been edited by Corinna_H (edited 10-18-2003).]
linedoz
10-19-2003, 03:02 PM
Thank you for your replies.
They told me at the hospital if the 2nd test is not OK they will call me for me to take it again. It looks like they have enough data but will it be positive or not that is the question... I do not particularly want to have sleep apnea but it looks like I have many of the symptoms and it's been 3 years that I am investigating different things. I can't wait to feel like a normal person again. So I hope I do not have to pass 3rd test. If I do have to do the sleep test again I would be scared to take any pills because I do not know what effect they will have on me since I never took any sleeping pills in the past. Normaly my problem is to stay awake not to fall asleep but for some reason when I need to sleep for the test I just can't.
They told me at the hospital if the 2nd test is not OK they will call me for me to take it again. It looks like they have enough data but will it be positive or not that is the question... I do not particularly want to have sleep apnea but it looks like I have many of the symptoms and it's been 3 years that I am investigating different things. I can't wait to feel like a normal person again. So I hope I do not have to pass 3rd test. If I do have to do the sleep test again I would be scared to take any pills because I do not know what effect they will have on me since I never took any sleeping pills in the past. Normaly my problem is to stay awake not to fall asleep but for some reason when I need to sleep for the test I just can't.
linedoz
10-30-2003, 10:12 PM
I just saw the specialist and he told me the 2nd test does not show any sleep apnea but I did not sleep very much during the test. But he said I need to pass a overnight test again at the hospital but this time with CPAP machine or maybe a equipment for my Jaw. Apparently it is my Jaw that is the problem with my breathing. He said I have a very hard time breathing this could cause all my symptoms like sleep apnea. I asked him the next time I take the test can I take any sleeping pills, he told it was OK.
I am very discouraged because the health system in Quebec is very slow my next test is only in MARCH 2004, so I called the insurance company to see if the would pay a test in a Private Clinic, they said they would evaluate my file and will give me answer. The problem is that they already paid one test this year and it was 1200.00. I hope they say they can pay because I could get an appointment next week. It's been 3 years and more that I am suffuring from these symptoms.
Need some advice if I have to purchase a CPAP machine what is the best one.
[This message has been edited by linedoz (edited 10-30-2003).]
I am very discouraged because the health system in Quebec is very slow my next test is only in MARCH 2004, so I called the insurance company to see if the would pay a test in a Private Clinic, they said they would evaluate my file and will give me answer. The problem is that they already paid one test this year and it was 1200.00. I hope they say they can pay because I could get an appointment next week. It's been 3 years and more that I am suffuring from these symptoms.
Need some advice if I have to purchase a CPAP machine what is the best one.
[This message has been edited by linedoz (edited 10-30-2003).]
Corinna_H
10-31-2003, 03:43 PM
If you had a very hard time breathing, you may be getting hypopneas which are episodes of low oxygen saturation caused by inadequate breathing due to the restriction in your throat.
If this is the case they may have found some evidence of it, hence wanting you on CPAP next time? Where this is significant is if you decide to get an autotitrating CPAP, as not all makes of machine will pick up hypopneas.
If this is the case they may have found some evidence of it, hence wanting you on CPAP next time? Where this is significant is if you decide to get an autotitrating CPAP, as not all makes of machine will pick up hypopneas.