scottieK
01-06-2003, 06:47 AM
Dear Belle, Berenice, DaveyD and all,
Hi been awhile, Happy Holidays, I have been away and so sorry to hear Belle that you are not better, I have not caught up with all the posts but I was very upset to read you aren't better. I have been trying hard to keep up with family stuff. I put myself in bed several times trying to do all of the dinners etc. We did have a lovely christmas but mostly because I had plenty of pain med. I don't have anyone to complain to so sorry ahead of time and for the last posts if I have worn out my welcome. I just wanted to ask- with all of this standing and walking with making xmas dinner- I have more pronounced numbness in my middle toe and I took out my little book of nerves and where they show up if they are damaged and it says that the mid toe numbness is the perineal nerve and is one that travels from the s1/s2 area to the perineum. I am wondering if this is why I have so much pain in my groin and from sex. This nerve and nerves from s1 right down the tailbone continues and makes up part of the siatic bundle. I guess what I am wondering if anyone else that has had L5/S1 surgery has similar numbness which would make me think that the nerves are damaged from scar tissue and surgery. Could anyone comment- I hurt so much at times I just would like some more information. Thanks-
Hi been awhile, Happy Holidays, I have been away and so sorry to hear Belle that you are not better, I have not caught up with all the posts but I was very upset to read you aren't better. I have been trying hard to keep up with family stuff. I put myself in bed several times trying to do all of the dinners etc. We did have a lovely christmas but mostly because I had plenty of pain med. I don't have anyone to complain to so sorry ahead of time and for the last posts if I have worn out my welcome. I just wanted to ask- with all of this standing and walking with making xmas dinner- I have more pronounced numbness in my middle toe and I took out my little book of nerves and where they show up if they are damaged and it says that the mid toe numbness is the perineal nerve and is one that travels from the s1/s2 area to the perineum. I am wondering if this is why I have so much pain in my groin and from sex. This nerve and nerves from s1 right down the tailbone continues and makes up part of the siatic bundle. I guess what I am wondering if anyone else that has had L5/S1 surgery has similar numbness which would make me think that the nerves are damaged from scar tissue and surgery. Could anyone comment- I hurt so much at times I just would like some more information. Thanks-
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nanna02
01-07-2003, 12:44 AM
Hi Scottie ! :wave:
Nice to see you back on board !! :)
I just came on my computer for a moment and happened to see this message of yours .
Thank you for your kind thoughts.
I wish I could help you myself regarding the Areas of pain you have and the nerves etc. but mine was the Thorasic area ,T7,T8, T9, T10, so I'm not much help with L5/S1 knowledge apart from saying I'm so sorry you are having this pain . !! ?
I guess you've done what we all have on here , looked it up on Medical Boards , but you are asking for first-hand EXPERIENCED people who can tell you , is that right?
Well here's hoping you get some good replies Scottie?..
We all need each other don't we ?.. http://www.healthboards.com/ubb/heart.gif
Cheers .. belle xxx :)
------------------
A Friend!
Nice to see you back on board !! :)
I just came on my computer for a moment and happened to see this message of yours .
Thank you for your kind thoughts.
I wish I could help you myself regarding the Areas of pain you have and the nerves etc. but mine was the Thorasic area ,T7,T8, T9, T10, so I'm not much help with L5/S1 knowledge apart from saying I'm so sorry you are having this pain . !! ?
I guess you've done what we all have on here , looked it up on Medical Boards , but you are asking for first-hand EXPERIENCED people who can tell you , is that right?
Well here's hoping you get some good replies Scottie?..
We all need each other don't we ?.. http://www.healthboards.com/ubb/heart.gif
Cheers .. belle xxx :)
------------------
A Friend!
OLIVER-DOVE
01-07-2003, 01:48 AM
Hey Scottie,
Good to see you back on the boards. I found that my impontecy problem is nerve related from my T7/8. It also affects the bowel area(I have no felling in the area whatsoever). I also have residual 3 toes on the left foot which reamain numb all the time. Not to mention the 1 foot wide circles of complete numbness around the surgery cuts. Apparently those nerves were cut from the procedure. Like in that movie "Mister Deeds Go To Washington" You could hit the sites with a hammer and nail and cause no pain. Now if it felt that way around my spine I would be great. It can take a couple of years for eveything to calm down but, at the one year recovery point you only have a 20% chance of any future improvement.
You didn't say anything about medications? IF you are not in need of them then good for you. I feel much better now compared to what I was before surgery but, I still have a long ways to go to get back to normal. The independent doctor says I have a 35% loss of total ability while on my narcotics. Without them I am virtually an invilant. I still don't know what life holds in store for me but, I must find a ways to enjoy some of my life somehow. The big things I truely miss are: 1. sleeping in my own bed. 2. Making love to my wife 3. Getting on good night's sleep 4. A normal bowel movement. 5. Going on a long vacation traveling around by air, car, sea and/or train. I would do it all on some trips. 6. Going on rides at the amusement parks you know the scary ones. 7. Regain my reflexes which are severly reduced by the medication. 8. Driving my car(since the first surgery I take so many pills for pain I am worse than any drunk) Those are jusrt a few I could go on and on.
Many folks get instant relief right afdter surgery. Those who don't have to be patient and hope the nerves regenerate. I hope you are still regenerating.
Oliver :wave:
T
[This message has been edited by OLIVER-DOVE (edited 01-07-2003).]
Good to see you back on the boards. I found that my impontecy problem is nerve related from my T7/8. It also affects the bowel area(I have no felling in the area whatsoever). I also have residual 3 toes on the left foot which reamain numb all the time. Not to mention the 1 foot wide circles of complete numbness around the surgery cuts. Apparently those nerves were cut from the procedure. Like in that movie "Mister Deeds Go To Washington" You could hit the sites with a hammer and nail and cause no pain. Now if it felt that way around my spine I would be great. It can take a couple of years for eveything to calm down but, at the one year recovery point you only have a 20% chance of any future improvement.
You didn't say anything about medications? IF you are not in need of them then good for you. I feel much better now compared to what I was before surgery but, I still have a long ways to go to get back to normal. The independent doctor says I have a 35% loss of total ability while on my narcotics. Without them I am virtually an invilant. I still don't know what life holds in store for me but, I must find a ways to enjoy some of my life somehow. The big things I truely miss are: 1. sleeping in my own bed. 2. Making love to my wife 3. Getting on good night's sleep 4. A normal bowel movement. 5. Going on a long vacation traveling around by air, car, sea and/or train. I would do it all on some trips. 6. Going on rides at the amusement parks you know the scary ones. 7. Regain my reflexes which are severly reduced by the medication. 8. Driving my car(since the first surgery I take so many pills for pain I am worse than any drunk) Those are jusrt a few I could go on and on.
Many folks get instant relief right afdter surgery. Those who don't have to be patient and hope the nerves regenerate. I hope you are still regenerating.
Oliver :wave:
T
[This message has been edited by OLIVER-DOVE (edited 01-07-2003).]
nanna02
01-07-2003, 08:25 AM
Hi Oliver !! :wave:
I saw you talking here to Scottie about the time it takes for the nerves to regenerate etc. and after a year etc. only 20% chance of improvement .
What I would like to know is about you saying your reflexes have been affected by the medication.
Are you referring to your walking, Oliver as I believe mine is, due to pills I take..
Baclofen 5mg only !, every day to avoid muscle spasms..
( or Diazepam,(1 pill only) once in a blue moon))
if I don't take them I can end up with M/Sp. but yet I don't hardly EVER get M/Sp. , so what to do?
I belive the pill affected me today after taking it for stiff muscles in both rib areas !!
My leg went all slow , even worse than normal, :( and the Physio comes tomorrow . How can I explain that to her ?
I have been working hard at my exercises and have a little improvement in lifting my toes off the floor /Right side. but not much else improvement.
I truly don't know if she'll believe me and I know I'm going to end up in tears if she says anything negative to me . .. I've nearly had enough of this struggle..
my bowel.. They never told me there was a possibility of nerve damage there Oliver , why don't they tell you these things before the ops?..
I have to take off to the toilet if I feel a message sneaking in to the brain and that is not good when you have no loo available ..!! Had some VERY close calls !! http://www.healthboards.com/ubb/redface.gif
I have to self -catheterise all day almost every time I want to wee, have been for about 4-5 months or more .. GREAT!! felt degraded at first ,.. have learnt to live with it now , but is there going to be any light at end of the Tunnel ???
And sex life .. well don't talk about That !!
I'll be happy/Thankful if I can just WALK without crutches even.. holding onto my husbands' arm will be ok !! ??
It's 6 months since my Third operation in 2 1/2 years and I'm still Struggling and in the same d... spot I was in long ago !!! :(
I guess I'm just pppppp...dddd.. off with everything ..
Never mind .. It's a New year .. hope it's a good one for us all ??.
Like to hear from you Oliver ? :)
and good luck to Scottie
Love to everyone http://www.healthboards.com/ubb/heart.gif Belle NZ xxx
I saw you talking here to Scottie about the time it takes for the nerves to regenerate etc. and after a year etc. only 20% chance of improvement .
What I would like to know is about you saying your reflexes have been affected by the medication.
Are you referring to your walking, Oliver as I believe mine is, due to pills I take..
Baclofen 5mg only !, every day to avoid muscle spasms..
( or Diazepam,(1 pill only) once in a blue moon))
if I don't take them I can end up with M/Sp. but yet I don't hardly EVER get M/Sp. , so what to do?
I belive the pill affected me today after taking it for stiff muscles in both rib areas !!
My leg went all slow , even worse than normal, :( and the Physio comes tomorrow . How can I explain that to her ?
I have been working hard at my exercises and have a little improvement in lifting my toes off the floor /Right side. but not much else improvement.
I truly don't know if she'll believe me and I know I'm going to end up in tears if she says anything negative to me . .. I've nearly had enough of this struggle..
my bowel.. They never told me there was a possibility of nerve damage there Oliver , why don't they tell you these things before the ops?..
I have to take off to the toilet if I feel a message sneaking in to the brain and that is not good when you have no loo available ..!! Had some VERY close calls !! http://www.healthboards.com/ubb/redface.gif
I have to self -catheterise all day almost every time I want to wee, have been for about 4-5 months or more .. GREAT!! felt degraded at first ,.. have learnt to live with it now , but is there going to be any light at end of the Tunnel ???
And sex life .. well don't talk about That !!
I'll be happy/Thankful if I can just WALK without crutches even.. holding onto my husbands' arm will be ok !! ??
It's 6 months since my Third operation in 2 1/2 years and I'm still Struggling and in the same d... spot I was in long ago !!! :(
I guess I'm just pppppp...dddd.. off with everything ..
Never mind .. It's a New year .. hope it's a good one for us all ??.
Like to hear from you Oliver ? :)
and good luck to Scottie
Love to everyone http://www.healthboards.com/ubb/heart.gif Belle NZ xxx
OLIVER-DOVE
01-08-2003, 11:23 AM
Hey Belle,
OF any body on this site I understand your frustration and sometimes blue moods we are subject to at times. To be so long trying to recouperate and get back to some normalcy is hardest on our nerves most of all. I think that Doctors don't realize how much some little fact they forget to tell us affects our total outlook. In our condition knowledge is power to keep us stable.
I think that in your case medication could be causing some of your problems to linger. The dilema is can you afford not to take the medication. I have found that once I figured out what is medication related and what is not I could then focus on the things that need attention.
As you well know we will never be perfect. We only hope to recover enough to lead some normal form of our old lives. So, don't give up quite yet. You still have a ways to go.
Oliver :wave:
OF any body on this site I understand your frustration and sometimes blue moods we are subject to at times. To be so long trying to recouperate and get back to some normalcy is hardest on our nerves most of all. I think that Doctors don't realize how much some little fact they forget to tell us affects our total outlook. In our condition knowledge is power to keep us stable.
I think that in your case medication could be causing some of your problems to linger. The dilema is can you afford not to take the medication. I have found that once I figured out what is medication related and what is not I could then focus on the things that need attention.
As you well know we will never be perfect. We only hope to recover enough to lead some normal form of our old lives. So, don't give up quite yet. You still have a ways to go.
Oliver :wave:
nanna02
01-09-2003, 09:29 AM
Hi Oliver ! :wave: and Scottie Hi.
Thanks for your reply. :)
I went to the GP today and told her I wanted off the medication for pain ..
(Epilim.. /or Sodium Valproate).. which is used for Neuro pathic Pain as you will know,
( and also Epilepsy, which I don't have)
and she totally agreed I could titrate them down very slowly ..
it will take 7 months ( 1 pill less per month) if my body has no bad pain or nerve sensations like I used to .
It is possible I could still need them, but we won't know till we try ?.
As far as the leg reflexes . time will tell eh?
So Thanks Oliver, it was much appreciated http://www.healthboards.com/ubb/heart.gif
..
How are YOU doing these days yourself ??
Let us know eh??
Take Care won't you?..
Love Belle NZ xxx :)
------------------
A Friend!
Thanks for your reply. :)
I went to the GP today and told her I wanted off the medication for pain ..
(Epilim.. /or Sodium Valproate).. which is used for Neuro pathic Pain as you will know,
( and also Epilepsy, which I don't have)
and she totally agreed I could titrate them down very slowly ..
it will take 7 months ( 1 pill less per month) if my body has no bad pain or nerve sensations like I used to .
It is possible I could still need them, but we won't know till we try ?.
As far as the leg reflexes . time will tell eh?
So Thanks Oliver, it was much appreciated http://www.healthboards.com/ubb/heart.gif
..
How are YOU doing these days yourself ??
Let us know eh??
Take Care won't you?..
Love Belle NZ xxx :)
------------------
A Friend!
scottieK
02-02-2003, 07:43 AM
Hi, no I haven't forgotten you. I have had a very nice thing happen. My brother is visiting from the USA. I am in Australia- a long way away. Thankyou for all your kind words.
I am going around in circles. I didn't memtion med's but I and on slow release morphine, and just about everything else I found a very understanding docter in Terrigal NSW. Now I didn't say wonderful because he too had his faults (I found he was wrapped up in trialling nerve blocks and research book writing).
Anyway he gave me Kapanol- which is just what I said before slow release morphine and now I can do just about everything with in reason. I have not become a "drug addict" and it is only when I push myself (which I do quite often because of my home situation) that I need what they call 'break through' medication.
I belong to a pain group and the "leader" has a spinal cord stimulator. She found that this was not doing the job and the same doctor helped her with Kapanol and she found it a god send. She no longer restricted by pain for most of the time.
Thank God for this because I would not be on this earth if I didn't get the constant relief this provides.
Back to my original Post. The things I miss are making love to my husband- even on Kapanol I still get the spasming. I was on rivitrol or benzodiazipam -whatever. It is very dangerous to people with heart problems and it will help you stack the weight on. so I slowly quit,(it will also cause seizure and put you in a coma if you do not quit slowly)
the other thing I missed too was going to the toilet without ripping my guts out. another side thought- I started a last chance low Carb Dr Atkins diet and I found it made my bowel movements so much better it is amazing. -I also am losing weight.
Other things I miss are doing things like walking for fun, going up steps, horseback riding, playing softball, sitting up in a chair without pain, and I guess everything without pain (and spasm).
Christopher Reeves just landed here to talk about stem cell reseach. I was happy that he came but if anyone reads this that knows him or can get in touch with anyof these people could they tell him for me that I think he is wonderful and all that he says is very much on track but would he let the little guy have a chance to hear him and would he listen to us. Seems like he is in his own world- I haven't heard very much about the depression and desparation we go through have you??? well I will get off my soap box again for now. Much love for all of you and hope you get some pain free days!!!
I am going around in circles. I didn't memtion med's but I and on slow release morphine, and just about everything else I found a very understanding docter in Terrigal NSW. Now I didn't say wonderful because he too had his faults (I found he was wrapped up in trialling nerve blocks and research book writing).
Anyway he gave me Kapanol- which is just what I said before slow release morphine and now I can do just about everything with in reason. I have not become a "drug addict" and it is only when I push myself (which I do quite often because of my home situation) that I need what they call 'break through' medication.
I belong to a pain group and the "leader" has a spinal cord stimulator. She found that this was not doing the job and the same doctor helped her with Kapanol and she found it a god send. She no longer restricted by pain for most of the time.
Thank God for this because I would not be on this earth if I didn't get the constant relief this provides.
Back to my original Post. The things I miss are making love to my husband- even on Kapanol I still get the spasming. I was on rivitrol or benzodiazipam -whatever. It is very dangerous to people with heart problems and it will help you stack the weight on. so I slowly quit,(it will also cause seizure and put you in a coma if you do not quit slowly)
the other thing I missed too was going to the toilet without ripping my guts out. another side thought- I started a last chance low Carb Dr Atkins diet and I found it made my bowel movements so much better it is amazing. -I also am losing weight.
Other things I miss are doing things like walking for fun, going up steps, horseback riding, playing softball, sitting up in a chair without pain, and I guess everything without pain (and spasm).
Christopher Reeves just landed here to talk about stem cell reseach. I was happy that he came but if anyone reads this that knows him or can get in touch with anyof these people could they tell him for me that I think he is wonderful and all that he says is very much on track but would he let the little guy have a chance to hear him and would he listen to us. Seems like he is in his own world- I haven't heard very much about the depression and desparation we go through have you??? well I will get off my soap box again for now. Much love for all of you and hope you get some pain free days!!!
scottieK
02-02-2003, 08:09 AM
Especially Dear Belle,
I did have some more thoughts, especially after what you and Oliver wrote about regeneration. I guess too that is why I have Christopher R. on my mind. On regeneration- I totally believe in it. If a large area has been taken away I think not but short distances yes I do not think this is impossible. The trouble is we do not know how long these spaces are and where they are- that is why I am looking at the evidence my nerves are giving (the numbness in the toe matches with the area they did surgery on).
What struck me was the problem with me going to the toilet was there and I was too embarassed to say anything til it was too late (to claim disability). It doesn't matter anyway because turns out they do not give sh-- about your disabilities anyway, they just try to disprove everything.
Back to it, Belle do not give up and do not what ever you do give up going naturally or trying to go naturally. What I said about the diet is so true, if you cut down on the breads and pasta and rice you will have looser bowels and you will be able to go without spasming. It hurts like hell when you spasm down there and it strikes when you least expect or can do much about it. I do not know about the bladder part because I think that old age and having children are complicating my situation. I wake about six times a night with pain and have gotten used to relieving myself so I think I have less control- I do not know.
I hear that it will take two years for "permanent" nerve damage to be confirmed so keep your chins up! If I have support near like you I will be ok, yours K.
I did have some more thoughts, especially after what you and Oliver wrote about regeneration. I guess too that is why I have Christopher R. on my mind. On regeneration- I totally believe in it. If a large area has been taken away I think not but short distances yes I do not think this is impossible. The trouble is we do not know how long these spaces are and where they are- that is why I am looking at the evidence my nerves are giving (the numbness in the toe matches with the area they did surgery on).
What struck me was the problem with me going to the toilet was there and I was too embarassed to say anything til it was too late (to claim disability). It doesn't matter anyway because turns out they do not give sh-- about your disabilities anyway, they just try to disprove everything.
Back to it, Belle do not give up and do not what ever you do give up going naturally or trying to go naturally. What I said about the diet is so true, if you cut down on the breads and pasta and rice you will have looser bowels and you will be able to go without spasming. It hurts like hell when you spasm down there and it strikes when you least expect or can do much about it. I do not know about the bladder part because I think that old age and having children are complicating my situation. I wake about six times a night with pain and have gotten used to relieving myself so I think I have less control- I do not know.
I hear that it will take two years for "permanent" nerve damage to be confirmed so keep your chins up! If I have support near like you I will be ok, yours K.
mothmin
02-02-2003, 04:06 PM
Hey Scott, I guess you were away from the board when I got out of surgery. My first and biggest problem was the bladder thing. Felt like I had to go every 30 minutes 24 hours a day. came back neg for bladder infection, it finally resolved after 6 days. Also the toe thing...my left ( one over from small) toe sometimes feels like someone pulling/tugging at it, not really painful but strange. I'm luckier than most on this board, as i was not in much pain before surgery, and seem to be recovering so far. good luk
melanie dawn
02-03-2003, 09:39 AM
Hi Scottie,
was just reading your posts, and thought OH my goodness that sounds like me. I too have am having real issues with my bladder, but what you are saying about the bowels is so familiar. I am also on slow release morphine, and lots of meds to counteract the same for my bowels. But you hit the nail on the head with you statement about tearing your bowels out and the pain and spasms there. And how familiar the disabilities issue sounds.
I just said to my hubby last night night, that if I get through this and back to my life(was working on my masters in nursing), I will write my research thesis on the subject of spinal injury and the medical ,psychological and insurance issues that follow it . I think it would make a great paper , that would include input from patients, and the legal and medical bureaucracy and its impact.
Anyways, just had to jump in and put my two cents in.
Mel
was just reading your posts, and thought OH my goodness that sounds like me. I too have am having real issues with my bladder, but what you are saying about the bowels is so familiar. I am also on slow release morphine, and lots of meds to counteract the same for my bowels. But you hit the nail on the head with you statement about tearing your bowels out and the pain and spasms there. And how familiar the disabilities issue sounds.
I just said to my hubby last night night, that if I get through this and back to my life(was working on my masters in nursing), I will write my research thesis on the subject of spinal injury and the medical ,psychological and insurance issues that follow it . I think it would make a great paper , that would include input from patients, and the legal and medical bureaucracy and its impact.
Anyways, just had to jump in and put my two cents in.
Mel
nanna02
02-03-2003, 09:59 AM
Hey there Scottie, Oliver and all!.. :wave:
It's cool to hear from you .. !
I have been very quiet , just trying to live each day and get on . have had a few hiccups along the way with my walking and leg brace ..
.. but am going to an Orthotics man next week for an assessment to see if that may be causing problems with my walking .
Wouldn't it be GREAT if they could help me walk better .. ?? I would be sO GRATEFUL!.. :)
And I'm getting sent back to Rehab soon for a look at what's going on with my whole body ..
at least I'm out of pain.. or Majority of it !! and that's a Blessing eh?
But the Spinal Cord damage may take YEARS to heal , if ever, I was told ..
Well, that's the cards I was dealt .. no point in dwelling on the negative eh? GET ON WITH LIFE!! :)
Any way , I am reading your posts , :)
Sorry if I am not much use at helping any of you but I haven't forgotten you ..
Thinking of you all with much Love ..
Belle NZ http://www.healthboards.com/ubb/heart.gif
It's cool to hear from you .. !
I have been very quiet , just trying to live each day and get on . have had a few hiccups along the way with my walking and leg brace ..
.. but am going to an Orthotics man next week for an assessment to see if that may be causing problems with my walking .
Wouldn't it be GREAT if they could help me walk better .. ?? I would be sO GRATEFUL!.. :)
And I'm getting sent back to Rehab soon for a look at what's going on with my whole body ..
at least I'm out of pain.. or Majority of it !! and that's a Blessing eh?
But the Spinal Cord damage may take YEARS to heal , if ever, I was told ..
Well, that's the cards I was dealt .. no point in dwelling on the negative eh? GET ON WITH LIFE!! :)
Any way , I am reading your posts , :)
Sorry if I am not much use at helping any of you but I haven't forgotten you ..
Thinking of you all with much Love ..
Belle NZ http://www.healthboards.com/ubb/heart.gif
nanna02
02-03-2003, 11:15 PM
I forgot to say .. I'm going to be a Grandma :angel: :) within the next 2 weeks or so..
So THAT's going to be exciting and help me get through the rough patch I may be going to have to go thru soon ..
I don't want to go to the Rehab place but I guess it's best, they have to check what's going on with my leg etc..
.. So I'll try and keep in touch with all my friends on here when I can.. AND tell you when the baby is born !! YEAH!! CYA .. Belle NZ xxx
So THAT's going to be exciting and help me get through the rough patch I may be going to have to go thru soon ..
I don't want to go to the Rehab place but I guess it's best, they have to check what's going on with my leg etc..
.. So I'll try and keep in touch with all my friends on here when I can.. AND tell you when the baby is born !! YEAH!! CYA .. Belle NZ xxx
scottieK
02-17-2003, 03:40 AM
Dear Belle, Congratulations!
I know this will help get your mind off things! Just be careful not to do to much. It is very easy to extend yourself. When I had my most recent neck surgery my husband and my brother who were taking care of me both came down with pneumonia- I wound up taking care of them. I wonder if that had anything to do with the pain I have now.
Some news- It rained pretty hard today. We have had a long dought here so this is really good! Love to all scottieK
I know this will help get your mind off things! Just be careful not to do to much. It is very easy to extend yourself. When I had my most recent neck surgery my husband and my brother who were taking care of me both came down with pneumonia- I wound up taking care of them. I wonder if that had anything to do with the pain I have now.
Some news- It rained pretty hard today. We have had a long dought here so this is really good! Love to all scottieK
scottieK
02-17-2003, 04:06 AM
Just re reading your posts- thanks for all your kind thoughts. I dearly hope someone does write more and more about the constant problems we are facing. What I get very angry about is when you are in the doctors surgery and you tell them of your problems and they just look at you and then they do NOT comment. They have seen these things all before but they will not give you any insight to help resolve you pain or send you to someone who will.
One time I went in and asked about the horrible stiff pain I wake with each morning. His reply was only, you told me about this a year ago. NO answer to help just acknowledgement I have been suffering for more than a year. Now it has been four years since and my orthopedic has said I can not have any help with surgery and my pain doc has dumped me because I will not have any internal pain machines. I have to just be happy they way I am.
I forget if I didn't say this before but I was on diazapam for spasm but I was taking as many as four a day and they were not helping- just making me slur my speech and lose consentration (as far as I knew) . I found out they are fatal to people with heart disease (this is extremely fatal to obese cats -that is how I found out about this side effect). If you read this it is extremely important to understand it is dangerous to go off any diazipams quickly- it can cause seizures and coma- see your doctor!!!!!! I got off of them but shaving the tablets into smaller tablets and got off them fraction by fraction.
About the bowel- I still am having good results staying on the low carb- high protien diet. I have a good idea (I might have written this) that Elvis died of spasm to the lower bowel from constipation. If His blood pressure and pain levels were any where near mine when I have this happen I am not surprised he died (with the bad heart). You see where was the doctor when I needed him then?
take care and belated happy valentines!
One time I went in and asked about the horrible stiff pain I wake with each morning. His reply was only, you told me about this a year ago. NO answer to help just acknowledgement I have been suffering for more than a year. Now it has been four years since and my orthopedic has said I can not have any help with surgery and my pain doc has dumped me because I will not have any internal pain machines. I have to just be happy they way I am.
I forget if I didn't say this before but I was on diazapam for spasm but I was taking as many as four a day and they were not helping- just making me slur my speech and lose consentration (as far as I knew) . I found out they are fatal to people with heart disease (this is extremely fatal to obese cats -that is how I found out about this side effect). If you read this it is extremely important to understand it is dangerous to go off any diazipams quickly- it can cause seizures and coma- see your doctor!!!!!! I got off of them but shaving the tablets into smaller tablets and got off them fraction by fraction.
About the bowel- I still am having good results staying on the low carb- high protien diet. I have a good idea (I might have written this) that Elvis died of spasm to the lower bowel from constipation. If His blood pressure and pain levels were any where near mine when I have this happen I am not surprised he died (with the bad heart). You see where was the doctor when I needed him then?
take care and belated happy valentines!
nanna02
02-19-2003, 06:22 AM
Hi Scottie :wave:
Thank you for your wishes. I am sure this new baby (due to arrive in 2 days time ) will make all the difference to how I feel, it will be wonderful!. :angel:
I went to the Pain Clinic today , unexpected appt. for 2 hours. they were very nice people, and gave me a chance to explain what was happening in many repects concerning the whole picture , not just pain. But since I have the worst of pain under control now , I felt it was a wee bit late , ( not their fault tho, just so many on the waiting list to be seen) but I am in the System if any further pain or problemss go out of control , so that was very reassuring ! :)
Any way , Hi to everyone else who reads this , who remembers me .. I'm thinking of you All, my very Special Friends !!.. http://www.healthboards.com/ubb/heart.gif
Take Care .. Love Belle NZ :) xxx
Thank you for your wishes. I am sure this new baby (due to arrive in 2 days time ) will make all the difference to how I feel, it will be wonderful!. :angel:
I went to the Pain Clinic today , unexpected appt. for 2 hours. they were very nice people, and gave me a chance to explain what was happening in many repects concerning the whole picture , not just pain. But since I have the worst of pain under control now , I felt it was a wee bit late , ( not their fault tho, just so many on the waiting list to be seen) but I am in the System if any further pain or problemss go out of control , so that was very reassuring ! :)
Any way , Hi to everyone else who reads this , who remembers me .. I'm thinking of you All, my very Special Friends !!.. http://www.healthboards.com/ubb/heart.gif
Take Care .. Love Belle NZ :) xxx
Debbie2
02-19-2003, 08:29 AM
Can't wait to read the news Belle that your grand baby has arrived. Seems you have still be struggling on your way, but as always, still making some progress. Big hopes for your brace, you keep posting... have a great day Belle, you are a dear friend to many. Off to work now, been snowed in for days.
Debbie
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Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
Debbie
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Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.