joprud
04-04-2003, 04:35 PM
Hi Sweety,
I hope our not hearing from you just means you're busy fighting the good fight (as Teri says). My thoughts are with you constantly. I just said to my hubby yesterday how I just couldn't get you off my mind. I hope we hear from you soon. I will continue to try to come up with some ideas and ask around. You are so loved and well thought of. I miss you.
Take Care Hon, :wave:
Joanne
I hope our not hearing from you just means you're busy fighting the good fight (as Teri says). My thoughts are with you constantly. I just said to my hubby yesterday how I just couldn't get you off my mind. I hope we hear from you soon. I will continue to try to come up with some ideas and ask around. You are so loved and well thought of. I miss you.
Take Care Hon, :wave:
Joanne
Sponsor
winged phantom
04-05-2003, 09:47 AM
(Sorry, see below)
[This message has been edited by winged phantom (edited 04-05-2003).]
[This message has been edited by winged phantom (edited 04-05-2003).]
winged phantom
04-05-2003, 09:49 AM
Hi Mel, :angel:,
I'll add my voice here to Joanne's: we miss seeing you and hope averything is alright up your way. I hope you can feel all the positive chi flowing over and around you. http://www.healthboards.com/ubb/love2.gif Actually, I guess that can't happen, since chi is within your own body. But there are other positive, electrical forces all headed your way.
wr
I'll add my voice here to Joanne's: we miss seeing you and hope averything is alright up your way. I hope you can feel all the positive chi flowing over and around you. http://www.healthboards.com/ubb/love2.gif Actually, I guess that can't happen, since chi is within your own body. But there are other positive, electrical forces all headed your way.
wr
franjo
04-05-2003, 06:00 PM
Mel,
I can't get you off my mind either. I hope you'll be posting soon to keep us on top of how you're feeling. Please don't get discouraged. You have fought so hard, and I believe this will all somehow come together toward the good. Praying for opened doors.... :angel:
http://www.healthboards.com/ubb/heart.gif Teri
I can't get you off my mind either. I hope you'll be posting soon to keep us on top of how you're feeling. Please don't get discouraged. You have fought so hard, and I believe this will all somehow come together toward the good. Praying for opened doors.... :angel:
http://www.healthboards.com/ubb/heart.gif Teri
charlotte1
04-06-2003, 01:05 AM
Mel
I can't even imagine how frustrated and afraid you must feel right now. If you were here we would help you fight this fight. Even though were not there in person please know that we really do exist and we really do care what happens to you. You've got to have that feeling of wanting someone to just take care of this for you and we would if it was even remotely possible right now. I know I've felt that way many times and I've not had half of the *&^% that you've gone thru.
Keep fighting Melford. :D
love
another friend
I can't even imagine how frustrated and afraid you must feel right now. If you were here we would help you fight this fight. Even though were not there in person please know that we really do exist and we really do care what happens to you. You've got to have that feeling of wanting someone to just take care of this for you and we would if it was even remotely possible right now. I know I've felt that way many times and I've not had half of the *&^% that you've gone thru.
Keep fighting Melford. :D
love
another friend
Debbie2
04-06-2003, 01:22 AM
Mel,
I'm here waiting too!
Debbie
------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
I'm here waiting too!
Debbie
------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
joprud
04-06-2003, 04:32 PM
MEL, I'm going crazy here!!! I'm such a worrywart when it comes to people I care about. I wish I knew how to find you...I swear, if you lived in a small town I'd be knocking on every door. Unfortunately, Welland is just a wee bit too big for that. I know it's only been four days...but it seems like forever. Hope to hear from ya soon. :)
Joanne :wave:
Joanne :wave:
melanie dawn
04-06-2003, 09:24 PM
hi everybody,
sorry to be away for so long. Between the way I was feeling emotionally and physically, i wasn't sure what to write about without being a big bummer. So i kept my mouth shut, hard to believe! :D
Then we had the transformer behind our house blow, and i mean blow at approx. 6 am. Whole top of the pole broke off, so lots of computer trouble this week. Everything is up and running again.
Thank you all for all of your wonderful thoughts and caring. You mean so much to me. I haven't I am afraid done anything since my last post, because I dont know where to begin. So far I have done it iall, I seem to be running out of steam and ideas. I do see my PCP in Am. I know he wont have any ideas, but I've got to try.
All I need is one specialist here who agrees that I need this procedure ASAP, and within the next 5 days to have my surgery. The wait lists here are months long, so I have accepted the fact that there will be no surgery for me in May. But I just dont have any contacts or strings left to pull to find the right person to see here, I am terrified of getting another one of those , anti MVA docs who just says everything is fine and gives you the bums rush.
Anyhow, thank you all so much my friends, what would i do without you. I have missed you all so much while this system has been down. I can't describe what it is that you do for me, i sont have big enough words to cover it. You are always in my thoughts, Love mel
sorry to be away for so long. Between the way I was feeling emotionally and physically, i wasn't sure what to write about without being a big bummer. So i kept my mouth shut, hard to believe! :D
Then we had the transformer behind our house blow, and i mean blow at approx. 6 am. Whole top of the pole broke off, so lots of computer trouble this week. Everything is up and running again.
Thank you all for all of your wonderful thoughts and caring. You mean so much to me. I haven't I am afraid done anything since my last post, because I dont know where to begin. So far I have done it iall, I seem to be running out of steam and ideas. I do see my PCP in Am. I know he wont have any ideas, but I've got to try.
All I need is one specialist here who agrees that I need this procedure ASAP, and within the next 5 days to have my surgery. The wait lists here are months long, so I have accepted the fact that there will be no surgery for me in May. But I just dont have any contacts or strings left to pull to find the right person to see here, I am terrified of getting another one of those , anti MVA docs who just says everything is fine and gives you the bums rush.
Anyhow, thank you all so much my friends, what would i do without you. I have missed you all so much while this system has been down. I can't describe what it is that you do for me, i sont have big enough words to cover it. You are always in my thoughts, Love mel
joprud
04-06-2003, 11:00 PM
MEL....WOOHOO.... http://www.healthboards.com/ubb/dance.gif ....YOU'RE BACK
Please don't keep your mouth shut....I'll worry....It doesn't matter what you talk about as long as we hear from you. :)
Have you had a chance to read the other thread...there were a few ideas there...don't know if they're any help at all. Hopefully you can make your PCP listen and understand. http://www.healthboards.com/ubb/hammer.gif I know there have been times when I've thought of going down the street to the hospital and lying down on the floor and telling them I'm not moving until someone helps me.
Best of luck tomorrow. http://www.healthboards.com/ubb/t_up.gif
Joanne :wave:
Please don't keep your mouth shut....I'll worry....It doesn't matter what you talk about as long as we hear from you. :)
Have you had a chance to read the other thread...there were a few ideas there...don't know if they're any help at all. Hopefully you can make your PCP listen and understand. http://www.healthboards.com/ubb/hammer.gif I know there have been times when I've thought of going down the street to the hospital and lying down on the floor and telling them I'm not moving until someone helps me.
Best of luck tomorrow. http://www.healthboards.com/ubb/t_up.gif
Joanne :wave:
franjo
04-07-2003, 02:09 AM
Mel,
I'm so glad you're posting and back online again. And I can't stand it that I'll be gone until Thurs. and won't be able to hear what your doctor says Mon. morning. I'll be praying that God moves his heart to champion your cause. Maybe he knows a trick or two to get everything back on track.
How've you been feeling? Have the headaches stayed away?
I'll be thinking of you tomorrow and praying for you always.
Love, Teri
I'm so glad you're posting and back online again. And I can't stand it that I'll be gone until Thurs. and won't be able to hear what your doctor says Mon. morning. I'll be praying that God moves his heart to champion your cause. Maybe he knows a trick or two to get everything back on track.
How've you been feeling? Have the headaches stayed away?
I'll be thinking of you tomorrow and praying for you always.
Love, Teri
PsychLea
04-07-2003, 02:37 AM
Bless your heart Mel http://www.healthboards.com/ubb/heart.gif
You sound so discouraged. Don't give up sweetie. I am praying for you. :angel:
------------------
God bless,
Lea
You sound so discouraged. Don't give up sweetie. I am praying for you. :angel:
------------------
God bless,
Lea
mel333
04-07-2003, 01:20 PM
Hi Mel,
It's the other Mel wishing you well. Hang in there and be here as down as you like. How are you feeling? Any feelings are important to hear about bad, good etc. I'm sure your experiencing the whole rollercoaster! You are in my prayers.
Mel
It's the other Mel wishing you well. Hang in there and be here as down as you like. How are you feeling? Any feelings are important to hear about bad, good etc. I'm sure your experiencing the whole rollercoaster! You are in my prayers.
Mel
Debbie2
04-07-2003, 01:49 PM
Mel,
Thanks for posting, I'm so sorry your not up to it here lately. But, it's beyond understandable. Please try to get together just a wee bit of effort and keep a stiff upper chin.
You're so thought of here, daily! God be with you...
Debbie
------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
Thanks for posting, I'm so sorry your not up to it here lately. But, it's beyond understandable. Please try to get together just a wee bit of effort and keep a stiff upper chin.
You're so thought of here, daily! God be with you...
Debbie
------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
melanie dawn
04-08-2003, 02:13 PM
Well everyone,
Here I am, I went to PCP yesterday and told him that the lawyer will not or cannot make referral for me, and that she states he needs to make an urgent referral for me,that this is a medical issue. Doc looks at me and says , "you know there is no such thing, these guys will get and look at it and then decide to see you whenever they get around to it, call your lawyer, I know they do this" At which point I just start crying, tell him I cant take anymore, symptoms, stress etc. He just looks at me , hands me the kleenexes and tell me to let him know what i want to do. Then he scripts me an antidepressant. Great , thanks, i probably do need one, but once again he passed the buck.
I did get the copy of the letter from ins. stating why they denied my claim, "there is no documentation to support the efforts of my Dr. trying to seek urgent help for me here" Well of course not, the Dr hasn't done this,that is why i left, he wont take care of it and make the referrals so I went to Chicago for help.If i could have gotten my pcp to do the work here i would not have had to leave.Here the pcp must refer you, that is the problem. He doesn't believe in urgent referrals. Tells me to call my lawyer again.
Talk about stuck in the middle. I dont know what to do now. I did call the lawyer yesterday, but no return call yet.
I guess the rule is dont ever have a car accident here, because you might as well have the plague the way DR's avoid you.
I dont really know what else to say, my symptoms are increasing, and i am most truly depressed now. I have fought this for so long , and I am just out of steam and ideas. Burnt out might be the right term. I've been falling alot more often, balance sucks. Now I have trouble eating because whenever i try to eat i get the hiccups. And it is totally bizzare, i was eating wine gums and realized that they were in my throat, that the swallow was incomplete, but that would be the no gag reflex, they were just there in my throat not bothering me at all.(this scares me, i could end up with food in my lungs and that is a very difficult form of pneumonia to treat, inhalation) If I talk for long, my voice gets all hoarse and crackly. So the throat problems are increasing( cranial nerve 9 and ten, glossopharyngeal and vagus), And after rubbing down the dog the other day, my arms went dead, they were so heavy it felt like a truck was on them. The same way my legs get. I have tried everything, and i'm running out of ideas here.
Sorry, i guess this just turned into another huge whiney fest, but i just feel so caught between the rock and a hard place. I hope you are all well and know my thoughts are with all of you. I hope Teri that your testing is going well and that you are not overly fatigued from it.
Love Mel
Here I am, I went to PCP yesterday and told him that the lawyer will not or cannot make referral for me, and that she states he needs to make an urgent referral for me,that this is a medical issue. Doc looks at me and says , "you know there is no such thing, these guys will get and look at it and then decide to see you whenever they get around to it, call your lawyer, I know they do this" At which point I just start crying, tell him I cant take anymore, symptoms, stress etc. He just looks at me , hands me the kleenexes and tell me to let him know what i want to do. Then he scripts me an antidepressant. Great , thanks, i probably do need one, but once again he passed the buck.
I did get the copy of the letter from ins. stating why they denied my claim, "there is no documentation to support the efforts of my Dr. trying to seek urgent help for me here" Well of course not, the Dr hasn't done this,that is why i left, he wont take care of it and make the referrals so I went to Chicago for help.If i could have gotten my pcp to do the work here i would not have had to leave.Here the pcp must refer you, that is the problem. He doesn't believe in urgent referrals. Tells me to call my lawyer again.
Talk about stuck in the middle. I dont know what to do now. I did call the lawyer yesterday, but no return call yet.
I guess the rule is dont ever have a car accident here, because you might as well have the plague the way DR's avoid you.
I dont really know what else to say, my symptoms are increasing, and i am most truly depressed now. I have fought this for so long , and I am just out of steam and ideas. Burnt out might be the right term. I've been falling alot more often, balance sucks. Now I have trouble eating because whenever i try to eat i get the hiccups. And it is totally bizzare, i was eating wine gums and realized that they were in my throat, that the swallow was incomplete, but that would be the no gag reflex, they were just there in my throat not bothering me at all.(this scares me, i could end up with food in my lungs and that is a very difficult form of pneumonia to treat, inhalation) If I talk for long, my voice gets all hoarse and crackly. So the throat problems are increasing( cranial nerve 9 and ten, glossopharyngeal and vagus), And after rubbing down the dog the other day, my arms went dead, they were so heavy it felt like a truck was on them. The same way my legs get. I have tried everything, and i'm running out of ideas here.
Sorry, i guess this just turned into another huge whiney fest, but i just feel so caught between the rock and a hard place. I hope you are all well and know my thoughts are with all of you. I hope Teri that your testing is going well and that you are not overly fatigued from it.
Love Mel
Debbie2
04-08-2003, 04:02 PM
Call the doctor in Chicago Mel. Explain (or read the above post) to him word for word what is happening to you. Maybe, just maybe he will agree to do this and wait for money after, after the surgery, after the ordeal of doctors and lawyers. Explain or write him, heck they all have faxes... fax the note. Send it email. Just beg for his mercy and get to Chicago. That is my miserable 2 cents. I'm fuming, like I do when I read what nonsense they make you go through. Then I cannot think or write the little I can :(
Please know we are here praying like mad for you...
Debbie
------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
Please know we are here praying like mad for you...
Debbie
------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
Hunnibee
04-08-2003, 04:36 PM
Dear Melanie
I sure hope you get some relief soon. I've kept up with all of your posts with great interest because my problems (symptoms, etc) are almost identical to yours......including the fact that I was in a car accident that wasn't my fault and I also feel like I'm getting a runaround from my doctors.
I haven't posted in a while because I felt so bad that I didn't want to discourage others, knowing I wouldn't have anything good to say.
I went for the ct/mylogram of my neck and back. My orthopedic doctor talked briefly about neck surgery but wants me to have another epidural in my neck first along with more pt. Says I have to much arthritis in my lower back for surgery. They tried several times to get me on a treadmill but gave up pretty quick when it was apparent that I could only "drag" my right leg. So, he sent me for blood work and I am to have a bone scan Thursday. He also wants to schedule an appointment with a psychiatrist! Says it's to help me deal with the pain...........
My pain management doctor upped my meds to oxycontin and percoset and tomorrow will do three injections in my lower back to numb some nerves. I am to log my pain afterwards and if it works, he will burn some nerves on Friday.
Everyone on this board has helped me so much with their posts. I never was a homebody and sometimes I do feel like I'm losing my mind just being couped up.
Melanie - you hang in there and be persistent! Everyone is rooting for you. Take care and God bless.
Hunnibee
I sure hope you get some relief soon. I've kept up with all of your posts with great interest because my problems (symptoms, etc) are almost identical to yours......including the fact that I was in a car accident that wasn't my fault and I also feel like I'm getting a runaround from my doctors.
I haven't posted in a while because I felt so bad that I didn't want to discourage others, knowing I wouldn't have anything good to say.
I went for the ct/mylogram of my neck and back. My orthopedic doctor talked briefly about neck surgery but wants me to have another epidural in my neck first along with more pt. Says I have to much arthritis in my lower back for surgery. They tried several times to get me on a treadmill but gave up pretty quick when it was apparent that I could only "drag" my right leg. So, he sent me for blood work and I am to have a bone scan Thursday. He also wants to schedule an appointment with a psychiatrist! Says it's to help me deal with the pain...........
My pain management doctor upped my meds to oxycontin and percoset and tomorrow will do three injections in my lower back to numb some nerves. I am to log my pain afterwards and if it works, he will burn some nerves on Friday.
Everyone on this board has helped me so much with their posts. I never was a homebody and sometimes I do feel like I'm losing my mind just being couped up.
Melanie - you hang in there and be persistent! Everyone is rooting for you. Take care and God bless.
Hunnibee
charlotte1
04-08-2003, 09:00 PM
Mel,
Can you go to the emergency room? Can the ER doc refer you - urgently? Can you get a new pcp? Help me understand your system so maybe we can come up with some ideas for you. Let us help.
love
charlotte
Can you go to the emergency room? Can the ER doc refer you - urgently? Can you get a new pcp? Help me understand your system so maybe we can come up with some ideas for you. Let us help.
love
charlotte
winged phantom
04-08-2003, 10:14 PM
Mel, I think Debbie and Charlotte both have some good suggestions; there may be others, but I haven't read all the posts. I do think there is something to trying to get the Chicago doc to do something, although maybe he won't want to cross country borders. Who know how these things work? But it's worth the try, especially since it seems apparent to me that our doctors seem to treat our cases a bit more seriously. And that's not a slam at your doctors, because I'll bet they are overworked.
Anyhow, I hope when I get back I"ll be able to read better news. I'll keep you in my thoughts, Mel.
wr http://www.healthboards.com/ubb/love2.gif
Anyhow, I hope when I get back I"ll be able to read better news. I'll keep you in my thoughts, Mel.
wr http://www.healthboards.com/ubb/love2.gif
joprud
04-10-2003, 02:13 AM
Hey Mel,
Have you had a chance to check out The College of Physicians and Surgeons of Ontario. Might be some help.
Thinking of you constantly.
Keep in touch...Please.
I care more than you could know. Wish so much that I could do more, but unfortunately my hands are tied by the guidelines (as much as I understand them and their reasons, it makes things very frustrating)
Hope to hear from you real soon. PLEASE don't give up...we need you, miss you, and care so much for you!!!
Please reply soon!!!
Joanne, :wave:
Have you had a chance to check out The College of Physicians and Surgeons of Ontario. Might be some help.
Thinking of you constantly.
Keep in touch...Please.
I care more than you could know. Wish so much that I could do more, but unfortunately my hands are tied by the guidelines (as much as I understand them and their reasons, it makes things very frustrating)
Hope to hear from you real soon. PLEASE don't give up...we need you, miss you, and care so much for you!!!
Please reply soon!!!
Joanne, :wave:
melanie dawn
04-10-2003, 02:46 PM
Well friends,
I am getting back into fighting form. Have to admit I've been feeling helpless for a while now, not like me.I hate that feeling. I'm usually a fighter and dont give up. Well, I'm back at it now!
This morning I made contact with a new lawyer, a really big firm that specializes in brain and spinal cord injury. I am hoping to hear back from them today.
I also am in the process of appealing the gov. health ins. decision. I am afraid that even doing all of this , i do not seem to have much hope at present.
I almost think that is the worst part of this whole process, is that i have lost hope. I have always been so upbeat and strong, sure that there is no obstacle that I cannot surmount. The loss of this is the saddest thing to me. But I am trying again, so that is
a good sign.
How are you all? I'm afraid I've lost touch a little and miss you all.
Thank you all for your support and encouragement and ideas. Yes I think media blitz will be my next step.
You have become a very important part of my life, and I cant express how that makes me feel.
Love Mel
I am getting back into fighting form. Have to admit I've been feeling helpless for a while now, not like me.I hate that feeling. I'm usually a fighter and dont give up. Well, I'm back at it now!
This morning I made contact with a new lawyer, a really big firm that specializes in brain and spinal cord injury. I am hoping to hear back from them today.
I also am in the process of appealing the gov. health ins. decision. I am afraid that even doing all of this , i do not seem to have much hope at present.
I almost think that is the worst part of this whole process, is that i have lost hope. I have always been so upbeat and strong, sure that there is no obstacle that I cannot surmount. The loss of this is the saddest thing to me. But I am trying again, so that is
a good sign.
How are you all? I'm afraid I've lost touch a little and miss you all.
Thank you all for your support and encouragement and ideas. Yes I think media blitz will be my next step.
You have become a very important part of my life, and I cant express how that makes me feel.
Love Mel
joprud
04-11-2003, 12:09 AM
Hey Mel,
Just wanted to repeat how glad I am that your fighting spirit is back. I hope this new lawyer gives you good news when you hear from him/her, and that they are willing to help you fight the good fight. I think a media blitz as a next step is a great idea. And please if there is anything I can do PLEASE ask away. :)
Talk to ya soon, :wave:
Joanne
Just wanted to repeat how glad I am that your fighting spirit is back. I hope this new lawyer gives you good news when you hear from him/her, and that they are willing to help you fight the good fight. I think a media blitz as a next step is a great idea. And please if there is anything I can do PLEASE ask away. :)
Talk to ya soon, :wave:
Joanne
Catherine with a C
04-11-2003, 12:44 AM
Dear Melanie Dawn,
Although we have never really connected on our posts; you remain an inspiration to me!!
I am in awe of your gentle yet fighting nature.
Keep fighting the good fight.
Good thoughts & good healing vibes are sent your way!
Catherine
Although we have never really connected on our posts; you remain an inspiration to me!!
I am in awe of your gentle yet fighting nature.
Keep fighting the good fight.
Good thoughts & good healing vibes are sent your way!
Catherine