Memer
06-07-2003, 03:18 AM
Hi Guys,
I've done a search, but I didn't quite find the answers I was looking for. I still have a few questions.
1. Did most or all of your pain and other symptoms go away within a few weeks after surgery?
2. If not and you still have a lot of symptoms, how long has it been and to what degree are your symptoms now?
Thanks for any help.
[This message has been edited by Memer (edited 08-05-2003).]
I've done a search, but I didn't quite find the answers I was looking for. I still have a few questions.
1. Did most or all of your pain and other symptoms go away within a few weeks after surgery?
2. If not and you still have a lot of symptoms, how long has it been and to what degree are your symptoms now?
Thanks for any help.
[This message has been edited by Memer (edited 08-05-2003).]
Sponsor
Midge130
06-07-2003, 10:47 AM
Hi Mary!
I take it you're not doing so well. I'm very sorry! I don't have any answers, but wanted to offer my sympathy and support. I'm sure someone will come along with some answers!!
Midge
I take it you're not doing so well. I'm very sorry! I don't have any answers, but wanted to offer my sympathy and support. I'm sure someone will come along with some answers!!
Midge
Memer
06-07-2003, 11:33 AM
Hi Midge,
I'm not so subtle, am I. The neck and arm have been giving me a hard time. I'm a little reluctant to say too much, and that's why I started this thread. Thank you so much for lending an ear. It's great to have you here. Good day for a picnic. I hear birds singing.
[This message has been edited by Memer (edited 08-05-2003).]
I'm not so subtle, am I. The neck and arm have been giving me a hard time. I'm a little reluctant to say too much, and that's why I started this thread. Thank you so much for lending an ear. It's great to have you here. Good day for a picnic. I hear birds singing.
[This message has been edited by Memer (edited 08-05-2003).]
LadyRedFoxxx
06-07-2003, 12:26 PM
Mary, just wanted to tell you I had the exact surgery in the exact levels as you did in October 2002. It took me 4 months post Op till I felt pain free but It DID hapen, from January to present I was doing wonderfully and bragged to everyone about the surgery , how the recovery was long but worth it and how good I felt, and I truly did, so know this, you are only 2 months post op, I was just getting out of my neck bacre at 2 months, My dtr made me stay in it for 8 weeks regardless of the fact that i was plated. I am having serious problems again, and I might have herinated another disck,I will know for sure this week after my MRI, I am very dissapointed, worried, sad and sucidal over it. I have a feeling this is because I am such a dare-devil never sit still kind of girl, I beleive my first surgery was a major success and yours will be to, dont be like me TAke it easy for at least a year! Regardless of what your Dtr say. Mine told me in Jaunuary to go back to my job as a waitress and go back to the gym and gave me no restrictions, now he is yelling at me and scaring me telling me I should have taken it easy and that I probaly herinated another disk. take care of your self!!!!!!!! LoriXXXXXXXXX
------------------
Double fusionC5-7 with own bone and plate Oct3,2002
------------------
Double fusionC5-7 with own bone and plate Oct3,2002
IonMan
06-07-2003, 01:09 PM
Mary,
I did not have a lot of pain prior to surgery, but I did have a lot numbness. Almost immediatly after the surgery much of the numbness has returned to normal feeling. (Back of arms, back of hands, bottom of feet, also the clumsyness when walking & turniung seems to be better, and even some of the dexterity issues in my hands seem better. Knuckes still feel tight/stiff. a couple of toes are still numb & I still have some numbness in my fingers & fingertips.)
As for keeping your troubles to yourself, I say Nay, this is one of the best places for you to talk about them. I feel that we want to know the sucesses & the problems. The more we know the better informed we are.
Cheers
Cliff
------------------
Cervical myelopathy with frank cord compression from bony impingement.
22 Apr 03 C5 corpectomy, a C4/6 strut graft with allograft bone & titanium hardware.
15 May 03 Heart Attack, 16 May 03 Balloon Angioplasty & Stent implanted.
I did not have a lot of pain prior to surgery, but I did have a lot numbness. Almost immediatly after the surgery much of the numbness has returned to normal feeling. (Back of arms, back of hands, bottom of feet, also the clumsyness when walking & turniung seems to be better, and even some of the dexterity issues in my hands seem better. Knuckes still feel tight/stiff. a couple of toes are still numb & I still have some numbness in my fingers & fingertips.)
As for keeping your troubles to yourself, I say Nay, this is one of the best places for you to talk about them. I feel that we want to know the sucesses & the problems. The more we know the better informed we are.
Cheers
Cliff
------------------
Cervical myelopathy with frank cord compression from bony impingement.
22 Apr 03 C5 corpectomy, a C4/6 strut graft with allograft bone & titanium hardware.
15 May 03 Heart Attack, 16 May 03 Balloon Angioplasty & Stent implanted.
janie francine
06-07-2003, 04:19 PM
Hi Mary,
I'm so sad :( that you're feeling blue. You're one of my favorites on the board because you're always here to pick up anyone who needs it and because you have a great sense of humor and are able to laugh at yourself. My feeling about posting not-so-good news is that I'm glad to have it. I want to have as much info as I can about what can go on after surgery, good and bad. I also want to know when any of you are suffering so I can at least wish you well and say an extra prayer. That's what friends are for - the good and bad times. So on that note I'm sending you a funny one from my niece. Hope it cheers you up a bit.
An airline's passenger cabin was being served by an obviously gay flight attendant, who put everyone in a good mood as he served food and drinks. As the plane prepared to descend, he came swishing down the aisle and announced to the passengers, "Captain Marvey has asked me to announce that he'll be landing the big scary plane shortly, lovely people, so if you could put up your trays that would be super." On his trip back up the aisle, he noticed that a well-dressed, rather exotic looking woman hadn't moved a muscle. "Perhaps you didn't hear me over those big brute engines. I asked you to raise your trazy-poo so the main man can pitty-pat us on the ground." She calmly turned her head and said, "In my country, I am called a princess. I take orders from no one." To which he answered, without missing a beat, "Well, sweet-cheeks, in my country I'm called a queen, so I outrank you. Tray-up *itch." :D
Hope you liked it.
Jeanine
I'm so sad :( that you're feeling blue. You're one of my favorites on the board because you're always here to pick up anyone who needs it and because you have a great sense of humor and are able to laugh at yourself. My feeling about posting not-so-good news is that I'm glad to have it. I want to have as much info as I can about what can go on after surgery, good and bad. I also want to know when any of you are suffering so I can at least wish you well and say an extra prayer. That's what friends are for - the good and bad times. So on that note I'm sending you a funny one from my niece. Hope it cheers you up a bit.
An airline's passenger cabin was being served by an obviously gay flight attendant, who put everyone in a good mood as he served food and drinks. As the plane prepared to descend, he came swishing down the aisle and announced to the passengers, "Captain Marvey has asked me to announce that he'll be landing the big scary plane shortly, lovely people, so if you could put up your trays that would be super." On his trip back up the aisle, he noticed that a well-dressed, rather exotic looking woman hadn't moved a muscle. "Perhaps you didn't hear me over those big brute engines. I asked you to raise your trazy-poo so the main man can pitty-pat us on the ground." She calmly turned her head and said, "In my country, I am called a princess. I take orders from no one." To which he answered, without missing a beat, "Well, sweet-cheeks, in my country I'm called a queen, so I outrank you. Tray-up *itch." :D
Hope you liked it.
Jeanine
Webmerlin
06-08-2003, 04:31 AM
Hi, all. New member and first time poster here.
Have been told I'm a candidate for surgery for a worsening cervical stenosis, C-3 thru C-6 (MRI).
Was nosing around the web and came across a site for the "Jho Institute for Minimally Invasive Neurosurgery" at: http://drjho.com/cervical_stenosis_surgery.htm
Anybody have any insights on that outfit, doctor and/or procedure? Don't want to get into grasping at straws for alternatives to the fusings and loss of mobility conventional surgical procedures all seem to offer, but what they are describing on that web page has a good deal of appeal. Too good to be for real?
Loss of sensation in thumbs and fingers seems to be increasing in the past month or so with some loss of digital dexterity and a noticeable weakening of grip and arm strength (both).
Recent physician advisement that prolonged numbness might result in permanent damage, even after corrective surgery if let go too long, means decision time is coming up soon. Apointment with a second opinion neurosurgeon is 1 July, but that would surely just be for discussing best procedure, not whether surgery is indicated.
Thanks for any feedback and advice, and here's wishing you all Godspeed in your mending -- and hey, maybe even a leetle miracle here and there, wot?
Phileos!
Steve
Have been told I'm a candidate for surgery for a worsening cervical stenosis, C-3 thru C-6 (MRI).
Was nosing around the web and came across a site for the "Jho Institute for Minimally Invasive Neurosurgery" at: http://drjho.com/cervical_stenosis_surgery.htm
Anybody have any insights on that outfit, doctor and/or procedure? Don't want to get into grasping at straws for alternatives to the fusings and loss of mobility conventional surgical procedures all seem to offer, but what they are describing on that web page has a good deal of appeal. Too good to be for real?
Loss of sensation in thumbs and fingers seems to be increasing in the past month or so with some loss of digital dexterity and a noticeable weakening of grip and arm strength (both).
Recent physician advisement that prolonged numbness might result in permanent damage, even after corrective surgery if let go too long, means decision time is coming up soon. Apointment with a second opinion neurosurgeon is 1 July, but that would surely just be for discussing best procedure, not whether surgery is indicated.
Thanks for any feedback and advice, and here's wishing you all Godspeed in your mending -- and hey, maybe even a leetle miracle here and there, wot?
Phileos!
Steve
donteventhinkaboutit
06-08-2003, 08:32 AM
hi mary,
i have had a laminectomy in 98. c5-6,c6-7 i was so happy when my surgery was over cause the pain and numbness was doing quite a job on me. well the was feb 98, i was cleared to go back to work in sept. 98 because even though i still had pain, my doctor said it was ok for me to go back to work. well in oct. 98 i was rear-ended by a bus. never had an accident before this (been driving 25 years) well back to the doc i go and still i was told everything was fine even though i still complained of pain. well before long my neck started swelling up on the back area of my neck (looked like little quazzy lol) but of course there was nothing wrong with me. it was all in my head. even though i had the physical proof (swelling)
anyway i try very hard to let the docs know that i am in pain but i was never one to complain and always kept everything inside. the ole take it like a man.
so i think as hard as it may be everyone should let everyone know how terrible they really feel. even though this is very hard for me i do try!!
well back to my swelling neck i went to different docs and i was told that i should just soak in the tub and take ibprophen. i was treated terrible by quite a few docs. they always treated me like i was just wanting pain pills. i was very hurt and this caused me to slip into such a depression. anyway i followed advise and went home and soaked in the tub well don't you know i was just making my self comfortable when i heard such a loud crack it scared the heck out of me. but i didn't hurt right away but within an hour i was doubled over and in extreme pain. went to the er and was told i had a fracture even though i complained all the time about being in pain i was told over and over again that there was nothing wrong with me. i think a fracture is something, wouldn't you say. anyway my doc told me that the fracture had nothing to do with the pain i have been having, imagine!! so i continually got the i am fine and nothing is wrong. of course i was given a months supply of pain meds.
well i have had pain for a long long long time, that i actually started to see a shrink thinking if no one else says i am in pain maybe it is in my head. lol
it is so amazing how i let people tell me that i was not in pain even though i know my body i started to believe them that i was nuts.
well to get to the end of this i finally went to another hosp (without my med. file this time) figuring there must be something bad in that file cause i just kept getting treated very badly.
the new hosp. within a couple of hours found and showed me where my pain was coming from. this whole time my fusion between c6-7 has never healed and my neck has been unstable ever since. so i will be going in for more surgery but this doesn't bother me at this point cause i am so elated that i am not NUTS i just cant believe it. so i say tell these docs that you are in pain when you are in pain and tell them to the exact extent. don't let them treat you like i have been treated all this time.
i hope all will go well with you this time around. it is a very long path and with this board and the people here we all can get through this with more questions answered here on this board than from our own docs.
i love the fact that we can talk with people that have been through the same surgery. because even though family tries to be supportive, ya just tend to feel like they have no clue as to what i am talking about.
i hope this isn't too long
and somewhat helpful
http://www.healthboards.com/ubb/dizzy.gif
andrea
------------------
laminectomy in 98 - bone fused between c5-6 and c6-7. used my own hip bone and have a titamium plate w/6 screws
i have had a laminectomy in 98. c5-6,c6-7 i was so happy when my surgery was over cause the pain and numbness was doing quite a job on me. well the was feb 98, i was cleared to go back to work in sept. 98 because even though i still had pain, my doctor said it was ok for me to go back to work. well in oct. 98 i was rear-ended by a bus. never had an accident before this (been driving 25 years) well back to the doc i go and still i was told everything was fine even though i still complained of pain. well before long my neck started swelling up on the back area of my neck (looked like little quazzy lol) but of course there was nothing wrong with me. it was all in my head. even though i had the physical proof (swelling)
anyway i try very hard to let the docs know that i am in pain but i was never one to complain and always kept everything inside. the ole take it like a man.
so i think as hard as it may be everyone should let everyone know how terrible they really feel. even though this is very hard for me i do try!!
well back to my swelling neck i went to different docs and i was told that i should just soak in the tub and take ibprophen. i was treated terrible by quite a few docs. they always treated me like i was just wanting pain pills. i was very hurt and this caused me to slip into such a depression. anyway i followed advise and went home and soaked in the tub well don't you know i was just making my self comfortable when i heard such a loud crack it scared the heck out of me. but i didn't hurt right away but within an hour i was doubled over and in extreme pain. went to the er and was told i had a fracture even though i complained all the time about being in pain i was told over and over again that there was nothing wrong with me. i think a fracture is something, wouldn't you say. anyway my doc told me that the fracture had nothing to do with the pain i have been having, imagine!! so i continually got the i am fine and nothing is wrong. of course i was given a months supply of pain meds.
well i have had pain for a long long long time, that i actually started to see a shrink thinking if no one else says i am in pain maybe it is in my head. lol
it is so amazing how i let people tell me that i was not in pain even though i know my body i started to believe them that i was nuts.
well to get to the end of this i finally went to another hosp (without my med. file this time) figuring there must be something bad in that file cause i just kept getting treated very badly.
the new hosp. within a couple of hours found and showed me where my pain was coming from. this whole time my fusion between c6-7 has never healed and my neck has been unstable ever since. so i will be going in for more surgery but this doesn't bother me at this point cause i am so elated that i am not NUTS i just cant believe it. so i say tell these docs that you are in pain when you are in pain and tell them to the exact extent. don't let them treat you like i have been treated all this time.
i hope all will go well with you this time around. it is a very long path and with this board and the people here we all can get through this with more questions answered here on this board than from our own docs.
i love the fact that we can talk with people that have been through the same surgery. because even though family tries to be supportive, ya just tend to feel like they have no clue as to what i am talking about.
i hope this isn't too long
and somewhat helpful
http://www.healthboards.com/ubb/dizzy.gif
andrea
------------------
laminectomy in 98 - bone fused between c5-6 and c6-7. used my own hip bone and have a titamium plate w/6 screws
usanda
06-08-2003, 12:30 PM
Hi Mary,
Have mine done c5,6,7 with doner bone & plate on 2/03. still having lots of pain,after 8 weeks pain free, was prescribe to do emg, negative result. have ct myelogram 3-weeks ago get the result back few days later. and it said.
"at the level of c5-6, there has been anterior cervical fusion with plate & screws placed in the anterior aspect of c5 and c6 vertebral bodies. there is no displacement of the plate & screws. there is 3-4mm central osteophytic spurring with narrowing of the ap dimension of the thecal sac to approximately 8mm. there is conturing of the ventral aspect of the cervical spinal cord. there is left uncovertebral hypetrophy with mild to moderate left neural foraminal narrowing. right neural foramen is not narrowed. there is adequate incorporation of the bone plug to the inferior endplate of c5 and superior endplate of c6 vertebral bodies."
also my c3-4 is 3mm and c4-5 is 3mm central disc protrusion.
still having a lot of pain, will see my os tomorrow, I dont want another one or maybe need 2 more surgery.
Will find out tomorrow what the doc will say about it.
Have mine done c5,6,7 with doner bone & plate on 2/03. still having lots of pain,after 8 weeks pain free, was prescribe to do emg, negative result. have ct myelogram 3-weeks ago get the result back few days later. and it said.
"at the level of c5-6, there has been anterior cervical fusion with plate & screws placed in the anterior aspect of c5 and c6 vertebral bodies. there is no displacement of the plate & screws. there is 3-4mm central osteophytic spurring with narrowing of the ap dimension of the thecal sac to approximately 8mm. there is conturing of the ventral aspect of the cervical spinal cord. there is left uncovertebral hypetrophy with mild to moderate left neural foraminal narrowing. right neural foramen is not narrowed. there is adequate incorporation of the bone plug to the inferior endplate of c5 and superior endplate of c6 vertebral bodies."
also my c3-4 is 3mm and c4-5 is 3mm central disc protrusion.
still having a lot of pain, will see my os tomorrow, I dont want another one or maybe need 2 more surgery.
Will find out tomorrow what the doc will say about it.
melanie dawn
06-08-2003, 03:06 PM
Hi Webmerlin,
I just wanted to say welcome aboard, this a great spiney family. All of the different backgrounds and experiences provide a wealth of info and support.
I also have myelopathy, and yes you dont want to let things go too long. Without getting into a long story lets just say I am fighting tooth and nail for my surgery. I went from neck pain, then the right arm problems to right leg problems , and now it is all limbs. My swallowing is effected, my voice, no gag reflex.Yada yada. Just to say that the purpose of the surgery for stenosis and more specifically myelopathy is to halt the progression of the deficits. It is not to reverse them. Some reversal may happen if taken care of quickly. But the main reason is still to halt the progression of symptoms.
Do you have the hyper reflexes and spacticity? When do you see your surgeon and make some decisions?
Keep in touch, and once again welcome aboard, this is really a great place!!
Mel
------------------
Congenital Cervical Stenosis,complicated by:
Paracentral Disc herniations ,bone spurs C4/5,C5/6,C6/7
Advanced myelopathy inc. walking difficulty, loss of gag reflex with swallowing problems, neurogenic bladder, occipital neuralgia, spacticity
I just wanted to say welcome aboard, this a great spiney family. All of the different backgrounds and experiences provide a wealth of info and support.
I also have myelopathy, and yes you dont want to let things go too long. Without getting into a long story lets just say I am fighting tooth and nail for my surgery. I went from neck pain, then the right arm problems to right leg problems , and now it is all limbs. My swallowing is effected, my voice, no gag reflex.Yada yada. Just to say that the purpose of the surgery for stenosis and more specifically myelopathy is to halt the progression of the deficits. It is not to reverse them. Some reversal may happen if taken care of quickly. But the main reason is still to halt the progression of symptoms.
Do you have the hyper reflexes and spacticity? When do you see your surgeon and make some decisions?
Keep in touch, and once again welcome aboard, this is really a great place!!
Mel
------------------
Congenital Cervical Stenosis,complicated by:
Paracentral Disc herniations ,bone spurs C4/5,C5/6,C6/7
Advanced myelopathy inc. walking difficulty, loss of gag reflex with swallowing problems, neurogenic bladder, occipital neuralgia, spacticity
Memer
06-08-2003, 05:45 PM
Hi Lori,
Here you are trying to comfort me, but you have so much going on yourself. I really hope you are not suicidal. Please say that isn't true. Your post scares me. Don't beat yourself up over the things you have done. Try to just take it one step at a time and see what the MRI says. Please keep posting and let us know how you are doing. I will certainly pray for you and won't stop worrying about you until you post again and let us know you're feeling better. In the meantime, try to take it easy.
I'll be looking for you, Lori.
[This message has been edited by Memer (edited 08-05-2003).]
Here you are trying to comfort me, but you have so much going on yourself. I really hope you are not suicidal. Please say that isn't true. Your post scares me. Don't beat yourself up over the things you have done. Try to just take it one step at a time and see what the MRI says. Please keep posting and let us know how you are doing. I will certainly pray for you and won't stop worrying about you until you post again and let us know you're feeling better. In the meantime, try to take it easy.
I'll be looking for you, Lori.
[This message has been edited by Memer (edited 08-05-2003).]
magtize
06-09-2003, 09:24 AM
Hi Mary
So sorry about your discomfort pray that things will get better for you.Did you talk to your Dr? If not I think I would give him a ring maybe he can tell you more or give differant meds.
I agree with Cliff and Jeanine.
Hang in there your a great inspiration to us
Thoughts and prayers
Elaine
So sorry about your discomfort pray that things will get better for you.Did you talk to your Dr? If not I think I would give him a ring maybe he can tell you more or give differant meds.
I agree with Cliff and Jeanine.
Hang in there your a great inspiration to us
Thoughts and prayers
Elaine
Memer
06-09-2003, 09:30 AM
Thanks, everyone. I was typing a long note on the same post to each of you yesterday, and I hit the wrong key and lost it all. I didn't have time to retype it.
I'm supposed to be working right now, so I'll just say:
Cliff,
You have been through so much yourself with your neck and heart, yet you still have compassion for others. I wish you were my neighbor. I'm guessing you're probably everybody's best friend over there in NW Vermont.
Jeanine,
If I haven't said it before, here goes: I'm glad you're here. Thanks for the kind words and the joke. Keep 'em coming. I can't tell a good joke because I leave things out, like the stuff that makes the punch line funny.
Usanda and Andrea,
Welcome and thanks for telling your stories. Please keep us posted. I like to know everything, the good and the bad. Andrea, you were helpful in sharing. I do know what you mean about people not understanding. That's why this board is so important. Usanda, please let us know how your appointment goes today. Thank you both.
Melanie Dawn,
I will say a special prayer for you. I feel so bad about how much you suffer. I would like to read your whole story if you feel up to typing it. Maybe you already have and could tell me where to find it.
Thanks again, all of you.
[This message has been edited by Memer (edited 06-10-2003).]
[This message has been edited by Memer (edited 08-05-2003).]
I'm supposed to be working right now, so I'll just say:
Cliff,
You have been through so much yourself with your neck and heart, yet you still have compassion for others. I wish you were my neighbor. I'm guessing you're probably everybody's best friend over there in NW Vermont.
Jeanine,
If I haven't said it before, here goes: I'm glad you're here. Thanks for the kind words and the joke. Keep 'em coming. I can't tell a good joke because I leave things out, like the stuff that makes the punch line funny.
Usanda and Andrea,
Welcome and thanks for telling your stories. Please keep us posted. I like to know everything, the good and the bad. Andrea, you were helpful in sharing. I do know what you mean about people not understanding. That's why this board is so important. Usanda, please let us know how your appointment goes today. Thank you both.
Melanie Dawn,
I will say a special prayer for you. I feel so bad about how much you suffer. I would like to read your whole story if you feel up to typing it. Maybe you already have and could tell me where to find it.
Thanks again, all of you.
[This message has been edited by Memer (edited 06-10-2003).]
[This message has been edited by Memer (edited 08-05-2003).]
Memer
06-09-2003, 09:36 AM
Elaine,
I think the two of us were typing at the same time, so I missed your post. Thank you so much.
I saw NS last week, and he said it may take a very long time to get better because of how long I had compression. He says that some of the damage could be permanent. I haven't gotten to the point that I'll accept that. I'm trying my best to get better.
I like to read everyone's story. It's really helpful for me to know I'm not alone.
You're another one, Elaine, that I'm glad is here. Right back at ya about the inspiration, thoughts, and prayers.
[This message has been edited by Memer (edited 08-05-2003).]
I think the two of us were typing at the same time, so I missed your post. Thank you so much.
I saw NS last week, and he said it may take a very long time to get better because of how long I had compression. He says that some of the damage could be permanent. I haven't gotten to the point that I'll accept that. I'm trying my best to get better.
I like to read everyone's story. It's really helpful for me to know I'm not alone.
You're another one, Elaine, that I'm glad is here. Right back at ya about the inspiration, thoughts, and prayers.
[This message has been edited by Memer (edited 08-05-2003).]
Webmerlin
06-09-2003, 11:12 AM
Hi, Melanie Dawn;
Thanks for your reply to my virgin post to this board. You said/asked: "Some reversal may happen if taken care of quickly. But the main reason is still to halt the progression of symptoms. Do you have the hyper reflexes and spacticity? When do you see your surgeon and make some decisions?"
I'm not troubled as yet with any measurable hyper-reflexes or spacticity, more at numbness and a profound weakness in fingers, grip, etc. Apointment for a second opinion about surgical procedure coming up on 1 July.
I'm still shopping around for opinions on the procedure described at the web site in my original post (above) as described by a Dr. Jho. Curious if anyone here has had any experience with that "Institute for Minimally Invasive Neurosurgery" or whether their neurosurgeon might have any opinion (recommendation, warning, etc.) about them and the procedure. No response from my referred neurosurgeon as yet regarding whether he agrees with, and possibly performs, the procedure developed by Dr. Jho.
Thanks again for your welcome aboard, Melanie Dawn. I can tell by reading that this is a quite close-knit and supportive group and that my problems are few and light by comparison. I wish you and all here the best of all possible outcomes, and a leetle miracle or two along the way. :wave:
Phileos!
Steve
Thanks for your reply to my virgin post to this board. You said/asked: "Some reversal may happen if taken care of quickly. But the main reason is still to halt the progression of symptoms. Do you have the hyper reflexes and spacticity? When do you see your surgeon and make some decisions?"
I'm not troubled as yet with any measurable hyper-reflexes or spacticity, more at numbness and a profound weakness in fingers, grip, etc. Apointment for a second opinion about surgical procedure coming up on 1 July.
I'm still shopping around for opinions on the procedure described at the web site in my original post (above) as described by a Dr. Jho. Curious if anyone here has had any experience with that "Institute for Minimally Invasive Neurosurgery" or whether their neurosurgeon might have any opinion (recommendation, warning, etc.) about them and the procedure. No response from my referred neurosurgeon as yet regarding whether he agrees with, and possibly performs, the procedure developed by Dr. Jho.
Thanks again for your welcome aboard, Melanie Dawn. I can tell by reading that this is a quite close-knit and supportive group and that my problems are few and light by comparison. I wish you and all here the best of all possible outcomes, and a leetle miracle or two along the way. :wave:
Phileos!
Steve
jdog
06-09-2003, 12:05 PM
Andrea/donteventhinkaboutit-
After all the trouble that was caused you, I hope that at least you were big enough to go back to those doctors that misdiagnosed you and introduced them to your attorney. :)
jdog (9 months and still hurt from ACDF 2 levels)
After all the trouble that was caused you, I hope that at least you were big enough to go back to those doctors that misdiagnosed you and introduced them to your attorney. :)
jdog (9 months and still hurt from ACDF 2 levels)
magtize
06-09-2003, 07:12 PM
Mary
yes we were both on at same time this morning.
Hope you are having a better day.
How long did you have compression?
Don't even think about permenant nerve damage
A friend of mine was told her son wouldn't make it through the night and and he is doing just fine so what do they know You can prove them wrong
Will pray that things start looking up for you
Elaine
yes we were both on at same time this morning.
Hope you are having a better day.
How long did you have compression?
Don't even think about permenant nerve damage
A friend of mine was told her son wouldn't make it through the night and and he is doing just fine so what do they know You can prove them wrong
Will pray that things start looking up for you
Elaine
I'd rather be Running
06-10-2003, 12:14 PM
Mary,
Sorry to hear that you are still in pain. You received many good responses to your request from people having problems post ACDF. Hopefully, the vast majority of people who have had this procedure are doing better, so they are no longer on the board giving their input. I hope that you soon become one of those former members!
Steve,
I have also looked into minimally invasive surgery. Here is what I found. Personal responses to Dr.Jho vary. I found quite a bit on him on the Harvard Neuro forum under spinal disorders. I did a search for Dr. Jho. Found one member who had a procedure, "abrger" is his member name. Very positive response. Others have commented that his procedure is not as minimally invasive as it sounds. If he needs to do boney work, the incision is still quite large. He is one of the few Neuros doing minimally invasive boney work. Dr. Stan Schiffer in San Francison also does microendoscopic discectomy, however he does not do boney work in this matter. He has many testimonials on his website. I would probably avoid Micro-Spine in Florida. They have several Orthopedic surgeons doing cervical microendoscopic disc work. When I asked for feedback on them, one doctor responded that they are very protective of their work and do not allow outside medical people to observe, which is unusual. He felt that they are just randomly experimenting on people and don't have the training to do cervical work.
Maybe we should just holdout for the artificial disc?
Holly :bouncing:
Sorry to hear that you are still in pain. You received many good responses to your request from people having problems post ACDF. Hopefully, the vast majority of people who have had this procedure are doing better, so they are no longer on the board giving their input. I hope that you soon become one of those former members!
Steve,
I have also looked into minimally invasive surgery. Here is what I found. Personal responses to Dr.Jho vary. I found quite a bit on him on the Harvard Neuro forum under spinal disorders. I did a search for Dr. Jho. Found one member who had a procedure, "abrger" is his member name. Very positive response. Others have commented that his procedure is not as minimally invasive as it sounds. If he needs to do boney work, the incision is still quite large. He is one of the few Neuros doing minimally invasive boney work. Dr. Stan Schiffer in San Francison also does microendoscopic discectomy, however he does not do boney work in this matter. He has many testimonials on his website. I would probably avoid Micro-Spine in Florida. They have several Orthopedic surgeons doing cervical microendoscopic disc work. When I asked for feedback on them, one doctor responded that they are very protective of their work and do not allow outside medical people to observe, which is unusual. He felt that they are just randomly experimenting on people and don't have the training to do cervical work.
Maybe we should just holdout for the artificial disc?
Holly :bouncing: