mel333
07-31-2003, 11:51 AM
Hi everyone,
Just wanted to say that after being a bit emotional and sore for a week(post op) I am feeling a bit better and ready to get on with it! I am still having the pain fronm the incision and the headaches but I am excited as my NS said I can do prity much anything as I feel up to it. I recommend this ADR to anyone considering surgery although I know it's difficult with the trial in the U.S for you guys. I feel it's amazing I can turn my neck normally and move about. I am still nervous about swinging from the rafters yet feeling like I may get there sooner than I thought. The only problem is that my posture is still not good so I have to concentrate on standing tall. If anyone else has this reverse lordosis let me know of any ideas. Hope everyone is doing well.
Mel
Just wanted to say that after being a bit emotional and sore for a week(post op) I am feeling a bit better and ready to get on with it! I am still having the pain fronm the incision and the headaches but I am excited as my NS said I can do prity much anything as I feel up to it. I recommend this ADR to anyone considering surgery although I know it's difficult with the trial in the U.S for you guys. I feel it's amazing I can turn my neck normally and move about. I am still nervous about swinging from the rafters yet feeling like I may get there sooner than I thought. The only problem is that my posture is still not good so I have to concentrate on standing tall. If anyone else has this reverse lordosis let me know of any ideas. Hope everyone is doing well.
Mel
Sponsor
KeithEugeneW
07-31-2003, 12:10 PM
Mel,
This is awesome, I suspected you'd be recovering quickly based on the research I've done on ADR, and was hoping it would bear out. I'm so happy for you. I'll bet all those pre-surgery jitters seem kind of funny to you now, don't they? Of course, it's always easy to say once on you're on the other side of a big event like that. Congratulations on your success! :D
Keith
This is awesome, I suspected you'd be recovering quickly based on the research I've done on ADR, and was hoping it would bear out. I'm so happy for you. I'll bet all those pre-surgery jitters seem kind of funny to you now, don't they? Of course, it's always easy to say once on you're on the other side of a big event like that. Congratulations on your success! :D
Keith
mel333
07-31-2003, 12:15 PM
Hi,
AJ,
Thanks for the prayers and there were many being said before the surgery which I beleive has helped me heal fairly quickly. I also gave up smoking which also helped.
Keith,
Your research is spot on. Your right also, I did feel like a worried lunatic before and after one day I could walk around fine in hospital which surprised everyone. I am still a bit weak and have some headaches but I went to the shops today with my mum and felt quite good wandering around. I would definetly recommend this ADR to anyone if they thought surgery was a good option at some point. Hope your well,
Mel
AJ,
Thanks for the prayers and there were many being said before the surgery which I beleive has helped me heal fairly quickly. I also gave up smoking which also helped.
Keith,
Your research is spot on. Your right also, I did feel like a worried lunatic before and after one day I could walk around fine in hospital which surprised everyone. I am still a bit weak and have some headaches but I went to the shops today with my mum and felt quite good wandering around. I would definetly recommend this ADR to anyone if they thought surgery was a good option at some point. Hope your well,
Mel
firefighter_101
07-31-2003, 12:45 PM
Hello Mel,
It great to hear your doing so well after your surgery. Your news gives us hope that this is the surgery of the future. I know it sure beats what I had.
I do have one request from you Mel, may I please have a picture of you swinging from the rafters when you do it? :D
Great to know you better,
Harvey
It great to hear your doing so well after your surgery. Your news gives us hope that this is the surgery of the future. I know it sure beats what I had.
I do have one request from you Mel, may I please have a picture of you swinging from the rafters when you do it? :D
Great to know you better,
Harvey
AngelicMoon
07-31-2003, 01:41 PM
Mel~
How wonderful to hear! Please do take it easy though ok? Get the rest you need and STOP if pain starts.
(you can tell I'm a mom *LOL*)
I hope you continue on your road to recovery quickly.
:angel:
How wonderful to hear! Please do take it easy though ok? Get the rest you need and STOP if pain starts.
(you can tell I'm a mom *LOL*)
I hope you continue on your road to recovery quickly.
:angel:
catgirl
07-31-2003, 02:25 PM
Mel,
I'm so glad you are doing so well and that your pre-surgery jitters are behind you. I think it's fantastic that were feeling so well just 1 week post-op. You give those of us who might be facing surgery in the future good news & the reserve to hold out until it becomes available in our area. But most of all I'm just happy for you & that it is working out so well for you.
Oh & BTW, after Firefighter is done with the picture of you swinging from the rafters, I want to see it too, LOL. :D Cat
I'm so glad you are doing so well and that your pre-surgery jitters are behind you. I think it's fantastic that were feeling so well just 1 week post-op. You give those of us who might be facing surgery in the future good news & the reserve to hold out until it becomes available in our area. But most of all I'm just happy for you & that it is working out so well for you.
Oh & BTW, after Firefighter is done with the picture of you swinging from the rafters, I want to see it too, LOL. :D Cat
BABS42
07-31-2003, 03:00 PM
MEL Its nice to hear that you are doing so well so soon after surgery. You should take it easy though, so that you continue to do well. Could someone please tell me what ADR is? Thanks Babs
tool
07-31-2003, 03:52 PM
Hi Mel,
Great to hear about the Artificial Disc Replacement (for Babs: http://www.spinalneurosurgery.com/artificial_disc_resources.htm ).
I notice you're in Austalia too. Did Lali Sekhon do the surgery or someone else? I had William Sears for a few of my ops - he's at Dalcross with Dr Sekhon.
Where do you live? I'm in Hobart now but I was in Sydney up until a little over 3 years ago.
It's always good to hear positive news especially on a new proceedure, although it has been out here for some time now.
I have my fingers crossed for you
- Gail
ps How did you give up smoking... its my downfall and probably the only thing that keeps me sane most days :)
Great to hear about the Artificial Disc Replacement (for Babs: http://www.spinalneurosurgery.com/artificial_disc_resources.htm ).
I notice you're in Austalia too. Did Lali Sekhon do the surgery or someone else? I had William Sears for a few of my ops - he's at Dalcross with Dr Sekhon.
Where do you live? I'm in Hobart now but I was in Sydney up until a little over 3 years ago.
It's always good to hear positive news especially on a new proceedure, although it has been out here for some time now.
I have my fingers crossed for you
- Gail
ps How did you give up smoking... its my downfall and probably the only thing that keeps me sane most days :)
DepecheJan
07-31-2003, 04:26 PM
Hey Mel,
Glad to hear you are doing so well one-week post op and that your pre-surgery jitters are a thing of the past. I tried to get the ADR in the states, but was turned down for the clinical trial. Apparently I am not in enough pain. Oh well. I am just happy that you were able to get it and that it seems to be working out for you. Just remember to take it easy for awhile. Post when you can. Take care.
Jan :wave:
Glad to hear you are doing so well one-week post op and that your pre-surgery jitters are a thing of the past. I tried to get the ADR in the states, but was turned down for the clinical trial. Apparently I am not in enough pain. Oh well. I am just happy that you were able to get it and that it seems to be working out for you. Just remember to take it easy for awhile. Post when you can. Take care.
Jan :wave:
Cathric
07-31-2003, 09:05 PM
Mel,
Sure glad to hear that you are feeling so much better. Keep healing!
Hugs,
Cathric
Sure glad to hear that you are feeling so much better. Keep healing!
Hugs,
Cathric
Bellybuttonlover
07-31-2003, 09:37 PM
My dear sweet Midge~~~down under.......
I have been meaning to jot you........
sorry for the delay!!
Life stuff!!
I have thought of you often........
Be gentle with yourself!!
Know that you are loved!
touch your bellybutton & smile!
BBL
I have been meaning to jot you........
sorry for the delay!!
Life stuff!!
I have thought of you often........
Be gentle with yourself!!
Know that you are loved!
touch your bellybutton & smile!
BBL
mel333
08-01-2003, 12:43 PM
Hi everyone,
Thanks for all the inspiring good wishes, I am sure they are helping me heal quickly.
Harvey,
I will be swinging from the rafters as soon as possible but better wait another week unfortunately, although I am rather tempted.
Anglicmoon,
Hope your headaches are a bit better and thanks for the reminder to take it easy, good point.
Cat,
I am trying to take it easy and ofcause a huge picture will be posted of me and my swinging rafter activites!
Babs,
I hope you looked at the site posted by Gail. ADR is the artificial titanium and polyurethene disc replacement that mimics normal neck movement and cushions axial loading from the spine(ie, supports as best as possible). Have a read it is interesting stuff.
Gail,
Hi, I did have William Sears do my surgery last week and he was absolutely brilliant. I was assured from numerous dr's he is the best in this area and I am so far very pleased with the results. What surgeries did you have with him?
Jan,
Maybe in time you will be a candidate. I know if you were in Australia it would be more than likely you would be able to have the surgery even with 2 levels providing they are next to eachother. If you feel like travelling, I hear people do just to get the disc now days. How is the MSM going?
Cathric,
Thanks for the wishes. I am trying to rest and do get tires really easily still. How is your throat going?have the dr's helped yet?
BBL,
Thanks for the wishes and it's Mel, although I like the name Midge and she does seem very nice so don't mind the confusion. I will hopefully be doing handstands soon and looking at my bellybutton!
Mel
Thanks for all the inspiring good wishes, I am sure they are helping me heal quickly.
Harvey,
I will be swinging from the rafters as soon as possible but better wait another week unfortunately, although I am rather tempted.
Anglicmoon,
Hope your headaches are a bit better and thanks for the reminder to take it easy, good point.
Cat,
I am trying to take it easy and ofcause a huge picture will be posted of me and my swinging rafter activites!
Babs,
I hope you looked at the site posted by Gail. ADR is the artificial titanium and polyurethene disc replacement that mimics normal neck movement and cushions axial loading from the spine(ie, supports as best as possible). Have a read it is interesting stuff.
Gail,
Hi, I did have William Sears do my surgery last week and he was absolutely brilliant. I was assured from numerous dr's he is the best in this area and I am so far very pleased with the results. What surgeries did you have with him?
Jan,
Maybe in time you will be a candidate. I know if you were in Australia it would be more than likely you would be able to have the surgery even with 2 levels providing they are next to eachother. If you feel like travelling, I hear people do just to get the disc now days. How is the MSM going?
Cathric,
Thanks for the wishes. I am trying to rest and do get tires really easily still. How is your throat going?have the dr's helped yet?
BBL,
Thanks for the wishes and it's Mel, although I like the name Midge and she does seem very nice so don't mind the confusion. I will hopefully be doing handstands soon and looking at my bellybutton!
Mel
BABS42
08-04-2003, 04:17 PM
Hi Mel, I did read up on the ADR It seems to be much better than plates and screws. It doesnt seem to be available in the US yet, except for those who qualify on a research basis. I wont, I dont have a tremendous amount of pain, mainly numbness and weird things. How exciting that you received this particular type of surgery (ADR). It sure sems to be a good choice, considering the long run and flexiblity. I hope you are feeling well. Take care and take it slow.... dont over do it!!
Thanks Tool for posting the ADR info...
Babs
Thanks Tool for posting the ADR info...
Babs
PsychLea
08-05-2003, 01:14 AM
Mel,
How exciting that you are doing so well!! I have been praying for you. The man upstairs must be smiling down on you, down under :angel:
Take it easy girlfriend.
------------------
God bless,
Lea
C4-5 noncompressive disc displacement
C5-6 compressive disc displacement
C6-7 broad based disc protrusion encroaching on the anterioposterior aspect of the spinal canal.
DDD
ACDF C6-7 5/13/03 with titanium plate,4 screws, and no collar postop.
How exciting that you are doing so well!! I have been praying for you. The man upstairs must be smiling down on you, down under :angel:
Take it easy girlfriend.
------------------
God bless,
Lea
C4-5 noncompressive disc displacement
C5-6 compressive disc displacement
C6-7 broad based disc protrusion encroaching on the anterioposterior aspect of the spinal canal.
DDD
ACDF C6-7 5/13/03 with titanium plate,4 screws, and no collar postop.
mel333
08-07-2003, 02:08 PM
Hi Babs and Lea,
Thanks for your replies. I am doing well yet after a drive as a passenger yesterday and a few nasty speed humps I have had a shocking headache. I am still getting headaches and hope it's just my muscles trying to adapt to this new disc. I am still feeling fragile and also gave up smoking before surgery so I am going through some horrendous withdrawel.
Babs,
Hopefully you can get the disc too soon. Any pain is not worth having so perhaps you should look into applying for the study.
Lea,
Thanks for your prayers. I hope you are doing well and not working too hard as usual!
Mel
Thanks for your replies. I am doing well yet after a drive as a passenger yesterday and a few nasty speed humps I have had a shocking headache. I am still getting headaches and hope it's just my muscles trying to adapt to this new disc. I am still feeling fragile and also gave up smoking before surgery so I am going through some horrendous withdrawel.
Babs,
Hopefully you can get the disc too soon. Any pain is not worth having so perhaps you should look into applying for the study.
Lea,
Thanks for your prayers. I hope you are doing well and not working too hard as usual!
Mel
AngelicMoon
08-07-2003, 04:15 PM
Mel~ I went to see my NS yesterday. He said that the pain/headache I am having is from the muscles acting up and causing the nerves to go nuts. He wants to do some injections after I get out of my collar. If that doesn't work we will go a different course of action(not sure what yet). I still have trouble being in a car and usually end up taking a pain pill afterward. Anyway, just wanted to let you know that you are not alone on these headaches. I hope you are resting and babying yourself.
hugs~
~Kat~
:angel:
hugs~
~Kat~
:angel:
Icaaa
08-07-2003, 06:03 PM
Mel, Glad you have come around. :round: Take it easy and hold back alittle...wait for the really gooooood times. :bouncing:
Carla
Carla
CurlsGirl
08-08-2003, 08:16 AM
G'day Mel,
So glad to hear another fellow Aussie has had a successful ADR! I had a lumbar Charite replacement done in May this year that was 100% successful. Mine was done in Albury. Sadly though it has left me with CRPS type 2 in the right foot, heel and ankle. Hopefully I can gain a remission from this and enjoy my now lumbar pain free existence!
Happy continued good recovery from Victoria.
Dette
------------------
So glad to hear another fellow Aussie has had a successful ADR! I had a lumbar Charite replacement done in May this year that was 100% successful. Mine was done in Albury. Sadly though it has left me with CRPS type 2 in the right foot, heel and ankle. Hopefully I can gain a remission from this and enjoy my now lumbar pain free existence!
Happy continued good recovery from Victoria.
Dette
------------------
mel333
08-08-2003, 11:09 AM
hi everyone,
Angelic,
So glad to hear of someone else with the after car trip pain. As a passenger in a car yesterday I ended up with shocking spasms. I hope it's just the muscles trying to settle down. Let me know what your Ns says. What pain med do you take for the headaches?
Carla,
Nice to hear from you. Hope you feeling well. I am trying to rest more due to these headaches.
Dette,
Congrats on your new disc! Who was your surgeon? if in sydney. How are you feeling now?
Mel
Angelic,
So glad to hear of someone else with the after car trip pain. As a passenger in a car yesterday I ended up with shocking spasms. I hope it's just the muscles trying to settle down. Let me know what your Ns says. What pain med do you take for the headaches?
Carla,
Nice to hear from you. Hope you feeling well. I am trying to rest more due to these headaches.
Dette,
Congrats on your new disc! Who was your surgeon? if in sydney. How are you feeling now?
Mel
AngelicMoon
08-08-2003, 01:31 PM
Mel~
I'm not taking anything for the headaches. My doc wanted to put me back on Neurontin, but my NS said to wait until after I get my collar of . He wants to do some injections in the area of my neck where the nerve is flailing about widly. I am taking Flexeril 3 times a day to control the spasms. And still taking Percocets every weekday after my car trips with my best friend who is undergoing radiation for lung cancer right now :(. My health problems seem so minuscule to hers right now. But I do know that I still have to take care of me.
Between the Flexeril, Percocet, Lexapro(for depression),Elavil(for insomnia), Maxalt on occasion for migraines, Aciphex(for esophagitis), and the occasional Compazine(for nausea when headache gets bad), I am a walking zombie.(Read some of my other posts. I think this whole thing has made me wacky and I DEFINETLY do not need to take any more meds!!!)
Anyway, back to the subject. I am trying to avoid Neurontin at all costs. I am a small person and it put alot of weight on me. I am too vain for it...*LOL*
Hope you are RESTING!!!!!
------------------
~Kat~
March,2003~started with muscle spasms, shoulder pain, arm pain
Perscribed muscle relaxers
a week later prescribed steroids, sent to PT, and for MRI which showed 3 bulging discs C3-4, C4-5, C5-6
May2003~2nd course of steroids, numbing, tingling in arm and fingers,nerve pain and headaches, stopped PT(due to worsening of symptoms), had EMG which showed nothing irregular
May2003~appt w/neurosurgeon, sent for myleogram which showed herniation at C5-6 with nerve compression,DDD,arthritis in spine
June30,2003~ACDF with fusion using donor bone, no hardware
presently losing my mind from doing absolutely nothing~
[This message has been edited by AngelicMoon (edited 08-08-2003).]
[This message has been edited by AngelicMoon (edited 08-08-2003).]
I'm not taking anything for the headaches. My doc wanted to put me back on Neurontin, but my NS said to wait until after I get my collar of . He wants to do some injections in the area of my neck where the nerve is flailing about widly. I am taking Flexeril 3 times a day to control the spasms. And still taking Percocets every weekday after my car trips with my best friend who is undergoing radiation for lung cancer right now :(. My health problems seem so minuscule to hers right now. But I do know that I still have to take care of me.
Between the Flexeril, Percocet, Lexapro(for depression),Elavil(for insomnia), Maxalt on occasion for migraines, Aciphex(for esophagitis), and the occasional Compazine(for nausea when headache gets bad), I am a walking zombie.(Read some of my other posts. I think this whole thing has made me wacky and I DEFINETLY do not need to take any more meds!!!)
Anyway, back to the subject. I am trying to avoid Neurontin at all costs. I am a small person and it put alot of weight on me. I am too vain for it...*LOL*
Hope you are RESTING!!!!!
------------------
~Kat~
March,2003~started with muscle spasms, shoulder pain, arm pain
Perscribed muscle relaxers
a week later prescribed steroids, sent to PT, and for MRI which showed 3 bulging discs C3-4, C4-5, C5-6
May2003~2nd course of steroids, numbing, tingling in arm and fingers,nerve pain and headaches, stopped PT(due to worsening of symptoms), had EMG which showed nothing irregular
May2003~appt w/neurosurgeon, sent for myleogram which showed herniation at C5-6 with nerve compression,DDD,arthritis in spine
June30,2003~ACDF with fusion using donor bone, no hardware
presently losing my mind from doing absolutely nothing~
[This message has been edited by AngelicMoon (edited 08-08-2003).]
[This message has been edited by AngelicMoon (edited 08-08-2003).]
KeithEugeneW
08-08-2003, 02:26 PM
Kat,
I had several cortisone shots in my neck this spring also because the muscles were so tight and the spasms were causing a lot of the pain I'm in. It hurt for a couple of days, but after that it did help, and it also got me off pain pills for the most part. I know what you mean on the neurontin, it put about 20 lbs on me that I really didn't need and made me tired all the time. It did help with the pain, but only in ever increasing dosages as I got used to it. Sure glad I'm off that stuff, my head is much clearer and I'm doing things with at least a little more energy than I had before. I still have my days, and I'm still stiff as heck in my neck most of the time, but it's an improvement over where I was a year ago. I'd sure love to get the ADR surgery like Mel333 has undergone, but I'd need at least 2 levels and here in the states it's still in clinical trials. Maybe in another year when the trials are completed I might be able to convince someone to do it. I don't know if I'd even qualify for it with the strict requirements they have here to be a candidate for the surgery. My 2 discs are almost completely disintegrated between C5/6 and C6/7, bulging what little is left out into the spinal canal, up against the cord, but not compressing it. The x-rays show almost bone on bone between them. I'm told that I'll likely end up naturally fusing, but I still have heartburn with that, because when they fuse, they are going to be closer together than is natural, since the disc space in between will be (already is) gone. I noticed on the x-ray also that the tail fins (for lack of proper medical term) of my vertebrae in my neck are all left and right of center when viewed from behind, randomly like someone went through and cocked each one in opposite directions side to side. Is that normal for them to be like that? The surgeon didn't seem to be terribly concerned with that one aspect.
Keith
I had several cortisone shots in my neck this spring also because the muscles were so tight and the spasms were causing a lot of the pain I'm in. It hurt for a couple of days, but after that it did help, and it also got me off pain pills for the most part. I know what you mean on the neurontin, it put about 20 lbs on me that I really didn't need and made me tired all the time. It did help with the pain, but only in ever increasing dosages as I got used to it. Sure glad I'm off that stuff, my head is much clearer and I'm doing things with at least a little more energy than I had before. I still have my days, and I'm still stiff as heck in my neck most of the time, but it's an improvement over where I was a year ago. I'd sure love to get the ADR surgery like Mel333 has undergone, but I'd need at least 2 levels and here in the states it's still in clinical trials. Maybe in another year when the trials are completed I might be able to convince someone to do it. I don't know if I'd even qualify for it with the strict requirements they have here to be a candidate for the surgery. My 2 discs are almost completely disintegrated between C5/6 and C6/7, bulging what little is left out into the spinal canal, up against the cord, but not compressing it. The x-rays show almost bone on bone between them. I'm told that I'll likely end up naturally fusing, but I still have heartburn with that, because when they fuse, they are going to be closer together than is natural, since the disc space in between will be (already is) gone. I noticed on the x-ray also that the tail fins (for lack of proper medical term) of my vertebrae in my neck are all left and right of center when viewed from behind, randomly like someone went through and cocked each one in opposite directions side to side. Is that normal for them to be like that? The surgeon didn't seem to be terribly concerned with that one aspect.
Keith
AngelicMoon
08-08-2003, 03:16 PM
Keith~
I'm not so sure if that is normal or not, but if your doc wasn't too concerned , I would relax a bit about it. That bone on bone thing you said made me cringe, that must feel horrible! The Neurontin was great for me once I hit a 2700 per day dose! I went from weighing 112 to 125lbs in one month. I am back down to about 119 thank goodness. I have always been slight in form and that weight increase made me feel just awful. I do hope the injections help me as they helped you. I am still concerned about my nerve pain though. It really was my deciding factor in the surgery. Of course weakness and numbness in arms and hands was too, but I basically couldn't live with the nerve pain and headaches. I still have these symptoms. :( The Flexeril is really helping me with my spasms, so at least I don't have much of them along with the nerve pain. This whole thing just basically sucks. For all of us here!!!
~hugs~
:angel:
------------------
~Kat~
March,2003~started with muscle spasms, shoulder pain, arm pain
Perscribed muscle relaxers
a week later prescribed steroids, sent to PT, and for MRI which showed 3 bulging discs C3-4, C4-5, C5-6
May2003~2nd course of steroids, numbing, tingling in arm and fingers,nerve pain and headaches, stopped PT(due to worsening of symptoms), had EMG which showed nothing irregular
May2003~appt w/neurosurgeon, sent for myleogram which showed herniation at C5-6 with nerve compression,DDD,arthritis in spine
June30,2003~ACDF with fusion using donor bone, no hardware
presently losing my mind from doing absolutely nothing~
I'm not so sure if that is normal or not, but if your doc wasn't too concerned , I would relax a bit about it. That bone on bone thing you said made me cringe, that must feel horrible! The Neurontin was great for me once I hit a 2700 per day dose! I went from weighing 112 to 125lbs in one month. I am back down to about 119 thank goodness. I have always been slight in form and that weight increase made me feel just awful. I do hope the injections help me as they helped you. I am still concerned about my nerve pain though. It really was my deciding factor in the surgery. Of course weakness and numbness in arms and hands was too, but I basically couldn't live with the nerve pain and headaches. I still have these symptoms. :( The Flexeril is really helping me with my spasms, so at least I don't have much of them along with the nerve pain. This whole thing just basically sucks. For all of us here!!!
~hugs~
:angel:
------------------
~Kat~
March,2003~started with muscle spasms, shoulder pain, arm pain
Perscribed muscle relaxers
a week later prescribed steroids, sent to PT, and for MRI which showed 3 bulging discs C3-4, C4-5, C5-6
May2003~2nd course of steroids, numbing, tingling in arm and fingers,nerve pain and headaches, stopped PT(due to worsening of symptoms), had EMG which showed nothing irregular
May2003~appt w/neurosurgeon, sent for myleogram which showed herniation at C5-6 with nerve compression,DDD,arthritis in spine
June30,2003~ACDF with fusion using donor bone, no hardware
presently losing my mind from doing absolutely nothing~
CurlsGirl
08-08-2003, 06:10 PM
G'day again Mel,
My surgeon was Terry Hillier in Albury. As you would be aware I am sure, he is one of only six in the whole country who are doing ADR's. The surgeon in Sydney I think, is the only one doing cervical replacements, the rest are doing lumbar.
With regards to my CRPS....I am in a very bad way with that. Successful surgery but the patient cannot walk unaided! I am on far more meds for pain control now than I ever was to cope with my lumbar pain. I am in a good rehab program in the hopes that I can throw this CRPS monster into remission but my hopes for that are fading fast.
I do hope you continue your great recovery.
Happy frosty morning from Victoria!
Dette
------------------
My surgeon was Terry Hillier in Albury. As you would be aware I am sure, he is one of only six in the whole country who are doing ADR's. The surgeon in Sydney I think, is the only one doing cervical replacements, the rest are doing lumbar.
With regards to my CRPS....I am in a very bad way with that. Successful surgery but the patient cannot walk unaided! I am on far more meds for pain control now than I ever was to cope with my lumbar pain. I am in a good rehab program in the hopes that I can throw this CRPS monster into remission but my hopes for that are fading fast.
I do hope you continue your great recovery.
Happy frosty morning from Victoria!
Dette
------------------
Debbie2
08-08-2003, 09:27 PM
Hello Dette, my prayers and hopes for you are indeed remission. Stay strong and know you have friends praying for you constantly...
God Bless,
Deb
------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
God Bless,
Deb
------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
KeithEugeneW
08-08-2003, 10:45 PM
Kat,
I used to have migraines that were intolerable from my neck problems, and was put on neurontin and they instantly went away. The problem was, as you said, weight gain, along with being foggy all the time. I gained about 20-25 lbs which I've been working on losing, I'm about half way there now since April! I was up to 2400 mg a day by the end. I get the migraines again now, but not nearly as often as before, and I think the cortisone shots in the neck muscles have helped with that a lot. I tried epidurals with no luck. I hope the muscle shots help you as well. Good luck, I wish you the best on this! :D
Keith
I used to have migraines that were intolerable from my neck problems, and was put on neurontin and they instantly went away. The problem was, as you said, weight gain, along with being foggy all the time. I gained about 20-25 lbs which I've been working on losing, I'm about half way there now since April! I was up to 2400 mg a day by the end. I get the migraines again now, but not nearly as often as before, and I think the cortisone shots in the neck muscles have helped with that a lot. I tried epidurals with no luck. I hope the muscle shots help you as well. Good luck, I wish you the best on this! :D
Keith
mel333
08-10-2003, 02:01 PM
Hi everyone,
I have been having awful neck spasms and headaches. I was feeling a little too good for a while and yesterday felt like I was back at hospital. I think I have been overdoing it, bending and trying to be too normal. My NS encouraged movement but I guess it's still a trauma for your body and the initial post surgery high wears off. I am listening to my body now, feeling fragile and hanging around in bed with chocolate as I have given up smoking nearly 3 weeks!! horay!
I am going to talk with my NS about the headaches.
Kat,
Your headaches sound similar to mine. Where did your NS recommend the shots? I am also having sleeping problems and feel like I'm on a pill cocktail. I hope both our nerves settle down soon. Your friend must be tough that is a really difficult thing and I will pray for your friend.
Keith,
Hopefully the bones will fuse in such a way that you don't need surgery. I know my NS here does do 2 consecutive levels, yet, with your restrictions over there it may mean a longer wait. Hopefully your pain will just vanish and untill then I think shots can really help.
Dettie,
It is great we can have the ADR here. My surgeon is William Sears. I know he also does lumber replacements. Hope things ease up for you.
Mel
I have been having awful neck spasms and headaches. I was feeling a little too good for a while and yesterday felt like I was back at hospital. I think I have been overdoing it, bending and trying to be too normal. My NS encouraged movement but I guess it's still a trauma for your body and the initial post surgery high wears off. I am listening to my body now, feeling fragile and hanging around in bed with chocolate as I have given up smoking nearly 3 weeks!! horay!
I am going to talk with my NS about the headaches.
Kat,
Your headaches sound similar to mine. Where did your NS recommend the shots? I am also having sleeping problems and feel like I'm on a pill cocktail. I hope both our nerves settle down soon. Your friend must be tough that is a really difficult thing and I will pray for your friend.
Keith,
Hopefully the bones will fuse in such a way that you don't need surgery. I know my NS here does do 2 consecutive levels, yet, with your restrictions over there it may mean a longer wait. Hopefully your pain will just vanish and untill then I think shots can really help.
Dettie,
It is great we can have the ADR here. My surgeon is William Sears. I know he also does lumber replacements. Hope things ease up for you.
Mel
AngelicMoon
08-10-2003, 02:14 PM
Mel~ My NS mentioned the shots in my neck. He is hoping that will help.
Keep an eye on your legs . I just talked to my doc who wants me to go to the ER, but I refuse. Something is wrong here and she wants to see me tomorrow in her office. Not sure if it is from surgery or not.
Rest, rest, rest!
~hugs~
~Kat~
Keep an eye on your legs . I just talked to my doc who wants me to go to the ER, but I refuse. Something is wrong here and she wants to see me tomorrow in her office. Not sure if it is from surgery or not.
Rest, rest, rest!
~hugs~
~Kat~
mel333
08-11-2003, 01:02 PM
Hi Kat,
I am anxious to hear what your NS says. Why keep an eye on the legs? are you thinking nerve damage from surgery? I am getting a bit paranoid about these headaches and my mind is playing tricks of spine damage etc. I am hoping the meds are making me like this. Take care,
Mel
I am anxious to hear what your NS says. Why keep an eye on the legs? are you thinking nerve damage from surgery? I am getting a bit paranoid about these headaches and my mind is playing tricks of spine damage etc. I am hoping the meds are making me like this. Take care,
Mel
AngelicMoon
08-11-2003, 01:21 PM
Mel~ I am going to see my PCP this afternoon. My NS is off on some lavish vacation. The creep, not that he would have called me back anyway..*LOL* My swelling has gone down considerably but I am having terrible pains in my legs, ankles and kneecaps. I can barely walk and the wonderful squatting thing we have to do now is impossible(anything that hits the floor stays until someone is around to pick it up for me). I am not sure of this is all related to my surgery or not, but it's funny that I never had these problems before. This gets more fun every day!
~Kat~
~Kat~
tool
08-12-2003, 03:39 AM
Hi Mel,
Sorry to hear that you and Kat are having problems with headaches… I hope you get it sorted. I used to get them before my last cervical fusion in March but I don’t remember having one since.
I just spotted your Question above. I had Mr Sears in 1991 at the Mater (Nth Sydney) for my first cervical fusion. My first site of him was in the operating theatre as it had all been urgently arranged by Dr Matthew Giblin (he’s at Dalcross too now) after I was admitted to Campbelltown Private Hosp. About two or three weeks later I got an infection in the hip graft after falling into the murkey river on the property at Bathurst where I was staying. I was eventually admitted up there because the infection had gone to the bloodstream and I was constantly ranting and raving about ‘riding on a camel in some Arabian marketplace’. The ambo’s were laughing at me; it must have been some site, me with my collar on telling them to catch me when I fell (or so I’m told).
In 1998 and 1999 he did two lumbar decompression laminectomies. Then in 2001 at Dalcross (Killara) he operated on the lumbar again, this time doing both an ALIF and Posterior Fusion at the same time. It was complicated by a torn ureter but it was totally not his fault (my insides are weirdly all out of place).
I then moved to Tassie and had Mr Andrew Hunn do a multilevel fusion, this time the neck again. I had no time to think about this one, it was done urgently because the cord was flattened in a couple of areas and was giving me some pretty harrowing neuro symptoms.
I thought William Sears has always been an excellent and caring doctor. Have you seen his resume on the Dalcross site? Since I’ve known him for years, I’ve never bothered checking his credentials but I came across them one day and was quite impressed!
Where are you in Sydney? I miss it!
Sorry to hear that you and Kat are having problems with headaches… I hope you get it sorted. I used to get them before my last cervical fusion in March but I don’t remember having one since.
I just spotted your Question above. I had Mr Sears in 1991 at the Mater (Nth Sydney) for my first cervical fusion. My first site of him was in the operating theatre as it had all been urgently arranged by Dr Matthew Giblin (he’s at Dalcross too now) after I was admitted to Campbelltown Private Hosp. About two or three weeks later I got an infection in the hip graft after falling into the murkey river on the property at Bathurst where I was staying. I was eventually admitted up there because the infection had gone to the bloodstream and I was constantly ranting and raving about ‘riding on a camel in some Arabian marketplace’. The ambo’s were laughing at me; it must have been some site, me with my collar on telling them to catch me when I fell (or so I’m told).
In 1998 and 1999 he did two lumbar decompression laminectomies. Then in 2001 at Dalcross (Killara) he operated on the lumbar again, this time doing both an ALIF and Posterior Fusion at the same time. It was complicated by a torn ureter but it was totally not his fault (my insides are weirdly all out of place).
I then moved to Tassie and had Mr Andrew Hunn do a multilevel fusion, this time the neck again. I had no time to think about this one, it was done urgently because the cord was flattened in a couple of areas and was giving me some pretty harrowing neuro symptoms.
I thought William Sears has always been an excellent and caring doctor. Have you seen his resume on the Dalcross site? Since I’ve known him for years, I’ve never bothered checking his credentials but I came across them one day and was quite impressed!
Where are you in Sydney? I miss it!
tool
08-12-2003, 03:51 AM
Message for Dette,
Nice to see the Aussies are multiplying!!!!
I have relatives in Albury... nice place. Im glad the lumbar pain is gone for you but it's a bummer having the CRPS. I hope remission is on the cards, good luck.
- Gail
Nice to see the Aussies are multiplying!!!!
I have relatives in Albury... nice place. Im glad the lumbar pain is gone for you but it's a bummer having the CRPS. I hope remission is on the cards, good luck.
- Gail
mel333
08-12-2003, 11:41 AM
Hi All,
Kat,
I am wondering why you are having the leg pain. Did you have it before surgery at all? These NS's are difficult to track down. I am seeing mine next week and will see what he says re headaches and spasms. Maybe we need to rest even more. Who knows. have you had any xrays since surgery?
Gail,
Wow, you have had a few surgeries and glad to hear they have helped despite that nerve damage you mentioned. I thought my NS William Sears was excellent and he seems to have a great reputation. I guess after surgery it just takes time and everyone has the odd nerve thing. I am 3 weeks nearly post op and am hoping the spasms will settle. I had my surgery at Dalcross, Killara. It was really handy as I live just around the corner. Take care,
Mel
Kat,
I am wondering why you are having the leg pain. Did you have it before surgery at all? These NS's are difficult to track down. I am seeing mine next week and will see what he says re headaches and spasms. Maybe we need to rest even more. Who knows. have you had any xrays since surgery?
Gail,
Wow, you have had a few surgeries and glad to hear they have helped despite that nerve damage you mentioned. I thought my NS William Sears was excellent and he seems to have a great reputation. I guess after surgery it just takes time and everyone has the odd nerve thing. I am 3 weeks nearly post op and am hoping the spasms will settle. I had my surgery at Dalcross, Killara. It was really handy as I live just around the corner. Take care,
Mel
AngelicMoon
08-12-2003, 12:22 PM
Mel~ This leg /lower back pain is new and downright painful! I have to go for a CT scan on Thursday and if nothing shows there an MRI of the brain. (Doc mentioned MS)
I'm not sure what any of this is, but I have a pretty high tolerance for pain and with all this I have become a whimpering idiot. So now not only will I have a deformed neck, but I will slithering on the ground on my belly cause my legs hurt so bad. Cruel children will throw stones at me. *LOL*
~Kat~
I'm not sure what any of this is, but I have a pretty high tolerance for pain and with all this I have become a whimpering idiot. So now not only will I have a deformed neck, but I will slithering on the ground on my belly cause my legs hurt so bad. Cruel children will throw stones at me. *LOL*
~Kat~
mel333
08-17-2003, 07:27 AM
Hi Kat,
I was having some very funny visions of you as a lizard.lol. How did the scans go? any lower back problems? I have been getting lots of pain in my calfs lately and the lower leg area. I am terrified of having any lower back problems. I had pain before but never enough compared with the cervical discs to bother checking. What other symptoms are you having with this?
Still getting those dreaded spasms! I finally let DH take me out to dinner and after a nice seafood meal on the water and only two drinks I felt great untill the long drive home. What is it with these car trips and our necks. I almost think it would be easier to drive myself so I could anticipate any bumps and put a helmet on and perhaps a suit of armour(nice look!lol). Take care,
Mel
I was having some very funny visions of you as a lizard.lol. How did the scans go? any lower back problems? I have been getting lots of pain in my calfs lately and the lower leg area. I am terrified of having any lower back problems. I had pain before but never enough compared with the cervical discs to bother checking. What other symptoms are you having with this?
Still getting those dreaded spasms! I finally let DH take me out to dinner and after a nice seafood meal on the water and only two drinks I felt great untill the long drive home. What is it with these car trips and our necks. I almost think it would be easier to drive myself so I could anticipate any bumps and put a helmet on and perhaps a suit of armour(nice look!lol). Take care,
Mel
winged phantom
08-17-2003, 07:34 AM
I have not been following this thread... but I've just read some of it... I'm so sorry to hear of all everyone here has been going through. It's so hard to recover from surgery, and then there are the other problems of new symptoms, new or re-injuries, etc...And then there is also the depression to deal with. And the lack of adequate sleep....
Speaking of sleep; I should go try to sleep more. ;)
wr
[This message has been edited by winged phantom (edited 08-17-2003).]
Speaking of sleep; I should go try to sleep more. ;)
wr
[This message has been edited by winged phantom (edited 08-17-2003).]
PsychLea
08-18-2003, 12:44 AM
I can relate to the headaches.I had migraines 2 days in a row and I usually can go a year without one. One of the docs I work with had some Frova samples (new migraine med) and I had never tried it before, but had to take something because I was at work and couldn't go home. It worked very well!
As far as the trigger point injections, I am a big fan. I didn't do well with the epi, but when I see the NS on the 25th, I'm going to ask for another PM referral to get those done. They only stung for a few minutes and they put ice on the injection sites to help.
I really feel the injections are very helpful and if it can cut down on the amount of pain meds you take, I would be all for it.
------------------
God bless,
Lea
C4-5 noncompressive disc displacement
C5-6 compressive disc displacement
C6-7 broad based disc protrusion encroaching on the anterioposterior aspect of the spinal canal.
DDD
ACDF C6-7 5/13/03 with titanium plate,4 screws, and no collar postop.
As far as the trigger point injections, I am a big fan. I didn't do well with the epi, but when I see the NS on the 25th, I'm going to ask for another PM referral to get those done. They only stung for a few minutes and they put ice on the injection sites to help.
I really feel the injections are very helpful and if it can cut down on the amount of pain meds you take, I would be all for it.
------------------
God bless,
Lea
C4-5 noncompressive disc displacement
C5-6 compressive disc displacement
C6-7 broad based disc protrusion encroaching on the anterioposterior aspect of the spinal canal.
DDD
ACDF C6-7 5/13/03 with titanium plate,4 screws, and no collar postop.
mel333
08-18-2003, 02:30 PM
Hi All,
Thanks wr for your understanding thoughts. I think I maybe encountering that depression time you mentioned once around 3 and 1/2 weeks post op. Crying spells, and feeling down right fed up with all the pain. I want to be better and am really frustrated and probobly awful to be around. I am starting to wonder if the pain ever ends..
Lea,
I may look into that new migrane drug you mentioned Fova. Cna you tell me anymore about the drug and if so what is in it?
My NS also mentioned exercises and I may even have a shot at c2 for headaches. Take care,
Mel
Thanks wr for your understanding thoughts. I think I maybe encountering that depression time you mentioned once around 3 and 1/2 weeks post op. Crying spells, and feeling down right fed up with all the pain. I want to be better and am really frustrated and probobly awful to be around. I am starting to wonder if the pain ever ends..
Lea,
I may look into that new migrane drug you mentioned Fova. Cna you tell me anymore about the drug and if so what is in it?
My NS also mentioned exercises and I may even have a shot at c2 for headaches. Take care,
Mel
bdb
08-19-2003, 02:17 AM
Hi Mel, When I started reading this thread I was so happy to see how well you were doing. Then as I read I saw that you were having a bad time. Lets hope that the good days soon outnumber the bad days. You make sure you take it easy. Don't overdo it so that your body can heal.
bdb
bdb
mel333
08-19-2003, 01:06 PM
Hi bdb,
Your right about the resting. I am taking your advice and am starting to feel better. Your right it does take time and I am hoping to get there slowly.
Mel
Your right about the resting. I am taking your advice and am starting to feel better. Your right it does take time and I am hoping to get there slowly.
Mel
PsychLea
08-20-2003, 12:42 AM
Mel,
I'm not sure what is the active ingredient in Frova. My sample pack is at my office. It's really new. I will try and find more info for you.
Found out my migraine was triggered by a strep infection, which is finally getting better except, little ol' part timer me, worked a 10 hour day today and they wanted me to pick up an extra shift. They still got me coming in on my day off, because they are having a "mandatory meeting" which is really a gripe session for another department, and I don't want to have to deal with that, but have no choice.
Sigh :(
Sorry for the vent, I feel better now, really I do!
------------------
God bless,
Lea
C4-5 noncompressive disc displacement
C5-6 compressive disc displacement
C6-7 broad based disc protrusion encroaching on the anterioposterior aspect of the spinal canal.
DDD
ACDF C6-7 5/13/03 with titanium plate,4 screws, and no collar postop.
I'm not sure what is the active ingredient in Frova. My sample pack is at my office. It's really new. I will try and find more info for you.
Found out my migraine was triggered by a strep infection, which is finally getting better except, little ol' part timer me, worked a 10 hour day today and they wanted me to pick up an extra shift. They still got me coming in on my day off, because they are having a "mandatory meeting" which is really a gripe session for another department, and I don't want to have to deal with that, but have no choice.
Sigh :(
Sorry for the vent, I feel better now, really I do!
------------------
God bless,
Lea
C4-5 noncompressive disc displacement
C5-6 compressive disc displacement
C6-7 broad based disc protrusion encroaching on the anterioposterior aspect of the spinal canal.
DDD
ACDF C6-7 5/13/03 with titanium plate,4 screws, and no collar postop.
mel333
08-21-2003, 02:27 PM
Hi Lea,
Feel free to vent anytime. 10 hours is too much as it has not been long at all since your surgery. I probobly would be a raving lunatic, so I think your handling it well, go have a relax in that jaccuzzi.
I am surviving on valium so far and cafergot for the spasms/migranes but am still looking into other hopefully better meds. Take care and hope you start working some short days and they get some more staff in to help you.
Mel
Feel free to vent anytime. 10 hours is too much as it has not been long at all since your surgery. I probobly would be a raving lunatic, so I think your handling it well, go have a relax in that jaccuzzi.
I am surviving on valium so far and cafergot for the spasms/migranes but am still looking into other hopefully better meds. Take care and hope you start working some short days and they get some more staff in to help you.
Mel
BABS42
08-23-2003, 05:43 PM
Hi Mel, I was just catching up on a little reading, and see that you are having a rough time with headaches. I cant believe you are having such a time "after surgery". I must admit that this scares me a bit since the worst part of my disc problems seems to be the headaches. I can handle the other pains, and tingles and numbness but I hate the headaches! I just had a myelogram on the 18th and of course got the headache, along with nausea but the headache is the same as the one I get frequently from my disc. I go back to NS (second opinion) on 9/2 for Myelogram results and hope its not another surgery recomendation, but if it is, I want relief from the headaches and it looks like they continue well after surgery. Do they know what exactly is causing your headaches?? Take it easy and hope you are feeling better soon. Babs
mel333
08-23-2003, 08:59 PM
Hi Babs,
I totally relate to those horrid headaches. Mine are however now, different. No nausea and instead muscle spasm, hopefully anyway. My NS thinks at 4 weeks post op these headaches are prity normal so I am hoping they go away or at least ease up soon. I am having shoulder spasms too so don't rule out surgery just yet I think it's just a slow recovery. My headaches were different before. They have always been the worst part for me also. We shall see how I go. More rest and hopefully less spasms soon. I used to also get an occasional migrane before my neck problems which is another thing I am going to see a neurologist about. My NS just thinks I need PT so perhaps with lots of the dreaded exercises I can become headache free, heres hoping. What disc is your problem one?
Mel
I totally relate to those horrid headaches. Mine are however now, different. No nausea and instead muscle spasm, hopefully anyway. My NS thinks at 4 weeks post op these headaches are prity normal so I am hoping they go away or at least ease up soon. I am having shoulder spasms too so don't rule out surgery just yet I think it's just a slow recovery. My headaches were different before. They have always been the worst part for me also. We shall see how I go. More rest and hopefully less spasms soon. I used to also get an occasional migrane before my neck problems which is another thing I am going to see a neurologist about. My NS just thinks I need PT so perhaps with lots of the dreaded exercises I can become headache free, heres hoping. What disc is your problem one?
Mel
BABS42
08-23-2003, 10:12 PM
Hi Mel, You seem to have a positive attitude about recovering which is really great. I havent heard too many others say the headache was the worst for them also. Glad I am not alone. My disc problem is C5/6 herniated touching spinal cord, and C6/7 is buldging with spurs. They also found an arachnoid cyst in my brain (posterior fossa) but they are not too concerned about that. I also have lumbar disc herniations which have caused me terrible problems for years....Never had surgery though. Anyway, I was really scared at first, but now just want it all over with. What a damper this has put on my life. I really dont want surgery, but I want to be normal again. I think my myelogram headache has finally eased up (knocking on wood). Hope you are feeling better. Does medication help your headaches? By the way do you know what actually holds the disc into place with the ADR? Just curious. Feel better!! Babs
I was just reading old posts and it seems that you also experienced the facial tingles, jaw pain and twitching eye. I get that too with the headaches. Does that stop after surgery? How about arm numbness if you have nerve damage. Sorry for all the questions, but I have one more, why would they give you a needle at C2 if your disc problems is not there, or is yours there also?? Im stopping now!
[This message has been edited by BABS42 (edited 08-23-2003).]
I was just reading old posts and it seems that you also experienced the facial tingles, jaw pain and twitching eye. I get that too with the headaches. Does that stop after surgery? How about arm numbness if you have nerve damage. Sorry for all the questions, but I have one more, why would they give you a needle at C2 if your disc problems is not there, or is yours there also?? Im stopping now!
[This message has been edited by BABS42 (edited 08-23-2003).]
mel333
08-31-2003, 04:25 AM
Hi Babs,
No problem, ask me as many questions as you like. My headaches respond to valium currently 5-10mg's so it would seem they are muscle spasm realted and hopefully c5/6. I have had facet blocks before at c3/4 which did help my headaches and because of my bad posture(reverse cervical lordosis) I have pressure on my upper facets, discs etc so thats the reason for the c2 nerve block or facet block thought. I am seeing a neurologist soon about the possibility of something brain related. Sorry to hear about your disc and brain related problems. I would look into surgery if I were you as the headaches of mine may disapear soon after the spasms go. That would leave at least less of them! Even if yours are from the brain probs, the discs would definetly be making them alot worse due to the spasms in both th 5/6 and 6/7. Here I once asked everyone with lower cervical disc probs if they fot headaches and everyone seemed to. I will let you know how I go with the neurologist. Presently I take cafergot for migranes and codeine or tramal if not all combined. So far after surgery I have only found valium and some pain meds useful. Take care and let me know your next steps with dr's etc.
Mel
No problem, ask me as many questions as you like. My headaches respond to valium currently 5-10mg's so it would seem they are muscle spasm realted and hopefully c5/6. I have had facet blocks before at c3/4 which did help my headaches and because of my bad posture(reverse cervical lordosis) I have pressure on my upper facets, discs etc so thats the reason for the c2 nerve block or facet block thought. I am seeing a neurologist soon about the possibility of something brain related. Sorry to hear about your disc and brain related problems. I would look into surgery if I were you as the headaches of mine may disapear soon after the spasms go. That would leave at least less of them! Even if yours are from the brain probs, the discs would definetly be making them alot worse due to the spasms in both th 5/6 and 6/7. Here I once asked everyone with lower cervical disc probs if they fot headaches and everyone seemed to. I will let you know how I go with the neurologist. Presently I take cafergot for migranes and codeine or tramal if not all combined. So far after surgery I have only found valium and some pain meds useful. Take care and let me know your next steps with dr's etc.
Mel
BABS42
09-01-2003, 01:57 PM
Hi Mel, How are feeling today? Hopefully you are seeing some improvement. It sounds like your NS offered some hope with the headaches. I really do hope they ease up soon. Well tomorrow I go to NS and will get myelogram results. I am hoping it just all goes away by itself. LOL Every so often I get a day or two of total relief which is why I think it WILL just go away. Anyway, let me know how you are feeling? Take care.. Babs
mel333
09-05-2003, 11:40 AM
Hi Babs,
How did the myleogram go? My headaches sre getting a tad better despite a shocker spasm from a massage. You know those sports massagers that do footballers!I think she may have been a bit rough with my girraffe neck. I am even considering some c2 facet blocks in a few months for the headaches. Now having the arm pain again but my movement is good so thats something. We will get there eventually. Take care ,
Mel
How did the myleogram go? My headaches sre getting a tad better despite a shocker spasm from a massage. You know those sports massagers that do footballers!I think she may have been a bit rough with my girraffe neck. I am even considering some c2 facet blocks in a few months for the headaches. Now having the arm pain again but my movement is good so thats something. We will get there eventually. Take care ,
Mel
BABS42
09-08-2003, 10:37 AM
Hi Mel, I would be very careful getting those "massages". I dont trust many people messing with my neck. Sorry to hear that you are still getting the headaches. My myelogram results- NS said I need surgery or if I want I can still try epi's, which he says if it works, will basically just be a bandaid. He said this wont get better on its own, probably worse. But he cant tell me definitively that my headaches are from my neck! Deep down I know that they are because if I lean my head back, my head tingles and I get this horrid headache (much like the myelogram headache) but sometimes worse. Plus my arm goes numb along with it. But on the other hand if the surgery wont stop the headaches, I dont really want it. hmmmm What to do, what to do!
PainInTheNeckJackie
09-09-2003, 12:53 AM
Lea... you must rest... If you don't take care of yourself, no one else will! You deserve a break! Take a rest! :)
------------------
Jackie
***************
Left paramedian subligamentous herniation C5-C6 causing left foraminal stenosis and cord compression;
------------------------
Right paramedian subligamentous herniation at C6-C7, abutted against the vetral aspect of the spinal cord
------------------
Jackie
***************
Left paramedian subligamentous herniation C5-C6 causing left foraminal stenosis and cord compression;
------------------------
Right paramedian subligamentous herniation at C6-C7, abutted against the vetral aspect of the spinal cord
mel333
09-11-2003, 11:20 AM
Hi Babs,
Deep down as you say surgery is probobly the only way. But that said you can still have epi's for a while till you feel more ready(not that anyone ever can feel like that but till you just can't take it anymore). Your symptoms sounds similar to mine before surgery and I would look into it sooner rather than later as some nerve pain/damage cab become permanent if left too long.
I had some cortosone trigger point shots yesterday up near c2 and some for the arm pain. I hope they will help I felt great after but today had that shocker ice pick through the eye headache. I took 10mg's valium and even needed other codeine meds aswell. I hope it means the shots were in the right place, as you would expect the area to bring on the headache if it was a pain generater and was tampered with. Here's hoping.
I feel much better tonight and can slowly feel everything getting a wee better each day so thats some progress at least and gives me hope to get there.
I have heard that myleogram headache is a shocker and so I hope your over it now. You have some tough decisions to make re surgery so try to get a few opinions. Take care,
Mel
Deep down as you say surgery is probobly the only way. But that said you can still have epi's for a while till you feel more ready(not that anyone ever can feel like that but till you just can't take it anymore). Your symptoms sounds similar to mine before surgery and I would look into it sooner rather than later as some nerve pain/damage cab become permanent if left too long.
I had some cortosone trigger point shots yesterday up near c2 and some for the arm pain. I hope they will help I felt great after but today had that shocker ice pick through the eye headache. I took 10mg's valium and even needed other codeine meds aswell. I hope it means the shots were in the right place, as you would expect the area to bring on the headache if it was a pain generater and was tampered with. Here's hoping.
I feel much better tonight and can slowly feel everything getting a wee better each day so thats some progress at least and gives me hope to get there.
I have heard that myleogram headache is a shocker and so I hope your over it now. You have some tough decisions to make re surgery so try to get a few opinions. Take care,
Mel
BABS42
09-11-2003, 02:31 PM
Hi Mel, I just caught you on another post and now am reading here. I cant believe you had to get C2 shots after your surgery. I really hope and pray that your headaches ease up real soon. Is there something wrong with your C2 disc, or is that just where they give shots for headache. I am hoping that surgery will stop my headaches. I often think something must be rubbing against my spinal cord when I lean my head back because that always causes the headache and tingle, and arm numbness almost immediatley. The DRs. have said they cant guarantee relief of the headache after surgery, but I have hopeful thoughts now! This NS is my second opinion, and my reg GP, PT, and neurologist all said surgery would help. I am getting ready to call tomorrow and tell them I will do it, but not till end of Oct. My little one has a karate tournament coming up and I cant miss it. Plus it will give me time to quit smoking, even if I do have to use my own bone, I will do everything i can to help it fuse the first time. Feel better soon Mel, and thanks for your support! Take Care Babs
mel333
09-12-2003, 10:01 AM
Hi Babs,
My c2 disc is fine but the facets are inflamed and I think most of it's post surgery spasm. I am seeing a neurologist next week re my headaches and arm pain which will be interesting.
I am now 7 weeks and 4 days SMOKE FREE! I don't know quite how it did it but I became quite inspired a few days before surgery out of sheer fear. I am still on patches so I would recommend this way. I used to smoke I pack to pack and a half a day so it wasn't easy for me. I cut back to 15 then ten in the weeks leading up to surgery. Good luck with it. It is really hard but worth it for your recovery and it's apparently bad for headaches! How are your headaches? Have you tried cutting back the cigs yet?
Mel
My c2 disc is fine but the facets are inflamed and I think most of it's post surgery spasm. I am seeing a neurologist next week re my headaches and arm pain which will be interesting.
I am now 7 weeks and 4 days SMOKE FREE! I don't know quite how it did it but I became quite inspired a few days before surgery out of sheer fear. I am still on patches so I would recommend this way. I used to smoke I pack to pack and a half a day so it wasn't easy for me. I cut back to 15 then ten in the weeks leading up to surgery. Good luck with it. It is really hard but worth it for your recovery and it's apparently bad for headaches! How are your headaches? Have you tried cutting back the cigs yet?
Mel
BABS42
09-12-2003, 11:37 AM
Hi Mel, Congratulations on being smoke free for so long! I havent cut back, that never has worked for me. I just have to stop the old one day a time way. I did stop a few years ago for 6 months! Can you believe it? I had never gone so long without a smoke since age 12. Something very stressful happened and that was it. Started all over again. But for this, I will stop, as soon as I give them the ok for surgery. I hate the thought of gaining weight which will happen, but I did lose 9 lbs since Jan when this all started, not sure why, I just lost it. Probably from my nerves. I am trying to get up the nerve to call the NS back, I dont know why this is so hard. I had the same feeling about the myelogram, and that was not as bad as I imagined. I have never had surgery before, except for little stuff like moles removed. I have two kids and had "totally natural childbirth" refusing meds. What a fool huh? So if I can do that I can do this right? Oh well, this must be nervous rambling.. Well good luck with your neurology appointment next week.Let me know how you make out. Hope your nerve block helps your headaches. btw- the meds help my headaches a bit,and I think after so long I have just gotten used to them, but I dont want to take meds all my life. Keep recovering and hope your feeling better. Take Care Babs
Debbie2
09-12-2003, 03:16 PM
Mel,
I'm sorry to read this and hear all these problems your still having. Good luck next week and I'll be hoping for the best for you...
God Bless,
Debbie
------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
I'm sorry to read this and hear all these problems your still having. Good luck next week and I'll be hoping for the best for you...
God Bless,
Debbie
------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
mel333
09-13-2003, 01:40 PM
Hi all,
Debbie,
thanks for your kind thoughts and I hope your doing ok.
Babs,
Wow, you legend two kids and no pain meds. I had never had surgery before either so I understand your fears. You will be fine. You sound rather tough to me. I was also terrified of gaining weight giving up smoking. But guess what, I haven't. Perhaps 2 pounds or so since not exercising but thats it so don't worry you'll be fine. Would you beleive knitting really helped me quit the first month(uses both hands!). You can easily do it again if you've gone 6 months before, no problem!
Do lots of research on the surgery if you can as it really helped me. My head has been better since the shot which is actually exciting! lets hope it stays that way. Hope your head is ok today. Do you take valium for yours? can't remember whether I asked you this? I am having a valium memeory loss moment and of late they are quite frequent but amusing. Take care,
Mel
Debbie,
thanks for your kind thoughts and I hope your doing ok.
Babs,
Wow, you legend two kids and no pain meds. I had never had surgery before either so I understand your fears. You will be fine. You sound rather tough to me. I was also terrified of gaining weight giving up smoking. But guess what, I haven't. Perhaps 2 pounds or so since not exercising but thats it so don't worry you'll be fine. Would you beleive knitting really helped me quit the first month(uses both hands!). You can easily do it again if you've gone 6 months before, no problem!
Do lots of research on the surgery if you can as it really helped me. My head has been better since the shot which is actually exciting! lets hope it stays that way. Hope your head is ok today. Do you take valium for yours? can't remember whether I asked you this? I am having a valium memeory loss moment and of late they are quite frequent but amusing. Take care,
Mel
BABS42
09-16-2003, 09:54 PM
Hey Mel, I am really glad to hear that your headaches are easing up and that the shot helped.I know that you have been in alot of pain. I actually had two pretty good days. None or slight headache and a little numbness in the L arm but VERY good two days. Which made me NOT call the NS back yet. I know that when I put my mind to stopping smoking I will be able to do it. I just lost another pound so hooray! I really dont want to gain. Knitting huh? I did used to crochet a little, I will probably end up with the longest blanket in the world.... By the way, I was wrong, during my second delivery I did receive one shot of nubane 20 minutes before I delivered, I forgot about that! It didnt help anyway, only caused baby to have a apgar of 3 and they had to give her Narcan. But first one was totally natural. answer to your ?- I take celebrex- vicodan and flexoril when it gets real bad. Remember to still take it easy even if the headaches have eased up. You dont want to undue any improvement. Slow and steady...... Well I better go. Keep feeling better and keep me posted on your recovery.
mel333
09-17-2003, 10:59 AM
Hi Babs,
Glad to hear your having a few more pain free days. Go crotchet that blanket or one for everyone you know, that should keep you going for a while. I can't crochet but I wish I could. I think you should do a really long scarf. I have one I bought that I love and wear to death.
Don't worry re the weight gain with quitting. I think it almost helps you eat less sometimes cause it stops that snack, drink, ciggie cycle. You could also do lots of walking and drink lots of tea. I also found herbal teas and green tea really helped.
I take vioxx, valium and mersyndol forte(codeine) for mine. Yet, I am hoping the neurologist will suggest some of these newer headache pills. I am also going to get facet blocks c2/3 for the headaches in about a month as the small dose has helped already. I think you will be able to quit and even if you feel it's to hard just try cutting down slow. That worked for me. take care,
Mel
Glad to hear your having a few more pain free days. Go crotchet that blanket or one for everyone you know, that should keep you going for a while. I can't crochet but I wish I could. I think you should do a really long scarf. I have one I bought that I love and wear to death.
Don't worry re the weight gain with quitting. I think it almost helps you eat less sometimes cause it stops that snack, drink, ciggie cycle. You could also do lots of walking and drink lots of tea. I also found herbal teas and green tea really helped.
I take vioxx, valium and mersyndol forte(codeine) for mine. Yet, I am hoping the neurologist will suggest some of these newer headache pills. I am also going to get facet blocks c2/3 for the headaches in about a month as the small dose has helped already. I think you will be able to quit and even if you feel it's to hard just try cutting down slow. That worked for me. take care,
Mel