Icaaa
09-04-2003, 11:22 PM
How are you? I looked for some word on how you were doing but couldn't seem to find any. Of course that doesn't mean it isn't there :round:
Carla
------------------
Ruptured retrieved 14 pieces ACDF with plating and donor bone C6-7. (7/18/03)
Carla
------------------
Ruptured retrieved 14 pieces ACDF with plating and donor bone C6-7. (7/18/03)
Sponsor
pinklady630
09-04-2003, 11:34 PM
Hey Carla ~~~~~~ How are you doing?
Icaaa
09-07-2003, 02:35 PM
I really think I am over the "hump." I am feeling really good and other than trying to be careful lifting I am doing everything like usual. If I feel my shoulder pull I quit. Small aches and pains but then again that maybe that darn 50 yr old thing :D
Thanks for asking,
Carla
------------------
Ruptured retrieved 14 pieces ACDF with plating and donor bone C6-7. (7/18/03)
Thanks for asking,
Carla
------------------
Ruptured retrieved 14 pieces ACDF with plating and donor bone C6-7. (7/18/03)
franjos_other_sis
09-08-2003, 12:04 AM
Hi Carla,
Teri has had computer gremlins which prevent her from being able to visit healthboards. I've been checking in here from time to time, so maybe I can give you some information.
She's now been home for 2 1/2 weeks and is SOOOOOOO glad to be there! She suffered a spinal stroke which has impared the use of her right leg. She doesn't have any feeling there and only occassionally does she get 'twitches' She basically gets around by the use of a wheelchair. She uses her leg brace and a walker and is able to walk, but she gets fatigued easily. She's been getting 'in home PT' 3 times a week and OT twice a week. She is trying to stay positive about receiving "return" in her right leg.
She's getting stronger every day and I'm sure her strong spirit will serve her well. I'll tell her that you asked about her.
Teri has had computer gremlins which prevent her from being able to visit healthboards. I've been checking in here from time to time, so maybe I can give you some information.
She's now been home for 2 1/2 weeks and is SOOOOOOO glad to be there! She suffered a spinal stroke which has impared the use of her right leg. She doesn't have any feeling there and only occassionally does she get 'twitches' She basically gets around by the use of a wheelchair. She uses her leg brace and a walker and is able to walk, but she gets fatigued easily. She's been getting 'in home PT' 3 times a week and OT twice a week. She is trying to stay positive about receiving "return" in her right leg.
She's getting stronger every day and I'm sure her strong spirit will serve her well. I'll tell her that you asked about her.
Back to the Future
09-08-2003, 07:48 AM
Hi Carla - Teri can't post right now but I said i'd post the following for her:-
"Carla ~ I've not been able to post here .. I keep getting an error message in Explorer.. hopefully i'll get DH to haul my computer to the shop this week.
Thanks for thinking of me! I'm doing alright. The tethered cord release surgery left me with some deficit in my good, left leg and I've lost motor function of my right leg from the knee down ... there's no feeling or movement there. I've learnt that i'm considered to be an "incomplete paraplegic" . The NS believes I suffered a spinal cord stroke in the 24 hrs after the surgery.
I'm receiving PT 3X weekly, and OT 2X weekly in my own home. I'm currently using a wheelchair, but can walk the length of my house 6 times with the aid of a full leg-brace and a walker, which I try to make it a point to do at least once a day. My endurance isn't what I'd like, but patience is key. Ahh PATIENCE! http://www.healthboards.com/ubb/rolleyes.gif
I remain very optimistic about getting a return of function to my legs. It's a VERY slow process, and should be measured in months or even years, not weeks or days. I do have to keep reminding myself of this.
It's just so great to finally be back home! Five weeks from my little boy was about all I could bear! I was soooooo homesick. DH has been great ... installing handrails on the front steps ... grab bars in the shower ... lowering shelves in the laundry room ... even cooking suppers!! Shame on me I'm wondering how long I can milk this for :)
I hope this finds everyone here doing good. I've missed everyone ... hopefully I'll be getting the glitch out of my computer soon.
God bless and Keep
~Teri"
------------------
Ann xx
-----------
ACDF with own hip bone at levels C3-4 and C5-6 on 21 June 2003
"Carla ~ I've not been able to post here .. I keep getting an error message in Explorer.. hopefully i'll get DH to haul my computer to the shop this week.
Thanks for thinking of me! I'm doing alright. The tethered cord release surgery left me with some deficit in my good, left leg and I've lost motor function of my right leg from the knee down ... there's no feeling or movement there. I've learnt that i'm considered to be an "incomplete paraplegic" . The NS believes I suffered a spinal cord stroke in the 24 hrs after the surgery.
I'm receiving PT 3X weekly, and OT 2X weekly in my own home. I'm currently using a wheelchair, but can walk the length of my house 6 times with the aid of a full leg-brace and a walker, which I try to make it a point to do at least once a day. My endurance isn't what I'd like, but patience is key. Ahh PATIENCE! http://www.healthboards.com/ubb/rolleyes.gif
I remain very optimistic about getting a return of function to my legs. It's a VERY slow process, and should be measured in months or even years, not weeks or days. I do have to keep reminding myself of this.
It's just so great to finally be back home! Five weeks from my little boy was about all I could bear! I was soooooo homesick. DH has been great ... installing handrails on the front steps ... grab bars in the shower ... lowering shelves in the laundry room ... even cooking suppers!! Shame on me I'm wondering how long I can milk this for :)
I hope this finds everyone here doing good. I've missed everyone ... hopefully I'll be getting the glitch out of my computer soon.
God bless and Keep
~Teri"
------------------
Ann xx
-----------
ACDF with own hip bone at levels C3-4 and C5-6 on 21 June 2003
PainInTheNeckJackie
09-08-2003, 11:37 AM
Teri, May God Bless you on your road through recovery. I am still praying for you every day and hope the very best for your future years ahead. Keep your strength :)
------------------
Jackie
***************
Left paramedian subligamentous herniation C5-C6 causing left foraminal stenosis and cord compression;
------------------------
Right paramedian subligamentous herniation at C6-C7, abutted against the vetral aspect of the spinal cord
------------------
Jackie
***************
Left paramedian subligamentous herniation C5-C6 causing left foraminal stenosis and cord compression;
------------------------
Right paramedian subligamentous herniation at C6-C7, abutted against the vetral aspect of the spinal cord
PsychLea
09-08-2003, 09:38 PM
Teri!
It's good to know that Noah has his Mama home with him! Give him a kiss for us. http://www.healthboards.com/ubb/love2.gif
Praying you will recover full function and that you won't be discouraged. :angel:
------------------
God bless,
Lea
C4-5 noncompressive disc displacement
C5-6 compressive disc displacement
C6-7 broad based disc protrusion encroaching on the anterioposterior aspect of the spinal canal.
DDD
ACDF C6-7 5/13/03 with titanium plate,4 screws, and no collar postop.
New MRI 8/25/03
C5-6 posterior annular bulge, now with spurring,canal stenosis, and foraminal stenosis
It's good to know that Noah has his Mama home with him! Give him a kiss for us. http://www.healthboards.com/ubb/love2.gif
Praying you will recover full function and that you won't be discouraged. :angel:
------------------
God bless,
Lea
C4-5 noncompressive disc displacement
C5-6 compressive disc displacement
C6-7 broad based disc protrusion encroaching on the anterioposterior aspect of the spinal canal.
DDD
ACDF C6-7 5/13/03 with titanium plate,4 screws, and no collar postop.
New MRI 8/25/03
C5-6 posterior annular bulge, now with spurring,canal stenosis, and foraminal stenosis
RageOfAngels
09-12-2003, 03:41 PM
Teri,
May God bless you. I am praying for you. I really would like to see improvement in your legs, over time if need be. I have never heard of a "spinal cord stroke" and wonder what that really is. But I am glad that you are home and are getting the help and care that you need. It sounds as if your spirits are good, you have such courage and strength. But please make sure you gets lots of rest...sleep, allow the body a chance to heal. You've been through alot.
All the best,
Al
May God bless you. I am praying for you. I really would like to see improvement in your legs, over time if need be. I have never heard of a "spinal cord stroke" and wonder what that really is. But I am glad that you are home and are getting the help and care that you need. It sounds as if your spirits are good, you have such courage and strength. But please make sure you gets lots of rest...sleep, allow the body a chance to heal. You've been through alot.
All the best,
Al
mel333
09-13-2003, 01:54 PM
Teri,
My thoughts and prayers are with you in your recovery.
Mel
My thoughts and prayers are with you in your recovery.
Mel
franjo
09-14-2003, 03:42 PM
Hi Everyone!! Thanks for all of your continued prayers and well-wishes!! Through all of this your support has been a tremendous help...I can't express how much it has meant to me. http://www.healthboards.com/ubb/heart.gif
Not much has changed as far as motor function, but I do continue to gain strength and endurance. It's slow, and I do get frustrated at times, but I remain optimistic.
Al~~~~~ So good to hear from you!! How are you doing these days? I had never heard of a spinal cord stroke either. My NS explained that a stroke can occur anywhere in the body. It simply means a loss of blood supply to an area. Hopefully, in my case, the loss of supply didn't cause permanent death to my nerves. Time will tell.....tick, tock, tick, tock......
I still have lots of questions for my NS when I see him Oct. 8th for my post-op evaluation.
It's so good to see some old friends here. I hope everyone is able to have some pain-free moments.
God Bless,
~Teri
------------------
Spina-bifida occulta; Congenital Scoliosis (dextrorotatory and 'S' curve, 42 thorasic and 57 degrees lumbar); Meningomyelocele (split cord @ L1); Diastematomyelia (re-sectioned at L2-3); tethered cord @ S-3; cysts on cord; various developmental abnormalities of the spine: narrowing of all disk spaces, defects in posterior arches, ectasia of the spinal canal and dura, segmental disease, sclerosis in L. iliac bone and adjacent sacroiliac joint, unilateral osteitis condensans ilium, hypertrophic facet disease L4-5 and L5-S1.
Surgeries include, but not limited to:
Lumbar fusion-1968
Fusion with Herrington Rod instrumentation-1970
Femoral osteotomy-1971
Tethered cord release-1987
Rod removal-1987
Chiari-type pelvic osteotomy-1988
Trochanteric osteotomy-1989
Not much has changed as far as motor function, but I do continue to gain strength and endurance. It's slow, and I do get frustrated at times, but I remain optimistic.
Al~~~~~ So good to hear from you!! How are you doing these days? I had never heard of a spinal cord stroke either. My NS explained that a stroke can occur anywhere in the body. It simply means a loss of blood supply to an area. Hopefully, in my case, the loss of supply didn't cause permanent death to my nerves. Time will tell.....tick, tock, tick, tock......
I still have lots of questions for my NS when I see him Oct. 8th for my post-op evaluation.
It's so good to see some old friends here. I hope everyone is able to have some pain-free moments.
God Bless,
~Teri
------------------
Spina-bifida occulta; Congenital Scoliosis (dextrorotatory and 'S' curve, 42 thorasic and 57 degrees lumbar); Meningomyelocele (split cord @ L1); Diastematomyelia (re-sectioned at L2-3); tethered cord @ S-3; cysts on cord; various developmental abnormalities of the spine: narrowing of all disk spaces, defects in posterior arches, ectasia of the spinal canal and dura, segmental disease, sclerosis in L. iliac bone and adjacent sacroiliac joint, unilateral osteitis condensans ilium, hypertrophic facet disease L4-5 and L5-S1.
Surgeries include, but not limited to:
Lumbar fusion-1968
Fusion with Herrington Rod instrumentation-1970
Femoral osteotomy-1971
Tethered cord release-1987
Rod removal-1987
Chiari-type pelvic osteotomy-1988
Trochanteric osteotomy-1989
Icaaa
09-14-2003, 04:23 PM
Teri
You went through so much, but as you said you are home where you need to be and with your little boy. My mother had muscular dystrophy and was a great mother. Whether you are walking or riding being there for your family is what is important.
Sometimes pt can fell like a full time job...only you pay out :round:
Glad you are back on line,too.
Carla
------------------
Ruptured retrieved 14 pieces ACDF with plating and donor bone C6-7. (7/18/03)
You went through so much, but as you said you are home where you need to be and with your little boy. My mother had muscular dystrophy and was a great mother. Whether you are walking or riding being there for your family is what is important.
Sometimes pt can fell like a full time job...only you pay out :round:
Glad you are back on line,too.
Carla
------------------
Ruptured retrieved 14 pieces ACDF with plating and donor bone C6-7. (7/18/03)
RageOfAngels
09-14-2003, 04:56 PM
Teri,
Nice to actually hear from you! I guess you have gotten part or all of your computer problems working again, that is good news.
Well, my summer has been kind of rough health-wise but nothing like yours. I had UTI/prostate infections that were not responding to any treatment and I went through 3 different antibiotics, all of which made me very sick in some form or another (which kind of wrecked the summer). I am still trying to recover from the last one now which I abruptly had to stop when it began to affect my hearing (ringing and hearing loss) and my liver. In the meantime, I have been trying to look for other more natural methods to treat this stuff and to help some of my other nerve-damage related problems. I am even trying acupuncture, which so far I hate but am hopeful that perhaps there might be some help there. I just started so it's still in the beginning, "experimental" stages, so I will let you know if anything starts "working" again....
Anyway, otherwise things are moving along slowly and still in process. But it is nice to get back in touch and I will continue to pray for you.
Cheers,
Al
Nice to actually hear from you! I guess you have gotten part or all of your computer problems working again, that is good news.
Well, my summer has been kind of rough health-wise but nothing like yours. I had UTI/prostate infections that were not responding to any treatment and I went through 3 different antibiotics, all of which made me very sick in some form or another (which kind of wrecked the summer). I am still trying to recover from the last one now which I abruptly had to stop when it began to affect my hearing (ringing and hearing loss) and my liver. In the meantime, I have been trying to look for other more natural methods to treat this stuff and to help some of my other nerve-damage related problems. I am even trying acupuncture, which so far I hate but am hopeful that perhaps there might be some help there. I just started so it's still in the beginning, "experimental" stages, so I will let you know if anything starts "working" again....
Anyway, otherwise things are moving along slowly and still in process. But it is nice to get back in touch and I will continue to pray for you.
Cheers,
Al
gryffindorfan
09-16-2003, 02:31 PM
Hi Teri:
I just wanted to chime in with my positive thoughts for your continued improvement. They never called my dad's spinal event a stroke but 13 years ago inflammation from bursitis and stenosis at the c5-6 level left his spinal cord without blood supply for anywhere from 30 minutes to 8 hours. He woke unable to move -- they thought he had a real stroke, especially when he lost consciousness duie to the sugar water they were feeding him (he has an allergy to corn and the dextrose was filled with corn syrup!).
ANYWAY -- fats forward -- the man they said would never walk again does -- about 5 miles a day. It wasn't always easy and he still can't "feel" his leg -- but for a guy with as much "damage" as he has suffered he is an amazing success story.
Keep working and do not lose faith -- wondrous things do happen!
Another Terry
I just wanted to chime in with my positive thoughts for your continued improvement. They never called my dad's spinal event a stroke but 13 years ago inflammation from bursitis and stenosis at the c5-6 level left his spinal cord without blood supply for anywhere from 30 minutes to 8 hours. He woke unable to move -- they thought he had a real stroke, especially when he lost consciousness duie to the sugar water they were feeding him (he has an allergy to corn and the dextrose was filled with corn syrup!).
ANYWAY -- fats forward -- the man they said would never walk again does -- about 5 miles a day. It wasn't always easy and he still can't "feel" his leg -- but for a guy with as much "damage" as he has suffered he is an amazing success story.
Keep working and do not lose faith -- wondrous things do happen!
Another Terry
franjo
09-17-2003, 12:59 AM
Terry~
Thank you sooo much for sharing your story! http://www.healthboards.com/ubb/heart.gif I can't tell you how encouraging that is. You've made my day! Kiss your dad's face all over for me!
How long did it take before he saw some return in his legs? Were the improvements sudden or gradual? I'm guessing gradual, but there was a woman in Chicago Rehab, my roommate, who woke up one morning and suddenly was able to move her arm and hand! We were celebrating that day, you can be sure.
Again, thank you so much for posting. Your words came at just the right time.
God Bless,
~Teri
------------------
Spina-bifida occulta; Congenital Scoliosis (dextrorotatory and 'S' curve, 42 thorasic and 57 degrees lumbar); Meningomyelocele (split cord @ L1); Diastematomyelia (re-sectioned at L2-3); tethered cord @ S-3; cysts on cord; various developmental abnormalities of the spine: narrowing of all disk spaces, defects in posterior arches, ectasia of the spinal canal and dura, segmental disease, sclerosis in L. iliac bone and adjacent sacroiliac joint, unilateral osteitis condensans ilium, hypertrophic facet disease L4-5 and L5-S1.
Surgeries include, but not limited to:
Lumbar fusion-1968
Fusion with Herrington Rod instrumentation-1970
Femoral osteotomy-1971
Tethered cord release-1987
Rod removal-1987
Chiari-type pelvic osteotomy-1988
Trochanteric osteotomy-1989
Thank you sooo much for sharing your story! http://www.healthboards.com/ubb/heart.gif I can't tell you how encouraging that is. You've made my day! Kiss your dad's face all over for me!
How long did it take before he saw some return in his legs? Were the improvements sudden or gradual? I'm guessing gradual, but there was a woman in Chicago Rehab, my roommate, who woke up one morning and suddenly was able to move her arm and hand! We were celebrating that day, you can be sure.
Again, thank you so much for posting. Your words came at just the right time.
God Bless,
~Teri
------------------
Spina-bifida occulta; Congenital Scoliosis (dextrorotatory and 'S' curve, 42 thorasic and 57 degrees lumbar); Meningomyelocele (split cord @ L1); Diastematomyelia (re-sectioned at L2-3); tethered cord @ S-3; cysts on cord; various developmental abnormalities of the spine: narrowing of all disk spaces, defects in posterior arches, ectasia of the spinal canal and dura, segmental disease, sclerosis in L. iliac bone and adjacent sacroiliac joint, unilateral osteitis condensans ilium, hypertrophic facet disease L4-5 and L5-S1.
Surgeries include, but not limited to:
Lumbar fusion-1968
Fusion with Herrington Rod instrumentation-1970
Femoral osteotomy-1971
Tethered cord release-1987
Rod removal-1987
Chiari-type pelvic osteotomy-1988
Trochanteric osteotomy-1989
gryffindorfan
09-17-2003, 06:58 PM
Hi Teri:
I am glad I helped lift your spirits a little! I will kiss my dad's face when he gets back from Washington state. As you can see his "disability" really limits him... http://www.healthboards.com/ubb/jester.gif
He was injured in January that year and "walked" me down the aisle at the end of April the same year. (I think we leaned on each other -- I had sprained my ankle the week before my wedding!) He was not able to do the father-daughter dance ... but you know what...that was okay!
He still does not feel much in his left leg -- he describes it as the pins and needles you feel when your leg is asleep. But he was able to learn to walk on it that way. he has to be careful about blisters because he cannot feel them. I truly believe that most of his recovery was mental. my dad is the kind of person who sees everythig as a challenge. Growing up he was always teaching himself how to do things from scratch. I think that the doctors telling him he couldn't walk made certain he would do just that.
The doctors said that he recovered for a full year after the actual "stroke" -- for want of a better term. And even years later he would "get back" some feeling or ability.
So do not hold yourself to a timetable -- if you ever feel that hope slipping, think of Christopher Reeve and his being able to feel touch (and move his legs in water!) -- or think of my dad!
Be Positive ... hug your kids a lot!
Terry
I am glad I helped lift your spirits a little! I will kiss my dad's face when he gets back from Washington state. As you can see his "disability" really limits him... http://www.healthboards.com/ubb/jester.gif
He was injured in January that year and "walked" me down the aisle at the end of April the same year. (I think we leaned on each other -- I had sprained my ankle the week before my wedding!) He was not able to do the father-daughter dance ... but you know what...that was okay!
He still does not feel much in his left leg -- he describes it as the pins and needles you feel when your leg is asleep. But he was able to learn to walk on it that way. he has to be careful about blisters because he cannot feel them. I truly believe that most of his recovery was mental. my dad is the kind of person who sees everythig as a challenge. Growing up he was always teaching himself how to do things from scratch. I think that the doctors telling him he couldn't walk made certain he would do just that.
The doctors said that he recovered for a full year after the actual "stroke" -- for want of a better term. And even years later he would "get back" some feeling or ability.
So do not hold yourself to a timetable -- if you ever feel that hope slipping, think of Christopher Reeve and his being able to feel touch (and move his legs in water!) -- or think of my dad!
Be Positive ... hug your kids a lot!
Terry
franjo
09-18-2003, 04:05 PM
Terry~
I am a big believer in the power of the mind to do miraculous things. Someone at Chicago's Rehab told me that just 'thinking' about walking is beneficial to recovery.
I didn't know that Christopher Reeves had gotten some movement!! That's great news! WOW! Now, if that's not inspiring....I don't know what is.
Again, thanks for your encouragement! Although I consider myself to be a tough old bird....I do need to hear some positive words from time to time.
God Bless,
~Teri
------------------
Spina-bifida occulta; Congenital Scoliosis (dextrorotatory and 'S' curve, 42 thorasic and 57 degrees lumbar); Meningomyelocele (split cord @ L1); Diastematomyelia (re-sectioned at L2-3); tethered cord @ S-3; cysts on cord; various developmental abnormalities of the spine: narrowing of all disk spaces, defects in posterior arches, ectasia of the spinal canal and dura, segmental disease, sclerosis in L. iliac bone and adjacent sacroiliac joint, unilateral osteitis condensans ilium, hypertrophic facet disease L4-5 and L5-S1.
Surgeries include, but not limited to:
Lumbar fusion-1968
Fusion with Herrington Rod instrumentation-1970
Femoral osteotomy-1971
Tethered cord release-1987
Rod removal-1987
Chiari-type pelvic osteotomy-1988
Trochanteric osteotomy-1989
Tethered cord release-2003
Fusion with instrumentation with lots and lots of screws-2003
I am a big believer in the power of the mind to do miraculous things. Someone at Chicago's Rehab told me that just 'thinking' about walking is beneficial to recovery.
I didn't know that Christopher Reeves had gotten some movement!! That's great news! WOW! Now, if that's not inspiring....I don't know what is.
Again, thanks for your encouragement! Although I consider myself to be a tough old bird....I do need to hear some positive words from time to time.
God Bless,
~Teri
------------------
Spina-bifida occulta; Congenital Scoliosis (dextrorotatory and 'S' curve, 42 thorasic and 57 degrees lumbar); Meningomyelocele (split cord @ L1); Diastematomyelia (re-sectioned at L2-3); tethered cord @ S-3; cysts on cord; various developmental abnormalities of the spine: narrowing of all disk spaces, defects in posterior arches, ectasia of the spinal canal and dura, segmental disease, sclerosis in L. iliac bone and adjacent sacroiliac joint, unilateral osteitis condensans ilium, hypertrophic facet disease L4-5 and L5-S1.
Surgeries include, but not limited to:
Lumbar fusion-1968
Fusion with Herrington Rod instrumentation-1970
Femoral osteotomy-1971
Tethered cord release-1987
Rod removal-1987
Chiari-type pelvic osteotomy-1988
Trochanteric osteotomy-1989
Tethered cord release-2003
Fusion with instrumentation with lots and lots of screws-2003