BarbS123
10-26-2003, 10:45 PM
Hi Carla,
I didn't want to take up space on Belle's thread, so I started one just for you.
Anyway, my story is pretty long, so my best suggestion for you would be to do a search by my user name (BarbS123) in this forum. (I've also done some posting on the "back" forum.) There's a chance that a lot of it's gone by now (some of it might be in the archives, though), but there's still a lot here, I think.
The contraption I was in was a Miami JTO. Many people here are in just the Miami J, which is the hard collar. The JTO includes the J plus an additional piece which covers the chest and back. It's horrendous. I think if you type "Miami JTO" in your search engine space, you'll find sites that will provide you with a picture. I used to wonder why the girl in the picture was smiling, but then I realized that she was probably getting paid lots of money to pose for that picture and that she would be removing the contraption when the shoot was over. I'd smile, too, in that case!
I was diagnosed with MS in January 2002 and have been on Avonex since February 2002. I've only had one major flare since then. It was quite bad, but I willed it away and was fine within a few hours. (That's another long story.)
I can certainly understand why you'd be worried about your "good" side being affected. I was lucky; my MS side is the same side that was affected by my cervical problem. But then again, it might also have been a curse. I probably had cervical symptoms long before the need for surgery came about, but I just attributed everything to the MS. Perhaps if I had looked into it sooner, the surgery could have been prevented. By the way, I agree that a neurosurgeon would probably be a better choice than an orthopedic one, but some of the orthos have great experience with this kind of surgery.
Well, I guess that's about it for now. Please take some time looking through the old posts, and if you have any more questions, please feel free to ask.
Lots of love,
http://www.healthboards.com/ubb/heart.gif
Barb
------------------
Anterior Cervical Corpectomy/Diskectomy); own bone from left iliac crest; titanium plate with 4 screws. Freed myself of Evil Miami JTO (not just J) killer contraption against surgeon's orders (and happy I did it!!!!)
Rebellion worked--I'm free with the surgeon's blessing now! YIPPEE!!
[This message has been edited by BarbS123 (edited 10-26-2003).]
I didn't want to take up space on Belle's thread, so I started one just for you.
Anyway, my story is pretty long, so my best suggestion for you would be to do a search by my user name (BarbS123) in this forum. (I've also done some posting on the "back" forum.) There's a chance that a lot of it's gone by now (some of it might be in the archives, though), but there's still a lot here, I think.
The contraption I was in was a Miami JTO. Many people here are in just the Miami J, which is the hard collar. The JTO includes the J plus an additional piece which covers the chest and back. It's horrendous. I think if you type "Miami JTO" in your search engine space, you'll find sites that will provide you with a picture. I used to wonder why the girl in the picture was smiling, but then I realized that she was probably getting paid lots of money to pose for that picture and that she would be removing the contraption when the shoot was over. I'd smile, too, in that case!
I was diagnosed with MS in January 2002 and have been on Avonex since February 2002. I've only had one major flare since then. It was quite bad, but I willed it away and was fine within a few hours. (That's another long story.)
I can certainly understand why you'd be worried about your "good" side being affected. I was lucky; my MS side is the same side that was affected by my cervical problem. But then again, it might also have been a curse. I probably had cervical symptoms long before the need for surgery came about, but I just attributed everything to the MS. Perhaps if I had looked into it sooner, the surgery could have been prevented. By the way, I agree that a neurosurgeon would probably be a better choice than an orthopedic one, but some of the orthos have great experience with this kind of surgery.
Well, I guess that's about it for now. Please take some time looking through the old posts, and if you have any more questions, please feel free to ask.
Lots of love,
http://www.healthboards.com/ubb/heart.gif
Barb
------------------
Anterior Cervical Corpectomy/Diskectomy); own bone from left iliac crest; titanium plate with 4 screws. Freed myself of Evil Miami JTO (not just J) killer contraption against surgeon's orders (and happy I did it!!!!)
Rebellion worked--I'm free with the surgeon's blessing now! YIPPEE!!
[This message has been edited by BarbS123 (edited 10-26-2003).]
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CLJones64
10-27-2003, 09:49 AM
Hi Barb, and thanks for the thread! I've already been looking back and catching up on some of your experiences. You really went thru it with the surgeon from hell. lol I don't understand why she put you thru that, and I'm sure you don't. Good thing you were so informed and were able to take your recovery into your own hands. My hat is off to you for that. :) I do hope you're doing well now, and will continue to improve.
As for me, well I'm placing all my eggs in the basket with the injection, hoping and praying that it will help with the pain and allow me to avoid surgery. I'm seeing a chiropractor, too, figuring that's just another avenue to possibly help me. So far, he's not made much difference, but I keep hoping.
As for the MS, it's great to hear you're doing well with that, considering all you've been thru! I know stress definitely affects it, and you've had more than your share of that I feel sure. I worry about mine flaring up, too, but so far, so good. The Avonex has proven to be a wonderful drug for me as far as that goes, and I wish you the same luck with yours!
Thanks again for sharing your story with me, and I'm sure I'll have more questions for you along this path.
Hugs,
Carla
Oh, there is one thing from your post that struck my interest...you willing away your last flare. Care to ellaborate??
As for me, well I'm placing all my eggs in the basket with the injection, hoping and praying that it will help with the pain and allow me to avoid surgery. I'm seeing a chiropractor, too, figuring that's just another avenue to possibly help me. So far, he's not made much difference, but I keep hoping.
As for the MS, it's great to hear you're doing well with that, considering all you've been thru! I know stress definitely affects it, and you've had more than your share of that I feel sure. I worry about mine flaring up, too, but so far, so good. The Avonex has proven to be a wonderful drug for me as far as that goes, and I wish you the same luck with yours!
Thanks again for sharing your story with me, and I'm sure I'll have more questions for you along this path.
Hugs,
Carla
Oh, there is one thing from your post that struck my interest...you willing away your last flare. Care to ellaborate??
BarbS123
10-27-2003, 04:38 PM
Hi Carla,
Thanks for all the kudos!
Before I do anything else, I just want to wish you good luck with your plan of action. I hope that you will be able to get the relief you need without the trauma of surgery. Be careful with the chiropractor, though. I know that many people believe strongly in chiropractors, but I am not one of them. To be honest, I've probably heard just as many success stories as horror stories, so I would never be so presumptuous as to tell someone not to visit one. All I ask is that you be very careful.
Now, to answer your question about the MS flare. You know what they say about MS and heat, right? Well, June 25 was an incredibly hot day; it was close to 100 degrees, and the humidity was quite high. It was also the day that I had to take my daughter to the bus that would take her to sleep away camp. My husband couldn't come for the ride, since he had just been released from the hospital two days prior, (that's a whole other story!) so my brother came for the ride.
The first problem was that the air conditioner in my car was not working, so it was pretty hot in the car. But I had the windows and the sunroof open, and since the traffic was not too heavy, I was able to drive fast enough to catch a breeze. I also had my bottle of frozen water with me. So far, so good.
We arrived at the place about 30 to 40 minutes before the bus was supposed to arrive. But it didn't arrive when it was supposed to. The idiot bus driver got lost! There was no place to go to get out of the heat, and of course, I had no air conditioner! As the time passed, my right limbs started to tingle and burn. (My LEFT side is the one I call the MS side.) And the burning got progressively worse, until I felt as if I were on fire! Then, my head started doing what I call "MS things" (for lack of a better explanation).
Finally, the bus came. We had been waiting for about three hours! We said goodbye to Jennifer and started on our way. My brother asked me if I was okay to drive, and I said I was. Believe me, I was feeling lousy, but not lousy enough to be a passenger in my own car! But when we got to the highway, we saw that it was at a dead standstill! Luckily, I knew how to get back to Queens from Long Island via streets, so I got right off the highway.
As long as the car was moving, I was able to tolerate the heat, but every time I got to a red light, the symptoms got worse. Then, my hands started to contract, and my head started getting worse. Finally, I pulled over and told my brother I couldn't drive anymore. He knew at that point that this was pretty serious!!
I didn't know until I opened the door to walk around to the passenger side that I couldn't walk! I had to hold onto the car to manage this feat; I'm sure I would not have been able to take even one step totally unaided.
As we continued on our way, I continued to get worse. My hands not only contracted, but they were completely frozen in the "shadow duck" position. Even my brother couldn't forcefully open them up. All I kept saying was "GET ME HOME!"
Thankfully, a very dear friend of the family was at my apartment with my husband. (We couldn't leave him home alone.) When we got in front of my building, we called her from the cell phone and asked her to come down. She took one look at me and almost collapsed!! Apparently, I looked pretty bad!
Anyway, she helped me out of the car and up to the apartment. (I was able to walk, but quite unsteadily.) I went into the bedroom and lay on the bed. (Poor me--I had to go to the bathroom, but I knew it would be impossible, since my hands were virtually paralyzed!) Then, Lovie took off my socks and went to get an ice pack to cool me down. (The air conditioner was on, but I could hardly feel it.)
The ice felt good on my head, but--here's the funny part--when Lovie put it on my neck, where I really wanted it, I got a sudden pain! OMG!! I realized that I now have a metal plate in my neck!! Do you know what cold metal is like? Needless to say, we took the ice off immediately!
And here's where the will came in to play. I kept staring at my frozen hands and saying, "I have to do my husband's IV tomorrow. And I have to change his dressing. And tomorrow is Avonex day. My hands HAVE to get better." And I kept talking to my hands and willing them to "unfreeze". By the time I had been home for about two hours, I was back to my pre-flare condition! Whew!
So that's the story. (By the way, I love the Avonex! Well, maybe "love" isn't quite the right word, but you know what I mean.)
I'd love to be able to give you my e-mail address, since I know there's so much more we can share with each other, but unfortunately, they don't allow that around here. Sigh. Anyway, keep in touch.
Love and hugs,
http://www.healthboards.com/ubb/heart.gif
Barb
------------------
Anterior Cervical Corpectomy/Diskectomy); own bone from left iliac crest; titanium plate with 4 screws. Freed myself of Evil Miami JTO (not just J) killer contraption against surgeon's orders (and happy I did it!!!!)
Rebellion worked--I'm free with the surgeon's blessing now! YIPPEE!!
[This message has been edited by BarbS123 (edited 10-27-2003).]
Thanks for all the kudos!
Before I do anything else, I just want to wish you good luck with your plan of action. I hope that you will be able to get the relief you need without the trauma of surgery. Be careful with the chiropractor, though. I know that many people believe strongly in chiropractors, but I am not one of them. To be honest, I've probably heard just as many success stories as horror stories, so I would never be so presumptuous as to tell someone not to visit one. All I ask is that you be very careful.
Now, to answer your question about the MS flare. You know what they say about MS and heat, right? Well, June 25 was an incredibly hot day; it was close to 100 degrees, and the humidity was quite high. It was also the day that I had to take my daughter to the bus that would take her to sleep away camp. My husband couldn't come for the ride, since he had just been released from the hospital two days prior, (that's a whole other story!) so my brother came for the ride.
The first problem was that the air conditioner in my car was not working, so it was pretty hot in the car. But I had the windows and the sunroof open, and since the traffic was not too heavy, I was able to drive fast enough to catch a breeze. I also had my bottle of frozen water with me. So far, so good.
We arrived at the place about 30 to 40 minutes before the bus was supposed to arrive. But it didn't arrive when it was supposed to. The idiot bus driver got lost! There was no place to go to get out of the heat, and of course, I had no air conditioner! As the time passed, my right limbs started to tingle and burn. (My LEFT side is the one I call the MS side.) And the burning got progressively worse, until I felt as if I were on fire! Then, my head started doing what I call "MS things" (for lack of a better explanation).
Finally, the bus came. We had been waiting for about three hours! We said goodbye to Jennifer and started on our way. My brother asked me if I was okay to drive, and I said I was. Believe me, I was feeling lousy, but not lousy enough to be a passenger in my own car! But when we got to the highway, we saw that it was at a dead standstill! Luckily, I knew how to get back to Queens from Long Island via streets, so I got right off the highway.
As long as the car was moving, I was able to tolerate the heat, but every time I got to a red light, the symptoms got worse. Then, my hands started to contract, and my head started getting worse. Finally, I pulled over and told my brother I couldn't drive anymore. He knew at that point that this was pretty serious!!
I didn't know until I opened the door to walk around to the passenger side that I couldn't walk! I had to hold onto the car to manage this feat; I'm sure I would not have been able to take even one step totally unaided.
As we continued on our way, I continued to get worse. My hands not only contracted, but they were completely frozen in the "shadow duck" position. Even my brother couldn't forcefully open them up. All I kept saying was "GET ME HOME!"
Thankfully, a very dear friend of the family was at my apartment with my husband. (We couldn't leave him home alone.) When we got in front of my building, we called her from the cell phone and asked her to come down. She took one look at me and almost collapsed!! Apparently, I looked pretty bad!
Anyway, she helped me out of the car and up to the apartment. (I was able to walk, but quite unsteadily.) I went into the bedroom and lay on the bed. (Poor me--I had to go to the bathroom, but I knew it would be impossible, since my hands were virtually paralyzed!) Then, Lovie took off my socks and went to get an ice pack to cool me down. (The air conditioner was on, but I could hardly feel it.)
The ice felt good on my head, but--here's the funny part--when Lovie put it on my neck, where I really wanted it, I got a sudden pain! OMG!! I realized that I now have a metal plate in my neck!! Do you know what cold metal is like? Needless to say, we took the ice off immediately!
And here's where the will came in to play. I kept staring at my frozen hands and saying, "I have to do my husband's IV tomorrow. And I have to change his dressing. And tomorrow is Avonex day. My hands HAVE to get better." And I kept talking to my hands and willing them to "unfreeze". By the time I had been home for about two hours, I was back to my pre-flare condition! Whew!
So that's the story. (By the way, I love the Avonex! Well, maybe "love" isn't quite the right word, but you know what I mean.)
I'd love to be able to give you my e-mail address, since I know there's so much more we can share with each other, but unfortunately, they don't allow that around here. Sigh. Anyway, keep in touch.
Love and hugs,
http://www.healthboards.com/ubb/heart.gif
Barb
------------------
Anterior Cervical Corpectomy/Diskectomy); own bone from left iliac crest; titanium plate with 4 screws. Freed myself of Evil Miami JTO (not just J) killer contraption against surgeon's orders (and happy I did it!!!!)
Rebellion worked--I'm free with the surgeon's blessing now! YIPPEE!!
[This message has been edited by BarbS123 (edited 10-27-2003).]
nanna02
10-28-2003, 12:19 AM
Hi Carla and Barb :wave:
Sorry to intrude on your thread , but I just HAD to leave this message for you both.. :)
firstly, Thank You Carla , I did read yours, and yours also Barb.You did have a rough time eh?!
2nd.
I couldn't believe it when I read you BOTH have MS.. as I have also !! :(
I was dx way back as 'possible MS' in 1990, aged 38yrs. but had no MRIs' then.. got better rapidly .. no symptoms for the past 13 years , then just recently in Sept. my eyes became blurry , got the optic neuritis .. felt almost like going blind !! big blob in my eye.. Specialist said we'll wait see if goes away on it's own with no steroids. 1 month later it improved a little so no steroids..
it's a little better but at times worse than other days..
What I wanted to say was fancy us spineys having MS as well?!!
I have a white lesion on the brain and some say on the sp.cord./ showed on MRI,-- others argue "none!". but no one seems concerned about it.. -"it may have been a stroke .. or MS.. but it's not typical" Neurologist said 3 years ago..
Well.. it became calcification of spinal cord once operated on !!I guess I'm somewhat of a problem to all concerned!..I have 2 medical probs with similar symptoms !Who to believe ??
Oh well.. I've had so much happen I'm not going to bother worrying ..
Do yous' think it strange we have all had verterbrae /bulging disc probs?..or is this 'par for the course ' with MS do you think? Interesting ?
I never had an accident of my Thorasic spine, but I did fall & fracture my coccyx ( tailbone) 26 years ago.....
Interested to see what you both think ???
Cheers Belle http://www.healthboards.com/ubb/heart.gif xxx
Sorry to intrude on your thread , but I just HAD to leave this message for you both.. :)
firstly, Thank You Carla , I did read yours, and yours also Barb.You did have a rough time eh?!
2nd.
I couldn't believe it when I read you BOTH have MS.. as I have also !! :(
I was dx way back as 'possible MS' in 1990, aged 38yrs. but had no MRIs' then.. got better rapidly .. no symptoms for the past 13 years , then just recently in Sept. my eyes became blurry , got the optic neuritis .. felt almost like going blind !! big blob in my eye.. Specialist said we'll wait see if goes away on it's own with no steroids. 1 month later it improved a little so no steroids..
it's a little better but at times worse than other days..
What I wanted to say was fancy us spineys having MS as well?!!
I have a white lesion on the brain and some say on the sp.cord./ showed on MRI,-- others argue "none!". but no one seems concerned about it.. -"it may have been a stroke .. or MS.. but it's not typical" Neurologist said 3 years ago..
Well.. it became calcification of spinal cord once operated on !!I guess I'm somewhat of a problem to all concerned!..I have 2 medical probs with similar symptoms !Who to believe ??
Oh well.. I've had so much happen I'm not going to bother worrying ..
Do yous' think it strange we have all had verterbrae /bulging disc probs?..or is this 'par for the course ' with MS do you think? Interesting ?
I never had an accident of my Thorasic spine, but I did fall & fracture my coccyx ( tailbone) 26 years ago.....
Interested to see what you both think ???
Cheers Belle http://www.healthboards.com/ubb/heart.gif xxx
CLJones64
10-28-2003, 01:35 PM
Hey Barb and Belle,
Shocking news to find out that you also have MS Belle. I post on the MS board here also, and it's become obvious to me that people with MS often have disc problems. There's a thread on the MS board that has many others in the same boat as us. I'm surprised that the doctors haven't noticed this and performed some sort of study about it, considering how many it happens to. I find it occuring too frequently to ignore, and hope that someone will find a study somewhere that will shed some light.
Thanks Barb for the concern about the chiro. This is my first time with one, and needless to say I'm a bit skeptical since no progress has been made thus far and it's been almost a month. He doesn't want me to get the thoracic steroid injection but if it will relieve this pain I'm definietly not going to miss that appt. I already had one in the cervical region but it didn't help...or at least I couldn't tell that it helped. Who knows at this point?
Thanks for sharing your story about your experience in June. Man you had a rough day that day for sure! I tend to think maybe it was just pseudosymptoms brought on by the heat. I know I get them if my shower is too hot, so I've learned to keep it cool. I think heat intolerance and fatigue are my biggest problems to be honest. I did have a couple of bouts with my vision prior to my official diagnosis..one with double vision, and the other optic neuritis. Luckily, I haven't had any more recurences (sp?) with either.
The Avonex has proven to be a wonder drug for me, with no flares since I started it (jan '98). I hate the weekly "flu", but I know it's only temporary, so I continue with my therapy. My body has tolerated it very well, and my 6 month bloodwork has stayed good.
So Belle, are you on anything for your MS? Do you have regular problems with it? If so, you should really talk to your doctor about one of the ABCR drugs...they're doing wonders for me in keeping the disability at bay.
Whew, I've gotten long winded. Sorry. I would also love to converse with you via email....and I didn't know you couldn't post an email addy here. Yikes...I may have gotten in trouble at some point if you hadn't told me that.
Thanks to both of you for befriending me in this time of uncertainty. I look forward to corresponding with you in the future. Best of luck to both of you and I pray for your improved health!
Hugs,
Carla
Shocking news to find out that you also have MS Belle. I post on the MS board here also, and it's become obvious to me that people with MS often have disc problems. There's a thread on the MS board that has many others in the same boat as us. I'm surprised that the doctors haven't noticed this and performed some sort of study about it, considering how many it happens to. I find it occuring too frequently to ignore, and hope that someone will find a study somewhere that will shed some light.
Thanks Barb for the concern about the chiro. This is my first time with one, and needless to say I'm a bit skeptical since no progress has been made thus far and it's been almost a month. He doesn't want me to get the thoracic steroid injection but if it will relieve this pain I'm definietly not going to miss that appt. I already had one in the cervical region but it didn't help...or at least I couldn't tell that it helped. Who knows at this point?
Thanks for sharing your story about your experience in June. Man you had a rough day that day for sure! I tend to think maybe it was just pseudosymptoms brought on by the heat. I know I get them if my shower is too hot, so I've learned to keep it cool. I think heat intolerance and fatigue are my biggest problems to be honest. I did have a couple of bouts with my vision prior to my official diagnosis..one with double vision, and the other optic neuritis. Luckily, I haven't had any more recurences (sp?) with either.
The Avonex has proven to be a wonder drug for me, with no flares since I started it (jan '98). I hate the weekly "flu", but I know it's only temporary, so I continue with my therapy. My body has tolerated it very well, and my 6 month bloodwork has stayed good.
So Belle, are you on anything for your MS? Do you have regular problems with it? If so, you should really talk to your doctor about one of the ABCR drugs...they're doing wonders for me in keeping the disability at bay.
Whew, I've gotten long winded. Sorry. I would also love to converse with you via email....and I didn't know you couldn't post an email addy here. Yikes...I may have gotten in trouble at some point if you hadn't told me that.
Thanks to both of you for befriending me in this time of uncertainty. I look forward to corresponding with you in the future. Best of luck to both of you and I pray for your improved health!
Hugs,
Carla
BarbS123
10-28-2003, 09:58 PM
Hi Carla and Belle,
Belle--I knew that you had MS, too, but I didn't feel it my place to tell Carla. (Sorry Carla!) I believe I posted to you quite a while ago about how my MS came to be diagnosed. (I believe you had asked me a question about it. Do you remember? I'm not sure if you ever replied to that post.)
Carla--when I was recovering from my cervical surgery, I began to wonder if I really had MS after all! I had read so much here on HB about symptoms that just seemed so similar to those of MS. And for quite a while after the surgery, I seemed to have no MS symptoms at all, at least none that were enough to comment about. (Of course, I was not allowed to do anything at all, so that could be another reason for the "remission".) Anyway, when I mentioned to my neurologist that I was thinking along these lines, he looked at me as if I had just come in on the first flight from the moon! I mean, I DID have all those positive MS test results, not to mention all the MS symptoms, many of which are NOT cervical-type problems at all. So of course, I really did have MS. Still, I know it sounds strange, but the night my left leg started burning, I felt great! I knew that I wasn't treating a fictitious MS!
As for the Avonex, please don't hate me. I have never had any side effects from it! In fact, I've never even taken a Tylenol before or after my injection. (I still have the little bottle that the Biogen people sent me!) The Avonex nurse who was calling me monthly when I started the program told me that I was "one in a million" (her words, not mine!). I do, however, feel a little something from the new Avonex, but it's not enough to call a side effect. I guess it's because the medication is more concentrated now.
Anyway, I'm glad to have you as a new friend. And Belle, I'm happy to have you back!! Keep in touch!
Lots of love,
http://www.healthboards.com/ubb/heart.gif
Barb
------------------
Anterior Cervical Corpectomy/Diskectomy); own bone from left iliac crest; titanium plate with 4 screws. Freed myself of Evil Miami JTO (not just J) killer contraption against surgeon's orders (and happy I did it!!!!)
Rebellion worked--I'm free with the surgeon's blessing now! YIPPEE!!
[This message has been edited by BarbS123 (edited 10-28-2003).]
Belle--I knew that you had MS, too, but I didn't feel it my place to tell Carla. (Sorry Carla!) I believe I posted to you quite a while ago about how my MS came to be diagnosed. (I believe you had asked me a question about it. Do you remember? I'm not sure if you ever replied to that post.)
Carla--when I was recovering from my cervical surgery, I began to wonder if I really had MS after all! I had read so much here on HB about symptoms that just seemed so similar to those of MS. And for quite a while after the surgery, I seemed to have no MS symptoms at all, at least none that were enough to comment about. (Of course, I was not allowed to do anything at all, so that could be another reason for the "remission".) Anyway, when I mentioned to my neurologist that I was thinking along these lines, he looked at me as if I had just come in on the first flight from the moon! I mean, I DID have all those positive MS test results, not to mention all the MS symptoms, many of which are NOT cervical-type problems at all. So of course, I really did have MS. Still, I know it sounds strange, but the night my left leg started burning, I felt great! I knew that I wasn't treating a fictitious MS!
As for the Avonex, please don't hate me. I have never had any side effects from it! In fact, I've never even taken a Tylenol before or after my injection. (I still have the little bottle that the Biogen people sent me!) The Avonex nurse who was calling me monthly when I started the program told me that I was "one in a million" (her words, not mine!). I do, however, feel a little something from the new Avonex, but it's not enough to call a side effect. I guess it's because the medication is more concentrated now.
Anyway, I'm glad to have you as a new friend. And Belle, I'm happy to have you back!! Keep in touch!
Lots of love,
http://www.healthboards.com/ubb/heart.gif
Barb
------------------
Anterior Cervical Corpectomy/Diskectomy); own bone from left iliac crest; titanium plate with 4 screws. Freed myself of Evil Miami JTO (not just J) killer contraption against surgeon's orders (and happy I did it!!!!)
Rebellion worked--I'm free with the surgeon's blessing now! YIPPEE!!
[This message has been edited by BarbS123 (edited 10-28-2003).]
nanna02
10-28-2003, 10:09 PM
Hello to everyone .. :) Barb & Carla :wave:
For those interested , I only had reccurrence of MS symptoms just recently ,after 13 yrs of quiet; no meds ever given or needed except antispasm meds, allergic to!.. :(
with the optic neuritis eyepain/ blurry eyes beginning just this September '03.
I am not on any meds now either,(only for nerve/op pain,) as here in NZ we have to meet quite a strict criteria to be allowed to be funded by the Govt. for meds , such as Avonex or Beta Interferon.It is very expensive.
If I had've qualified to get it, I was told I would have to be a certain age, able to walk 300 metres, be working to contribute towards the NZ economy .
( which I was) etc. . or some such 'qualification'..I think it has now relaxed a little, but a bit late for me!.
I could've done that a few years ago, except the Spinal Cord/operations problems came along, upsetting my chances..Now I can't walk anyway!..
I found out that in America people who were dx with MS were given Avonex no problem!. Is this correct?
I have a friend who was allowed it, but as she said , it's not a cure ..she gets quite sick at times with the 'fluey' feelings.
However Carla , I don't want to take up this thread talking about MS,( I'll go over and look at MS page) but thanks for your concern .. hope I've clarified some of your ???
Hugs to All http://www.healthboards.com/ubb/heart.gif Belle NZ
For those interested , I only had reccurrence of MS symptoms just recently ,after 13 yrs of quiet; no meds ever given or needed except antispasm meds, allergic to!.. :(
with the optic neuritis eyepain/ blurry eyes beginning just this September '03.
I am not on any meds now either,(only for nerve/op pain,) as here in NZ we have to meet quite a strict criteria to be allowed to be funded by the Govt. for meds , such as Avonex or Beta Interferon.It is very expensive.
If I had've qualified to get it, I was told I would have to be a certain age, able to walk 300 metres, be working to contribute towards the NZ economy .
( which I was) etc. . or some such 'qualification'..I think it has now relaxed a little, but a bit late for me!.
I could've done that a few years ago, except the Spinal Cord/operations problems came along, upsetting my chances..Now I can't walk anyway!..
I found out that in America people who were dx with MS were given Avonex no problem!. Is this correct?
I have a friend who was allowed it, but as she said , it's not a cure ..she gets quite sick at times with the 'fluey' feelings.
However Carla , I don't want to take up this thread talking about MS,( I'll go over and look at MS page) but thanks for your concern .. hope I've clarified some of your ???
Hugs to All http://www.healthboards.com/ubb/heart.gif Belle NZ
CLJones64
10-30-2003, 01:26 AM
Hello my 2 new friends! I tried to post earlier today, but this thing wouldn't let me, so here I am, trying again.
Barb, Congrats on being one in a million. :) I don't fret my side effects, so not to worry. The benefits far outweigh them to say the least. I take Celebrex on Friday (shot night) and Saturday, and that seems to calm them, and by Sunday I'm fine. No problem. I'm sorry, but I had to grin when I read your story about doubting that you had MS, and your neurologist's reply like you were from the moon. lol Have to laugh about it, right? :)
Belle, you're such a sweetie!! I'm sorry to hear that NZ is so strict about the MS drugs, but thankfully you've done wonderfully to go 13 years with no problems! I'll bet you were wondering if you really had it, too. I do hope you'll continue to do well in that regard...God knows you don't need any more problems.
As for me, I'm waiting on the thoracic injection, next Friday, and hoping that will ease my pain and allow me to avoid surgery. I'm still going to the chiro, but not sure how much longer I will since he's not really making much difference...seems to be a waste of money if I'm not improving.
Oh Belle, you asked about the MS drugs here. Fortunately, things have really lightened up here in the States in the past few years, and most of the insurance companies now cover them. There are guidelines that you have to meet, but they don't seem to be a problem with a diagnosis, and the doctors now seem to be eager to start them, hoping to delay the onset of disability.
I do think I'll ask my neurologist about the frequency of disc problems and MS patients. It's just too common to not have been noticed by someone before now. I'll let you know what he says the next time I see him.
Thanks again, to both of you, for befriending me, and sharing your experiences with me. May we all continue to improve!!!
Love and Hugs,
Carla
Barb, Congrats on being one in a million. :) I don't fret my side effects, so not to worry. The benefits far outweigh them to say the least. I take Celebrex on Friday (shot night) and Saturday, and that seems to calm them, and by Sunday I'm fine. No problem. I'm sorry, but I had to grin when I read your story about doubting that you had MS, and your neurologist's reply like you were from the moon. lol Have to laugh about it, right? :)
Belle, you're such a sweetie!! I'm sorry to hear that NZ is so strict about the MS drugs, but thankfully you've done wonderfully to go 13 years with no problems! I'll bet you were wondering if you really had it, too. I do hope you'll continue to do well in that regard...God knows you don't need any more problems.
As for me, I'm waiting on the thoracic injection, next Friday, and hoping that will ease my pain and allow me to avoid surgery. I'm still going to the chiro, but not sure how much longer I will since he's not really making much difference...seems to be a waste of money if I'm not improving.
Oh Belle, you asked about the MS drugs here. Fortunately, things have really lightened up here in the States in the past few years, and most of the insurance companies now cover them. There are guidelines that you have to meet, but they don't seem to be a problem with a diagnosis, and the doctors now seem to be eager to start them, hoping to delay the onset of disability.
I do think I'll ask my neurologist about the frequency of disc problems and MS patients. It's just too common to not have been noticed by someone before now. I'll let you know what he says the next time I see him.
Thanks again, to both of you, for befriending me, and sharing your experiences with me. May we all continue to improve!!!
Love and Hugs,
Carla
nanna02
10-30-2003, 06:23 AM
Hi again! :)
Barb, http://www.healthboards.com/ubb/heart.gif
It was a long time ago about the MS question, but I think in this fuddled brain of pain meds I do remember us discussing it..You certainly went through hell didn't you? Sounds dreadful!..... :(
I thank you for your discretion but I am not concerned about anyone discussing my probs on here as it is " Free for All" , & if it helps anyone ,I am only too happy to help. :)
Carla, http://www.healthboards.com/ubb/heart.gif
I am also pleased to see you are thinking of bringing up the bulging disc spinal problem and MS question.. I never thought of asking my neuro, as the focus was always so much on the spinal ops.. MS never got a look in..still doesn't !!
I wish you luck for your Thorasic Epidural shot and hope it all goes well,.. will be thinking of you and look forward to see how it all goes sweetie ..
Good Luck !! http://www.healthboards.com/ubb/t_up.gif
Love Belle xxx
Barb, http://www.healthboards.com/ubb/heart.gif
It was a long time ago about the MS question, but I think in this fuddled brain of pain meds I do remember us discussing it..You certainly went through hell didn't you? Sounds dreadful!..... :(
I thank you for your discretion but I am not concerned about anyone discussing my probs on here as it is " Free for All" , & if it helps anyone ,I am only too happy to help. :)
Carla, http://www.healthboards.com/ubb/heart.gif
I am also pleased to see you are thinking of bringing up the bulging disc spinal problem and MS question.. I never thought of asking my neuro, as the focus was always so much on the spinal ops.. MS never got a look in..still doesn't !!
I wish you luck for your Thorasic Epidural shot and hope it all goes well,.. will be thinking of you and look forward to see how it all goes sweetie ..
Good Luck !! http://www.healthboards.com/ubb/t_up.gif
Love Belle xxx
CLJones64
11-04-2003, 01:30 AM
Hey Barb and Belle,
Hope this finds you both doing as well as can be expected. I'm about the same here...just hanging in there and waiting on Friday when I have the ESI. The Neurontin is helping to ease my pain to a tolerable level until then. I hope I'm not putting too much hope into the outcome of the injection, but that's all I have to hope for at this moment. Do either of you know if the shot can actually help with a herniated disc? I know it's herniated and compressing the nerve because parts of my right arm are numb. Do herniated discs ever go back on their own? Thanks for any insight you can offer on this.
Oh, and Barb...I think we got in on the private messages in error. Did you ever receive my reply to yours? I can't even access them now...they turned it off, saying it's only for administrators. I really wish they would have left it available for registered members so we could swap private information if we saw fit. Maybe we should suggest that?
Hope this finds you both doing as well as can be expected. I'm about the same here...just hanging in there and waiting on Friday when I have the ESI. The Neurontin is helping to ease my pain to a tolerable level until then. I hope I'm not putting too much hope into the outcome of the injection, but that's all I have to hope for at this moment. Do either of you know if the shot can actually help with a herniated disc? I know it's herniated and compressing the nerve because parts of my right arm are numb. Do herniated discs ever go back on their own? Thanks for any insight you can offer on this.
Oh, and Barb...I think we got in on the private messages in error. Did you ever receive my reply to yours? I can't even access them now...they turned it off, saying it's only for administrators. I really wish they would have left it available for registered members so we could swap private information if we saw fit. Maybe we should suggest that?
BarbS123
11-04-2003, 06:02 PM
Hi Carla,
I tried posting a reply a little while ago, but it didn't go through. Hope this one does. (And I hope I can remember what I wrote before!)
Anyway, I'm sorry to say that I don't know anything about the shot you are going to take or whether it will help a herniated disc. I also don't know if a herniated disc can get better on its own. All I do know is that I sincerely hope that the shot helps you and that you can avoid the surgery. No matter what, just be astute!
As for the private message, no, I didn't get yours. When I signed on to HB, I had a screen telling me I had a PM, but when I went to retrieve it, I got another message that said I was not authorized to access the page. I'm surprised that you were able to get mine. Amazing Onetime Luck!!
(And by the way, don't bother to ask the moderators for permission to communicate offline with anyone. I can tell you now that they will definitely say no.)
Hi Belle,
Hope everything is okay with you!
Lots of love,
Barb
I tried posting a reply a little while ago, but it didn't go through. Hope this one does. (And I hope I can remember what I wrote before!)
Anyway, I'm sorry to say that I don't know anything about the shot you are going to take or whether it will help a herniated disc. I also don't know if a herniated disc can get better on its own. All I do know is that I sincerely hope that the shot helps you and that you can avoid the surgery. No matter what, just be astute!
As for the private message, no, I didn't get yours. When I signed on to HB, I had a screen telling me I had a PM, but when I went to retrieve it, I got another message that said I was not authorized to access the page. I'm surprised that you were able to get mine. Amazing Onetime Luck!!
(And by the way, don't bother to ask the moderators for permission to communicate offline with anyone. I can tell you now that they will definitely say no.)
Hi Belle,
Hope everything is okay with you!
Lots of love,
Barb
nanna02
11-06-2003, 05:39 AM
:wave: Hello Carla & Barb.
A quick reply to say I've had 3 terrible painful days so haven't been on here .. too sore to sit long, It's been AGONY!
I discovered last night it was the neuropathic pain where it was cut thru and damaged my spinal cord during the last op, not pain from just twisting the wrong way!! I thought I'd ripped my stomach muscles !!
I feel so stupid as it was so logical, but neuro( Nerve) and ordinary pain are so different but I just about have to be a Specialist myself to work it all out!! Different meds for different pain!!
Anyway , I just wanted to wish you both well , and Carla :tup: if you do get your shot ,
I have been thinking of you both.. Well must off to bed..
Take Care
Love Belle :heart: xxx
A quick reply to say I've had 3 terrible painful days so haven't been on here .. too sore to sit long, It's been AGONY!
I discovered last night it was the neuropathic pain where it was cut thru and damaged my spinal cord during the last op, not pain from just twisting the wrong way!! I thought I'd ripped my stomach muscles !!
I feel so stupid as it was so logical, but neuro( Nerve) and ordinary pain are so different but I just about have to be a Specialist myself to work it all out!! Different meds for different pain!!
Anyway , I just wanted to wish you both well , and Carla :tup: if you do get your shot ,
I have been thinking of you both.. Well must off to bed..
Take Care
Love Belle :heart: xxx
CLJones64
11-06-2003, 10:13 AM
Hiya Belle,
I was wondering where you were, and now I'm so sorry to hear you've had such a terrible past 3 days. I pray that today is better for you. :) You're surely a trooper, and have done remarkable, given what you've had to deal with. There's something not right when we get to a point that we can diagnose and treat our own ailments successfully. Knowledge is power, but it's not fair that we have to learn so much! My hat is off to you, for being able to stay so determined and positive on your road to recovery. I pray that you reach that goal sooner than later, and can truly enjoy life again, and especially that new grandbaby!
Much love and heartfelt hugs,
Carla
I was wondering where you were, and now I'm so sorry to hear you've had such a terrible past 3 days. I pray that today is better for you. :) You're surely a trooper, and have done remarkable, given what you've had to deal with. There's something not right when we get to a point that we can diagnose and treat our own ailments successfully. Knowledge is power, but it's not fair that we have to learn so much! My hat is off to you, for being able to stay so determined and positive on your road to recovery. I pray that you reach that goal sooner than later, and can truly enjoy life again, and especially that new grandbaby!
Much love and heartfelt hugs,
Carla
CLJones64
11-07-2003, 06:49 PM
Hiya Barb and Belle,
Just wanted to post an update about my injection today. It didn't happen. The doctor that was scheduled to do it said he wasn't able to do one in the T1/T2 region because the shoulders are too thick to allow the x-ray images to show. And since that's how he guides the needle, it wasn't possible. He did say he MAY be able to do it under CT scan, but proceeded to tell me he's never done it that way either. Sorry, but I don't want to be his guinea pig for that one!
So I headed over to my neuro's office, only to find he's gone until Monday. I did share the whole experience with his nurse though, and she's supposed to discuss it with him then. She did call and schedule me an appt with an orthopedic surgeon for the 24th, but that may change depending on what the neuro plans to do. I can always cancel it if necessary, although I suspect that will be his next move as well, especially since he's already mentioned that if the injection didn't work.
So here we are again...waiting 2 more weeks. All I can do now is thank God for the Neurontin and pray that it continues to help with my pain until then.
Frustrated,
Carla
Just wanted to post an update about my injection today. It didn't happen. The doctor that was scheduled to do it said he wasn't able to do one in the T1/T2 region because the shoulders are too thick to allow the x-ray images to show. And since that's how he guides the needle, it wasn't possible. He did say he MAY be able to do it under CT scan, but proceeded to tell me he's never done it that way either. Sorry, but I don't want to be his guinea pig for that one!
So I headed over to my neuro's office, only to find he's gone until Monday. I did share the whole experience with his nurse though, and she's supposed to discuss it with him then. She did call and schedule me an appt with an orthopedic surgeon for the 24th, but that may change depending on what the neuro plans to do. I can always cancel it if necessary, although I suspect that will be his next move as well, especially since he's already mentioned that if the injection didn't work.
So here we are again...waiting 2 more weeks. All I can do now is thank God for the Neurontin and pray that it continues to help with my pain until then.
Frustrated,
Carla
nanna02
11-08-2003, 07:44 AM
Hello Carla ,Barb and All :wave:
Carla , I'm so sorry to see your shot and plans have not been able to go ahead;
It's so disappointing when you've psyched yourself up to be brave for some big issue and have great hopes that "this will be the big one that will make everything ok," then it falls through..
I have to be honest and say my husband and I have learnt very quickly from experiences not to expect too much from the medical people, and then you aren't affected so badly when there are mistakes.
It's nice you were able to talk with the specialists' receptionist tho, maybe you'll get some good service eventually , I hope you do!
BARB -how are YOU doing ? ;) Good I hope?
I think I have just about got my horrible nerve pain under control nearly , not all the time, but at least a BIT of relief is better than none at all!! :)
Have YOU experienced let downs waiting on the right treatment like poor Carla just described?
We've had quite a few disappointments and mistakes caused by various people over 3 years but I guess that is to be expected in a public health system with many patients, and you learn to " go with the flow" in the end!! nothing always goes the way we want.. but it is upsetting just the same.
Let us know what happens Carla.?
Like I'm saying right now, Thank God for the pain pills !! I hate taking them but I need them!.
Well I must go to bed , but it's lovely to say "Hi" on here again to you both, and God Bless to Everyone else who reads this..
Love to You All
Belle xxx
Carla , I'm so sorry to see your shot and plans have not been able to go ahead;
It's so disappointing when you've psyched yourself up to be brave for some big issue and have great hopes that "this will be the big one that will make everything ok," then it falls through..
I have to be honest and say my husband and I have learnt very quickly from experiences not to expect too much from the medical people, and then you aren't affected so badly when there are mistakes.
It's nice you were able to talk with the specialists' receptionist tho, maybe you'll get some good service eventually , I hope you do!
BARB -how are YOU doing ? ;) Good I hope?
I think I have just about got my horrible nerve pain under control nearly , not all the time, but at least a BIT of relief is better than none at all!! :)
Have YOU experienced let downs waiting on the right treatment like poor Carla just described?
We've had quite a few disappointments and mistakes caused by various people over 3 years but I guess that is to be expected in a public health system with many patients, and you learn to " go with the flow" in the end!! nothing always goes the way we want.. but it is upsetting just the same.
Let us know what happens Carla.?
Like I'm saying right now, Thank God for the pain pills !! I hate taking them but I need them!.
Well I must go to bed , but it's lovely to say "Hi" on here again to you both, and God Bless to Everyone else who reads this..
Love to You All
Belle xxx
CLJones64
11-08-2003, 01:09 PM
Hi all,
In a bit of a better frame of mind today after digesting things and reading more on the boards. I know I'm not alone in the world of letdowns when it comes to treatment, and I'm definitely getting better at going with the flow. :)
Belle, thanks for much for being such a positive influence! It's wonderful to hear you're getting a little relief from your pain. I'm right there with ya, thanking God for the pills, and relishing every moment of pain relief, no matter how great or small.
Barb, how are you, as Belle asked? Doing well I hope. Thanks for sharing what you know about my problem, and for being so supportive.
I'll keep you posted as to what my neuro's plan is come Monday, I hope. His nurse assured me that she would discuss it with him personally Monday morning, so hopefully she'll call me with something then.
Take care, and stay strong.
Big Hugs,
Carla
In a bit of a better frame of mind today after digesting things and reading more on the boards. I know I'm not alone in the world of letdowns when it comes to treatment, and I'm definitely getting better at going with the flow. :)
Belle, thanks for much for being such a positive influence! It's wonderful to hear you're getting a little relief from your pain. I'm right there with ya, thanking God for the pills, and relishing every moment of pain relief, no matter how great or small.
Barb, how are you, as Belle asked? Doing well I hope. Thanks for sharing what you know about my problem, and for being so supportive.
I'll keep you posted as to what my neuro's plan is come Monday, I hope. His nurse assured me that she would discuss it with him personally Monday morning, so hopefully she'll call me with something then.
Take care, and stay strong.
Big Hugs,
Carla
BarbS123
11-11-2003, 05:34 PM
Hello my friends,
Carla--I, too, am sorry your plans have hit a snag and hope things will work out soon. Hang in there, my friend.
Belle--I was so sorry to hear of the hell you've been through, but happy to know that your pain is more under control now. As for me, I guess I'm really unusual. I have a great neurologist who diagnosed my MS only one month after I saw him for the first time and put me on the Avonex right away. I met my neurosurgeon for the first time (the one from hell!) on a Tuesday, and she scheduled me for surgery that Thursday. As much as I hate her, I have to admit that the surgery was a tremendous success. I never had any pain, not even a sore throat, after the surgery. (Never even took any pain meds in the hospital or when I came home.) So, no, I haven't experienced and letdowns like the one Carla just had. I guess that when it comes to doctors, I'm pretty lucky. But then again, I research carefully before I go to a new doctor and make sure that whatever doctor I choose is at the top of his (or her) field.
So that's my story. I sincerely hope that things go well for both of you (and all the others here). Nobody deserves to go through what you're going through.
Lots of love and hugs,
Barb
Carla--I, too, am sorry your plans have hit a snag and hope things will work out soon. Hang in there, my friend.
Belle--I was so sorry to hear of the hell you've been through, but happy to know that your pain is more under control now. As for me, I guess I'm really unusual. I have a great neurologist who diagnosed my MS only one month after I saw him for the first time and put me on the Avonex right away. I met my neurosurgeon for the first time (the one from hell!) on a Tuesday, and she scheduled me for surgery that Thursday. As much as I hate her, I have to admit that the surgery was a tremendous success. I never had any pain, not even a sore throat, after the surgery. (Never even took any pain meds in the hospital or when I came home.) So, no, I haven't experienced and letdowns like the one Carla just had. I guess that when it comes to doctors, I'm pretty lucky. But then again, I research carefully before I go to a new doctor and make sure that whatever doctor I choose is at the top of his (or her) field.
So that's my story. I sincerely hope that things go well for both of you (and all the others here). Nobody deserves to go through what you're going through.
Lots of love and hugs,
Barb
nanna02
11-11-2003, 11:47 PM
Hi my friends, :angel:
This is just a little Post script Carla & Barb, to say I'm afraid the pain relief has been very shortlived ;
I was crying floods last night in bed , not believing I'm still where I was 1 1/2 years ago after the 3rd op, with this neuropathic pain..No one can understand you when you say " Pain so bad!" .
Any way I've made an appt tommorow with my GP. I don't know what she will recommend any different; maybe send me back to the Pain Clinic or the N/Surgeon.. Who knows ..I could've killed myself quite easily last night..I was so desperate, didn't know WHERE to put my poor old body!..And my husband just doesn't know what to do.. :confused:
Now , I'm going close off from interrupting you and Barb on here; I will come back on when I see what happens.. but I'll start a new thread. OK?
Be back soon! :wave: Love Belle xx
This is just a little Post script Carla & Barb, to say I'm afraid the pain relief has been very shortlived ;
I was crying floods last night in bed , not believing I'm still where I was 1 1/2 years ago after the 3rd op, with this neuropathic pain..No one can understand you when you say " Pain so bad!" .
Any way I've made an appt tommorow with my GP. I don't know what she will recommend any different; maybe send me back to the Pain Clinic or the N/Surgeon.. Who knows ..I could've killed myself quite easily last night..I was so desperate, didn't know WHERE to put my poor old body!..And my husband just doesn't know what to do.. :confused:
Now , I'm going close off from interrupting you and Barb on here; I will come back on when I see what happens.. but I'll start a new thread. OK?
Be back soon! :wave: Love Belle xx
CLJones64
11-12-2003, 09:46 AM
Hello Barb and Belle,
Glad to hear you're doing so well Barb. Your story is good for anyone facing surgery, so I hope others are reading this thread as well. A positive outcome is always great to hear! Hope you continue to do well!!
As for Belle,
My, my....I wish there was something I could say or do to comfort you. I DO understand "pain so bad", but I can't imagine going thru it for 1 1/2 years, especially after 3 surgeries! God knows you have a right to be at your wit's end. I PRAY that the GP will do something or send you somewhere to get you some help with it. I've been where you are, and am ashamed to admit it was only after 1 month of dealing with the neuropathic pain. It's like no other, that's for sure.
God be with you, and with your husband at this difficult time. I can only imagine how frustrated and helpless he must feel watching you suffer, and not be able to do anything to help you. May God send his angels to bring you both peace and comfort.
Carla
Glad to hear you're doing so well Barb. Your story is good for anyone facing surgery, so I hope others are reading this thread as well. A positive outcome is always great to hear! Hope you continue to do well!!
As for Belle,
My, my....I wish there was something I could say or do to comfort you. I DO understand "pain so bad", but I can't imagine going thru it for 1 1/2 years, especially after 3 surgeries! God knows you have a right to be at your wit's end. I PRAY that the GP will do something or send you somewhere to get you some help with it. I've been where you are, and am ashamed to admit it was only after 1 month of dealing with the neuropathic pain. It's like no other, that's for sure.
God be with you, and with your husband at this difficult time. I can only imagine how frustrated and helpless he must feel watching you suffer, and not be able to do anything to help you. May God send his angels to bring you both peace and comfort.
Carla
BarbS123
11-12-2003, 08:49 PM
Oh Belle,
I'm so sorry for the pain you are going through. I hate feeling so helpless. I guess the only thing I can do is pray for you, and I will. I just hope the Big Guy upstairs listens!
And Carla,
Thanks for not making me feel guilty. I'm happy to share my story with anyone who wants to ask me anything.
Lots of love and hugs,
Barb
I'm so sorry for the pain you are going through. I hate feeling so helpless. I guess the only thing I can do is pray for you, and I will. I just hope the Big Guy upstairs listens!
And Carla,
Thanks for not making me feel guilty. I'm happy to share my story with anyone who wants to ask me anything.
Lots of love and hugs,
Barb
nanna02
11-15-2003, 10:00 AM
Hi Carla and Barb .. Belle here !! :wave:
in a hurry as going to bed , very late , but I just wanted to tell you I have posted messages on the Pain Management posts in reply to Furryface; where she asked if "Anyone elses Pain Meds are not working? ".. :rolleyes:
Thought yous' may be interested to see what happened to me regarding my meds?.. I will start a new thread on my recent progress on there soon for you's to see...
Must go now.. :yawn: Love Belle xxx ;)
in a hurry as going to bed , very late , but I just wanted to tell you I have posted messages on the Pain Management posts in reply to Furryface; where she asked if "Anyone elses Pain Meds are not working? ".. :rolleyes:
Thought yous' may be interested to see what happened to me regarding my meds?.. I will start a new thread on my recent progress on there soon for you's to see...
Must go now.. :yawn: Love Belle xxx ;)
BarbS123
11-15-2003, 11:03 AM
Hi Belle :wave:
I'm going there now.
Lots of love,
Barb
I'm going there now.
Lots of love,
Barb
nanna02
11-17-2003, 06:23 AM
:rolleyes: Hi Barb!
Furryfaces' post I told you about got lost...sorry ..
I have just written a wee post added on to Carlas' "Thorasic" post question.. hope you can find it on there.. just said I'm still in pain, will post again soon. Hope you are both doing ok, and coping ?
Love Belle :) xxx
Furryfaces' post I told you about got lost...sorry ..
I have just written a wee post added on to Carlas' "Thorasic" post question.. hope you can find it on there.. just said I'm still in pain, will post again soon. Hope you are both doing ok, and coping ?
Love Belle :) xxx
BarbS123
11-17-2003, 08:59 PM
Hi Belle,
I think I got there just in the nick of time. I did read your post there.
Lots of love,
Barb
I think I got there just in the nick of time. I did read your post there.
Lots of love,
Barb