cheliqua
12-21-2000, 06:09 PM
I am 27 and just recently found out that I have Factor V Leiden following many pulmonary emboli, DVT's, a stroke at birth, and 2 TIA's. Anyone else have this problem?
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Peter Brown
12-22-2000, 04:52 PM
Hi Cheliqua,
I am forty 45 and had a massive stroke complicated with a haemorage, followed this with a large DVT left leg and for good measure a Pulmonary Embolism.
The cause for all of this has been identified as 1. factor V leiden mutation (hereditary) 2. lupus anticoagulant 3. anticardiolipin IgG antibody All these elements combined caused the various clots that I had.
As for the stroke I was in a coma for 5 days, quadruplegic for 4 weeks, learnt to walk in 5 weeks, I have no known memory or speech problems ( all though I should). I have regained my drivers licence, and returned to my old job part time.
I have been classified as having APS AntiPhospolipid Syndrome. For me I am on a life long therapy of Warfarin (Coudamin) which is a blood anticoagulant.
If you want more information please email me at pbrown_aus@hotmail.com
regards, Peter
I am forty 45 and had a massive stroke complicated with a haemorage, followed this with a large DVT left leg and for good measure a Pulmonary Embolism.
The cause for all of this has been identified as 1. factor V leiden mutation (hereditary) 2. lupus anticoagulant 3. anticardiolipin IgG antibody All these elements combined caused the various clots that I had.
As for the stroke I was in a coma for 5 days, quadruplegic for 4 weeks, learnt to walk in 5 weeks, I have no known memory or speech problems ( all though I should). I have regained my drivers licence, and returned to my old job part time.
I have been classified as having APS AntiPhospolipid Syndrome. For me I am on a life long therapy of Warfarin (Coudamin) which is a blood anticoagulant.
If you want more information please email me at pbrown_aus@hotmail.com
regards, Peter
LESLIE_IN_PGH
12-30-2000, 01:44 PM
HELLO, CHELIQUA!
I AM 33 AND HAVE BEEN HAVING TIA'S/SMALL STROKES FOR ALMOST TREE YEARS...I AM CURIOUS WHAT KIND OF DOCTOR FOUND YOUR CLOTTING DISORDER...LOOKING FOR HELP!
LESLIE IN PITTSBURGH
I AM 33 AND HAVE BEEN HAVING TIA'S/SMALL STROKES FOR ALMOST TREE YEARS...I AM CURIOUS WHAT KIND OF DOCTOR FOUND YOUR CLOTTING DISORDER...LOOKING FOR HELP!
LESLIE IN PITTSBURGH
Peter Brown
12-31-2000, 01:05 AM
Leslie,
The elements that I listed above in this message string as causing my various blood clots can be tested for with various blood tests. The hereditary problem will always be there if you have it. The other items can drift in and out of whack so testing is not always conclusive. It may be a start for you though, your local GP can get you started.
Peter
The elements that I listed above in this message string as causing my various blood clots can be tested for with various blood tests. The hereditary problem will always be there if you have it. The other items can drift in and out of whack so testing is not always conclusive. It may be a start for you though, your local GP can get you started.
Peter
cheliqua
12-31-2000, 12:00 PM
Leslie,
My Internist was the one who discovered it. Now, I am followed by a hematologist and also a high risk OB/GYN. They are still baffled about all the events, but the main thing is as of right now, Coumadin seems to be doing the trick! Hope this helps!!! ;)
My Internist was the one who discovered it. Now, I am followed by a hematologist and also a high risk OB/GYN. They are still baffled about all the events, but the main thing is as of right now, Coumadin seems to be doing the trick! Hope this helps!!! ;)
Rick Neel
08-29-2001, 05:40 PM
A very close friend of mine (25 year old mother of 1) was just diagnosed with Anticardio Lipinzs Syndrome. I can't find much of anything on the web about this condition. does anyone have any suggested URLs or information. Thanks for any help possible.
Peter Brown
08-30-2001, 08:51 AM
Rick,
You can find a very active forum on antiphospholipid antibody syndrome at www.delphi.com (http://www.delphi.com) from there you should find links to other sites.
Peter
You can find a very active forum on antiphospholipid antibody syndrome at www.delphi.com (http://www.delphi.com) from there you should find links to other sites.
Peter
curse
07-26-2002, 09:33 PM
Cheliqua-
My Dad just had a hemorrhage this year. He has taken coumadin for 15+ yrs. We have learned a whole lot, that we never knew about that drug. The food not to eat, symptoms, etc. He/whe had never been warned. If you have not gotten good info. on it. Get it. It may save your life.
My Dad just had a hemorrhage this year. He has taken coumadin for 15+ yrs. We have learned a whole lot, that we never knew about that drug. The food not to eat, symptoms, etc. He/whe had never been warned. If you have not gotten good info. on it. Get it. It may save your life.