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Old 11-30-2003, 03:50 PM   #1
Newbie
 
Join Date: Nov 2003
Location: West Fargo, ND
Posts: 7
WriteMindedLfty HB User
Unhappy New Here & Desperate!

I'm new here, and my arthritis (type unknown/sketchy at best at this time)
is SO not under control.. it came on VERY suddenly one morning just after beginning college--and is getting MUCH worse, very quickly..
I'm borderline incapacitated!

I'm only 35, and I developed arthritis, overnight--basically.
My rh factor was neg. but my sed rate was 50, doctor said this was normal for osteoarthritis, does this sound accurate?

Are there any other knee joint pain symptoms in other illnesses?

This *doctor*... when I called up last week to tell her the pain was at times becoming intolerable, and asked her if I could increase my anti-infl. med--I think it's called naproxyn--she said no; said I'm on the max dose.. I said to the nurse, well is there something more potent, that is non-narcotic--her only reply was--doc said to STAY ON THE MED SHE PRESCRIBED--

I said to her, I attend the university in moorhead, and I didn't pay for on campus parking to save money--(I developed the arthritis VERY suddenly, only five days after beginning college) and told her I, on some days end up having to walk a mile, or a bit more than that, and the pain is EXCRUCIATING... she said, WHY would you do that?

OMG... do I have a choice??

She obviously either doesn't believe the pain I'm expressing, OR.... doesn't care.. or isn't thinking my entire dilemma through.
Why would she ask 'why are you doing that'????

Because, college has been a lifelong dream, and NOT about to give that up for ANYTHING.

But does she offer a handicap sticker/hanger??
Noooo..

Sorry, this post probably sounds extremely hostile, well, that's because I'm NOW, feeling hostile!
I never knew a doc could be so insensitive, or unhelpful in SUCH a painful state!!!

The pain is getting at least 10% worse, everyday, right now.
I'm feeling more helpless that I have in all of my 35 years.
I'm getting more depressed, than I have ever been.
Hopeless, yeah, all the major depression symptoms, and yes, I'm on medication for it.. doc just switched meds--to see if I can be lifted up on another one.

Also... for a couple of years now, I have had nodules in my leg muscles about the size, welll.. between a pea and a lima bean..
Very painful when pressed on.
Is this something that correlates with a certain type of arthritis?

My doc also refuses to actually pursue further testing, to pinpoint the exact type of arthritis I have--

Is a sed. rate of 50 typical of osteo?

This message was comprised of several cuts and pastes from several of my 'help call' messages on aol and here-
I haven't read it through again, so if there is duplicacy in what I've said, I apologize-
I'm extremely depressed, and in a lot of pain, therefore, it's hard to repeatedly retype my dilemma.
Thank you for reading, and any advice/info is GREATLY appreciated!

 
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Old 12-01-2003, 04:56 PM   #2
Newbie
 
Join Date: Dec 2003
Location: georgia
Posts: 2
stormhunter HB User
Re: New Here & Desperate!

I am sorry you are hurting so bad. I am a 42 year young person that has bad arthritis. I had a bone scan done and my internist said I have the bones of an 80 yo. I have been taking lortab 10/500 for three years. I take one in the morning and one in the evening. Yes, docs do treat you like you are not hurting that bad. I recently asked my doctor to fill out a form for me to get a handicap parking permit. That was a god send. If you are hurting that bad ,you need one. Believe me it helps. See if the doctor will give you ultracet. I had a bad fall last january and have had two surgeries and now my neck is really in bad shape. He gave me the ultarcet and told me to tryit. I hate lortab. The ul;tarcet seems to help some. Are you really hard to get going in the mornings? If you are then try some really hot showers and alot of caffiene. It seems the caffiene gets me headache free from the neck pain from the artho. Also there are some good docs out there you just have to trust god will send you one. your sed rate is a little high. But you might have the beginnings of osteoporous. Check with a spinal clinic if you have them there. Again i wil pray for you. God is the greatest pain speacialist

 
Old 12-07-2003, 05:47 PM   #3
Inactive
 
Join Date: Jun 2003
Location: WV
Posts: 230
AliceBlueBelle HB UserAliceBlueBelle HB UserAliceBlueBelle HB UserAliceBlueBelle HB User
Re: New Here & Desperate!

I don't know how it works in your state, but I have to go to the DMV and pick up the form. I fill out as much as I can so that there is very little for the doc to do. Once I get the paper signed, I take it back and get my my tag. I'm sure all this can be done by mail if the DMV is not close to you.
Give your DMV a call and see what you need to do for certain.

alice

 
Old 12-09-2003, 06:18 PM   #4
Veteran
(female)
 
Join Date: Aug 2001
Location: Holland, MI
Posts: 366
Dawnrise HB User
Re: New Here & Desperate!

I have had psoriatic arthritis for approx. 20 years now. It started when I was in my mid 20's. I know how bad the pain can be. I finally changed rheumys because I didn't feel like he was willing to offer anything else or even wanted to help. Just wanted to take my money. I was so glad I switched. The new rheumy started me on Enbrel which was a god-send.

I don't understand why your doctor refuses to test you for the exact type you have. He should know so he knows how to treat it because arthritis medications are different and used for particular kinds. Know what I mean?

Anyway, I think you should find another doctor. And not a family doctor. You need a specialist unless you're already going to one. And if he/she doesn't listen find another one. You pretty much have to fight for anything nowadays.

But I wish you luck.

 
Old 12-10-2003, 05:08 AM   #5
Member
 
Join Date: Dec 2002
Location: Michigan
Posts: 53
RMiller HB User
Re: New Here & Desperate!

First, analyze your diet.
Are you getting enough B Complex?
Niacin Supplements will help.
So will Glucosamine Sulfate.

Many NSAID drugs (anti-inflammatories) actually make the problem worse and accelerate the damage to joint cartilage.

Glucosamine Sulfate encourages the body to build new cartilage.
Niacin provides the nutrition.

Also, if you eat mainly junk food your blood sugar swings radically.
Excess glucose in the bloodstream deteriorates your body's collagen.
Collagen is the connective tissue that hols our bones together, as well as skin to muscle.
__________________
Rich

Last edited by RMiller; 12-10-2003 at 05:20 AM.

 
Old 12-10-2003, 09:21 AM   #6
Newbie
 
Join Date: Nov 2003
Location: Europe
Posts: 5
Berenk HB User
Re: New Here & Desperate!

Hi RightMindedL
I have had cervical spondylosis for years, but last August I started bizarre symptoms I'd never had before - painful wrists, ankles, hands and feet. Mornings I am very stiff and sore. I also developed shortness of breath. In blood work, my Rhuematoid Factor was up a little, but basically as I had more than five joints sore/inflamed, my doctor decided I had the beginnings of Rheumatoid Arthritis and put me on a drug called Methotrexate. I think after two weeks its beginning to help me.
To recapitulate for you - OsteoArthritis is wear and tear of cartilege. RheumatoidArthritis (RA)is inflammation of the cartilege - where your immune system turns back on you. I would advise you look seriously into the possibility that you might have RA in which case, the sooner it is treated, the less damage it does.
Good Luck

 
Old 12-10-2003, 12:09 PM   #7
Newbie
 
Join Date: Dec 2003
Location: Ohio
Posts: 2
Mghtymom1 HB User
Re: New Here & Desperate!

Quote:
Originally Posted by WriteMindedLfty
I'm new here, and my arthritis (type unknown/sketchy at best at this time)
is SO not under control.. it came on VERY suddenly one morning just after beginning college--and is getting MUCH worse, very quickly..
I'm borderline incapacitated!

I'm only 35, and I developed arthritis, overnight--basically.
My rh factor was neg. but my sed rate was 50, doctor said this was normal for osteoarthritis, does this sound accurate?

Are there any other knee joint pain symptoms in other illnesses?

This *doctor*... when I called up last week to tell her the pain was at times becoming intolerable, and asked her if I could increase my anti-infl. med--I think it's called naproxyn--she said no; said I'm on the max dose.. I said to the nurse, well is there something more potent, that is non-narcotic--her only reply was--doc said to STAY ON THE MED SHE PRESCRIBED--

I said to her, I attend the university in moorhead, and I didn't pay for on campus parking to save money--(I developed the arthritis VERY suddenly, only five days after beginning college) and told her I, on some days end up having to walk a mile, or a bit more than that, and the pain is EXCRUCIATING... she said, WHY would you do that?

OMG... do I have a choice??

She obviously either doesn't believe the pain I'm expressing, OR.... doesn't care.. or isn't thinking my entire dilemma through.
Why would she ask 'why are you doing that'????

Because, college has been a lifelong dream, and NOT about to give that up for ANYTHING.

But does she offer a handicap sticker/hanger??
Noooo..

Sorry, this post probably sounds extremely hostile, well, that's because I'm NOW, feeling hostile!
I never knew a doc could be so insensitive, or unhelpful in SUCH a painful state!!!

The pain is getting at least 10% worse, everyday, right now.
I'm feeling more helpless that I have in all of my 35 years.
I'm getting more depressed, than I have ever been.
Hopeless, yeah, all the major depression symptoms, and yes, I'm on medication for it.. doc just switched meds--to see if I can be lifted up on another one.

Also... for a couple of years now, I have had nodules in my leg muscles about the size, welll.. between a pea and a lima bean..
Very painful when pressed on.
Is this something that correlates with a certain type of arthritis?

My doc also refuses to actually pursue further testing, to pinpoint the exact type of arthritis I have--

Is a sed. rate of 50 typical of osteo?

This message was comprised of several cuts and pastes from several of my 'help call' messages on aol and here-
I haven't read it through again, so if there is duplicacy in what I've said, I apologize-
I'm extremely depressed, and in a lot of pain, therefore, it's hard to repeatedly retype my dilemma.
Thank you for reading, and any advice/info is GREATLY appreciated!


Hello,

My name is Sherry. I was diagnosed with Rhematoid Arthritis in July of 2002. Like you, I woke up one morning not able to move my arms. The pain was horrible. I have been on a number of medications and now I'm going to start taking Embrel injections. I'm a little nervous about this but you got to do what you got to do. If I was you I would get another doctor right away. Something just doesn't add up. I would find a doctor with a little more compassion. I'm looking for some people to email me about their results with Embrel. If there are any out there please get in touch ok. Thanks

Last edited by moderator2; 12-10-2003 at 07:26 PM. Reason: Do not solicit email - this board is for anonymous use only. Please carefully read and follow the board posting guidelines. Thank you.

 
Old 12-10-2003, 12:11 PM   #8
Newbie
 
Join Date: Dec 2003
Location: Ohio
Posts: 2
Mghtymom1 HB User
Re: New Here & Desperate!

Hello,

My name is Sherry. I was diagnosed with Rhematoid Arthritis in July of 2002. Like you, I woke up one morning not able to move my arms. The pain was horrible. I have been on a number of medications and now I'm going to start taking Embrel injections. I'm a little nervous about this but you got to do what you got to do. If I was you I would get another doctor right away. Something just doesn't add up. I would find a doctor with a little more compassion. I'm looking for some people to email me about their results with Embrel. If there are any out there please get in touch ok. Thanks

Last edited by moderator2; 12-10-2003 at 07:26 PM. Reason: Do not solicit email - this board is for anonymous use only. Please carefully read and follow the board posting guidelines. Thank you.

 
Old 12-14-2003, 05:43 PM   #9
Senior Veteran
 
Join Date: Aug 2002
Posts: 758
Bruce HB User
Re: New Here & Desperate!

Quote:
Originally Posted by WriteMindedLfty
I'm new here, and my arthritis (type unknown/sketchy at best at this time)
is SO not under control.. it came on VERY suddenly one morning just after beginning college--and is getting MUCH worse, very quickly..
I'm borderline incapacitated!

I'm only 35, and I developed arthritis, overnight--basically.
My rh factor was neg. but my sed rate was 50, doctor said this was normal for osteoarthritis, does this sound accurate?

Are there any other knee joint pain symptoms in other illnesses?

This *doctor*... when I called up last week to tell her the pain was at times becoming intolerable, and asked her if I could increase my anti-infl. med--I think it's called naproxyn--she said no; said I'm on the max dose.. I said to the nurse, well is there something more potent, that is non-narcotic--her only reply was--doc said to STAY ON THE MED SHE PRESCRIBED--

I said to her, I attend the university in moorhead, and I didn't pay for on campus parking to save money--(I developed the arthritis VERY suddenly, only five days after beginning college) and told her I, on some days end up having to walk a mile, or a bit more than that, and the pain is EXCRUCIATING... she said, WHY would you do that?

OMG... do I have a choice??

She obviously either doesn't believe the pain I'm expressing, OR.... doesn't care.. or isn't thinking my entire dilemma through.
Why would she ask 'why are you doing that'????

Because, college has been a lifelong dream, and NOT about to give that up for ANYTHING.

But does she offer a handicap sticker/hanger??
Noooo..

Sorry, this post probably sounds extremely hostile, well, that's because I'm NOW, feeling hostile!
I never knew a doc could be so insensitive, or unhelpful in SUCH a painful state!!!

The pain is getting at least 10% worse, everyday, right now.
I'm feeling more helpless that I have in all of my 35 years.
I'm getting more depressed, than I have ever been.
Hopeless, yeah, all the major depression symptoms, and yes, I'm on medication for it.. doc just switched meds--to see if I can be lifted up on another one.

Also... for a couple of years now, I have had nodules in my leg muscles about the size, welll.. between a pea and a lima bean..
Very painful when pressed on.
Is this something that correlates with a certain type of arthritis?

My doc also refuses to actually pursue further testing, to pinpoint the exact type of arthritis I have--

Is a sed. rate of 50 typical of osteo?

This message was comprised of several cuts and pastes from several of my 'help call' messages on aol and here-
I haven't read it through again, so if there is duplicacy in what I've said, I apologize-
I'm extremely depressed, and in a lot of pain, therefore, it's hard to repeatedly retype my dilemma.
Thank you for reading, and any advice/info is GREATLY appreciated!

i have never posted on this board before, but have a lot of experience with osteoarthritis in both knees. i don't understand why your doctor is unwilling to do the tests that would diagnose which type of arthritis you have.

a sudden onset doesn't sound like osteoarthritis. it is caused by a gradual loss of cartllege in the joints..

i can relate to your pain, because i can't walk without a walker.

i am getting a feeling their is a lot of hostility between you and the doctor. communication between doctor and patient is important and if i read you right, you need to change doctors

Chronic arthritis is something i have had to live with, and it can be devestating.

bruce

 
Old 12-27-2003, 01:28 PM   #10
Senior Veteran
(female)
 
Join Date: Nov 2003
Location: Indiana, USA
Posts: 691
snowmelts HB User
Re: New Here & Desperate!

Sorry you feel so badly. I hope you find some pain relief.

Quote:
Originally Posted by WriteMindedLfty
I'm new here, and my arthritis (type unknown/sketchy at best at this time)
is SO not under control.. it came on VERY suddenly one morning just after beginning college--and is getting MUCH worse, very quickly..
I'm borderline incapacitated!
Osteoarthritis (OA) never comes on overnight - NEVER.

Quote:
Originally Posted by WriteMindedLfty
I'm only 35, and I developed arthritis, overnight--basically.
My rh factor was neg. but my sed rate was 50, doctor said this was normal for osteoarthritis, does this sound accurate?!
Quote:
Originally Posted by WriteMindedLfty
Is a sed. rate of 50 typical of osteo?
Osterarthritis (OA) does NOT raise your SED rate.
RA does raise your Sed Rate, but you said you checked out Neg for that type.
I have OA in the knees and spine and my SED rate is 35 which is high since 30 is concidered the highest normal. However I also have some vascular problem which can account for my SED rate being a tad high.

Quote:
Originally Posted by WriteMindedLfty
Are there any other knee joint pain symptoms in other illnesses?--
Sure. For starters you need an X-ray of the joint in question and an MRI wouldn't hurt either.

Quote:
Originally Posted by WriteMindedLfty
This *doctor*... when I called up last week to tell her the pain was at times becoming intolerable, and asked her if I could increase my anti-infl. med--I think it's called naproxyn--she said no; said I'm on the max dose.. I said to the nurse, well is there something more potent, that is non-narcotic--her only reply was--doc said to STAY ON THE MED SHE PRESCRIBED--
Your Dr can't prescribe more than the Max..certainly not over the phone and certainly not without test results proving the need. Too much can do a lot of damage.

Quote:
Originally Posted by WriteMindedLfty
I said to her, I attend the university in moorhead, and I didn't pay for on campus parking to save money--(I developed the arthritis VERY suddenly, only five days after beginning college) and told her I, on some days end up having to walk a mile, or a bit more than that, and the pain is EXCRUCIATING... she said, WHY would you do that? She obviously either doesn't believe the pain I'm expressing, OR.... doesn't care.. or isn't thinking my entire dilemma through.
Why would she ask 'why are you doing that'????

Because, college has been a lifelong dream, and NOT about to give that up for ANYTHING.

But does she offer a handicap sticker/hanger??
Noooo..
OA cannot develope in 5 days. Careful walking is actually considered an excercise that is good for OA. Bending the knee keeps it from stiffening. The excercise to avoid would be any impact excercise. Jogging is very bad. You can get a handicapped sticker from your campus security office once you can prove the handicap. You can get a form from the DMV and all your Dr does is sign it. Your Dr does not have the forms..you must pick those up from the DMV and take them to your DR.

Quote:
Originally Posted by WriteMindedLfty
Sorry, this post probably sounds extremely hostile, well, that's because I'm NOW, feeling hostile!
I never knew a doc could be so insensitive, or unhelpful in SUCH a painful state!!!

The pain is getting at least 10% worse, everyday, right now.
I'm feeling more helpless that I have in all of my 35 years.
I'm getting more depressed, than I have ever been.
Hopeless, yeah, all the major depression symptoms, and yes, I'm on medication for it.. doc just switched meds--to see if I can be lifted up on another one.

Also... for a couple of years now, I have had nodules in my leg muscles about the size, welll.. between a pea and a lima bean..
Very painful when pressed on.
Is this something that correlates with a certain type of arthritis?
like I said I have OA and nope it does not cause nodules in leg muscles.


Quote:
Originally Posted by WriteMindedLfty
My doc also refuses to actually pursue further testing, to pinpoint the exact type of arthritis I have--
If you want to do more than your Dr is doing then you have to base the requests on facts..not just "it hurts". Dr's need reasons to order tests..they can't just order everything without specific reasons. If you have the reasons and your Dr refuses to listen, then perhaps you need a diff Dr.


Quote:
Originally Posted by WriteMindedLfty
This message was comprised of several cuts and pastes from several of my 'help call' messages on aol and here-
I haven't read it through again, so if there is duplicacy in what I've said, I apologize-
I'm extremely depressed, and in a lot of pain, therefore, it's hard to repeatedly retype my dilemma.
Thank you for reading, and any advice/info is GREATLY appreciated!
Maybe you don't have osteoarthritis..maybe you have something else?

 
Old 12-27-2003, 02:32 PM   #11
Senior Member
 
Join Date: Nov 2003
Location: Texas
Posts: 139
becky1954 HB User
Re: New Here & Desperate!

i was on naproxen for years.it never did anything for me.i have had back pain for about 2 years and finally i have been dx with arthritis of the spine.the doctor gave me samples of Bextra and it seems to help quite a bit.
__________________
be kind to yourself

 
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