Hi Rheumatoid hit me almost over night six months ago in quite a big way. Until then i was a fit and healthy 35 year old mother of two who works part time teaching and enjoys an active social life. My hands were paralysed for a few weeks until prednilsoline and Vioxx kicked in but no-one wants to stay on cortisone forever. My specialist put me on Plaquenil which i immed reacted to with burning skin and heart palpatations. Then Salazapyrin (Sulfasalazine) but although it initially did the trick, six weeks later i reacted with what they called Steven's Johnson syndrome (ulcerated mouth right thru diges system - scary). Back on prednisoline and Vioxx to cover me while this gets out of my system and some folic acid. Now i have to decide between Arava and Methatrexate? Both sound horrific! I'm really frightened to put anymore drugs in my body that may cause more harm than the RA? Are they worth the risk? Has anyone had any luck with a modified diet? I'm really determined not to let this ******* disease control my life but can't avoid it slowing me down right now. Trying to keep up with walking, pilates and yoga on the good days.
Any advice will be gratefully received.
Hi Aussie Chick, I don't have RA but have OA. I know there is a BIG difference, but I did get relief from a food supplement and got completely off drugs. My friend from Utah has Ankylosing Spondilytis (sdc spelling don't count) and he was in severe pain taking 12 Methotrexate (sdc again) a week and he was on another pill too. He is amazed at only 6 months he is now pain free. I can't imagine the pain he told me about, and has had pain since he was 4 years old and was only diagnosed a few years ago by a simple blood test. This rare case of Arthritis is very painful. When you get the purest form of food in your body your immune system can fight better. It's supprising how this works, almost seems too good to be true. C.
I have been on both mtx and arava. Had fairly good results with both. No side effects. Cant say I felt great but RA didnt get any worse. I stopped mtx because I wanted to be able to drink alcohol. I wanted to stop the arava because I heard it had bad side effects (althouhg I never had any.) Then doc put me on enbrel and its been great. Some days I feel almost normal. I dont beleive you can treat this disease with herbs, diets, etc. although some people claim good results.
Thanks for your feedback. You Americans are lucky having access to Enbrel. In Australia, it is new and not covered by the PBS yet which means you want it, you fund it ($20,000+ per year my doc's tell me). The only way to get it is if your rheumy can prove to some invisible government body in the capital city that you have no alternatives left and are suffering severely (must be 16+ joints - which i have) And even then so far, not one of my specialists requests have been approved so those patients cannot work, live on massive doses of prednisolone and anti-inflams to contol the pain but nothing to stop the disease developing and crippling them even further. Terrible!! So the only people on it here are cashed up Judges etc or patients chosen for the scientific trial. You'd think we were in a third world country huh? I wonder if somehow i could get it shipped from the US?? My Rheumy is going to a conference in the US in Oct on Embrel. She has concerns with it's link to Lymphoma and even MS...heard of that?? but plans to check it out further and let me know...no rush by the look of things here though.
I'm really pleased for you NooYorker that it's working so well. I hope i can get it someday. Decided to give Arava a miss. Too many bad reports on the net of deaths and side effects. Until then Sunday is my first dose of Mtx...I'm scared i'll start glowing in the dark or something...some people have told me they've lost weight on it which wouldn't upset me cause the days i'm able to get to gym are fewer lately due to the pain and stiffness...have to take folic acid tabs too...did you become oversensitive at all to the sun??docs tell me you can still drink 6 glasses of alcohol a week.....that's okay with me too...but i doubt they'd want me to have them all in one night, hey? Plan to give the modified diet a go Kycly...less processed foods in the system can't do any harm. Thanks for your response too. Infact a naturopath did some weird Vega allergy testing on me and told me to steer clear of unfiltered tap water and tomatoes...who knows what to believe and what is just a placebo effect because you expect to feel better. It's all trial and error i guess but i'm comforted by all you guys going through it too which makes me feel less angry with the 'why me?' issue. Thanks again!