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Old 02-17-2005, 02:17 PM   #1
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TICKED-OFF HB User
Just started Plaquenil

Hi

I'm new to the Arthritis Board. I have been wasting my time on the Lyme Board for over 1 year. I can tell you one thing I have learned, get a second, third, forth and fifth oppinion and then YOU decide how to care for yourself! Some (most?) doctors don't have a clue. Ask the same question to 5 doctors and you will get 5 different answers.

How is this Drug Plaquenil? Has it worked for you? My doctor said no generic brands allowed.

Thanks for any info you can share.

Arthur Itis

 
Old 02-17-2005, 05:22 PM   #2
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Re: Just started Plaquenil

Seems to help. Minor sideeffects that go way for the most part. I also take MTX and Lodine. Good luck. Cindy

 
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Old 02-17-2005, 05:26 PM   #3
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Re: Just started Plaquenil

OK Cindy

Thanks for the reply.

I will give it a few months and see how it is.

AA

 
Old 02-18-2005, 05:25 AM   #4
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Re: Just started Plaquenil

I started on the generic brand of Plaquenil last August. It took a couple of months to kick in, but it works really well for me. The only side effect for me was nausea for the first two weeks. So far, I'm really happy with my results. Why did your doctor say no generic?

 
Old 02-18-2005, 01:04 PM   #5
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Re: Just started Plaquenil

I'm not sure why but she did stress the fact that it could not be genetic. I will ask her next visit.

Was your change gradual? I have aches and pains all over. I am wondering what I could expect.

Cindy.....what is MTX and Lodine used for?

 
Old 02-18-2005, 04:00 PM   #6
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Re: Just started Plaquenil

Would be interested in why no generic also. I've been on the generic for a little over a year now. Haven't had any problem with side effects. It took about 6 weeks to kick in and did help some but didn't quite do the trick by itself. Tried Methotrexate and Arava and couldn't take either. I'm now on Enbrel and its helped quite a bit.

 
Old 02-19-2005, 09:55 AM   #7
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Re: Just started Plaquenil

Yes, the change was gradual. Hang in there.

 
Old 02-21-2005, 01:25 PM   #8
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Re: Just started Plaquenil

I have been on Plaquenil for about 2.5 years now. I do take the generic. For me, it took about 3 months for it to really kick in. I have been doing well since (knock on wood). I was on 200mg 2 times/day.. now I am down to 1 per day. The good thing about Plaquenil is that it is probably the least "toxic" (for lack of a better word) than many of the drugs out there for arthritis. Just remember to get routine eye exams every 6 months.

Good luck!
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~Allison~

 
Old 02-21-2005, 01:49 PM   #9
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Re: Just started Plaquenil

I'm also taking 200mg 2 times/day.

What exactly is the Plaquenil suppose to do? Is it for pain?

What is MTX and Lodine?

Thanks...

 
Old 02-23-2005, 03:31 PM   #10
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Re: Just started Plaquenil

I don't know if I would consider it wasting time. Alot of people put their arthrits into remission using minocin. Prominent drs. believe that arthritis is caused by a cell wall deficient bacteria.

 
Old 02-23-2005, 06:00 PM   #11
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Re: Just started Plaquenil

I do have a question for Ticked-Off. Can you tell us how long you were on the a/p protocal, what meds you took and if your dr was an a/p dr. or an md?

I have sjogren's syndrome and have read alot about a/p not only for lyme's but also RA and lupus. Any information you can give would be helpful.

Thank you

 
Old 02-24-2005, 07:12 AM   #12
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Re: Just started Plaquenil

I'm sorry twinburl but I don't understand your question.

What is a/p?

I did see a Infectious Disease Dr., Neurologist & G.P.

Last edited by TICKED-OFF; 02-24-2005 at 08:05 AM.

 
Old 02-24-2005, 11:38 AM   #13
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Re: Just started Plaquenil

There is a specific protocol to put rheumatic conditions into remission using clindamycin and minocycline . It is called antibiotic protocol hence the ap. If you do a search for arthritis and minocin You will find the national institutes of health list it as a treatment for arthritis . It is not fast it takes awhile to work but it works on the premise that you have a mycoplasma infection.6 months is not long enough to see if it will work or not.

 
Old 02-24-2005, 12:03 PM   #14
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Re: Just started Plaquenil

Oh.......

Thanks for clearning that up. I have a lot to learn. I will keep reading.

 
Old 02-26-2005, 11:44 AM   #15
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Re: Just started Plaquenil

I've been taking Plaquenil since May 2004. It took about 4 months for me to be able to tell a difference. I gradually noticed that my joint pain was less. I also started MTX in July. Plaquenil and Methotrexate (MTX) are DMARDs and Lodine is an anti-inflammatory. It's important that you visit your opthamologist a couple times a year while you are taking Plaquenil because it can cause retina damage, although this is a rare side effect.

 
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