It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Arthritis Message Board

questions on ankylosing spondylitis


Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 10-10-2007, 01:35 PM   #1
julie2424
Junior Member
(female)
 
Join Date: Oct 2006
Location: sherbrooke
Posts: 32
julie2424 HB User
questions on ankylosing spondylitis

i have a few question about this i was dignosed 3 months ago im on celebrex and amitryline but for the past week my shoulders and arms hurt so bad and in my left side of my chest and it goes down my arm and in my shoulder blades any answer please help

 
Sponsors Lightbulb
   
Old 10-11-2007, 04:30 PM   #2
Norene Maher
Junior Member
(female)
 
Join Date: Sep 2007
Location: Canada
Posts: 23
Norene Maher HB User
Re: questions on ankylosing spondylitis

Hi Julie2424, I have the same problem. Because of the swelling in the ribs and shoulder into the chest it caused me to have Asthma. I take celebrex for the Ankylosing spondylitis and will start to take Remecade in November. I was diagnosed 2 years ago and find my food with alot of exercise helps me function. I go through the bad periods and try to do too much in the good periods. I sleep with ice, its cold but it works. I hope this helps.
Norene
__________________
Rene (canadaeh!)

 
Old 10-17-2007, 07:26 PM   #3
LAK
Newbie
(female)
 
Join Date: Jul 2003
Posts: 4
LAK HB User
Re: questions on ankylosing spondylitis

Quote:
Originally Posted by julie2424 View Post
i have a few question about this i was dignosed 3 months ago im on celebrex and amitryline but for the past week my shoulders and arms hurt so bad and in my left side of my chest and it goes down my arm and in my shoulder blades any answer please help
hi julie:

i'm sorry you're feeling so much pain. unfortunately those are pretty common AS symptoms. i use icy hot patches (large size) for the shoulder blades and the sternum area. it helps relax the stiffness and pain.

you should call your doctor to tell him that the celebrex isn't working and you need something else for your flare. i was on remicade for 6 years. it helped so much, i felt like a normal person at times.

please get better. leslie

 
Old 10-21-2007, 11:02 AM   #4
Norene Maher
Junior Member
(female)
 
Join Date: Sep 2007
Location: Canada
Posts: 23
Norene Maher HB User
Re: questions on ankylosing spondylitis

Hi Leslie,
Can you give me some advice and knowledge about your experience on Remecade. I am suppose to start on November 13. I am a little nervous about the drug.
Norene
__________________
Rene (canadaeh!)

 
Old 10-22-2007, 12:07 PM   #5
LAK
Newbie
(female)
 
Join Date: Jul 2003
Posts: 4
LAK HB User
Re: questions on ankylosing spondylitis

Quote:
Originally Posted by Norene Maher View Post
Hi Leslie,
Can you give me some advice and knowledge about your experience on Remecade. I am suppose to start on November 13. I am a little nervous about the drug.
Norene

hi:

remicade was a miracle drug! the infusions take about 3 hours but they don't hurt at all. once nurse slips the needle in your vein, you just rest, read a book or watch tv. they will give you benadryl and tylenol before hand befort they start the drug.

they will keep a blood pressure cuff on your arm to take your blood pressure every 15 minutes. for some, remicade lowers the blood pressure but i have never had any reactions to this drug.

after the first infusion, i started to feel better. pain and stiffness was lessened incredibly. after the next several infusions, i would even forget to take vioxx pill because i was feeling so good.

congratulations. i know you're going to feel better soon.

leslie

 
Old 10-23-2007, 02:54 PM   #6
Norene Maher
Junior Member
(female)
 
Join Date: Sep 2007
Location: Canada
Posts: 23
Norene Maher HB User
Re: questions on ankylosing spondylitis

Hi Leslie,
Thank you so much for the response. I hope you are well.
Norene
__________________
Rene (canadaeh!)

 
Old 10-23-2007, 04:18 PM   #7
LAK
Newbie
(female)
 
Join Date: Jul 2003
Posts: 4
LAK HB User
Re: questions on ankylosing spondylitis

Quote:
Originally Posted by Norene Maher View Post
Hi Leslie,
Thank you so much for the response. I hope you are well.
Norene
hi norene:

thanks for asking.

unfortunately after 6 years, remicade stopped working. i began taking humira in early 2007. it does not work as well as remicade. right now i'm having trouble with crohn's disease flare. do you suffer from crohn's as well?

leslie

 
Old 10-24-2007, 08:48 AM   #8
Norene Maher
Junior Member
(female)
 
Join Date: Sep 2007
Location: Canada
Posts: 23
Norene Maher HB User
Re: questions on ankylosing spondylitis

Leslie,
That is so funny that you say that. My husband has crohn's and I definately have something wrong in that area. I think it is food sensitivity or allergies that I have developed with this disease. My husband takes sulfasalazine. He loves it, no side effects. It is supposed to be for colitis or ankylosing. He was 9 when he started getting sick, so he knows all meds. He has to have a colonoscopy every 6 months to check for pollops. He feels great now. He starts his day juicing orange,apple, strawberries and sometimes with pineapple if we have it in the fridge. He works out everyday at the gym in his office. We both eat really well. When he has a flare up it is usually because he went off the diet.
I am so sorry to hear that you are suffering from this disease. If we could all have our very own compact porta potty, life would be better. Hee hee!!!
Norene
__________________
Rene (canadaeh!)

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Ankylosing Spondylitis julie2424 Arthritis 18 07-08-2009 06:07 AM
ankylosing spondylitis and Growth Hormone lwgy Arthritis 5 07-08-2009 05:58 AM
Anyone with Ankylosing Spondylitis? sanns29 Arthritis 8 11-06-2006 01:07 AM
Is a heriditary fused vertabrae in cervical spine Ankylosing Spondylitis?? Glenzo Arthritis 1 09-29-2005 04:25 PM
enthesitis froggy123 Arthritis 2 05-22-2005 08:13 AM
Ankylosing Spondilitis karloff Arthritis 22 01-31-2005 07:29 AM
ankylosing spondylitis dorri Back Problems 4 03-27-2003 01:50 PM
How about Ankylosing Spondylitis? dancindoug Suggestions for New Boards 1 04-14-2002 10:35 PM
massage for ankylosing spondylitis ? plymouth Arthritis 1 01-28-2002 07:17 PM




Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:20 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2017 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!