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Old 04-18-2010, 07:03 AM   #1
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Is anyone here on Actemra? Please share your experiences.

I had seven years of relief on Enbrel, then it wore off. I've been through Humira and Cimzia but am going downhill fast. Am considering Actemra but it's so new in the U.S. Anyone?

 
Old 04-18-2010, 08:06 AM   #2
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Re: Is anyone here on Actemra? Please share your experiences.

I'm waiting for the Cleveland Clinic here in FL to approve Actemra. I'm on Enbrel currently and my doc says I'll need a "wash out" period of several weeks before I can start. Really getting desperate for something to work.

 
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Old 04-18-2010, 10:08 AM   #3
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Re: Is anyone here on Actemra? Please share your experiences.

Best wishes to you AuntieLeela. I have been googling left and right, and have only been able to find a few postings on discussion forums from actual patients. Those few postings do indicate very positive results. Some were patients in clinical trials and I think some were posters from countries outside the U.S. where Actemra's been in use longer.

Let us know how it goes and again - I hope it works for you.

 
Old 07-24-2010, 12:27 PM   #4
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Re: Is anyone here on Actemra? Please share your experiences.

Bumping up ... wondering how it's going? Has anyone else tried this? My doc may put me on it soon regardless of the copays.

 
Old 07-24-2010, 01:56 PM   #5
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Re: Is anyone here on Actemra? Please share your experiences.

Nope, can't afford it.

Until I can find some co-pay assistance, I'm stuck on Enbrel/Plaquenil. My SED rate has been good so my doc isn't eager to switch meds right now anyway.

(I'm eager tho, I may have to switch docs . . . this one seems content to watch me tread water)


Good luck! I hope you get it!

Last edited by AuntieLeela; 07-24-2010 at 02:02 PM.

 
Old 07-24-2010, 02:45 PM   #6
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Re: Is anyone here on Actemra? Please share your experiences.

Shucks. My doc keeps saying I have to go on either Actemra or Rituxan but with the Actemra my monthly co-pay would be $500. The stuff is too damn expensive!

If these big pharmas spent a little less on marketing it could be more accessible, but we all know - it's about the bottom line and the CEO bonuses. And if insurance companies would lighten up and consider these drugs as preventive medicine - perhaps avoiding multiple joint surgeries? ... but that's a whole 'nuther can of worms.

Good luck to you and many thanks for replying.

 
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