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So much pain need to vent and need advice!

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Old 07-16-2010, 09:35 PM   #1
Join Date: Jul 2010
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Vincenzio84 HB User
So much pain need to vent and need advice!

Okay so I'm 26 years old, 2 years ago I woke up in severe pain in my lower back, getting a dx has been so so hard, I had a xray of the lower lumbar spine and it showed Spinal Stenosis, Mild Degenerative joint disease, facet joint syndrome. I was going to facility's and never got to see the same doctor. Every single one I saw had a different dx or opinion but must say I should not be in the pain I am for so young... yea it makes me so mad because they dont know how I feel the pain is there. I finally had one doctor who just looked at the MRI and was like yea your spine is messed up and put me on extra str Vic's, muscle relaxers, that worked good for about a year then the pain meds no longer seemed to work so on my next refill visit I ask the doctor if I can get referred to a spine specialist now keep in mind i dont get to see my regular doctor on this visit, so anyways the lady gets mad and ask what a specialist is gonna do for me that their not.. I was kinda thinking maybe fix what it is so I dont have to shove pills down my throat any longer. so anyways make a long story shorter I was offered no help just a script on on my way.. so I got a new doctor who had a private practice, he looked at my medical chart and asked if I was really in pain and I am so he put me on Tylenol 4's which seemed to work good until I got the really severe pain anyways I had a SIJ injection about a week ago the first three days I felt like a human besides my hands, neck, knees and legs.. but it just felt good to not have that back pain.. but now it came back and I dont know what to do I've seen so many doctors and they tell me to go to the ER if the pain is that severe So thats what I did.. now the ER has me on a manage case and wont help me at all seriously I go in with serious pain and they come in and kinda like pick on me like im a pill head.. its not that my SI joint and knees hurt the worst, my hands aint so bad only when opening stuff or for instants using a wrench then they lock up in severe pain.. my neck burns right where it connects to the spine sometimes, now after the SIJ injection the ache is gone but I still have the shooting pain and it hurts so much worse then what it use to, Im loosing it I have 3 girls and a girlfriend who tries to bare this but Im loosing a battle I feel like I cant win I dont know what to do I need advice my knees and legs ache's so bad I can barely walk on them.. I'm scared and dont want to live like this much longer im so young any advice would be appreciated sorry about it being so long and bad grammar

Thank You All

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Old 07-17-2010, 10:40 AM   #2
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Re: So much pain need to vent and need advice!

Have you ever been seen by an arthritis specialist? A rheumatologist?

At your age, there are a couple of arthritic disorders that especially affect the SI joints and lower spine that can also affect other joints. You need to be tested ASAP. One of these is ankylosing spondylitis and the other is reactive arthritis. Reactive frequently follows exposure to an STD so it is most common in young men. The STD can be very minor but your body thinks it's major and goes to town attacking your body. Both of these disorders affect men far more than 9 to 1.

Any problems/pain in your eyes at all? That would point to reactive.

All of these disorders are treatable. Please go see a rheumatologist ASAP.


Old 07-17-2010, 01:49 PM   #3
Join Date: Jul 2010
Posts: 3
Vincenzio84 HB User
Re: So much pain need to vent and need advice!

Thanx Jenny!! I was at the eye doctor a year ago to get glasses and he said my eyes are way to dry and scratchy, I also have bad vision and my eyes hurt to concentrate on things, One of the doctors I seen at the clinic tested me for a STD because he as well thought the pain was caused from a STD All test came back negative tho, I do have OA in my lower spine, and space narrowing in my SI Joint as well, Another doctor at the same clinic said I have crevasses going up and down my spine he didnt understand and concerned him, but like I said this was all at a clinic I never got to see that doctor again Another doctor told me my OA is mild but its in the next stage of advancing, now I'm afraid to ask my doctor for a referral to the specialist you mentioned because he told me if I get sick to much he will no longer see me?? I dont understand how that makes much sense but I'm afraid every move I have made so far has ended up with them think'n im just a pill fiend searching for a high or something to take to the streets and sell but I will mustard the courage and ask him about the arthritis specialist, but they all keep saying arthritis is a natural process of aging, but to have mild arthritis and hurt this much doesnt seem like its just from aging, I really appreciate your reply!!!

Thank You SO SO much again,

Old 07-17-2010, 02:08 PM   #4
Join Date: Jul 2010
Posts: 3
Vincenzio84 HB User
Re: So much pain need to vent and need advice!

hey I read up on the 2 diseases your mentioned and reactive arthritis seems like it could possibly be it, I've had several tract infections before I guess I need to get on these doctors a little more but im afraid of being denied health care any longer it took 2 years to get this far and I still feel like im standing on the start line haha I really appreciate your help tho!!


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