It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Arthritis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 11-30-2011, 12:15 PM   #1
Junior Member
(male)
 
Join Date: Aug 2011
Location: Medina, Ohio USA
Posts: 10
Krazy1 HB User
Ankylosing spondolitis and fatigue...

Hi,
I am having debilitating fatigue all the time. It's like a wooziness that makes me feel like a a big noodle. Can't drive. Can barely work, and I have an easy sit down job. Just started remicade which I felt the best all year for a few days but then it just wore right off.
I know I won't get disability, not that I don't just wanna feel good and kick *** all the time, but I'm on the cusp of a financial downward spiral that's gonna really stink.
Anyone else feel like this? Nothing is helping.

 
Old 11-30-2011, 01:29 PM   #2
Inactive
(female)
 
Join Date: Feb 2009
Posts: 3,897
Blog Entries: 12
jennybyc HB Userjennybyc HB Userjennybyc HB User
Re: Ankylosing spondolitis and fatigue...

Call your doc. Remicade has about a 6 week half life and shouldn't wear off that fast. BUT, you can develop anti-biodies to these drugs and they can stop working...fast. Like you took nothing. You may need to be switched to another drug.

I have Ra and not AS but I got worse on Enbrel, had an immediate allergic reaction to Humira but started on Orencia with great trepidation. I've been on it for 3 years and it has been GREAT!

So call your doc and let them know it just stopped working. It may not be you but the AS and your body working against the Remicade.

Jenny

PS...RA makes you have that fatigue too...like a wet dish rag.....and you know the drugs are working when you have some energy again!

 
The Following User Says Thank You to jennybyc For This Useful Post:
Krazy1 (11-30-2011)
Sponsors Lightbulb
   
Old 01-13-2012, 11:30 PM   #3
Veteran
(male)
 
Join Date: Apr 2005
Posts: 458
Exegesis HB UserExegesis HB User
Re: Ankylosing spondolitis and fatigue...

Hey Krazy,

I was searching for "brain fog" and found your posts. You had written that another poster's symptoms sounded like yours, which were like mine. Now I see that after a few months you post about AS. Is this what they finally found out? If so, how was it diagnosed? I have many symptoms you share plus back pain/burning. I would love to hear back from you.

Regards, Brenden.

 
Old 01-14-2012, 09:28 PM   #4
Junior Member
(male)
 
Join Date: Aug 2011
Location: Medina, Ohio USA
Posts: 10
Krazy1 HB User
Re: Ankylosing spondolitis and fatigue...

Hey thanks Jenny and Brenden. Yes AS is what they diagnosed me with. I am also being treated for a C-diff infection right now too. I am also doing physical therapy for my neck and back too. Yes Brenden I would be more than glad to talk to you. Do you want to call? Let me know. I'd dig that.

 
Old 01-14-2012, 09:43 PM   #5
Veteran
(male)
 
Join Date: Apr 2005
Posts: 458
Exegesis HB UserExegesis HB User
Re: Ankylosing spondolitis and fatigue...

Hi Krazy,

How did they finally diagnose AS? I'd be curious to know. The long and short of my symptoms and history can be found here: http://www.healthboards.com/boards/showthread.php?t=882699

Regards, Brenden.

 
Old 01-15-2012, 11:46 AM   #6
Junior Member
(male)
 
Join Date: Aug 2011
Location: Medina, Ohio USA
Posts: 10
Krazy1 HB User
Re: Ankylosing spondolitis and fatigue...

Wow Man you've been around the block! Sorry to hear that. Well, in 2002 I was diagnosed with ulcerative colitis and had to have my colon removed. That takes 3 surgeries over the course of a year. While i was hospitalized the first time in 02 I got a fuzzy feeling that came over me and has never gone away. The docs all said i was fine so I figured I;d just keep going til i fell down.

Well on jun 18th of 11, I fell down. I didn't pass out, but it was like someone just pulled the plug on me. I slowly got more dizzy til my legs just went out and i sat on the floor. The emt checked my pulse/pressure, o2 level, sugar, temp etc. and said he couldn't find a problem but since i still didn't feel well i should go to the hospital.

I've seen a cardiologist, ENT, and neurologist. One sent me to a physical therapist who said, without examining me, that I had a bulging disc in my neck and began an exercise program right away. I quit that after a week and a half cuz i couldn't duw to the increased pain and dizziness.

so i hit up my GI for giggles and it turns out i have a c-diff infection which i was treated for. I was telling hi9m about my neck pain so he said to see the reumy. My hla-b27 marer was positive so they did x-rays and saw that my back is starting to fuse and that i'm positive for AS due to my autoimmune digestive problems.

They started me on Remicade I just had my 3rd treatment but it doesnt seem to do too much. I still wasn't feeling too hot digestively so i checked with my GI again and after 2 negative tests for cdiff, the 3rd came back positive. So i'm currently being treated with a new med for that.

The pain I can handle but its the wozziness and fatigue that are killin me. I know it could be worse for sure. Im not whining, i just would like to be able to fix this ya know? Hit me up again anytime guys

Kenny

 
Old 01-15-2012, 01:11 PM   #7
Veteran
(male)
 
Join Date: Apr 2005
Posts: 458
Exegesis HB UserExegesis HB User
Re: Ankylosing spondolitis and fatigue...

Hi Kenny,

Thanks for the story. Well, it seems you have your share of problems! That must be difficult. How old are you? I have been reading wher Colitis and AS seem to go hand in hand. I have also read where brain fog sometimes follows a major surgery for some reason, and can remain for a long time. I have no insurance and have been mainly responsible for bankrupting my family due to all of my medical bills. Since I work with my back (I am a painting contractor) it makes work (when there) nearly intolerable. I would love to get to the bottom of all of this so I can get my mental energy (very limited as it is) back on things that are more important, like earning a living with my mind instead of my body (now 46). ;-)

Regards, Brenden.

 
Old 01-16-2012, 08:17 AM   #8
Junior Member
(male)
 
Join Date: Aug 2011
Location: Medina, Ohio USA
Posts: 10
Krazy1 HB User
Re: Ankylosing spondolitis and fatigue...

Brendan,
I'm 36 now. But thinking back I had some terrible leg / hip pain when I was in my early twenties. I actually started feeling fuzzy before my surgeries actually. I have a good friend who is the same age as you who has the same occupation too! He's had AS since he was 4. His went undiagnosed til he was 29.
His neck and lower spine are fused. He said that you just have to take things a day at a time. He works for 4 or 5 hours a day then goes home to rest. He doesn't have a social life to speak of. He told me that the only thing that helps him is a nice hot shower and some tylenol. Thats it.
I understand the money thing. I've been selling off my things to get by along with borrowing money too. I know it could be way worse and I keep that in mind. I have a friend who fell thru a skylight 40 feet in the air. He's in a wheelchair now and has many health problems too. However, he has a great outlook on life and a great family around him.
Well, I'll be talkin at ya later! Take care!

Kenny

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Can Ankylosing Spondylitis or other Spondyloarthropy Disease = debilitating fatigue? Tonee Arthritis 13 01-14-2012 12:01 PM
Ankylosing Spondylitis julie2424 Arthritis 18 07-08-2009 06:07 AM
ankylosing spondylitis and Growth Hormone lwgy Arthritis 5 07-08-2009 05:58 AM
Ankylosing Spondylitis or Fibromyalgia?? I am BLOWN away by the information on this! Deana Arthritis 2 01-29-2007 08:12 PM
Fibromyalgia or Ankylosing Spondylitis ArcticTraveler Arthritis 22 03-17-2006 09:40 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Bextra
Celebrex
Enbrel
Humira Ibuprofen
  Methotrexate
Mobic
Prednisone
Tylenol
Vioxx




TOP THANKED CONTRIBUTORS



jennybyc (108), Haydena (81), Moldova (47), margarita889 (24), Janet20 (16), d j (15), cleftstone (15), ladybud (13), Greengal04 (12), gingertea (11)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (855), janewhite1 (823), Titchou (769), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (654), BlueSkies14 (610)



All times are GMT -7. The time now is 11:50 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!