hi - my mum (54yr) has been diagnosed with PMR 3 months ago, after 3 years of pain. Started in the sole of her foot (bursitis) and gradually moved up her calf muscle, thigh and buttock. Muscles intensely stiff / hard and one side of buttock lost muscle mass completely! Could not sleep as each position painful.
Just recently, the pain has gone further up to her shoulders (both) and headaches started.
Normally, PMR sufferers lose weight. She has put on a lot. Maybe because she could not move. She had a lot of cortisone injections near the hip/buttock.
She is on Prednisone 10mg/day. Rheumatologist started her on 20mg but she could not take it.
Each day her pulse rate is over 100bpm and her blood pressure very low at 128/80 to 162/102.
She looks swolen all over the body. The tablets helped with her foot pain. Gone completely. Other pains still hovering - shoulders and head v bad.
Has anyone had all of these symptoms and been diagnosed with Polymyalgia Rheumatica?
How long have you been taking Prednisone and how much? Did you put on weight? Swelling around the face / headaches? Clumsyness? Slight loss of orientation?
Sorry - Im extremely worried for her and Australian physicians don't seem to know much or have the time for patients! We haven't had much luck anyway! Thanks!
The prednisone should eventually bring it under control but she had it for quite a while so it will take a while to resolve. Her initial symptoms in her foot were very unusual so it made it hard to figure out. PM usually involves shoulders and hips and not the sole of the foot.
Pred can make you gain weight and hold fluid. Her pulse is probably up from the pred but her BP really is okay. She has intense inflammation going on so having symptoms somewhat like having an infection would be natural(high pulse, lower BP). So either pred or the inflammation is doing it. I get the same way when my rheumatoid arthritis is in a big flare up.
Give it some time. This is not something that resolves overnight. She is on a low dose of pred so the lower the dose, the longer it will take to resolve.