| | 28 and inflamed for the first time
I'm new here (just registered) and I figured I'd seek some wisdom from people that have been through this before because I'm in the dark and the dark is a bit scary.
Here's my story:
six weeks ago I woke up with a sore left foot. I went to work and it seemed to get a bit better as I worked (I walk all day long setting up audio visual equipment in a very large hotel). When I got home that night the pain got worse and I was hobbling around. I hopped into bed and slept.
I moved my left foot in my sleep and incredible pain shot through my body. I woke up screaming (scared my girlfriend pretty bad). We got off to the hospital in a fantastic snow storm. I couldn't put any pressure on my foot at all and the 30 steps it took to get to my car, were the worst steps of my life. The pain was on the left side of my right foot in the ankle.
I spent all night in the ER only to be run through the standard tests (x-ray, ultrasound, blood). Everything came back normal so the doctor told me he was treating me as if it was gout. He prescribed me Naproxen 500mg for 10 days and released me on crutches.
I took the Naproxen for the 10 days and the very day I stopped the pain returned in both ankles. This time the worst pain was in the right ankle and the bottom of the right foot. I had also developed a rash on my right wrist.
I went to the family doctor and she prescribed me Indomethacin 50mg twice daily. She sent me to get blood work done as well.
Indomethacin worked for a few hours after I took it and wore off. When it wore off I had flu like symptoms pretty bad. I hated the way this stuff made me feel.
Now the pain had spread to my hips, ankles, lower back, and right wrist.
I went back to the doctor who prescribed me more Naproxen and set me up with a rheumatologist. Naproxen was starting to not work very well after the first 3 days. I was feeling flu like symptoms daily. My blood test came back normal (RA levels normal, Uric Acid normal, everything else normal) except for my C reactive protein (which was due to the inflammation).
I woke up one morning and looked at my ankles. Both of them had swollen up very large. I was actually scared. Both ankles were very warm to touch and the painful spots were now purple. My wrist had a hard bump (which I'm guessing was inflammation) that had taken away my ability to bend my wrist back.
I finally saw the specialist he confirmed arthritis but didn't have an answer. He sent me for more blood work and lung x-rays to test for Sarcoidosis. He prescribed me 40mg of Prednisone for a month.
The first day I took Prednisone my symptoms disappeared. Finally a drug that could actually stop this nightmare. I did my research on the drug and found that it's actually not a nice drug doing great things for me. It's dangerous.
During the next few weeks I became constantly short of breathe, developed a cough, woke up twice a night from cramps in my legs, and experienced stomach bloating and a bit of weight gain (constantly hungry).
I saw the specialist again and he confirmed it wasn't Sarcoidosis and everything else was normal. He told me to start descending off of Prednisone 5mg reduction every 3 days.
On day 2 of taking 5mg I have pain in my left foot again. Today the pain was so bad in the morning that I took 10mg of Prednisone and now the pain is almost gone.
It's been nearly 30 days since I've started on Prednisone and I really don't want to take this stuff. I'd also love to find out what's wrong with me.
If anyone out there can help a man searching for some answers I'd greatly appreciate it and thank you. I know you guys and gals aren't doctors but I'm just looking for your experiences so I'll know which avenues to follow up with at the doctors.