It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Arthritis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 06-18-2012, 03:00 AM   #1
Newbie
(female)
 
alexa28's Avatar
 
Join Date: Mar 2012
Location: Iasi-Romania
Posts: 3
alexa28 HB User
Hello..

Hello..my name is Laura, i'm from Romania, and i have a doughter-4 yars old. She may have PFAPA. Is someone who want to talk to me about that?

Last edited by alexa28; 06-18-2012 at 03:01 AM.

 
Sponsors Lightbulb
   
Old 06-20-2012, 02:48 PM   #2
Inactive
(female)
 
Join Date: Feb 2009
Posts: 3,894
Blog Entries: 12
jennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB Userjennybyc HB User
Re: Hello..

Hello Laura. I'm sorry your little girl may have PFAFA but i did some reading on this and treatment with cholchicine can really, really help her. She can live a full and happy life if taking this drug with few attacks or even no attacks.

Has she been given colchicine yet and if so, has it helped her?

gentle hugs............Jenny

 
Old 06-21-2012, 03:01 AM   #3
Newbie
(female)
 
alexa28's Avatar
 
Join Date: Mar 2012
Location: Iasi-Romania
Posts: 3
alexa28 HB User
Re: Hello..

Dear Jenny,
thank you for your fast reply. My doughter has been treatred with prednison (cortizone) and since march she is doing very well, no fever at all. they have been treated her with this medicine because it was the only thing that gave results. I have not heard about colchicine. pleaase tell me more about it and what are the risks..what about the attacks?
Best wishes,

Laura

 
Old 06-21-2012, 07:30 AM   #4
Facilitator
(female)
 
Moldova's Avatar
 
Join Date: Dec 2006
Location: NYC
Posts: 3,692
Moldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB User
Re: Hello..

Byna ziya Alexa- domnishora! La myls ani!

I read about this syndrome thinking poor kids why they have to go through this... But don't know much about it unfortunately.
But I have suggestion for you. You may find some answers if you go on Auto-immune diseases and also to check Diet and Nutrition boards.
Sometimes people with rare diagnoses go there and you may find some answers.
Personally, I would check Vitamins and Nutrition for your child, often all the symptoms come from deficiencies... I am sorry you have to go through this and I wish to be more helpful.

Best wishes
Moldova

 
Old 06-21-2012, 08:19 AM   #5
Newbie
(female)
 
alexa28's Avatar
 
Join Date: Mar 2012
Location: Iasi-Romania
Posts: 3
alexa28 HB User
Re: Hello..

Hello..thank you so much for your reply..i read about auto-immune diseases..but in PFAPA nothing is for sure..
Thank you..i will read more about what you said..it is a year since fever came..but since march she is doing very wel.

Best wishes,

Laura

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Hello *New On HB* mom has severe Arthiritis. :-( MrsDEngland Arthritis 1 11-13-2011 02:10 PM
Hello Im new here Penny1963 Arthritis 2 10-28-2009 07:02 AM
Hello. Sybaris Arthritis 3 12-15-2008 10:34 AM
Pain... davidzzz Arthritis 28 10-04-2007 01:17 PM
Hello and Help! daddysred Arthritis 0 12-19-2006 07:10 PM
psoriatic arthritis: Help! mcjonval Arthritis 32 09-30-2006 12:29 PM
Hello, I'm new here, just diagnosed with OSTEO (m).. greenacres Arthritis 1 02-14-2005 05:54 PM
RA Factor? What does this mean? Corihere Arthritis 2 12-27-2004 06:36 PM
arthritis in the neck? Mandy904 Arthritis 7 01-19-2004 04:18 PM
Hello everyone Hellion Arthritis 2 06-18-2002 08:34 AM




Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 04:27 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2015 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!