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Old 07-04-2012, 05:29 PM   #1
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Undetermend inflammatory arthritis

Been dealing with an ankle that has been swollen for the past 12 yrs and have been back and forth between Orthopadeic and RA doctors. Was first told a possible fracture and given support braces and told to come back a few months later. No results so sent to a Rheumatalogist who took tests that came back neg for RA but was givne Methotrexate pills to reduce the swelling and stop the ankle joint deterioration. Was on it for 3 mos no results so RA said I didn't have RA and sent me back to Ortho. Years later getting worse my Ortho doc sent me back to RA and again tested neg . RA doc seems to think I have some type of undetermined inflammatory arthritic condition so started me on Methotrexate injections since the pills didn't work years before. I also was on Prednesone which did help but I decided to go off it and now in week 18 waiting for the Metho to kick in . How much longer do I need to wait before trying something else like Enbrel or Humira? After 17]weeks shouldn't I start to see results? Actually the swelling and ankle pain is getting worse. Any suggestions?

 
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Old 07-05-2012, 03:39 PM   #2
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Re: Undetermend inflammatory arthritis

Hello and welcome!

Personally I believe that 6 weeks enough to see any results if any. I was on MTX too and started to feel sick on 4th week. No helpful results and in 2 month my RA took me off it.
You cant decide when you go on Humira or Enbrel; only your DR has to. Strange to me that you 18 month on it, still have inflammation and your DR still keep you on it without doing something about it.
But again, I am not a DR; only based on my own experience or on information I read.
I learned one thing in life - we have to be our own doctors. If you see something is not working, or getting worse - call and go to see her again. Dont hesitate to do so, you pay your money, you are not feeling well so go and ask for your questions to be answered.
Most DR are so busy nowadays that we become just a # not a person. You make sure you let her know that you are person in need.

Best of luck to you dear
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Old 08-01-2012, 12:12 PM   #3
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Re: Undetermend inflammatory arthritis

Did the doctor ever see if a steroid dose-pack would do any good? When I wasn't doing well with the various NSAIDs and the pain in feet and back was still plaguing me, rheumy tried a Medrol pack and everything went away. Even pain I didn't realize was there. It all came back in a couple of weeks, though. One more time he did it, then said it was definitely inflammatory. Started me on MTX. Took about 6 months to really work well. Only not enough for all the pains. Now I'm on a biologic also and diagnosis is firmed up to Psoriatic Arthritis since a long-standing rash on my elbow was ID'ed as psoriasis.

Maybe you need to find another doctor or insist on a plan of treatment agreed upon by the two of you. Google some symptoms of RA and other inflammatory arthritises. See if you fit any of them. Take the info to your doctor. Has he done blood tests? What are those results? You may need to be your own advocate with this doc. Good luck!

 
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Old 08-01-2012, 12:23 PM   #4
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Re: Undetermend inflammatory arthritis

Were you tested for other inflammatory arthritis conditions, like lupus, gout, psoriatic, etc? A couple of more unusual things that can cause ankle arthritis is sarcoidosis. Do you have joint erosions or arthritis anywhere else? I also wonder if you had a bad ankle injury at some time in past, if this is the only joint bothering you. Anyway, after 12 years of problems, and minimal to no help, I would seek advice from a different rheumatologist. The fact that Prednisone helped would tip the scale in favor of an inflammatory arthritis, not osteoarthritis. It seems you are being treated with heavy=duty medications and don't really have a diagnosis. That is essential to get to guide treatment decisions.

Last edited by ladybud; 08-01-2012 at 12:25 PM. Reason: added info

 
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Old 08-02-2012, 08:06 AM   #5
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Re: Undetermend inflammatory arthritis

Quote:
Originally Posted by ladybud View Post
Were you tested for other inflammatory arthritis conditions, like lupus, gout, psoriatic, etc? A couple of more unusual things that can cause ankle arthritis is sarcoidosis. Do you have joint erosions or arthritis anywhere else? I also wonder if you had a bad ankle injury at some time in past, if this is the only joint bothering you. Anyway, after 12 years of problems, and minimal to no help, I would seek advice from a different rheumatologist. The fact that Prednisone helped would tip the scale in favor of an inflammatory arthritis, not osteoarthritis. It seems you are being treated with heavy=duty medications and don't really have a diagnosis. That is essential to get to guide treatment decisions.

 
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Old 08-02-2012, 08:21 AM   #6
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Re: Undetermend inflammatory arthritis

Hi and thanks for the advice . I finally went for a 2 nd opinion at NE Baptist in Boston and met with a Orthopaedic foot specialist who immediately determined the cause of my problem - collapsed arch - requiring a Triple Arthrodesis which is an ankle bone fusing. I went back to my Rheumy after this appoitment and having been in week 20 of Metho injections and agreed with the ortho doc and then took me off the metho. She doesn't think I have an inflammatory arthritic condition. So I am having the Triple Arthrodeis done end of Sept and hoping after that long recovery that my ankle swelling and pain is gone.

 
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Old 08-05-2012, 07:45 AM   #7
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Re: Undetermend inflammatory arthritis

I am so happy for you! Strange that I am happy for someone who needs surgery, but I know how you feel.
Right diagnoses and we all feel so much better thinking that finally on a way of recovery.

Good for you and I wish great results on your surgery dear

Moldova

 
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