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Old 07-07-2012, 07:56 PM   #1
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Psoriatic Arthritis- permanent joint damage reversal?

I was diagnosed with Psoriatic Arthritis late last year after several months of pain in my right heel, that eventually progressed to my entire body as medications were tried.

I am now on Humira( previously Enbrel), both wiped out my entire body pain. I am down to some overall "achy" feelings some of the time, but totally manageable. EXCEPT for my right achilles tendon and right front big toe. My toe is impossible to bend, thought there is no pain at all really. 95% of the time, my right heel is fine enough where I can walk normal, though it does severely pain me some of the time.

My Rheumy believes this is permanent damage. She has set me up to meet with a sports injury specialist to explore trying PRP....Platelet Rcih Plasma therapy, where they soncentrate your platelets for an injection.

Just lookign for ideas and experiences on trying this, or other ideas to regain full use of my dumb toe and the occasional severe paiin in my heel.

 
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Old 07-09-2012, 12:14 PM   #2
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Re: Psoriatic Arthritis- permanent joint damage reversal?

Hi Sotm,

I am glad to hear that treatments working for you! So nice to know that someone is getting benefits from these drugs. May I ask you why your RA switched you from Ebrel if you were doing well on it and put you on Humira? Just out of curiosity.
Honestly, I don't know to what extend damages done to your joint, but I never heard of damaged joints go healthy again. I wish miracles would happen though!
For my damages I had very long PT. I used to walk in warm water swimming pool for an hour 4 times a week, mild exercise and walking, stretches is good as well. Acupuncture is the best treatment ever for any health issue, ortho included.
But nothing brought my damaged joints back to normal or even give me some relieve. With acupuncture was the longest relieve, nothing else really helped.

I never heard about this treatment you are talking about. I would do tons of research on it before I would go and do it. Read information on it, and testimonials of those who had this done.

Best luck
Moldova

 
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Old 07-17-2012, 07:52 PM   #3
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Re: Psoriatic Arthritis- permanent joint damage reversal?

Yeah, the treatment is a new one on me too. From what I have read, it sounds more like it is for physical trauma injuries. I'm going there tomorrow just to see what they have to say about it. It is not covered by insurance, so I will have to save up and be very confident it may do something for me. Open minded on it right now.

Enbrel was no problem for me, but it did not seem to be able to edge out some lower foot pain I was having. That is gone now with humira. I also never take Advil anymore, where with the enbrel I was still heavily on it because my whole body ached. But with humira I have to take a low dose of methotrexate to combat the possibility of my body producing antibodies. Enbrel is painless to inject for me, humira has a slight burn to it, but it is every other week.

Regardless, the vast majority of the time I am pain free enough to walk and work normal. I can even run some, and looking at the scale maybe I should take advantage of that :/. I still wish i could go back to before this crap flared up for whatever reason. But we all get dealt some crap in life. Compared to how I was 7 months ago and to others with far worse afflictions, I'll take this and deal with it.

 
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Old 08-01-2012, 11:58 AM   #4
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Re: Psoriatic Arthritis- permanent joint damage reversal?

Glad to hear you are doing well. I just got dx of PsA after 10 yrs of symptoms and 3 yrs with my rheumy. I've tried Remicade for 6 infusions, 6 months of Enbrel and now on Simponi for 2 injections. Also on MTX. Has a foot/ankle specialist seen your toe? It might be worth the consult before doing a treatment that is not covered by insurance.

My first symptoms were PF, which was persistent enough to require surgery on both feet before the referral to rheumy. Also some hip bursitis. Enbrel took away much of my morning stiffness and helped my stamina, but did little for pain. Thus the change to Simponi. Within 3 weeks of the first dose, I was feeling better. Foot pain sucks, to be sure. I'm 55 this month.

 
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