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Old 07-20-2012, 03:13 PM   #1
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Has anybody else had a hard time getting a diagnosis?

Hi,
I'm a 20 year old female who started having joint issues at age 14. I tend to get swollen, inflamed joints particularly in my arms and hands as well as occasionally in my knees. The pain is most often associated with some sort of physical activity (ex: scrubbing the floors, bowling, etc) that obviously puts those joints to work, but does not strain them. I also notice the pain pops up in cold and humid weather. I've never had any joint or bone injuries, but the pain is so unbearable that when it comes on, I can't move and it even makes me cry. I've had a bit of success with Aleve, although not much and it is very temporary. The pain tends to last about a day or two and then subsides on its own. I've been to several doctors, even a Rheumatologist, and all of my blood tests have come back negative. I've completely given up hope on what might be causing this pain. I've done a lot of research on arthritis but can't seem to find anything that matches my symptoms but RA (but the test results were negative!).

I was wondering if anybody else out there had such a hard time getting an accurate diagnosis, particularly with RA. Any feedback is greatly appreciated!

 
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Old 07-20-2012, 06:26 PM   #2
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Re: Has anybody else had a hard time getting a diagnosis?

Yes, it is very hard to get a proper diagnosis. I am so sorry for u -- so young.

It sounds like RA. Blood tests don't sjow everything. It can take years for something to come up in a blood test. It sounds autoimmune, like a firm of arthritis.

 
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Old 07-21-2012, 10:57 AM   #3
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Re: Has anybody else had a hard time getting a diagnosis?

Hello,

I am so sorry that such complains coming from someone as young as you are... Well, it happens pretty often unfortunately.
Of course I can't diagnose you, I am not a Dr by any means, but based on my own experience, research and reading so many posts, information I can tell you that so many different health issues may give you exact same symptoms. I was really surprised many years ago when I learned that 95% of people have warms in their bodies and some of them may give you joint pains and even fevers. In European countries most Drs send you the lab to find out if patient has them or not when they don't have obvious reasons for a patient to feel ill.
Simple sore throat or strep (the worse) may give joint pain and even inflammation, infection we are not aware of may give you same symptoms.
One lady here wrote that for so many years she suffered from joint problems and although all test came back normal her Dr believed she has some type of arthritis. It was Celiac disease. She was allergic to wheat and after adjusting her diet, all symptoms disappeared.

It understandable when people immediately think of Arthritis or auto-immune disease after having joint pain. Do you know that simple allergy can give you joint problems? And after being on Claritine or related drugs their joint pain goes away? My daughter had no idea what is wrong with her. I cant tell you how many specialists I saw, I was worry she got RA or other auto-immune conditions I have, and only one of them offered allergy shots to see how will she do. Honestly I was so skeptical thinking I don't see any allergy symptoms but sneezing in the morning or sniff here or there. Well, after only one shot, and after he put her on allergy drug every day, she told me that she realized her joints don't swell and don't hurt anymore.

Stress can give you same symptoms too. But if you will go through everything, fixing the stress situation or allergy symptoms and you still feel ill or something continue bothering you, see a specialist and if one tells you you are OK, see another one who may have different ideas.
Not easy to be diagnosed for something like this since it may be just symptoms of something totally different, not the disease it self.

Wishing you health and all the best
Moldova

 
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Old 07-26-2012, 07:32 PM   #4
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Quote:
Originally Posted by mmheller View Post
Hi,
I'm a 20 year old female who started having joint issues at age 14. I tend to get swollen, inflamed joints particularly in my arms and hands as well as occasionally in my knees. The pain is most often associated with some sort of physical activity (ex: scrubbing the floors, bowling, etc) that obviously puts those joints to work, but does not strain them. I also notice the pain pops up in cold and humid weather. I've never had any joint or bone injuries, but the pain is so unbearable that when it comes on, I can't move and it even makes me cry. I've had a bit of success with Aleve, although not much and it is very temporary. The pain tends to last about a day or two and then subsides on its own. I've been to several doctors, even a Rheumatologist, and all of my blood tests have come back negative. I've completely given up hope on what might be causing this pain. I've done a lot of research on arthritis but can't seem to find anything that matches my symptoms but RA (but the test results were negative!).


Please ask your rheumatologist for an ultrasound in your hands. I suffered in exactly the same ways you describe, including my feet. I tested negative in the blood test, but with my rheumi's urging had an ultrasound done on my hands and feet which revealed moderate to severe RA. I am now starting a biological drug after the first line of methotrexate, prednisone, and Celebrex was not enough. Good luck, be persistent
I was wondering if anybody else out there had such a hard time getting an accurate diagnosis, particularly with RA. Any feedback is greatly appreciated!

 
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