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Old 09-24-2012, 04:53 PM   #16
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Re: Foot pain

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Last edited by blessedtobeme; 09-27-2012 at 04:28 PM.

 
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Old 09-26-2012, 05:55 AM   #17
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Re: Foot pain

Hi there Ladies, sorry to but in here but have a question for you both, I to Have RA, and Fibromyalgia, some sort of Nervous disorder, which I think my Gp is still having a problem diagnosing, I also Have a Blood condition, called PV, I have high blood pressure, that they battle with, I'm 43 Now a non smoker, and have been for 140 days. Have 3 beautiful girls, 4 grand babies, My problem like yous is the constant pain, tiredness, stressed out as my legs and arms are so sore, like I having worst cramp in the soles of my feet, top and bottom, Hands are pins and needles, and feel like electric shock sensations at times, it hurt like... I have red palms, sting pains around my nails, I Itch nearly all the time, manly at night which is bothering me more and more, I have been to Neuro and he diagnosed with chronic daily headaches, with med over use, so I can't take any pain killers, on High BP Meds, was on Gabapentin, my Gp now taken me of that,as it wasn't working, he did warn me that I might have to go back on it, cos I was sleeping, now having problem sleeping. I do feel so frustrated, I have a good GP. can you ladies help me out ? I live in New Zealand shaky Christchurch.

 
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Old 09-26-2012, 05:30 PM   #18
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Re: Foot pain

Congrats on quitting smoking. That is a very hard thing to do. Are you saying you have rebound headaches from overuse of headache meds? What does your bloodwork show? I firmly believe that some blood pressure meds will make you more tired than others because since they changed me to Norvasc, I don't sleep as well. What do meds are you taking for your RA?

I wish you luck with a diagnosis for your nervous disorder. I know it can be frustrating.

 
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Old 09-27-2012, 04:54 PM   #19
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Re: Foot pain

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Congrats on quitting smoking. That is a very hard thing to do. Are you saying you have rebound headaches from overuse of headache meds? What does your bloodwork show? I firmly believe that some blood pressure meds will make you more tired than others because since they changed me to Norvasc, I don't sleep as well. What do meds are you taking for your RA?

I wish you luck with a diagnosis for your nervous disorder. I know it can be frustrating.
Hi there again, I have a blood condition, called Polycytheamia Vera, It where my blood make to much Red blood cells and Iron, and not enough Oxygen. I never heard of it before until I was diagnosed with it 14 months ago, I'm not taking anything for my RA, as I can't take any painkillers as they effect my blood, not really sure how that all works. I was taking Gabapentin to help with my nerve pain, but they had taken me off that now as it maybe its not doing it job ther either. They tryed me on Amtriplyine, Nortriplyne, zyban, tramdol, a heap of different types like say I have to becareful as it affect my blood and headaches. for my blood pressure I'm taking Nadol and zapril.. My painmanagement doc can't offer me anything but try there psyhiothearpy in the pool as i have Fibromyglia and that make thing difficult with my legs to get a good sleep as the ache something shocking at night, as for the Itchy back just drive me insane. Here in Christchurch due to the quakes we had most of the hospital services are behind in there waiting list, hopefully they get around to me soon. I go back to my eye specialist next month that will be interesting.Anyway keep intouch all the very best.

 
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Old 09-27-2012, 05:44 PM   #20
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Re: Foot pain

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Hi there again, I have a blood condition, called Polycytheamia Vera, It where my blood make to much Red blood cells and Iron, and not enough Oxygen. I never heard of it before until I was diagnosed with it 14 months ago, I'm not taking anything for my RA, as I can't take any painkillers as they effect my blood, not really sure how that all works. I was taking Gabapentin to help with my nerve pain, but they had taken me off that now as it maybe its not doing it job ther either. They tryed me on Amtriplyine, Nortriplyne, zyban, tramdol, a heap of different types like say I have to becareful as it affect my blood and headaches. for my blood pressure I'm taking Nadol and zapril.. My painmanagement doc can't offer me anything but try there psyhiothearpy in the pool as i have Fibromyglia and that make thing difficult with my legs to get a good sleep as the ache something shocking at night, as for the Itchy back just drive me insane. Here in Christchurch due to the quakes we had most of the hospital services are behind in there waiting list, hopefully they get around to me soon. I go back to my eye specialist next month that will be interesting.Anyway keep intouch all the very best.
Hi Deb, you have so much going on. I can offer you a hug and a smile. I am still new to all of this. I woke up this morning with a new symptom, swollen and painful knees. It was raining and I think that had something to do with it. I can't believe your condition prevents you from receiving any RA meds. It is so important to slow or stop the progression of RA. What do the docs say? I wish you well. Mimi

 
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Old 09-27-2012, 05:55 PM   #21
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Re: Foot pain

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When I think back to what I think started this, I had pneumonia back in January 2011, took me about 6 weeks to get over it. Two months later, I was hit by a horrible, debilitating fatigue and muscle pains. It woke me up, kept me awake, and made me feel stupid at work. I went to my pcp and she did blood work which showed my cpk levels were creeping up. Not fast and not a huge amount. Liver enzymes were, and still, are creeping slowly but surely. She then ordered an EMG 6 months into the symptoms. I had been fairly active before this, gardening, chasing after grandkids, swimming. My pcp started making me feel like I was imagining things when I kept insisting things were not right and asking for more referrals. I think in retrospect, it was very early on and I was just super-sensitive to changes. Saw a neuro who told me I had a tremor and to come back if it got worse.

Coming into the winter with doubts about sanity and living with the gray Michigan weather took me to a low point which is when I was put on the Cymbalta. Shortly after I switched PCPs and the new one (has only seen me once) referred me to the Rheumatologist. It took six months to get in and she ordered all kinds of things, bloodwork, ultrasounds, xrays, 2nd EMG and now muscle biopsy. She said something strange, when she walked in and met me the first time. She said, there is definately something going on, you smell funny. Not bad funny, cause I laughed. Like she could diagnose me just by that smell. Strange.

Sorry so long. By the way, do you have any lung involvement. Like shortness of breath?
Thanks for listening, Mimi.
Hi Sharon, wow, just so much going on. I was hit with extreme fatigue a few years ago and had no idea why. Then they kept saying Fibromyalgia. You know the story on and on. I finally was diagnosed with tachycardia and I thought ok I will get better. But that was not to be. I take Bystolic to slow my heart rate, but it did nothing for my fatigue. You know I can trace little things way back many years. Right now I am exhausted, had the grand babies today. Have a good evening. Sherry
BTW, I have shortness of breath from my heart condition.

 
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Old 09-27-2012, 07:39 PM   #22
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Cool Re: Foot pain

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Hi Deb, you have so much going on. I can offer you a hug and a smile. I am still new to all of this. I woke up this morning with a new symptom, swollen and painful knees. It was raining and I think that had something to do with it. I can't believe your condition prevents you from receiving any RA meds. It is so important to slow or stop the progression of RA. What do the docs say? I wish you well. Mimi
Hi Mimi Oh thanks and hug back, Yes the rain may have something to do with it, mine always seem to show more when it cold, Thank goodness it coming into summer here, and try and get a lttle sunshine and warmth into the achy bones. My Gp doesn't say much about My RA, as he said the other day we got enough to contend with, and I'm not being very helpful, cos my underlying condition is still not known, Idiopathic. MY blood condition, high blood pressure, heart problems, nerve disorder, lung problem, liver and kidney problem, digestive and bowels. Like you say One problem after another, and so tired from it all. To young to have all this problems, as only 43, 44 next month. Anyway I hope you find some sort of comfort, and those knees settle down for you. Keep warm

 
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Old 09-28-2012, 04:58 AM   #23
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Re: Foot pain

I know that the last couple of doctors have been very concerned when they see how high my heart rate is, then they do tests and say nothing unusual. Then why am I always out of breath? Can't walk and talk, can't sing, my voice breaks all the time and what does this have to do with the muscle thing? And they tell you not to be anxious. . . Well, my muscle biopsy is in a couple of days so maybe, just maybe something will surface. I am struggling lately just to get dressed to go to work, let alone keep going the whole day.

Sherry, I hope you have good days and energy to spare. Deb,I hope the warmth comes and makes you feel much better.
Sharon

 
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Old 09-28-2012, 04:49 PM   #24
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Re: Foot pain

wish ya all the best sharon, man I hope you get answer soon, It is all to much at times I know, but hang in there I know how you feel your not alone I have the same problem when walking, my feet ache, and I get so breathless so easy to Just like you say why? stay strong, what we say here in Kai Kaka stay strong.

 
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Old 10-03-2012, 04:15 PM   #25
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Re: Foot pain

Thanks Debnz. I had the muscle biopsy and as a bonus, the doc did a nailfold check, too. Said they looked normal. Wasn't too bad. He said it would be 2 weeks for the results. Feel well, dear.

Mimi, hope you are hanging in there, too.

 
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Old 10-03-2012, 05:28 PM   #26
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Re: Foot pain

Hey Ladies, still hanging in there. Been having a hard time accepting this and dealing with the pain. I start Remicade IV therapy next Wed. Praying it will work. Sharon, I hope you get answers from the biopsy, hang in there. Deb, hang in there yourself! Hope you are doing well. Sherry

 
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Old 10-04-2012, 02:43 PM   #27
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Re: Foot pain

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Hey Ladies, still hanging in there. Been having a hard time accepting this and dealing with the pain. I start Remicade IV therapy next Wed. Praying it will work. Sharon, I hope you get answers from the biopsy, hang in there. Deb, hang in there yourself! Hope you are doing well. Sherry
you to all the best Sherry, I Hope the Remicade IV therapy goes well for you, and that thing settle down, I know what its like to try and accept all of your problem, I seen My counselor yesterday, Had a morbin talk about Wills and leaving all my worthy goods to, It knocked me abit really, when we been trying to stay positive, and strong and looking for some sort of future. but I will follow her advice, as it got me thinking. so might tackle that today. anyway have a good week and talk soon. Deb

 
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Old 10-05-2012, 06:31 AM   #28
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Re: Foot pain

Hi mimi, For RA, have you tried ayurvedic treatment? Most pharmaceuticals can only control the condition unless I'm mistaken. There is treatment that can actually cure through ayurveda. You have to get a good practitioner though. Someone who knows exactly what to do. I've suffered rheumatism of some sort. The doctors didn't quite figure out but I suffered for like 6 years and only saw the light of day (I was in constant pain like 90% of the time) when I went down the ayurvedic track.

 
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Old 10-05-2012, 10:37 PM   #29
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Re: Foot pain

Hi there sherry, sharon, Gugulimo,
On thursday I went back to my GP, as I was having problems with my hands and fingers felt like someone was squeezing with plyers, swelling was problem, so he put me back on the water pill(fluid retention) told me that I have carpel tunnel, and the nerves are having a battle with it all. So he put me back On the gabapentin again, he took me off it as they thought that it wasn't doing anything for me as it clearly was helping with the nerve pain. God I wish I was well, probably like you ladies that you didn't have these problems of poor health. Any how I wish you ladies well, I hope you find the answers you seek, and get a good result. Lord I pray. God bless you all.

 
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Old 10-05-2012, 11:12 PM   #30
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Re: Foot pain

Hi debnz / Hi mimi,

I'll describe the symptoms I've had with this Rheumatism problem and hope it'll give you some ideas. It started off in 2004 (goodness...has it been that long! I didn't realize until I actually thought about the dates...)! I started to get muscle spasms out of the blue and do they lock you up tight! Wow...excruciating pain and inability to move. I have stood, unable to sit until ibuprofen took over and killed some of the pain. Then only could I move. You feel faint because the pain is just so overwhelming. That was my back...like a whole side 'shifts'..(that's how it feels when the spasm comes from the shoulder blade down). Took days to recover each time and I could only control pain. Went to GP, said it was wear and tear of the muscles though I was doing nothing to make that happen. After another year or so I got rather a strange swelling on my toes. Red, swollen, itchy. Thought it was my shoes but then after many painful days it seemed to go off by it self. Didn't think much about that. Muscle spasms continued throughout this time too. Then in the following years I started to have constant back pain. Spine hurt the most and there it doesn't give you a break. Just hurts and hurts and only lying down can ease the pain but sometimes when it is really bad, even lying down doesn't help. I bit the bullet and did not take pain killers though I'd come to tears with it. Rarely did I reach for a paracetamol or ibuprofen because I knew in the long term I'd be in terrible shape. It was absolutely dreadful dealing with the spine aches. Doctors put it down all to "bad posture and computer use". Maybe some of that was contributing but little did they know I had a greater problem internally. Years rolled like this and the pain only got worse. In 2008 I started to feel numbness in my right palm. Then it went further and my hand was getting lifeless. I was only 30 years old and I couldn't believe it. Lifting a tea cup became difficult for me. The pain on the spine was horrid and I had trouble waking up each morning. Woke up with terrible pains that I was unable to get up from the bed. Had to roll over and other side, wait for like an hour to get out of bed and even then, the pain was there which continued throughout the day. I went to a physiotherapist to show this condition. His diagnosis was that my neck 'bones' have become closer which was compressing the nerve leading to the numbness in the right arm. He said that unless the therapy worked, I'd have to face spine surgery. I wouldn't hear of it and the therapy he gave me (pulled up my neck and heated the base), made my arm even worse the next day. I gave up that treatment route and went to get an X-ray only to find out that nothing was wrong with my discs. They were all normal size and distance (imagine that!). Next what was left for me was the ayurvedic route and I took it though I knew barely anything about it. At last, there was a diagnosis and it was called "Ama Vata" in ayurvedic terms. I think the best it translates in to is "Rheumatism". They started treating me with oral and externally applicable medication and my symptoms started to slowly reverse! But the oral medication was too strong for me to tolerate that I developed boils all over :-( So, I went to a different practitioner and he was able to do more for me. He said that it was my stomach that is the cause behind this - too much acid. From what I understood, the 'air' that travels within the body when increased too much causes pain. When there is too much acid, it gets carried all over the body and when muscles receive it constantly, it works as a toxin leading to pain. Somehow, that treatment did a lot for me and I was starting to get better when the last few treatments were again too strong to handle with a full time job. I had to discontinue that and went to a different practitioner. He has been a 'slow and steady' one and with time (10 months now) he has successfully treated my spine pains and cramping issues. The upper back healed like this over the course of 10 months. Again oral and externally applicable oils which were fully ayurvedic. Recently after having to take some antibiotics for a viral / bacterium infection (flu), I developed gastritis / ibs. That was normal pharmacy medicines. The acid in the stomach soared and it has been 2 months now. STILL my back problem didn't appear. I go for check ups with the ayurvedic practitioner and though we had to stop the treatment half way, the initial problem he cured remained under control :-) Now he is starting to treat the lower back portion. I am hoping to see some good results with that too.

So, this is my story with the ayurvedic route. I do recommend it to you but you need a good practitioner. It takes time to heal through this route but as they say, slow and steady does win the race eventually... :-) It certainly has been the case for me and I hope you'll be able to benefit out of it too. Take care.

Last edited by Gugulimo; 10-05-2012 at 11:33 PM.

 
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