It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Arthritis Message Board

dosage of Remicade most oeiole with RA are taking


Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 01-30-2013, 06:34 PM   #1
ladybud
Senior Veteran
(female)
 
ladybud's Avatar
 
Join Date: Jun 2012
Location: Colorado
Posts: 5,974
ladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB User
dosage of Remicade most oeiole with RA are taking

I started taking Remicade infusions 5 months ago, and am now at 400mg. This is my fifth biologic medicince. None of the previous ones worked. Considering each trial uses up 6 months to a year of my life, and drains my pocketbook with no effect on my illness, it is getting frustrating to say the least. I can't tell if this is working yet, and was just wondering what dose most of you are on that actually gave you some improvement. I have 6 months to go before I hit maximum dose, and if this doesn't work, there went another year of my life and thousands of dollars down the drain. I am trying to hang on to some hope, but it is getting very hard to do.

 
Sponsors Lightbulb
   
Old 02-11-2013, 08:18 AM   #2
ladybud
Senior Veteran
(female)
 
ladybud's Avatar
 
Join Date: Jun 2012
Location: Colorado
Posts: 5,974
ladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB User
Re: dosage of Remicade most oeiole with RA are taking

Thanks, Moldova. I am so sorry your disease has also been resistant to so many treatment trials. I am currently on 400 mg Remicade and need to go up (still having flares). I am paying 20% copays, so over 350.00 each month just for infusion. Remistart program apparently doesn't help people on medicare! Why not? I'm on Medicare because of disability, not age, so can't work. I need help just as much as others. Frustrating! Anyway, Ive tried Orencia, Enbrel, Benlysta (I have SLE too), Rituxan, now Remicade. Nothing seems to help except Prednisone, but I am breaking bones and want off it!
Thanks for your kind and empathetic message. It helps to know we're not alone in struggling with our bodies which seem to be in combat within themselves. I hope you find something that helps you!

 
Old 02-12-2013, 07:41 AM   #3
Moldova
Senior Veteran
(female)
 
Moldova's Avatar
 
Join Date: Dec 2006
Location: NYC
Posts: 3,717
Moldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB User
Re: dosage of Remicade most oeiole with RA are taking

Agree 100% and it is very frustrating. I met my ex co-worker who had few surgeries on her hands done due to a very disfigured hands (RA) but this lady has no pain, and on top of everything she is on MTX and Enbrel combination for many-many years and it works wonderful for her. She is 82. I am not even near this age and nothing is working for me.

I like my honest RA DR. She tells me truthfully that I am not alone and that she has patients for whom biologics are not the answer. When I was offered to volunteer for RA research group I met wonderful people with same advanced RA, all of them are not being helped by any of RA drugs. I was lucky enough to attend lecture by a Professor of famous NYC Hospital who specializes in advanced RA who is in doubt if any of RA drugs we have available are actually helpful. Many other specialist agreed with him.
Why?
They said that people whose RA in question or they have mild RA they can't justify if drug really works or not. Many people never had RA but their doctors misdiagnose them and put on treatments so how they really can tell if drugs working or not? Another thing, many doctors keep their patients on Prednisone and add RA treatments to it.
My first RA DR puts me on Enbrel and Prednison. I got better and he told me I am responding good to Enbrel.
The minute I went off Prednisone, all my symptoms came back and Enbrel by itself did nothing for me.
When I discussed all this with my RA Dr she said that a lot of inconsistency with RA treatments. Meanwhile all of them bring our immune system down and making us ill and very weak. I don't mind to go through this if treatments work but why risk your life if nothing is working?
I am with you, this is really upsetting. I am on so many treatments for years and during all this time now my lungs and heart what you call "RA Lung and RA heart" not to mention I came into RA world with normal hands and now they very swollen and show RA changes . Not to mention all my joints/cartridge/muscles, etc are affected by RA. I hope this is not one of the drugs short live and than fly off shelves as many others.
I never paid for infusions, it was done at the Hospital; my insurance covers hospital facilities but I have to pay every month co-pay of $200 for each Orencia delivery.

Lets hope they will finally create a drug which will help people like us, who cant get any relieve. I just hope by that time we are able to walk... lol

Feel better please
Moldova

 
The Following User Says Thank You to Moldova For This Useful Post:
ladybud (02-12-2013)
Closed Thread




Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 09:21 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2017 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!