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Old 09-12-2006, 11:14 AM   #1
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How do you explain to a 9 year old that he has Asperger Syndrome?

Hi all,

I may be putting the cart before the horse but I like to be prepared. Our middle son (we have 3 boys) is 9 and we feel very sure that he will be diagnosed with Asperger. He is to go back for more testing in Oct. with a Neuropsychologist. On the first visit the doctor mentioned it could be Asperger but of course could not make an official diagnosis yet. After what we have read, we as parents are 99.9 % sure.

Sooooo, assuming we get a diagnosis in the next few months, how do you go about explaining it to the child? He already has anxiety about so many things and I don't want to give him a complex or have him go into depression. I think one thing that could be good or bad, is how when he is introduced to something (a subject) that he is unfamiliar with he will ask a million questions. But then he also obsesses on that subject for hours or days. I noticed there are a good many members that post who themselves have this and I would love to hear your opinion on how to tell him.

Just a little history on him, he is super intelligent, makes straight A's in school. He has difficulty with being in situations where there are alot of noises, especially if there are alot of people talking or doing different things at one time. He likes things calm and relaxed and prefers one on one conversation because when he speaks, it takes him a while to say what he has to say because it has to be precise and he is very detailed in what he has to say. When we're all at the dinner table and everyone is talking and interjecting things he gets frustrated because he can't do that, he has to go into a long dissertation on everything. When he starts thinking of something he goes on forever about it and sometimes I feel bad because I have to tell him I just can't discuss this anymore, I have answered all of his questions and he goes on and on. The doctor said that was because of the frontal lobe something or other that he can't shut things down or off. He prefers to be by himself or with adults, kids don't understand him so they usually pick on him or he gets frustrated with them. He's a very picky eater and he'll say things like, "I don't want to eat anything that swims in the ocean, or anything that flys." He likes junk food mostly. He used to throw up at about every meal when we'd try to make him eat what we were having. I finally gave up and just let him do without if he says he doesn't want to try it. When he gets excited about something he'll jump up and down and shake his hands like he's wringing water off of them and he squeels like a little girl. When he's told no about something or that we can't do what he's wanting right that minute, like go to the store to get something, he gets very frustrated and will follow me around saying "why can't we go now" and no answer I give him is good enough. He takes everything literally. But over all, he's a great kid, never causes trouble in school and obeys rules, seems to be a rulekeeper and wants others to abide by the rules. There's so many other little "peculiarities" that we now understand better after reading about Aspergers. Now I can relate to him in an entirely different manner and we all get along better knowing that there's a reason behind the things he does. One more thing, he picks at the tips of his fingers to the point of getting them all infected.

So anyway, sorry to be so long but thank you for reading and any input will be greatly appreciated.

Sincerely,

Neicee S

 
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Old 09-12-2006, 04:21 PM   #2
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Re: How do you explain to a 9 year old that he has Asperger Syndrome?

Their is a fantastic book called Freaks , Geeks and Aspergers Syndromme, written by a young boy here in the UK called Luke Jackson who has AS. I have a copy somewhere (I have a passion for neurodiverse issues) and it is awesome at explaining things.

My personal experience of AS isn't that much, my ex partner has AS, and is proof that AS doesn't have to hold you back in life, my ex is training to be a learning disability nurse, yes my ex lacks empathy skills due to his AS but is learning and it is awesome to see the progress.

I am around most days if you want to ask questions and I can try my best to answer them.

 
Old 09-12-2006, 05:00 PM   #3
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Re: How do you explain to a 9 year old that he has Asperger Syndrome?

Well, I'm 19, and I was diagnosed with Asperger's by my CBT therapist around February/March, and I just got it officially confirmed with my new Asperger's specialist this past Thursday who said that it was "extremely obvious" that I have the "typical expression of the syndrome in a girl." Naturally, since I was about 10 years older than your son when I was diagnosed, I have coped and reacted much differently to the diagnosis. I was very happy to be diagnosed with it because it explained a lot of things that my OCD couldn't (I have both). Now, I realize why I have random breakdowns- it's almost always because of overstimulation. I had one today, in fact, for that very reason... The diagnosis has helped me realize why I have trouble with certain learning styles, so this has helped eliminate some of my feelings of stupidity when I cannot understand something. Since I am intensely interested in neuropsychiatry (it's one of my obsessive fixations), this influenced my reaction differently, as well. It's really up to you, but I think I'd want to be told. It can serve to answer many possible problems in the future, questions about yourself that seem unanswerable. However, if you think he isn't mature enough yet, wait a few years. I think that by middle school, however, your son will need to know, what with the changing aspects of the students' behavior and the changes associated with middle school structure (many classes throughout the day, different learning style needed for work, etc.). Good luck, God bless, and if you have any questions, feel free to ask!
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Old 09-13-2006, 10:35 AM   #4
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Re: How do you explain to a 9 year old that he has Asperger Syndrome?

I read Freaks Geeks and AS as well. It was very good. I did let my son read it when i was done. He is 15 (almost ) though. The boy who wrote the book did say once he knew things just seemed to click for him

 
Old 09-13-2006, 11:02 AM   #5
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Re: How do you explain to a 9 year old that he has Asperger Syndrome?

I do a lot of youth work, and one activity that is helpful is to draw overlapping circles and in each write the main caracteristics (sp*) of a condition and then ask a young person to think about how those things effect them and for them to write in the rest of the circle adn then explain to them that the complete page explains by themselves what they have been diagnosed with.

Does that make sense? hard to explain in a post, especailly as I am dyslexic and not good at spelling!

 
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