help for ones w/ bad prednisone side effects - Asthma Message Board

butterfly22 · 07-24-2001, 08:42 PM

I was on the old site and I was reading some of the effects that people were having from the predisone drug such as severe pain in legs, e.c.t., and I just thought I WOULD write to let you know some interesting facts about why it is that you may be experiencing these problems.I'm 22-I've had asthma now for the last 3 1/2 yr. and when I went to go start college last fall I experienced a very sever asthmatic attack.My Dr.put me on predisone to help my asthma, but it was a week 1/2 later though that I began to experience pain- bad pain!first it was in my kneck and then it began to travel throughout the rest of my body. I would lay in bed and my legs would be like dead weights, and I felt almost as if I was paralized or something. I finally got to the point though where It was impossible for me to even walk because of the pain, and also because my legs and my knees would just collaps on me, so to even make it to classes I had to start using a wheel chair. This all happened after I HAD taken the predisone and had been off of it for several days. About a month later I went home so I COULD get help, and that's when I WAS diagnosed with Fibromyalgia. I don't want to scare any of you, but I recently went to go see a chiropractic nutritionalist and after hearing my story and testing me he told me that my fibromyalgia was and is a result of the predisone drug. Prednisone isn't something to fool around with even if you need it for your asthma!If you need it try to get an alternitive because there are so many risks involved with taking this steroid type of drug. I'm trying to get help for my Fm., but it's going to be a long slow process. The fm. that I have has tried to disable me, but I'm doing the best I can to stay mobile and walking. I just wanted to inform you all who might be having this problem because I know for me the predisone was not a good thing. I hope this helps someone. When I read about some of the symptoms that some of you were having I just had to let you know about what had happened with me.

God bless,
Butterfly22

wrin · 09-23-2001, 07:02 AM

prednisone is the big guns of anti-inflammatories.. my grandmother took it for like 15 or 20 years because of her arthritis and it messed her up but good.. blind in one eye and probably osteoporosis too.

it's not a miracle drug and it's upsetting to hear people say that -- it's the last drug you ever want to ever ever ever be put on. increase your inhaled steroids right to the max before you start taking that stuff. Try other anti-inflammatories like Singulair and Accolate, they're something new that aren't steroidal.

'course there'll always be the people who need to take it b/c thye have asthma that just *is that severe* and that's unfortunate, but please don't say it's a miracle drug.. it'll mess you up proper if you're on it for long enough

debltal · 10-08-2001, 10:22 AM

Well, I had a very long letter and I am not sure what happen. I will make it very short. I became very ill on Prednisone, fired the doctor. Ended up in ICU looking like a balloon. Started out weighing 112 lbs ended up in ICU weighing about 170. I was diagnosed wrong. Needless to say I am ok except I have twenty lbs to get rid of and don't know how. I have always been tiny. I'm very depressed. All this took place in August. I was admitted to the ER three times and all I had was an upper respiratory infection. For about a month I was given anywhere from 600 to 900 mg of prednisone. Any suggestions on how long it takes to lose the weight I look like I'm going to have a baby in about three months and I have a round face. I don't like to go out in public. None of my clothes fit and I can't afford to replace everything in my closet. There was a time that I could not walk. My ankles and knees could not hold me and the pain trying was. Well, lets say that it felt like someone was breaking parts of my body.
In the middle of August I refused to take prednisone the doctor went off the wall but when I would wind up back in the hospital the doctor would order it again, and something to keep me from being sick. They blew out more veins than you could count My arms were black and blue. Two month's later the left one has two places where the spots are still a light blue. If you can help it do not take Prednisone.Needless to say all I needed was an ENT doctor. The doctor I had was playing GOD and would not admit that he didn't know what I had. But he knew for sure and could bet his life on it that it was Asthma. After I fired him I never went back to see him so he never knew just how wrong he was and of course he would not listen to me because he knew it all. What a jerk.
Deb

[This message has been edited by debltal (edited 10-08-2001).]

[This message has been edited by debltal (edited 10-08-2001).]