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Old 08-19-2004, 04:57 AM   #1
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Exclamation He's preparing to die

My husband is 35 years old. He has had asthma his whole life and has been in out of hospitals his whole life. He has been out of work for the past 5 months and now his symptoms have come back and seem to be worse than ever. He has been on prednisone twice in the past 5 months. We have the nebulizer at home. He takes albuterol and combivent inhalers at least 6 times a day, lately, it has been at least a dozen. He takes the advair for his preventative. Allegra, albuterol, prednisone, wellbutrin, remeron, presently on antibiotics for a sinus infection, that keeps coming back. He told me today that he doesn't plan to live long enough to see retirement. I don't want him to die. He is so discouraged about seeing a specialist or trying new meds. Nothing has ever helped before. Please help us!!!

 
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Old 08-19-2004, 07:49 AM   #2
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Re: He's preparing to die

Quote:
Originally Posted by ihateasthma
He is so discouraged about seeing a specialist or trying new meds. Nothing has ever helped before. Please help us!!!
You've probably heard this already, but perhaps I can give you some ideas to ease the asthma.

Anything that your husband breathes or smells, or eats or drinks, or that touches his skin can irritate his asthma condition.

So, to improve an asthma condition, you need to remove as many things that touch his skin, or that he breathes or smells, or that he eats or drinks.

Wall to wall carpetting or upholstered furniture, are bad for asthma sufferers.

Even the smallest amount of dust can bring on asthma symptoms.

Since there are ALWAYS dust and mold particles in inside air, your husband might try wearing a surgical mask, especially when sleeping. Make sure the mask he wears doesn't irritate his asthma. Some masks have a really bad smell.

Fabric softeners and detergents contain many chemicals. Your husband may be allergic to several of the chemicals in fabric softeners. Don't use them.

Stop drinking diet drinks. Don't use artificial sweeteners.

Have husband wear non-allergic gloves when reading the newspaper or the mail. Inks and chemicals in paper are common allergens.

Limit the foods your husband eats. No lunch meats. No sausage. No pre-packaged or frozen dinners. No sauces. No gravies. No takeouts. No desserts. Use vinegar and oil for salad dressing.

Why these food items? You will never know which things provoke your husband's asthma. You need to simplify what your husband eats. If you pick up a food item and look at the label, and it contains a bunch of ingrediants, don't get it.

If your husband KNOWS certain food sensitivities, such as wheat, or milk, or beef, or corn, etc., then, of course, eliminate those from his diet.

Electronic devices could be part of the puzzle. Anything that your husband touches could irritate his asthma.

Limit the cleaners that you use. There are many different, harsh chemicals in cleaners.

Keep all windows closed, either at home or in the car, but you need to air your home out every few days to remove the harmful indoor air.

If you use central AC, make sure the unit is as clean as possible from molds and gunk.

If you have some wooden furniture of cabinets in your place that has an odor, put it in the garage or porch, away from your inside environment.

Your husband could be sensitive to dyes. There are many dyes in clothes and bedding. Your husband might consider wearing a bathing suit all day long, as a test, to limit contact with his skin of materials and dyes.

An allergic reaction can take three or more days to leave the body. So, if you are going to implement a plan to restrict your husband environment and life, then you need to test each "removal" for at least three days, or more.

These steps might seem extreme and difficult to do. I've got asthma and profound heart disease. I've done every one of these steps and my asthma and heart disease is under control.

Good luck with getting your husband's asthma under control.

 
Old 08-19-2004, 05:33 PM   #3
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Re: He's preparing to die

I'm 36 years old and I have had severe persistent allergic asthma since age 3.

I totally know how your husband feels. This time last year, all I could think about was the fact that I would die from this disease. I was on antibiotics and prednisone every 4-5 weeks. I had severe headaches from having to use the albuterol nebulizer every 4 hours. I had to take it to work with me. I thought that if asthma didn't kill me, the meds would. I took 5 meds on a good day, not including the allergy shots, and up to 8 meds on a bad day.

Then I started Xolair a couple of months after it was approved in June 03. Xolair is for allergic asthma. it costs about $2600 per month. It is only available through doctors who get it from specialty pharmacies. It has changed my life completely. I have not had a severe episode since late December. I had some trouble in February when the grasses started blooming and needed a pred taper then, but otherwise, I have had such little trouble that I have quit all the meds except daily antihistamine.

I say this to tell you that this is the best time ever to be an asthmatic. Why? Because it is a persistent disease, pharmaceutical companies are doing all kinds of research into drugs to prevent and treat asthma b/c they know that all of us need these drugs on a regular basis and that they will be able to pay their research costs and make a great deal of money over time. Xolair is a miracle and I know there are other miracles coming.

Your husband needs to see the best pulmonologist available in your area. I go to a pulmonary-allergy specialist.

There is hope. There is hope. There is hope!

 
Old 08-21-2004, 10:13 AM   #4
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Re: He's preparing to die

At least give vitamin C a try. It is cheap and safe and it only takes 3 or 4 days to know if it will help but you have to take it to bowel tolerance or forget it. Please read my post on "Wow this cured my husband's asthma" if you are interested in learning more. My husband doesn't have any asthma now, he can jog and everything. But when he stopped taking the vitamin C for a couple of days the asthma started coming back, so he takes it twice a day every day now.

God bless,
Kime

Last edited by Kime; 08-21-2004 at 10:14 AM. Reason: I put the same sentance in twice.

 
Old 08-21-2004, 09:01 PM   #5
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Re: He's preparing to die

Reader1:

I am interested in Xolair because none of the other drugs I take (except prednisone) seems to control my asthma. Even the prednisone doesn't control it completely. But I could not afford to pay $2600 a month for Xolair. Does your insurance pay for it? I am on Medicare and don't know if they would classify Xolair as a prescription drug or not. If they classify it as a prescription drug, they would not pay for it.

 
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