It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Asthma Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 10-15-2004, 01:22 PM   #1
Newbie
 
Join Date: May 2004
Posts: 4
ToonTownAddict HB User
Prednisone Hell

I have been lurking around these posts for a while now and due to the fact that I am now detoxing from an original dose of 120 mg of prednisone per day started on the 3rd of October and am now at 10mg and going thru withdrawl HELL I have been reluctant to write, my thoughts aren't very cohesive these days and my brain is jello.
Up until I found these posts about the hiddeous side effects of prednisone I thought I was CRAZY!! I have spent endless nights sitting here at the computer researching the side effects and hoping to find someone-somewhere who had the same experiences as me while taking this drug. I have been unable to function as a normal human being and NOBODY in my life understands why....they think I am being a Drama Queen or maybe over exagerating my symptoms. I have been basically bedridden since being discharged from the hospital 2 weeks ago for status asthmaticus. I had the usual course of Nebs, IV steroids, Antibiotics...etc..spent 8 days total in 2 hospitals. Got sent home on 120 mg of Prednisone - Burst and taper to 10 mg as of today. I have gained 37 pounds in 2 weeks, I look ready to give birth which is funny because I can't have any more children. Every single bone and joint in my body hurts like hell, my skin burns, my mouth tastes like salt, I can't sleep, I am sweating like a pig, I have steroid psychosis, I feel like my brain is going to explode and I CANT TAKE IT ANYMORE. My boss at work is ready to fire me, My boyfriend is ready to kill me, my kids are ready to disown me and my life is out of control.
My doctors have stopped short of implying that I am faking this so that I can get pain pills...HA!! The only thing they will give me is Tylenol 3's and those are like friggin baby asprin...plus they only gave me 10 on the day I got out of the hospital and those lasted all of 3 days. Beleive me, if I wanted to get the good stuff I could get it pretty easy, I work in the chemical dependency field and it's easy to find...but I am NOT a drug seeker, I don't even take tylenol unless it's totally necessary !!!! I just don't want to spend another 3 weeks in pain and in bed. Is that too much to ask?
Even the ER doc on Sunday told me that I am "steroid" sensitive and that I should never take Prednisone again, then-a nice pat on the hand-go home and get through it the best you can-thankyouverymuch doctor.
As I sit here now writing this, I am not sure how much longer I can stand this. But it's at least reassuring to know that I am not alone and that this is REAL and I am not imagining it. Thanks for letting me vent.

 
Sponsors Lightbulb
   
Old 10-16-2004, 06:58 AM   #2
Veteran
 
Join Date: Mar 2004
Posts: 393
Blondee15 HB User
Re: Prednisone Hell

It's ok hunny, many of us here on the boards know exactly what your going through, i've been there about the prednisone, it's awful isn't it. I'm sensitive to medication and usually am bed ridden on prednisone with side effects a mile long. It's a love/hate drug. Just remember it's keeping you here.

 
Old 10-16-2004, 11:13 AM   #3
Junior Member
 
Join Date: Aug 2004
Location: Washington State
Posts: 47
BlueBelle2 HB User
Re: Prednisone Hell

You are not crazy. Prednisone can be so helpful at first and then it turns around and bites you in the butt. I too am on prednisone for auto immune anemia. My dose right now is 17.5 tapering from 80 begun in August. The first thing that I thought is maybe you are tapering too fast. You started at 120 just a few weeks ago? And now are at 10. That is really fast. When I was on it in 1998, it took six months to taper from 80 to 0, and when I got close to the 5-10 mg range my body didn't like it and my symptoms got worse. SO I had to bump it up a few mg's and go much slower.

For this episode, I have a diferent doctor and he allowed a fast taper at first. Next week I will probably go to 15, then 12 etc as long as my blood counts stay high enough. The key is to go slowly. I knew what to expect this time - last time I was a total basket case. . .hungry all the time, punchy and mean and I gained weight. I have this time too, but not as much I've been working out, I didn't last time. Still I have the moon face, my neck feels huge and I look like I am pregnant too.

Hang in there. You're not alone.

 
Old 10-16-2004, 02:00 PM   #4
Junior Member
 
Join Date: Sep 2004
Posts: 34
cupcake118 HB User
Re: Prednisone Hell

Hang in there. it will get better, it just takes time. I know how hard the love/hate relationship with this drug is. We know how much it messes up our bodies, yet sometimes we practically beg to have it in order to breathe. Have you read the book cooping with prednisone? If not I would suggest reading it, it has some really helpful tips about hwo to deal with the side effects of this lovely drug. And also the more you are on it, the better your body should be able to deal with the side effects from it, and the better you will be able to judge if you are dropping to fast or not. I know many docs use different taper scheduals and it also varries depending on who you see and how bad off you are...I know i've dropped pretty quickly as long as there were no iv steroids involved, but then sometimes, the docs just put me in charge of the taper since i know my body...any ways i hope you feel better and i'm sure this post isn't very coherent right now as i'm functioning on little sleep right now..but feel better

 
Old 10-16-2004, 03:37 PM   #5
Junior Member
 
Join Date: Jul 2001
Posts: 10
Harmony HB User
Re: Prednisone Hell

Ahhh Prednisone, I have such a love/hate relationship w/ this drug. Hang in there, it will get better

 
Old 10-16-2004, 04:19 PM   #6
Newbie
 
Join Date: May 2004
Posts: 4
ToonTownAddict HB User
Re: Prednisone Hell

Thanks for the words of encouragement guys...
Bad day today....I feel like I want to die!! Everyone is fed up with me and I am fed up with myself!!! I will never ever take Prednisone again, even if that means that I die from the stupid asthma, nothing is worth this.

 
Old 10-17-2004, 02:06 AM   #7
Senior Member
(female)
 
Join Date: Feb 2004
Posts: 112
lu55 HB User
Re: Prednisone Hell

Yes, I went through prednisone hell several times and, like you, vowed that I would die before I ever took it again. And, guess what? I haven't had to take it in 3 years, even though I still have asthma.

I found a new doc that immediately removed me from all steroids and inhalers and put me on glutathione. It's an amino acid that you use w/ a nebulizer. You need a prescription and get it at a compound pharmacy. (My new doc is into integrative medicine.) With the glutathione I immediately felt better. After the first year, I used albuterol probably once. I have not used it since. Do a google search on glutathione; it should explains how and why it works.

I strongly suggest you find a doc that will prescribe this for you. It's certainly worth a try. If it worked for me it may work for you.


Best of luck, Lu

 
Old 10-17-2004, 01:03 PM   #8
Veteran
(female)
 
Join Date: Nov 2003
Location: Isle of Wight, England
Posts: 334
bluebanana HB User
Re: Prednisone Hell

hello
Hang in there honey. I know it's hard. I've been on 40 mgs since april and 10mgs before that. I'm reducing at the mo as I'm on a new treatment which finally seems to be working. I'm down to 20mgs and reduce to 15mgs tomorrow. I am aching all over and feel like poo. I am covered in stretch marks and bruise really easy. When I look in the mirror a stranger looks back, my face4 and body have changed so much. I have had status asthmaticus a fair few time and have ended up in itu with my asthma. Just remember that the drs don't want you on this drug any more than you want to be on it. It is keeping you alive though and status asthmaticus is not somewhere anyone wants to be!
Take care
__________________
Take care

 
Old 11-03-2004, 08:50 AM   #9
Senior Veteran
(female)
 
Join Date: Jun 2004
Location: Kansas
Posts: 1,005
Bell99 HB User
Re: Prednisone Hell

I am so sick and tired from taking Prednisone I feel like I am going to just cry!!! I have had this horrible upper respitory infection. I am on my 2nd pack of Zithromax which is unheard of for me. Last night my Dr. called in Prednisone. It had been ten years since I took this dreadful drug. They neglected to tell me not to take it before bed and I have been up ALL night long. My Mind would not shut down. It was like my eyes were closed but felt pinned open. I have two young children to get to and from school and care for and I honestly am afraid to even drive!! Here is my perdicament?? I took it at 8 last night and don't know when to take it today? I will not take it at night ever again..

Last edited by Bell99; 11-03-2004 at 08:51 AM.

 
Old 11-13-2004, 01:56 PM   #10
SOE SOE is offline
Facilitator
(female)
 
Join Date: Aug 2004
Posts: 2,155
SOE HB UserSOE HB UserSOE HB UserSOE HB User
Re: Prednisone Hell

Quote:
Originally Posted by lu55
I found a new doc that immediately removed me from all steroids and inhalers and put me on glutathione. It's an amino acid that you use w/ a nebulizer. You need a prescription and get it at a compound pharmacy. (My new doc is into integrative medicine.) With the glutathione I immediately felt better. After the first year, I used albuterol probably once. I have not used it since. Do a google search on glutathione; it should explains how and why it works.

I strongly suggest you find a doc that will prescribe this for you. It's certainly worth a try. If it worked for me it may work for you.


Best of luck, Lu
I tried looking it up -- but couldn't find it in anything but a supplement (capsule) -- and not for the treatment of asthma. Can you provide more information?

 
Old 11-13-2004, 05:23 PM   #11
Senior Member
 
Join Date: Apr 2004
Posts: 140
Gal4Dale88USP HB User
Re: Prednisone Hell

I'm so sorry you are going through this,,,it's got to be so hard. I never knew that pred can give you joint pain,,,thought my knee (that has had 3 surgeries on) was going bad again. Sure hope you feel better real soon.
~~Lorrie

 
Old 11-14-2004, 02:39 AM   #12
Senior Member
(female)
 
Join Date: Feb 2004
Posts: 112
lu55 HB User
Re: Prednisone Hell

Regarding the glutathione: you need to get it at a compound pharmacy (they make it there). You also need a prescription for it.

It is well worth finding an MD that will give you a prescription. Remember, this is the supplement that got me off predisone and kept me off the evil drug.

If you have any questions, please let me know.

Lu

 
Old 11-14-2004, 01:34 PM   #13
SOE SOE is offline
Facilitator
(female)
 
Join Date: Aug 2004
Posts: 2,155
SOE HB UserSOE HB UserSOE HB UserSOE HB User
Re: Prednisone Hell

Quote:
Originally Posted by lu55
Regarding the glutathione: you need to get it at a compound pharmacy (they make it there). You also need a prescription for it.

It is well worth finding an MD that will give you a prescription. Remember, this is the supplement that got me off predisone and kept me off the evil drug.

If you have any questions, please let me know.

Lu
What else is in it? What's the dose? I can't find anything on the internet that talks about glutathione in relation to asthma. Also, the only the I find is glutathione as an over the counter supplement. I can't go to my doctor with that kind of information.

 
Old 11-15-2004, 12:29 AM   #14
Senior Member
(female)
 
Join Date: Feb 2004
Posts: 112
lu55 HB User
Re: Prednisone Hell

Look in the yellow pages and locate a compound pharmacy. Ask them if you can pick up the info on glutathione (the kind you use in a nebulizer). My compound pharmacy has such info so I'm assuming others do, as well. However, not all compound pharmacies make glutathione.

Or if you live in a town too small to have a compound pharmacy, google search "compound pharmacy." They should have the info on various compound pharmacy sites.

I find it curious that info on this isn't readily available. Again, please let me know if you can't find it.

Lu

 
Old 11-15-2004, 04:25 PM   #15
SOE SOE is offline
Facilitator
(female)
 
Join Date: Aug 2004
Posts: 2,155
SOE HB UserSOE HB UserSOE HB UserSOE HB User
Re: Prednisone Hell

Quote:
Originally Posted by lu55
Look in the yellow pages and locate a compound pharmacy. Ask them if you can pick up the info on glutathione (the kind you use in a nebulizer). My compound pharmacy has such info so I'm assuming others do, as well. However, not all compound pharmacies make glutathione.

Or if you live in a town too small to have a compound pharmacy, google search "compound pharmacy." They should have the info on various compound pharmacy sites.

I find it curious that info on this isn't readily available. Again, please let me know if you can't find it.

Lu
I called all the compounding pharmacies in my area and none of them have heard of this. Can you be more specific with the information?

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Prednisone induced diabetes Donnia Diabetes 1 09-08-2008 06:54 AM
prednisone - when do side effects go away lilly08 Myositis 7 08-21-2008 08:36 PM
This thread fgr member Whitfield - Prednisone djemcee Pain Management 9 01-20-2007 07:49 AM
prednisone? emily915 Inner Ear Disorders 9 08-30-2005 05:07 PM
I guess I have POTS AND ADDISON'S! So back on the prednisone.... mngirl Addison's Disease 13 03-31-2005 06:44 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:44 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!