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Old 02-24-2005, 02:48 PM   #1
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Unhappy My Son Is Very Sick With Asthma PLEASE Help

Hello all,

I am writing to get some real help for my son.

Since he was 2 years, my son has been an asthmatic. In the early years, we were fortunate to both have health insurance, and the ability to see great doctors and his pediatrician was wonderful. Now, it is quite different. All his expenses our out of pocket, and we have come to the worst attack he has experienced.

Over the past three weeks he has not only continued on his normal, daily, steroidal regime, he has also been on very specific steroids, given Intravenously, at the asthma specialist. Since the 6th of February, he has shown no change, and the only thing that is giving him any relief is the albuterol and Bromide inhalant with the nebulizer.

We have tried to seek a compassionate ear at the National Jewish Medical & Research Center in Denver, but, to no avail.

We are both so frustrated as the system is not set up for helping kids that are this sick.

We are located outside Los Angeles, Ca. Should you have any input to specialists who deal with significant asthma problems and will not cause us to lose the roof over our head, your help and insight would be greatly appreciated.

Sincerely,

Lain Kennedy

 
Old 02-24-2005, 07:04 PM   #2
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Re: My Son Is Very Sick With Asthma PLEASE Help

Hi! My son has also had asthma since he was 2 years. I am lucky to have a
really great allergy doctor for him here in Massachusetts. He was found to be allergic to dust. He has to take Singulair chewables every night. In the warmer months he also needs Zyrtec and he uses his albuterol inhaler as needed. Has your son been tested for allergies? Colleen

 
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Old 02-24-2005, 07:28 PM   #3
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Re: My Son Is Very Sick With Asthma PLEASE Help

Quote:
Originally Posted by lainsajedi
Hello all,

I am writing to get some real help for my son.

Since he was 2 years, my son has been an asthmatic. In the early years, we were fortunate to both have health insurance, and the ability to see great doctors and his pediatrician was wonderful. Now, it is quite different. All his expenses our out of pocket, and we have come to the worst attack he has experienced.

Over the past three weeks he has not only continued on his normal, daily, steroidal regime, he has also been on very specific steroids, given Intravenously, at the asthma specialist. Since the 6th of February, he has shown no change, and the only thing that is giving him any relief is the albuterol and Bromide inhalant with the nebulizer.

We have tried to seek a compassionate ear at the National Jewish Medical & Research Center in Denver, but, to no avail.

We are both so frustrated as the system is not set up for helping kids that are this sick.


We are located outside Los Angeles, Ca. Should you have any input to specialists who deal with significant asthma problems and will not cause us to lose the roof over our head, your help and insight would be greatly appreciated.

Sincerely,

Lain Kennedy
If you look up the green pharmacy and asthma, there are many good suggestions on natural remedies.

Give it a read; however I would check for any interactions of those suggested remedies with the medications he is taking now....make sure they are safe ideas. First and foremost, check anything out with his doctor first before trying any of them.

If they help, maybe eventually he wouldn't need the medication or at least his medication would be more effective for him. Good luck, it must be a hard thing to deal with.

 
Old 02-24-2005, 07:38 PM   #4
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Re: My Son Is Very Sick With Asthma PLEASE Help

My son has an allergy to peanuts that causes his asthma to flare up.
I didn't have health insurance for a while and had to seel my house because I was sick and out of a job. My husband had hip replacement surgery around that time too just before he lost his health insurance due to a job change.
Here in Illinois, we have a great system to help parents with children's health expenses. It's a state program called Kids First. They help pay for hospital stays, medications and treatments. We got our medical care from our county health department. They have a great nurse practitioner there who specializes in asthma AND ADD (my son has that too). that NP is MUCH better than his old doctor. In fact, she runs the asthma and allergy clinic in our area.
These places usually charge on a sliding scale basis.
I used to think that docs who worked in free clinics and such weren't any good. Boy, was I WRONG! I have insurance now and I still take my son to that clinic.
Barb
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Old 02-25-2005, 03:32 AM   #5
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Re: My Son Is Very Sick With Asthma PLEASE Help

So sorry for what you and your family are going through.Have you checked into all possible health programs that are run by your state?i know that many states have special ins programs that are just for children.in MN, we have MN care.it is just a regular insurance program that only would cover your children,but not you.I would contact your state representitives office and see what they might have for you as far as possibilities.Your state reps are there for you(or so they say)Now it is time to have them go to work for you.this kind of thing is supposed to be part of what they do.Please give it a try.Explain to them how bad your sons condition is and all that he needs as far as daily and emergent care,and simply tell them that right now, you cannot give him the standard of care that he needs to stay healthy.i would think that the more you tug on their heartstrings, the further you may get with them.Just don't back down and keep pushing til you get what you need,remember, you are fighting for the health and life of your child.My son had a chronic liver disease that was slowly killing him.He really needed me to be there for him,even on the days where it really felt all so overwhelming and all i wanted to do was hide in my bed.But you just keep telling yourself that you need to to what you have to and suddenly you find out that you are alot stronger than you thought you were.I wish you the best here and really hope that things will work out for your son.Please call your rep today and get this process started.Keep us posted.Marcia

 
Old 02-25-2005, 03:52 PM   #6
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Re: My Son Is Very Sick With Asthma PLEASE Help

I was reading an interesting article the other day and I don't know if this may help anyone. They took a group of asthmatic kids (I would have to look at the article again to see how many) and tested their bedrooms for signs of mice. 85% if their bedrooms were positive. Chemicals in the mouse urine seems to flare up asthma.

 
Old 02-26-2005, 08:43 PM   #7
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Re: My Son Is Very Sick With Asthma PLEASE Help

Hi Lain, sorry to hear about your son. I'm rather surprised National Jewish was less than helpfull, but I have been there twice and both times were actually a waste, yes they found a few issues that I didn't know I had and the reassured me that my docs were doing all they could, but other than that I really didn't get much useful information and no med changes, my asthma is no better controlled now than before I went there.
You say you are outside of LA, have you tried having him evaluated at childrens hospital of LA from what I've heard they're pretty good, I've only been there once and that was for a sweat test, but my pulmos all say they're great there, also I know it's a little bit of a drive but CHOC (childrens hospital of orange) has a great peds pulmo that I used to see and sometimes we still call him in to consult my current treatment , also if you are any where Thousand Oaks I can recomend a good pulmo out there.

 
Old 02-28-2005, 02:45 AM   #8
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Re: My Son Is Very Sick With Asthma PLEASE Help

You might want to get online and check out magnesium, I know they use to use it for asthma before they came up with the current drugs and now it seems they're discovering it again.

 
Old 03-02-2005, 11:26 AM   #9
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Re: My Son Is Very Sick With Asthma PLEASE Help

What is TF chewable?

 
Old 03-07-2005, 01:52 AM   #10
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Re: My Son Is Very Sick With Asthma PLEASE Help

Have you heard of Buteyko breathing - follow it up on the net - but the essence of the idea is that almost all asthmatics actually breathe too quickly - and the simplest recommendation is to breathe through your nose ALL THE TIME - I was asthmatic for 20 years, and hospitilised for asthma once, - since I started breathing through my nose 2 years ago I have not used a ventolin once, and I used to use an entire puffer every 3 weeks or so - I COULD GO ON ABOUT THIS ALL DAY - IT WORKS

 
Old 03-15-2005, 02:12 PM   #11
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Re: My Son Is Very Sick With Asthma PLEASE Help

have you looked at sub cut infusions?They dont' help everyone but have really helped me
I have brittle asthma. Run a search on it and see if your sons symptoms match. A lot of Drs dont' know about it.
Take care
Love Blue
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Old 03-18-2005, 07:57 PM   #12
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Re: My Son Is Very Sick With Asthma PLEASE Help

I would breath through my nose all the time if it wasn't always stuffed. LOL! Many asthma sufferers are like me, where they suffer from severe sinus problems as well. It is an interesting idea though that may work for those who aren't having the sinus troubles.

 
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