Apologies for the layout of this below, its copied and pasted from a log I've been keeping. Finally being sent to specialist at the end of the motnh. Never had asthma or breathing probs until July of last year. Anyone any ideas?
July 2007 Chest infection, tickly cough with stringy yellow phlegm
Saw 3 doctors, breathing got worse, 3rd doc sent me to hospital
August 28th 3 day stay in Hospital. given symbicort, ventilin, predisolone (for 24 days 16x3,14x3,12x3, ..,) allergy tablets, antibiotic. X-ray and blood tests clear
Sept 10th Check-up in Hospital, got all clear
Oct - Bad breathing returned, went to local Doc sybmicort increased 200/6 & steroids, two different antibiotics again.
Dec 13th Pain in arms occurred, darting and very sore. First occurrence of such pains. Breathing bad again (10 days off steroid), given more steroids and sent for ECG.
Jan 14th - Breathing again bad, dark green phlegm. Given singular, antibiotics and more symbicort. Lower back and arm pain intermittent.
Feb breathing improving, first time very good in 7 months. Pains in arm getting worse. ECG & blood tests clear in A&E. Pain eased and didnt occur for 2/3 weeks again. Changed to Seritide from Symbicort.
March 3rd Rash on hand, arm pain again. Conjunctivitis, breathing and phlegm probs again!! Steroid cleared rash and breathing eased for 10/14 days. Blood tests reveal possible arthritis, high white blood cells and calcium.
March 22nd Constant cough and breathing bad (stuck in throat). Given predisolone constant for 5 days (20mgs pd)
April 2nd Pain in both arms returned. Breathing very well. Producing very little phlegm.
April 8th Breathing not as good as last week. Coughing up mostly clear phlegm. No Arm pain in 7 days. Lower back pain, hurts when cough.
WOW - I am very sorry for what you are suffering. Sounds like you got some nasty type of lung infection that may have casued some breathing problems to linger.
I am glad that you are going to see a specialist -he or she will do tests to determine what is happening with you.
It does sound like you may be suffering from asthma - possible brought on by the lung infection
Also, please treat yourself for Acid Reflux/GERD (from all the Prednisone you had to take, really upsetting to the stomach) - try over the counhter Prilosec or Pepcid XS - stomach/acid problems can make breathing really bad.
Also, some of your pain and other symptoms may be Prednisone side effects/withdrawl - please take some time to look into that.
Best of luck to you - I hope that you make out well.
many thanks for your reply Vanessa. some Docs reckon i dont have asmtha, others reckon that I do! I just hope this specialist can wave his/her magic wand and get me on the right road. thanks again for takin time to read it.
After another stay in hospital (it got bad again) and some tests, docs are still uncertain but I may have CSS *Churg Strauss Syndrome. I definitely had Eosinophilic Pneumonia...and after two stints of predisolone (one 6 weeks, one 4 weeks) when two weeks pass without it my breathing gets worse, roof of my mouth is very very wet and soft and everything (at night especially) comes down from my nose to my chest. Makes mornings a horrible experience.
The pain i experienced was from bursting eosinophilic cells, and are apparently meant to be very painful...which sounds about right!
Anyone experience something similar? Or recommend anything? The roof of my mouth is horrible and getting really bad sinisis at times.