Hi, I am new here, and I am so glad I have found this place. I am hoping I can finally get some answers.
About 10 years ago, I was diagnosed with allergic asthma (not excersized induced). I was given albuterol inhaler and this worked perfect for years. I felt immediate relief. My inhaler was my buddy and my rescue.
In the last five years, my asthma is steadily getting worse. I went from mild asthma to being diagnosed with severe asthma with several episodes of severe asthma attacks which required hospitalization and ambulance rides. I have had several allergy tests done and every year I am adding new allergies to those found commonly in the environment (grass, oak, pine, etc). My last allergy test put me allergic to over 500 different common environmental plants. Which now, I am on permanent steroids (predsinone) and on over 12 inhaler and asthma meds a day and also have a nebulizer and epi-pens. I also live 38 miles from the nearest hospital, so my asthma doctor also prescribed 6 epi-pens, I can take one every five mins until my asthma attack either stops or the ambulance arrives. My rescue squad has told me that I am a consideration for fly out by helicopter as they are volunteer and the nearest paramedic is 15 miles away. Sadly, but thankfully, I have gotten to know these people well.
When my asthma attacks initially started when I was first diagnosed, there was a lot of wheezing, coughing, and it was hard to catch my breath, but I could still somewhat talk. I would turn red in the face. But my rescue inhaler always worked. Now, there is little wheezing, I can't get any air in at all and I go from red in the face to my lips turning blue almost instantly. There is little to no warning and I can not get my neb in or my inhaler. I can't speak, I am just gasping for air that I can not get. My heart will race up to 200 beats a min and becomes very irregular and I become very dizzy. I feel completely like a fish out of water. Epi helps but lately it seems I have to go to 2-3 shots instead of just one. I asked my doctor if I could be becoming immune to the meds and he said no, it's just my asthma attacks are becoming very severe. He has warned me to stay away from sick people even though I get the flu and pneumonia shot every year. He also said I may need to move to a completely new area, preferably out west (I live on the east coast now). I feel like I have no life. Everywhere I go, I am followed by my neb, my meds and the fact that I could have a asthma attack at any min. I now have in addition to my asthma doctor, a allergy specialist, a pulmonary specialist and my doctors all have agreed I need to see another specialist. I am wondering why the change in my asthma attacks, I am wondering why these meds are not working and I am also wondering if there is any other diseases out there I should be checked for. Currently, I have been running a fever and I recently was exposed to bronchitis, which I think I am getting as I am displaying some of the symptoms. I don't really want to call my doctor AGAIN, as I seem to be at his office more than I am home, but I am just too young for all this. Also, someone recently pointed out to me, being on too many asthma meds can make one sicker and that I should think about coming off of some of them and see how my body does. I mentioned this to my doctor and he would not entertain it and quite angry with me for even mentioning it. I just feel this is really hard to believe that this is just all my asthma. Any suggestions? Thanks.