I Give Up - Autism Spectrum Message Board

guidos girl · 03-15-2004, 02:59 PM

We just had a session with our daughtors Phycholigest(sp?) I am very confused , angry and hurt. Our daughtor is 8, been diagnosed since 1997 as Asbergs. We have allways had issues with her behaviour. For 3 years she has been on Dexatrin, Novotarazadone and Risparadol. I allways questioned the risparado's side effects because her anger level was getting very high. I asked the Dr. about this and expressed that I was more concerned with her anxicty level. He told me that if I could get her off of it then he would perscribe her Paxil. So I have gotten her off if the risparadol, anger is better but ticks have appeared more frequently, sleep is almost non existant and her anxiety is throught the roof. Well in the visit today, he refused to give us the paxil, said to keep her off of the risparadol and that it seems like she is outgrowing the dosage of dexatrin that she is on.
Ok, so when we talk to him about what to do, he says that it is a parenting issue because she does not have behaviour problems at school. I am so tired of this, he has said this before, but now he is starting again. His reasoning......Autistic children do not hold it in???? OMG I am at a loss, very tired and dont know where to turn. If this all seems like rambeling I am sorry, very hard day.
Please someone give me your thoughts.
Thanks.

BetsyAnn · 03-15-2004, 09:11 PM

I am very sorry for what you are going through. It sounds very frustrating. And I am sure that lack of sleep makes it almost impossible.
It sounds as if you don't see eye to eye with your doctor. Perhaps a second opinion from a different physician is in order.
Best of luck to you and your family.

concerned grand · 03-16-2004, 08:13 AM

Quote:

Originally Posted by BetsyAnn

I am very sorry for what you are going through. It sounds very frustrating. And I am sure that lack of sleep makes it almost impossible.
It sounds as if you don't see eye to eye with your doctor. Perhaps a second opinion from a different physician is in order.
Best of luck to you and your family.

So sorry to hear about your situation. My granddaughter will be 8 in April . She has not been on medication. She is indeed a handful. It can be very trying on everyone. I would go to another doctor for starters. Just remember you are not alone. I will be praying for you!
Concerned Grand

suzann61 · 03-18-2004, 08:31 AM

I do agree about seeing another Dr. Regarding his (dr.) statement about not holding it in behaviour etc....they do I ahve a friend who has a son 14 high functioning autism...and he does go through the day holding things in because he is aware that he is different and doesn't want to stand out...etc...by the time he gets to the car after school he may be angry, or emotional etc because he has tries to mantain all day....

I also have twin boys with autism 13...One does very well in school behaves etc...when he gets home he can be more himself...say silly things,
talks with his hands...watches tv programs that a "normal" 13 year old wouldn't....etc...

Suzann

guidos girl · 03-18-2004, 09:18 AM

Quote:

Originally Posted by suzann61

I do agree about seeing another Dr. Regarding his (dr.) statement about not holding it in behaviour etc....they do I ahve a friend who has a son 14 high functioning autism...and he does go through the day holding things in because he is aware that he is different and doesn't want to stand out...etc...by the time he gets to the car after school he may be angry, or emotional etc because he has tries to mantain all day....

I also have twin boys with autism 13...One does very well in school behaves etc...when he gets home he can be more himself...say silly things,
talks with his hands...watches tv programs that a "normal" 13 year old wouldn't....etc...

Suzann

Our Dr. Tells US all the while looking at me

and says that he has never heard of Autistics holding it in and then letting it all go unless they are "allowed too" and that I am not doing her any good if I "let" her do this. Is there ANY truth to this???