A Good Dose of Medicine ? - Autism Spectrum Message Board

Janie · 03-01-2001, 06:37 PM

Hello, we are new members of the site looking for advice regarding our autistic five year old son's constipation complaint. He is presently on a course of Lactulose, Senacot and Picolax, but we are finding it increasingly difficult to get him to take the Sena or Picolax due to the foul taste and odour. We cannot seem to find anything to disguise this. Can anyone suggest how we might overcome this problem ?

Hayden has been having enemas, administered under sedation, which cause him a lot of distress and only temporarily alleviate the problem, the constant soiling and stomach pains return and seem to get worse. Hayden is currently awaiting an exploratory biopsy.

This depressing situation has now gone on for three years. We would love to introduce the fibre and vegetables into Hayden's diet that the Doctors suggest, but Hayden is a very fussy eater.

We would be interested to hear from anyone with similar experiences and grateful for their advice.

Thanks. David and Janie.

MaryEvelyn · 03-01-2001, 06:49 PM

I am sorry that i have no advice for you about your problem, but I had to coment on your name as it is the same as my sister spelling and all. I know you have tried everything but how about homemade applesauce if you put it in the blender you can keep the skins on and that would add fiber. Sorry not much help but I will ask around.

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Mary Jones
mother of Kyle & Rita

dylingtolearn · 03-13-2001, 10:08 PM

Hello. I just joined this list and I wanted to tell you I empathize completely with the issue you have to deal with.

As a nurse myself, I am curious (my specialty is not in pediatrics) how the number of enemas your son is getting per visit is affecting the natural flora in your son's intestinal tract. I'm just curious. I have friends that have "NT" kids that deal with the same issue as yourself.

Thanks

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Rosie
Mom to Lisa (9)
Michael (6-PDDNOS)
Nicole (4)
Wife to Jim

[This message has been edited by dylingtolearn (edited 03-14-2001).]

firstdonoharm2 · 03-14-2001, 11:38 AM

P.S. An allergy test to gluten or milk (whether positive or negative) is meaningless in diagnosing this digestive problem. It is not based on an allergy. Also, our children with this problem are VERY PICKY EATERS. Does your son prefer milk products? Wheat (gluten) is not the only culprit here.

If your son has these opiod peptides circulating in his system, they are very potent (10-30 times more potent molecule for molecule than morphine). It would be interesting to find out if his high tolerance and reaction to sedatives is affected by morphine.

I just had to respond...I won't bother you anymore on this issue. Take care.