I'm looking for success stories!!! - Autism Spectrum Message Board

Indurance62 · 03-30-2001, 02:56 PM

Hi, I'm Jackie... I'm looking for success stories so if something of someone has helped your autistic child.PLEASE LET ME HEAR FROM YOU !!!!

TIM WIEGAND · 03-30-2001, 05:18 PM

HI JACKIE

MY SON IS 9 AND NON VERBAL, HE CAN DO ALOT WITH OUT HELP. HE HAS BEN TAKING THE SECRETIN INJUCTIONS NOW FOR 2 YEARS. THEY HAVE HELPED A COUPLE OF WAYS.
1. HE DOESN'T GET IRRITATED AS OFTEN AND WHEN HE DOES HE COMES OUT OF IT FASTER.
2. HIS EYE CONTACT AND SOCIAL ACTIVITY IS ATLEAST TWICE AS GOOD.
3. HIS TEACHER AND AID SAY HE STAYS ON TASK BETTER AND EVEN ASK TO DO SOME WORK. THEY HAVE CALLED US BOTH TIMES HE WAS LATE RECEIVING THE SECRETIN ASKING IF IT WAS TIME FOR AN INJUCTION.
ALSO HE HAS BEEN ON A DIET THE LAST YEAR AND HALF, THIS HAS MADE JUST AS MUCH IMPROVEMENT WITH HIS APPITITE AND HIS BEHAVIOR. WE CAN TELL IF HE GETS TO MUCH WHEAT AND YEAST AND SUGAR PRODUCTS. WE CHEAT ON THE DIET AT TIMES AND AS LONG AS THEY DO OK AT SCHOOL HE'S OK, BUT IF WE DON'T KNOW SCHOOL IS GIVING HIM THINGS WE PAY FOR IT WITH HIS BEHAVIOR. MATT DOES TAKE HIS LUNCH EVERY DAY BUT HIS CLASS DOES MAKE MUFFINS AND BROWNIES CAKES WITH ICING COOKIES SO WE HAVE THEM LET US NOW AHEAD OF TIME SO WE DON'T FALL OFF AT HOME.
HOPE THIS HELPS
TIM

ltaddonio · 04-02-2001, 03:30 PM

Jackie My daughter is no longer autistic. There are many many people "curing" thier children of "autism". I know all kids won't respond, but this is worth a try. The "autism" is really an autoimmune disorder. I've found professionals working in the field for 10 yrs plus who say at least 50% of autistic kids respond to this: GFCF diet and many supplements to restore their deficient systems, heal their leaky gut, build their immune system, more. There are quite a few subtypes of these kids, so just the diet alone won't do it. You must become your own researcher and I won't tell you that it is easy. Most things that help cause regression in the short term, and people give up. Most kids are deficient in many minerals and vitamins, can't chelate correctly. I know of ten families doing this with success, all children are under 5, but the older ones don't get toatlly better but they do improve eye contact, gain speech, etc. I, myslef, feel every child deserves a try. A lot of people are skeptical, but I've seen it work. Start with gfcfdiet.com Find links and study everything. You can email me and I'll send you a bunch of links to biochemical treatments. I also have a paper that it the best I've seen yet for understanding this highly complex treatment. Lisa ltaddonio@compuserve.com

krisyd · 04-11-2001, 06:13 AM

Hi! Lisa,
Thank you for the info. Please post the sites for biochemical treatment. Is your daughter still on the diet and supplements? Have you ever done a challenge test to see if her intestine was indeed cured? I've seen significant progress in my son,in the last year. However, if he is exposed to the foods or airborn allergens he will potentially regress in his behavior. What was your complete source of treatment? Did your daughter have any specific tests performed for mercury? What about intestinal studies? Did you perform the chelating? Were you concerned about shifting mercury? What was the proper procedure or protocol for chelating? Were there any side effects? I was wondering if they have come up with an accurate dose for the use of celantro? Did you use digestive enzymes in your daughters treatment? Sorry for all the qestions, but your info could be real helpful to a lot of parents. Please give us a little back round on your daughter, and describe your course of treatment. Sorry for all the questions. Thank you for all you insight.

ltaddonio · 04-11-2001, 11:23 AM

Hi Krissy I will try and answer your ?'s, I have limited time right now. I got my sources from many, many places and have done minimal tests. I got on a long waiting list for a DAN doctor in New England, but it took months and she was GFCF already for months. She has great palins organic urine, great smokies stool and aminos and IgG and IgA for food (gluten and casein were flat, but I used her sib as a control and he's completely casein intolerant. He's 8 today, and broke out into self-stimulatory behavior last year, and I have had his colon Xrayed and he has Wakefield's impaction! He is off gluten and casein and is back to his smart normal self. Back to Julia (not as lucky as Mark): The mercury was in a hair sample pre-diet (by nateopath). I have not chelated Julia, and yes, I am very concerned. I have taken her to another DAN doctor who is specialist in diet and nutrition, treats ASD and does do chelation. Just this morning we drew large amounts of blood from her for all kinds of tests and mercury will be rescreen. He told me some kids are good candidates and others are not, and later he can run tests to see if Julia is one. First we need to confirm it is still there. Julia is now seeing a gastro guy at Mass Gen (who studies the colitis of ASD) and he did gut perm tests on her and is reasobably satisfied she now absorbs. She has beeb GFCF for 14 months, has gained back all her speech, lost the autistic traits (is still quite a handful). If you email me, I'll send you a paper 143 pages long in Word 97 called managing autism and it does mention the cilantro. We eat that all the time here. We do use digestive enzymes, I think SereNaid is appropriate at first and once the gluten and casein has been removed for a while, the gastro guy at Mass Gen said to use Kirkman's brand. He wrote me a prescription for creon if I need even stronger. Julia has just gained non verbal gesture and her expressive language has been coming in since Dec. and she now understands emotion and is having wild mood swings, very bipolar-like. We started with GFCF, we uses EFAs (cod liver oil, others) probiotics she was treated with Nystatin for 5 months last summer, was eradicated for Citrabacter F. (is gone finally nasty pathogen! causes neurological symptoms) we use digestive enzymes, Q-10, glatathione, amino acids at one point, vitamins, minerals, etc. etc. etc. I use as much organic vegetables as possble, only almond milk (no rice milk has ever worked and she went allergic to rice sometime after the start of the diet). I use free-range meat and try and give her all whole food. Any food with chemicals my husband screens (knows chemistry) and most chemicals are unacceptable including all dyes, preservatives, I don't even use regular salt (sea salt and make sure your child get's enough iodine). Limit sugar!!!!! None at the beginning. I will write back in case I lose this. Lisa