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Old 04-06-2004, 11:51 AM   #1
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Mommyof4 HB User
SID and Autism

My son is almost 21 months and we are going through the "working diagnosis" phase right now. He is going to be seeing a Dev Ped in a few months where I will hopefully get some answers. Right now he has been diagnosed with Dysphagia, Apraxia, Aphasia, and SID.

I am wondering if anyone with an ASD diagnosis dealt with SID first or if they deal with both conditions. I don't know if he really has ALL of these conditions or if they will fall into an umbrella diagnosis.

EI is coming on Thursday and we are seeing OT weekly but ST was denied by our insurance. We are in the appeal process now. I am wondering what I can be doing with him at home. I am also wondering who does feeding therapy, the OT or the ST, because since he has the oral issues and the dysphagia, he gags and chokes. I think feeding therapy will really help this.

Any ideas would be appreciated
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Mindy (Type 1 Dx'd 11/94..Insulin Pump)

 
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Old 04-24-2004, 10:15 PM   #2
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marty sorensen HB User
Re: SID and Autism

I'm a Grandma of autistic twin boys, 5. Tom had low muscle tone & trouble chewing.The OT gave him lots of help. He is the BEST eater in the house.
Good luck. We live in WI. and HAD great programs til Bush decided we needed to fight all over the world. My grandchildrens therapy has been cut about 50-60%. Sorry to get political but when you spend billions a day fighting, where do you think the money to fund special needs will come from? I keep praying

 
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